| 1. |
- Stalberg, Anna, et al.
(författare)
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Children's Right to Health through the Principles of Protection, Promotion, and Participation, from the Perspectives for Children, Parents, and Professionals : A Systematic Review
- 2024
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Ingår i: Child Care in Practice. - : TAYLOR & FRANCIS LTD. - 1357-5279 .- 1476-489X.
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Tidskriftsartikel (refereegranskat)abstract
- This systematic review aimed to identify how children's right to health, connected to the principles of protection, promotion, and participation, and from the perspectives of children, parents, and professionals in preschool, school, and healthcare has been empirically demonstrated by international scholars between 1989 and 2021. Following the standards of PRISMA-P, two searches, in 2018 and 2020, were conducted in seven databases. In total, 561 studies were found and after the screening process, which entails reviewing titles, abstracts, and full text-versions, 49 studies were finally included. A deductive qualitative content analysis, proposed by Elo and Kyngas, was performed. According to the findings, protection was demonstrated as Being protected from harmful acts and practices and being entitled to special care and assistance. Promotion was demonstrated as Possessing of resources and Receiving of services, and participation as Being heard and listened to and Being involved in matters of concern. Conforming to the findings, although presented separately, protection, promotion, and participation could be understood as interrelated concepts. In summary, children's right to health was demonstrated within two major fields: as the use of their own resources, and trust and as aspects provided by adults as support and safety. This is the first review of studies, published 1989-2021, identifying children's right to health through the perspectives of protection, promotion, and participation. During this period, children's right to health has mainly been demonstrated in studies from a healthcare context. All researchers, policymakers, health workers, and politicians should include children in all decisions that concern them, to increase their participation. As children's health is closely linked to their physical, social, and cognitive development there is a need for more studies exploring children's right to health in preschool and school contexts in which children spend their everyday life.
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| 2. |
- Almqvist, Anna-Lena, 1963-, et al.
(författare)
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Tensions and change in liminal spaces – Young people in Swedish out-of-home care
- 2024
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Ingår i: Children and youth services review. - : Elsevier Ltd. - 0190-7409 .- 1873-7765. ; 157
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Tidskriftsartikel (refereegranskat)abstract
- The objective of this paper is to further the understanding of young people's experiences of out-of-home care (OHC). The focus will be on the tension between negative and positive experiences of OHC, refracted through the concept of liminality. The study is based on semi-structured interviews with 10 young people aged 15–22 (7 women, 3 men) with long-term contact with social services and psychiatric care. OHC can be experienced as a liminal space in both a negative and a positive sense. It is negative when perceived as containment rather than meaningful treatment. It can also be a negative experience when connected to fear, a lack of influence, and uncertainty in terms of being in between the social services and psychiatric care. It is positive when it is perceived as a turning point that enables positive change. It is then connected to feelings of meaningfulness, being respected, hope, and empowerment. The young people participating in the study also connect their experiences of OHC to a context of greater austerity in the welfare state. They reflect upon the benfits of OHC in terms of costs for society, but also the costs for the young person if the OHC is not perceived as meaningful support leading towards positive change. The participants have complex, interrelated needs and problems, and they also experience institutional gaps between psychiatric care and social services. It is important to overcome these gaps, so that young people are not located in ‘in-between spaces’ in terms of service provision.
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| 3. |
- Almqvist, Anna-Lena, 1963-, et al.
