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| 2. |
- Andershed, Birgitta, et al.
(författare)
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An isolated involvement in mental health care : Experiences of parents of young adults.
- 2017
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 26:7-8, s. 1053-1065
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Tidskriftsartikel (refereegranskat)abstract
- AIM: The aim of this study was to explore parents' involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of "Involvement in the light - involvement in the dark" in the context of mental health care.BACKGROUND: Mental illness has increased among young people in high-income countries and suicide is now the leading cause of death for this group. Because of their disease, these young people may have difficulty in carrying out daily, taken-for-granted, tasks. Consequently, they often become dependent on their parents, and their parents shoulder a considerable responsibility.DESIGN AND METHODS: A secondary descriptive design with a deductive content analysis was used. Ten parents who have a son or daughter with long-term mental illness (aged 18 - 25) were interviewed. The deductive analysis was based on the caring theory of "Involvement in the light - Involvement in the dark".RESULTS: The results are described using the following concepts in the theory: "Knowing", "Doing", "Being" and "Attitude of the health professionals". The result are to a great extent consistent with the "Involvement in the dark" metaphor, which describes an isolated involvement in which the parents were not informed, seen or acknowledged by the health professionals. Continuous support by professionals with a positive attitude was described as being of decisive importance for meaningful involvement. This article is protected by copyright. All rights reserved.
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| 3. |
- Bergdahl, Elisabeth, 1962-, et al.
(författare)
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The theory of a co-creative process in advanced palliative home care nursing encounters : A qualitative deductive approach over time
- 2019
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Ingår i: Nursing Open. - : Wiley-Blackwell. - 2054-1058. ; 6:1, s. 175-188
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Tidskriftsartikel (refereegranskat)abstract
- Aims and objectives: The aim of this study was to test the theoretical conceptualization of the co-creative process in home care nursing encounters over time.Method and design: This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases.Results: The co-creative process was complex and contained main, sub- and micro-processes. Time was important and valuable, giving the patient and relatives space to adjust the process to their own pace. Some processes were worked on more intensively in accordance with the patients' and relatives' needs, and these are considered the main-process. The further developed theory of the co-creative process and its main, sub- and microprocesses can be understood as a concretization of how good nursing care can be performed within caring relationships in the context of advanced palliative home care.
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| 4. |
- Ek, Kristina, et al.
(författare)
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“The unpredictable death” : The last year of life for patients with advanced COPD: Relatives’ stories
- 2015
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Ingår i: Palliative & Supportive Care. - : Cambridge University Press. - 1478-9515 .- 1478-9523. ; 13:5, s. 1213-1222
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Tidskriftsartikel (refereegranskat)abstract
- Objective: The end stage of chronic obstructive pulmonary disease (COPD) is described as prolonged, and the symptom burden for patients with COPD is often high. It progresses slowly over several years and can be punctuated by abrupt exacerbations that sometimes end in sudden death or a recovery of longer or shorter duration. This makes it difficult to identify the critical junctures in order to prognosticate the progress and time of death. Patients with COPD often express a fear that the dying process is going to be difficult. There is a fear that the dyspnea will worsen and lead to death by suffocation. The present article aimed to retrospectively describe the final year of life for patients with advanced COPD with a focus on death and dying from the perspective of relatives.Method: Interviews were conducted with the relatives of deceased family members who had advanced COPD. In total, 13 interviews were conducted and analyzed by means of content analysis.Result: All relatives described the patients as having had a peaceful death that did not correspond with the worry expressed earlier by both the patients and themselves. During the final week of life, two different patterns in the progress of the illness trajectory emerged: a temporary improvement where death was unexpected and a continued deterioration where death was inevitable.Significance of Results: The patients and their relatives lived with uncertainty up until the time of death. Little support for psychosocial and existential needs was available. It is essential for the nurse to create relationships with patients and relatives that enable them to talk about dying and death on their own terms.
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| 5. |
- Ewertzon, Mats, et al.
(författare)
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Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care
- 2018
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Ingår i: Journal of Advanced Nursing. - : Wiley-Blackwell. - 0309-2402 .- 1365-2648. ; 74:8, s. 1839-1850
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Tidskriftsartikel (refereegranskat)abstract
- AimTo adapt the Family Involvement and Alienation Questionnaire (FIAQ) for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability. BackgroundInvolvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach. To explore this issue, a broad instrument that can be used in different care contexts is needed. DesignA psychometric evaluation study, with a cross-sectional design. MethodThe content validity of the FIAQ was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015-2016). A sample of 325 family members participated, 103 of whom in a test-retest evaluation. Both parametric and non-parametric methods were used. ResultsThe content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the FIAQ (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test-retest reliability. ConclusionThe study provides evidence that the FIAQ (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care.
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| 6. |
- Johansson, Anita, et al.
(författare)
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Health-Related Quality of Life : from the perspective of mothers and fathers of adult children suffering from longterm mental disorders
- 2015
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Ingår i: Archives of Psychiatric Nursing. - : Saunders Elsevier. - 0883-9417 .- 1532-8228. ; 9:3, s. 180-185
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Tidskriftsartikel (refereegranskat)abstract
- There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS). Mothers' HRQOL was affected more than fathers' and lower compared to Swedish age related norms. HRQOL was predominantly related to ratings on HADS and BAS.
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| 7. |
- Ohlsson Nevo, Emma, 1960-, et al.
