| 1. |
- Andersson, Ann-Christin, et al.
(författare)
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Föräldrars upplevda erfarenheter av att tillfrågas om medverkan i forskning för sitt prematura barns räkning
- 2005
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Ingår i: Vård i Norden. - 0107-4083. ; 25:77, s. 29-32
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Tidskriftsartikel (refereegranskat)abstract
- Clinical research, when children involved, may cause difficult ethical problems for both caregivers and parents. Informed consent has to be obtained from the parents and from the child depending on age and maturity. The concept of informed consent is complicated and depending on the ability of communication between the professionals and the parents. The aim of the study was to illuminate parents lived experiences when being asked to volunteer their new-born premature child to a clinical research study. Parents of fifteen children were interviewed concerning their experiences and a phenomenological based analysis was carried out. Three themes were found: experience of exposure, experience of insufficiency and experience of possibilities. The parents expired themselves being in a state of shock and their statements were characterised by the existing chaos. Despite this, the parents experienced that they could do something good for others in the future. Researchers have to be aware of the parents’ exposure, and attentive to their individual needs.
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| 2. |
- Björk, Maria, et al.
(författare)
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An Everyday Struggle - Swedish Families' Lived Experiences During a Child's Cancer Treatment
- 2009
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Ingår i: Journal of Pediatric Nursing. - : Elsevier. - 0882-5963 .- 1532-8449. ; 24:5, s. 423-432
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Tidskriftsartikel (refereegranskat)abstract
- The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens. © 2009 Elsevier Inc. All rights reserved.
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| 3. |
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| 5. |
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| 6. |
- Björk, Maria, et al.
(författare)
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Needs of young children with cancer during their initial hospitalization : An observational study
- 2006
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Ingår i: Journal of Pediatric Oncology Nursing. - : Sage Publications. - 1043-4542 .- 1532-8457. ; 23:4, s. 210-219
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe young (under the age of 7) children's needs as expressed by their behavior, body language and verbal expression through observations during their initial hospitalization after being diagnosed with cancer. Twelve children under the age of seven were followed during 26 hours with non-participant unstructured observations. Field notes were written after each observation and transcribed into a narrative text, which was analyzed by content analysis at both manifest and latent level. Five themes were identified, of which "need to have the parent close by" was the most prominent. The other themes were "need to play and feel joy," "need for participation in care and treatment," "need for a good relationship with the staff," and "need for physical and emotional satisfaction." The results indicate that the children needed their parents and the parents' presence helped the children to express other needs. Professionals need to support the child and his or her parents so that the parents in their turn can support and alleviate their child's hospitalization and cancer treatment. © 2006 by Association of Pediatric Oncology Nurses.
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| 7. |
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| 8. |
- Björk, Maria, et al.
(författare)
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Striving to survive : Families' lived experiences when a child is diagnosed with cancer
- 2005
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Ingår i: Journal of Pediatric Oncology Nursing. - : Sage Publications. - 1043-4542 .- 1532-8457. ; 22:5, s. 265-275
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Tidskriftsartikel (refereegranskat)abstract
- When a child is ill with cancer, this affects the whole family for long periods. The aim of this study was to elucidate the family's lived experience when a child in the family was diagnosed with cancer. A descriptive inductive design with a hermeneutic phenomenological approach including interviews with 17 families (parents, children, and siblings) was chosen. The families' lived experience was described as a 2-fold essential theme comprising "a broken life world" and an immediate "striving to survive." The families' secure everyday life disappeared and was replaced by fear, chaos, and loneliness. When striving to make the child and the family survive, family members strove to feel hope and have a positive focus, to gain control, and to feel close to other people. Phenomenological human science research can deepen the understanding of the meaning of being a family with a child who is ill with cancer and can help pediatric oncology staff become increasingly thoughtful, and thus better prepared to take action to diminish the chaos occurring in the family. © 2005 by Association of Pediatric Oncology Nurses.
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| 9. |
- Bramhagen, Ann-Cathrine, et al.
(författare)
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Mothers' experiences of feeding situations : an interview study.
- 2006
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Ingår i: Journal of Clinical Nursing. - : Blackwell Munksgaard. - 0962-1067 .- 1365-2702. ; 15:1, s. 29-34
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Tidskriftsartikel (refereegranskat)abstract
- SYFTE: Syftet med studien var att beskriva föräldrars upplevelser av matsituationerna och kontakten med sjuksköterskan inom barnhälsovården (BHV). BAKGRUNDEN: Några av de viktigaste uppgifterna för sjuksköterskan inom BHV är att följa tillväxten, identifiera uppfödningsproblem och att ge råd om kost och uppfödningsrutiner. METOD: Arton mödrar med varierande ålder, utbildning etnicitet och antal barn och rekryterades från olika barnavårdscentraler blev intervjuade. Berättelserna skrevs ut ordagrant och analyserades med innehållsanalys på manifest och latent nivå. RESULTAT: Alla mödrar beskrev att kost och uppfödning var väsentliga delar i deras liv vilka krävde en hel del tid och engagemang. Två huvudkategorier avseende mödrars förhållningssätt kunde identifieras - ett flexibel förhållningssätt ett kontrollerande förhållningssätt. Mödrar som uttryckte ett flexibelt förhållningssätt var mer öppna för sina barns signaler och svarade på dem för att skapa en god kommunikation. Mödrar som uttryckte ett behov av kontroll skapade regler och rutiner kring matsituationerna. Mödrar med ett kontrollerande förhållningssätt uttryckte att de fick otillräckligt stöd från sjuksköterskan inom BHV. KONKLUSION AND KLINISKA IMPLIKATION: Denna studie visade att några mödrar beskrev otillräckligt stöd från sjuksköterskan inom BHV. Kunskap kring mödrars upplevelser av matsituationerna och deras olika förhållningssätt gentemot sitt barn i samband med måltider kan öka kunskapen hos sjuksköterskorna inom BHV och bidra till ökad förståelse och adekvat stöd till mödrar som upplever uppfödningsproblematik.
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| 10. |
- Bramhagen, Ann-Cathrine, et al.
(författare)
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Response
- 2008
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 1365-2702 .- 0962-1067. ; 17:5, s. 697-698
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
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