| 1. |
- Darcy, Laura, et al.
(författare)
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The everyday life of the young child shortly after receiving a cancer diagnosis, from both children's and parent's perspectives
- 2014
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Ingår i: Cancer Nursing. - Alphen aan den Rijn : Wolters Kluwer. - 0162-220X .- 1538-9804. ; 37:6, s. 445-456
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Tidskriftsartikel (refereegranskat)abstract
- Background: Providing qualified, evidence-based healthcare to children requires increased knowledge of how cancer affects the young child's life. There is a dearth of research focusing on the young child's experience of everyday life.Objective: The purpose of this study was to explore young children's and their parents' perceptions of how cancer affects the child's health and everyday life shortly after diagnosis.Methods: Thirteen children with newly diagnosed cancer aged 1 to 6 years and their parents, connected to a pediatric oncology unit in Southern Sweden, participated in this study through semistructured interviews. Child and parent data were analyzed as a family unit, using qualitative content analysis.Results: Everyday life was spent at hospital or at home waiting to go back to hospital. Analysis led to the following categories: feeling like a stranger, feeling powerless, and feeling isolated.Conclusions: The child wants to be seen as a competent individual requiring information and participation in care. Parents need to be a safe haven for their child and not feel forced to legitimize painful and traumatic procedures by assisting with them. Nurses play a major role in the lives of children. Research with and on the young child is necessary and a way of making them visible and promoting their health and well-being.Implications for practice: Nurses need to reevaluate the newly diagnosed child's care routines so as to shift focus from the illness to the child. This requires competent nurses, secure in their caring role.
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| 2. |
- Enskär, Karin, et al.
(författare)
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A literature review of the results from nursing and psychosocial research within Swedish pediatric oncology
- 2014
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Ingår i: Journal of Nursing & Care. - : OMICS Publishing Group. - 2167-1168. ; 3:6, s. 1-8
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Forskningsöversikt (refereegranskat)abstract
- The body of research-based knowledge in paediatric caring science has been increasing leading to dramaticimprovements in treatment. The purpose of this manuscript was to analyze results as stated by the researchers', inrecently published articles on nursing and psychosocial research, within Swedish pediatric oncology setting. Thiswas done through a review of 137 published articles about paediatric oncology related to caring science in Sweden.The result shows that the illness has affected, in both positive and negative ways, the wellbeing of everyone cominginto contact with the child. The cancer also causes distress related to all aspects of life including physical,psychological, existential and social. Mediating factors for the experience of distress and wellbeing are: disease andtreatment severity, age, gender and ethnicity of the participant, time since diagnosis, the use of internal and externalsupport, and the identity of the person reporting the data. Health promoting aspects frequently reported are: familytogetherness, coping strategies, engaging in normal life and activities, and quality of care which includes emotionalsupport, information and family participation in care. The hospital staff has to be aware of the psychosocial issuesexperienced by children with cancer and their families, and they have to acknowledge the value of formalinterventions, reporting benefits for children, families, and themselves.
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| 3. |
- Enskär, Karin, et al.
(författare)
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Undocumented refugee children in Swedish healthcare : Nurses' knowledge concerning regulations and their attitudes about the care
- 2012
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Ingår i: Vård i Norden. - : Sykepleiernes Samarbeid i Norden. - 0107-4083 .- 1890-4238. ; 32:1, s. 75-78
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to investigate nurses’ attitudes about care for undocumented refugee children and also to investigate the knowledge among nurses concerning the regulations for this care. The study is quantitative and based on a questionnaire sent to all nurses working in pediatric healthcare and medical care in a medium-sized county in Sweden. The overall response was 91 questionnaires (55.9%). Most of the respondents felt insecure or lacked knowledge of what regulations are valid when undocumented refugee children seek medical care or healthcare. Almost all nurses had a positive attitude toward caring for these children, but they feel they lack knowledge about the regulations regarding their care. To optimize the care situation for these children the regulations should be reviewed and altered to allow the nurse, legally and securely, to care for them.
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| 4. |
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| 5. |
- Huus, Karina, 1968-, et al.