(författare)
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Psycho-educational intervention on mood in patients suffering from colorectal and anal cancer : A randomized controlled trial
- 2017
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Ingår i: Nordic journal of nursing research. - London, United Kingdom : Sage Publications. - 2057-1585 .- 2057-1593. ; 37:3, s. 135-142
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Tidskriftsartikel (refereegranskat)abstract
- Psycho-educational interventions can moderate the negative impact of cancer on patients’ mental wellbeing, although studies of the effect on colorectal cancer (CRC) patients are scarce. Hence, the primary aim of this study was to test whether a nurse-led psycho-educational programme (PEP) could affect the emotional wellbeing of persons being treated for CRC and anal cancer. A secondary aim was to test whether there were any differences in emotional wellbeing in the patients before undergoing a PEP compared to a subset of the Swedish population. A randomized controlled trial was used. In total, 86 patients were randomized either to a PEP comprising seven lectures followed by discussions and reflections with peers or to standard treatment. Mental wellbeing was measured with the Mood Adjective Check List. The PEP significantly (p<0.04) increased the patients’ overall mood one month after the end of the intervention. The PEP seemed to have a short-term effect on patients’ overall mood. Other outcomes such as self-efficacy could be useful measures when evaluating PEP.
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| 8. |
- Svensson, Birgitta, et al.
(författare)
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A Survey of Swedish Teachers' Concerns for Preschool Children at Risk of Maltreatment
- 2015
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Ingår i: Early Childhood Education Journal. - : Springer Science and Business Media LLC. - 1082-3301 .- 1573-1707. ; 43:6, s. 495-503
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to investigate a problem that is related to pre-school teachers' prolonged and temporary concerns for children's home situations and the extent to which these children were in need of special support in pre-school and/or were reported to the CPA. Data were obtained from a Swedish prospective study (the SOFIA-study) including 2,017 pre-school children. In this specific study, data from pre-school teacher and parent questionnaires were analyzed (baseline 2010, follow up 2011). Four groups were compared: no concern (85 %), newly arisen concern (6 %), previous concern (5 %), and prolonged concern (4 %). When pre-school teachers expressed prolonged concerns for the children's home situations they not only expressed lasting multiple concerns for children's health and development but also reported long-term problems in the contact between staff and parents. There was an obvious association between concern for the home situation and assessed need of special support in pre-school (37 % in the prolonged concern group). Reports to the child protection agency were made in a minority of the cases. In conclusion, pre-school teachers' concern for children at risk of maltreatment can be understood from a broad perspective on children's health and development. This study highlights the importance of early assessment of the child's home situation, to ensure that proper support is given.
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| 9. |
- Ternestedt, Britt-Marie, et al.
(författare)
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De 6 S:n : en modell för personcentrerad palliativ vård
- 2017. - 2
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Bok (övrigt vetenskapligt/konstnärligt)abstract
- Praktiskt verksamma sjuksköterskor och omvårdnadsforskare har tillsammans utvecklat De 6 S:n som stöd vid planering, dokumentation och utvärdering av palliativ vård utifrån patientens perspektiv. De 6 S:n vilar på en humanistisk grund och den palliativa vårdens mål och stämmer även överens med samhälleliga mål och styrdokument för hälso- och sjukvården och kan ses som ett sätt att kvalitetssäkra vården. Modellen utgår från följande begrepp:• Självbild• Självbestämmande• Sociala relationer• Symtomlindring• Sammanhang• StrategierI denna andra upplaga av boken har samtliga kapitel uppdaterats, kapitlet om värdegrund och teoretiska utgångspunkter liksom exemplen från forskning har utvecklats. Ett kapitel om ledarskapets betydelse har tillkommit, samt en studiehandledning att använda vid implementering.Boken vänder sig till studerande inom specialistutbildning, magister- eller masterprogram och till studerande på grundnivå. Boken vänder sig också till personal verksam inom olika vårdformer och som vill medverka till utveckling av den palliativa vården.
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| 10. |
- Werkander Harstäde, Carina, et al.
(författare)
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It was as Good as it Could be : A Family Member's Non-Experiences of Guilt and Shame in End-Of-Life Care
- 2015
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Ingår i: Journal of Palliative Care & Medicine. - : OMICS International. - 2165-7386. ; 5:5, s. 1-6
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Tidskriftsartikel (refereegranskat)abstract
- Objective: This study is part of a larger project, “Guilt and shame in end-of-life care – the next-of-kin’s perspective”. The aim was to explore and interpret a family member’s situation without feelings of guilt and shame and describe reasons for non-experiences of these feelings.Methods: An exploratory case study was employed to investigate and achieve an in-depth, in context understanding of the phenomenon from an informant directly involved in the activities being studied. The data material consisted of two in-depth interviews, analyzed in a hermeneutic way in accordance with Gadamer. Result: Seven subthemes appeared “The mother received good care with clear planning”, “They became aware of the inevitable death”, “The mother knew how she wanted things to be”, “Mutual understanding and care between mother and daughter”, “They could make the most of the time that was left”, “The family was together during the dying”, and “Both the daughter and her mother could handle and see meaning in the situation”. These subthemes resulted in a main theme: “There wasn’t much we could have done differently. It was as good as it could be”. Three interpretations emerged that can decrease the risk of feelings of guilt and shame: 1) knowing that the loved one is receiving professional care of good quality, 2) family awareness of the situation and trusting and supportive relationship with the professionals, and 3) inner and external resources and open communication with each other.Conclusion: The study shows the importance of professionals being involved in the family situation, having the courage to be sensitive towards the patient’s and the family member’s requests in situations where there is dying and death. Being aware of the suggested interpretations can decrease the risk of feelings of guilt and shame.
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