(författare)
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Understanding complex needs through the concept of recognition : A qualitative study with Swedish young people about their encounters with welfare state actors
- 2022
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Ingår i: Nordic Social Work Research. - 2156-857X .- 2156-8588. ; 12:5, s. 716-727
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Tidskriftsartikel (refereegranskat)abstract
- The paper uses the concept of recognition to investigate how young people labelled as having ‘complex needs’ experience their encounters with welfare state actors. Semi-structured interviews were held in 2018 with 14 young people, aged 15–22 years, in two Swedish municipalities. The participants have received multiple, long-term interventions from social services and psychiatric care. Research questions are: What aspects in the encounters between welfare state actors and young people may contribute to complexity in their life situations? How can Honneth’s concept of recognition illuminate this complexity? Aspects that have contributed to complexity in young people’s life situations are related to acts of dismissal. These dismissals by welfare state actors are interpreted as forms of disrespect as regards affection, rights or solidarity. Barriers to recognition are also related to the participants’ young age and position as children, and what this implies in a particular society. Our findings show that the difficulties young people face in their encounters with welfare state actors are partly due to the high level of specialization which contributes to an increased organizational complexity. Implications include that, when encountering young people in complex life situations, welfare state actors need to consider the importance of recognition as regards affection, rights, and solidarity. Recognition is central to achieving a positive outcome in working with young people in complex life situations and is expressed in social interactions. Therefore, building relationships needs to be more highly prioritized in welfare state organizations. young people in complex life situations and is expressed in social interactions. Therefore, building relationships needs to be more highly prioritized in welfare state organizations.
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| 4. |
- Anbäcken, Els-Marie, 1954-, et al.
(författare)
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Older adults and care: reshaped family roles in societal change : A comparative study of Japan, South Korea, and Sweden
- 2021. - 1
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Ingår i: Aging and the Family. - Bingley, UK : Emerald Group Publishing Limited. - 9781800714915 - 9781800714908 ; , s. 1-38
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Bokkapitel (refereegranskat)abstract
- Purpose: The aim is to explore how family relations are affected by societalchanges in relation to informal and formal caregiving and self-determinationof older adults.Design/methodology/approach: Care managers (CMs)/social workers (SWs)(N = 124) participated in a comparative vignette study including Japan, SouthKorea, and Sweden. Systems theory was used.Findings: Japanese CMs/SWs clearly describe their efforts to create networksin a relational way between formal and informal actors in the community. SouthKorean CMs/SWs balance between suggesting interventions to support dailylife at home or a move to a nursing home, often acknowledging the family as themain caregiver. In Sweden, CMs/SWs highlight the juridical element in meetingthe older adult and the interventions offered, and families primarily give socialsupport. Regarding self-determination, the Japanese priority is for CMs/SWsto harmonize within the family and the community. South Korean CMs/SWsexpress ambivalent attitudes to older adults’ capability for self-determination inthe intersection between formal and family care. Swedish CMs/SWs adhere tothe older adult’s self-determination, while acknowledging the role of the familyin persuading the older adult to accept interventions. The results suggest emergingdefamilialization in South Korea, while tendencies to refamilialization arenoticed in Japan and Sweden, albeit in different ways.Research limitations/implications: In translation, nuances may be lost. Afocus on changing families shows that country-specific details in care serviceshave been reduced. For future research, perspectives of “care” need to be studiedon different levels.Originality/value: Using one vignette in three countries with different welfareregimes, discussing changing views on families’, communities’ and societal caregivingis unique. This captures changes in policy, influencing re- and defamilialization.
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| 5. |
- Andersson, Anna Karin, et al.
(författare)
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Meaningful everyday life situations from the perspective of children born preterm : A photo-elicitation interview study with six-year-old children
- 2023
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Ingår i: PLOS ONE. - : PUBLIC LIBRARY SCIENCE. - 1932-6203. ; 18:8
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Tidskriftsartikel (refereegranskat)abstract
- AimThe aim of the study was to explore meaningful everyday life situations as perceived by six-year-old children born preterm. Materials and methodsThe study had a descriptive qualitative design with an inductive approach. Ten, six-year-old children born preterm, not diagnosed with any disabilities, participated. Data was collected by photo-elicitation interviews to stimulate and help the children to describe their meaningful everyday life situations. A qualitative content analysis according to Elo and Kyngas was applied. ResultsThe children's descriptions of meaningful everyday life situations can be understood as being in an active and dynamic process, representing the core category. The analysis resulted in three generic categories, as the children described the significance of having significant circumstances and doing things. The experiences the children gain when they do things create their desire for further development. DiscussionThe results reveal that children born preterm are able to reflect on and give detailed descriptions of situations of importance to them. The study suggests that if six-year-old children born preterm are given the opportunity to share their views they can take an active role e.g. in planning and carrying through of interventions by health care services.
