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Systematic Monitori...
Systematic Monitoring of Cognition for Adults With Cerebral Palsy-The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol
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- Stadskleiv, K. (författare)
- Univ Oslo, Dept Special Needs Educ, Oslo, Norway.;Oslo Univ Hosp, Dept Clin Neurosci Children, Oslo, Norway.,University of Oslo,Oslo university hospital
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- van Walsem, M. R. (författare)
- Oslo Univ Hosp, Dept Neurohabil, Oslo, Norway.;Univ Oslo, Inst Hlth & Soc, Ctr Habilitat & Rehabil Models & Serv, Oslo, Norway.,Oslo university hospital
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- Andersen, G. L. (författare)
- Vestfold Hosp Trust, Norwegian Qual & Surveillance Registry Cerebral P, Tonsberg, Norway.,Vestfold Hospital
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- Bergqvist, Lena, 1958 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi, sektionen för hälsa och rehabilitering,Institute of Neuroscience and Physiology, Department of Health and Rehabilitation,Univ Gothenburg, Sahlgrenska Acad, Inst Neurosci & Physiol, Unit Occupat Therapy,Dept Hlth & Rehabil, Gothenburg, Sweden.,Sahlgrenska Academy
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- Bottcher, L. (författare)
- Aarhus Univ, Danish Sch Educ, Copenhagen, Denmark.,Aarhus University
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- Christensen, K. (författare)
- CP Denmark, Taastrup, Denmark.
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- Heyerdahl, D. (författare)
- Norwegian Cerebral Palsy Assoc, Oslo, Norway.,The Norwegian Cerebral Palsy Association
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- Hollung, S. J. (författare)
- Vestfold Hosp Trust, Norwegian Qual & Surveillance Registry Cerebral P, Tonsberg, Norway.,Vestfold Hospital
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- Hoye, H. (författare)
- Varden Specialist Ctr, Bjornemyr, Norway.
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- Jahnsen, R. (författare)
- Univ Oslo, Inst Hlth & Soc, Ctr Habilitat & Rehabil Models & Serv, Oslo, Norway.;Oslo Univ Hosp, Dept Clin Neurosci Children, Norwegian Qual & Surveillance Registry Cerebral P, Oslo, Norway.,Oslo university hospital
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- Klevberg, G. L. (författare)
- Oslo Univ Hosp, Dept Clin Neurosci Children, Norwegian Qual & Surveillance Registry Cerebral P, Oslo, Norway.,Oslo university hospital
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- Lindquist, Barbro (författare)
- Habiliat Ctr, Halmstad, Sweden.,Halmstad County Hospital
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- Passmark, H. (författare)
- User Board, Cerebral Palsy Surveillance Programme CPUP, Lund, Sweden.,The Cerebral Palsy Surveillance Programme (CPUP)
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- Rike, P. O. (författare)
- Sunnaas Rehabil Hosp, Dept Res, Nesoddtangen, Norway.,Sunnaas Hospital
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- Rodby-Bousquet, Elisabet (författare)
- Uppsala University,Lund University,Lunds universitet,Uppsala universitet,Centrum för klinisk forskning, Västerås,Lund Univ, Dept Clin Sci Lund, Orthopaed, Lund, Sweden.,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine
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- Alriksson-Schmidt, Ann I (författare)
- Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,CPUP - barnortopedisk forskningsgrupp,Forskargrupper vid Lunds universitet,Att leva med funktionsnedsättning: Forskning ur ett folkhälsoperspektiv,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,CPUP - Children's Orthopedics Group,Lund University Research Groups,Living with a Disability: Research from a Public Health Perspective
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Univ Oslo, Dept Special Needs Educ, Oslo, Norway;Oslo Univ Hosp, Dept Clin Neurosci Children, Oslo, Norway. University of Oslo (creator_code:org_t)
- 2021-09-22
- 2021
- Engelska.
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Ingår i: Frontiers in Neurology. - : Frontiers Media SA. - 1664-2295. ; 12
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https://www.frontier...
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https://doi.org/10.3...
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https://doi.org/10.3...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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Abstract
Ämnesord
Stäng
- Cerebral palsy (CP) comprises a heterogeneous group of conditions recognized by disturbances of movement and posture and is caused by a non-progressive injury to the developing brain. Birth prevalence of CP is about 2-2.5 per 1,000 live births. Although the motor impairment is the hallmark of the diagnosis, individuals with CP often have other impairments, including cognitive ones. Cognitive impairments may affect communication, education, vocational opportunities, participation, and mental health. For many years, CP has been considered a "childhood disability," but the challenges continue through the life course, and health issues may worsen and new challenges may arise with age. This is particularly true for cognitive impairments, which may become more pronounced as the demands of life increase. For individuals with CP, there is no one-to-one correlation between cognition and functioning in other areas, and therefore, cognition must be individually assessed to determine what targeted interventions might be beneficial. To facilitate this for children with CP, a systematic follow-up protocol of cognition, the CPCog, has been implemented in Norway and Sweden. However, no such protocol currently exists for adults with CP. Such discontinuity in healthcare services that results from lack of follow-up of cognitive functioning and subsequent needs for adjustments and interventions makes transition from pediatric to adult healthcare services challenging. As a result, a protocol for the surveillance of cognition in adults with CP, the CPCog-Adult, has been developed. It includes assessment of verbal skills, non-verbal reasoning, visual-spatial perception, and executive functioning. It is recommended to perform these assessments at least once in young adulthood and once in the mid-fifties. This report describes the process of developing the CPCog-Adult, which has a three-fold purpose: (1) to provide equal access to healthcare services to enable the detection of cognitive impairments; (2) to provide interventions that increase educational and vocational participation, enhance quality of life, and prevent secondary impairments; and (3) to collect systematic data for research purposes. The consent-based registration of data in the well-established Swedish and Norwegian national CP registries will secure longitudinal data from childhood into adulthood.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- cerebral palsy
- cognition
- assessment
- intelligence
- transitioning
- life-span
- health service access
- gross motor function
- children
- health
- impairments
- services
- fatigue
- prevalence
- transition
- profile
- people
- Neurosciences & Neurology
- cerebral palsy
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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Stadskleiv, K.
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van Walsem, M. R ...
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Andersen, G. L.
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Bergqvist, Lena, ...
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Bottcher, L.
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Christensen, K.
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Heyerdahl, D.
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Hollung, S. J.
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Hoye, H.
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Jahnsen, R.
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Klevberg, G. L.
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Lindquist, Barbr ...
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Passmark, H.
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Rike, P. O.
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Rodby-Bousquet, ...
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Alriksson-Schmid ...
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