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| 6. |
- Appelgren Engström, Heléne, 1968-, et al.
(författare)
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Associations between heteronormative information, parental support and stress among same-sex mothers in Sweden-A web survey
- 2021
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Ingår i: Nursing Open. - : WILEY. - 2054-1058.
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to investigate same-sex mothers' self-assessed experiences of forming a family, and the association between heteronormative information, parental support and parenting stress. Design: A quantitative, cross-sectional study. Methods: In a web survey conducted in Sweden in 2019, same-sex mothers (N = 146) with a child aged 1-3 years answered questions about their experiences of forming a family through assisted reproduction and questions about parenting stress. Descriptive statistics describes the process of forming a family. Pearson's correlation analyses and independent sample t tests were used to test hypotheses about heteronormative information, parental support and parenting stress. Results: Same-sex mothers experienced going through assisted reproduction treatment as stressful, and parental groups as not being supportive. Heteronormative information correlated with both lower perceived parental support and higher perceived parenting stress. Non-birth mothers experienced less acknowledgement and support than birthmothers.
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| 7. |
- Appelgren Engström, Heléne, 1968-
(författare)
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Family formation in two-mother families : Experiences of parental support in antenatal and child health care in Sweden
- 2021
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- The aim with the thesis was to examine same-sex mothers experiences of forming a family, pregnancy, parenthood and parental support from professionals in antenatal and child health care. An additional purpose was to explore professionals' experiences of meeting and supporting families with two mothers.The results are based on four articles (three studies). The project started with exploratory semi-structured interviews (n = 20) with mothers in same-sex relationships who had children with the help of assisted reproduction at a Swedish clinic. Thereafter, a web survey was designed based on the results from the first sub-study. The survey, as well as a survey on perceived parenting stress (SPSQ), was answered by 146 mothers in same-sex relationships. Finally, focus groups were held with professionals (n = 13) in antenatal and child health care with experience of meeting and supporting families with two mothers.The results showed that the mothers in same-sex relationships experienced the process of forming a family as a stressful journey in a heteronormative world, and that they lacked psychological / emotional support (Articles I, III). The results also showed that the mothers strived for equal parenthood and that they lacked professional support (Articles II, III).Furthermore, the results showed that the non-birth mother experienced a lower degree of acknowledgement from antenatal and child health care than the mother who gave birth, and a lower degree of support from antenatal care but no difference in the experience of support from child health care. The mothers also experienced a low degree of parenting stress (Article III).Professionals strived for an open approach in meeting new parents. They met well-prepared mothers who planned for equal parenting. Professionals expressed that they either gave equal support to all parents, or that they provided tailored support to same-sex mothers (Article IV).The thesis contributes with an in-depth understanding and increased knowledge about mothers in same-sex relationships' experience of family formation as well as their experience of treatment and support from professionals in antenatal and child health care. Furthermore, it also shows professionals' experiences of meeting and supporting families with two mothers.
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| 8. |
- Appelgren Engström, Heléne, 1968-, et al.
(författare)
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Professionals' experiences of supporting two-mother families in antenatal and child health care in Sweden
- 2022
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Ingår i: Scandinavian Journal of Caring Sciences. - : WILEY. - 0283-9318 .- 1471-6712.
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Tidskriftsartikel (refereegranskat)abstract
- Background In Sweden, antenatal and child health care are offered free of charge to all expectant and new parents. Professionals in antenatal and child health care play an important role in supporting parents. Previous research shows that same-sex mothers face heteronormative assumptions and insufficient support during their transition to parenthood. Objective To explore professionals' experiences of supporting two-mother families in antenatal and child health care. Method A qualitative method with focus group discussions was used. An interview guide was followed, and the discussions were held online. The data was analysed according to inductive content analysis. Settings and participants The participants were midwives (n = 8) and nurses (n = 5) in antenatal and child health care from different parts of Sweden. Participants were recruited through the coordinating midwives and child health care nurses in the different regions. Findings One main category was identified: Striving to be open-minded in supporting same-sex mothers. Health care professionals described meeting well-prepared mothers, with an equal commitment between each other, and mothers on guard against heteronormative views. Professionals provided support through empowerment by creating a safe environment and aiming at providing equal support to all parents or tailored support to same-sex mothers. Mothers described handling challenges, as a balancing act to acknowledge both mothers. Struggling with documents and communication and a lack of information were other challenges to be handled. Professionals reflected on their own professional competence and expressed that knowledge acquired through education, experience and personal interest all contributed to their competence. Conclusions Forms and documentation need to be updated to be gender neutral to be including to a variety of family constelleations. Health care professionals need time to reflect on norms and challenges to better support both mothers in a two-mother family.
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| 9. |
- Danielsson, Henrik, et al.
(författare)
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A Systematic Review of Longitudinal Trajectories of Mental Health Problems in Children with Neurodevelopmental Disabilities
- 2024
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Ingår i: Journal of Developmental and Physical Disabilities. - : Springer. - 1056-263X .- 1573-3580. ; 36, s. 203-242
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Forskningsöversikt (refereegranskat)abstract
- To review the longitudinal trajectories - and the factors influencing their development - of mental health problems in children with neurodevelopmental disabilities. Systematic review methods were employed. Searches of six databases used keywords and MeSH terms related to children with neurodevelopmental disabilities, mental health problems, and longitudinal research. After the removal of duplicates, reviewers independently screened records for inclusion, extracted data (outcomes and influencing factors), and evaluated the risk of bias. Findings were tabulated and synthesized using graphs and a narrative. Searches identified 94,662 unique records, from which 49 publications were included. The median publication year was 2015. Children with attention deficit hyperactivity disorder were the most commonly included population in retrieved studies. In almost 50% of studies, trajectories of mental health problems changed by < 10% between the first and last time point. Despite multiple studies reporting longitudinal trajectories of mental health problems, greater conceptual clarity and consideration of the measures included in research is needed, along with the inclusion of a more diverse range of populations of children with neurodevelopmental disabilities.
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| 10. |
- Granlund, Mats, 1954-, et al.
(författare)
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Definitions and operationalization of mental health problems, wellbeing and participation constructs in children with ndd : Distinctions and clarifications
- 2021
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 18:4, s. 1-19
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Tidskriftsartikel (refereegranskat)abstract
- Children with impairments are known to experience more restricted participation than other children. It also appears that low levels of participation are related to a higher prevalence of mental health problems in children with neurodevelopmental disorders (NDD). The purpose of this conceptual paper is to describe and define the constructs mental health problems, mental health, and participation to ensure that future research investigating participation as a means to mental health in children and adolescents with NDD is founded on conceptual clarity. We first discuss the difference between two aspects of mental health problems, namely mental disorder and mental illness. This discussion serves to highlight three areas of conceptual difficulty and their consequences for understanding the mental health of children with NDD that we then consider in the article: (1) how to define mental health problems, (2) how to define and assess mental health problems and mental health, i.e., wellbeing as separate constructs, and (3) how to describe the relationship between participation and wellbeing. We then discuss the implications of our propositions for measurement and the use of participation interventions as a means to enhance mental health (defined as wellbeing). Conclusions: Mental disorders include both diagnoses related to impairments in the developmental period, i.e., NDD and diagnoses related to mental illness. These two types of mental disorders must be separated. Children with NDD, just like other people, may exhibit aspects of both mental health problems and wellbeing simultaneously. Measures of wellbeing defined as a continuum from flourishing to languishing for children with NDD need to be designed and evaluated. Wellbeing can lead to further participation and act to protect from mental health problems.
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