(författare)
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Physical activity, blood glucose and c-peptide in healthy school-children
- 2010
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Tidskriftsartikel (refereegranskat)abstract
- Background: The incidence of type 1 diabetes is increasing. This increase must be due to environmental factors. Low physical activity and overweight/obesity among children may play a role. Objective: The aim of the current study was to investigate how lack of physical activity relates to blood glucose value and insulin sensitivity in healthy children. A second aim was to explore whether low physical activity is related to overweight/obesity in children. Methods: This study is part of the prospective cohort study ‘All Babies In southeast Sweden’ (ABIS). 199 children from different schools participated. Pedometersteps during 4 days were registered as well as height and weight, and fasting blood glucose and serum C-peptide were determined. Parents answered a questionnaire. Results: Fewer dailysteps correlated to higher BMI (P= 0.019) and waist circumference (P=0.018) as well as to higher C-peptide (P= 0.044), HOMA IR (P=0.046) and HOMA β-cell (P=0.022). Children who spent more hours/day in front of TV/Video had higher waist circumference (P= 0.033) and higher fasting blood glucose values (P=0.016). Conclusion: Already in early school-age low physical activity is related to increased BMI and waist circumference. These signs and low physical activity are accompanied by a decreased insulin sensitivity compensated for by significantly increased insulin secretion. Low physical activity may cause beta cell stress which might contribute to an autoimmune process in individuals predisposed to autoimmunity, and thereby to the increasing incidence of Type 1 diabetes in children.
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| 6. |
- Ljusegren, Gunilla, 1947-
(författare)
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Nurses' competence in pain management in children
- 2011
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Licentiatavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Introduction: It is a well known fact that children suffer from pain due to treatment and procedures in health care and historically, their procedural pain due to medical treatment has been undertreated and under-recognized. Children’s understanding of pain and their ability to express their feelings depend on their stage of development and the nature and diversity of their prior pain experiences. The goal of pain management is to reduce pain, distress and anxiety, and the nurse is the key person to help and support the child in pain. Nurses’ professional competence form the foundation for pain management procedures, and there is a need to investigate whether the care and procedures nurses perform for children in pain lead to desired outcomes.Aim: The overall purpose was to describe nurses’ competence in pain management in children. The specific aims were to- identify and describe knowledge about and attitudes to pain and pain management- identify factors influencing pain management in children and- describe nurses’ experiences of caring for children in pain.Methods and material: Forty-two nurses participated in a survey on knowledge about and attitudes to pain management in children, and 21 nurses were interviewed about their experiences fromcaring for children in pain. All the data were analyzed using approved methods of analysis.Results: The results showed that the nurses had good knowledge about and positive attitudes to pain management in children. Collaboration with physicians was considered important in providing children with sufficient pain relief. Parents were regarded as a resource, and the nurses described communication with parents as important. The nurses’ own experience led to a better understanding of the children’s situation.The nurses stated that pain is a subjective experience and that if a child says he or she is in pain they should be believed. Pain was seen as a complex phenomenon, and the nurses had difficulty distinguishing between pain of different origins. In predictable situations, when the child had a clear medical diagnosis with physical pain and the child’s pain followed an expected pattern, the nurses trusted their knowledge and knew how to act. On the other hand, in unpredictable situations, when the child did not respond to the treatment despite all efforts, this created feelings of insufficiency, fear and abandonment, and even distrust.Conclusions: The conclusions of this thesis are that pain management in children is a challenge for clinical nurses in unpredictable situations. Professional competence in nursing deals with both personal abilities and the organization. Reflective practices and dialogues with colleagues would improve nurses’ work satisfaction, and guidelines and better routines would improve nurses’ pain management when caring for children.
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| 7. |
- Lygnegård, Frida, et al.
(författare)
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A Systematic review of Generic and Special Needs of Children with Disabilities Living in Poverty Settings in Low- and Middle-Income Countries
- 2013
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Ingår i: Journal of Policy Practice. - : Informa UK Limited. - 1558-8742 .- 1558-8750. ; 12:4, s. 296-315
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Tidskriftsartikel (refereegranskat)abstract
- Children with disabilities living in poverty settings in low and middle-income countries are particularly in need of special support designed to meet the needs occurring in an environment where poverty is prevalent and resources are scarce. This paper presents a systematic review of the needs of children with disabilities living in poverty settings in low and middle-income countries using Maslow’s Hierarchy of Needs as a theoretical framework. The findings demonstrate that needs at the first level of Maslow’s Hierarchy of Needs are more frequently researched in low and middle-income countries. Higher order needs should be further explored and children’s own voices should be taken into consideration when performing research, designing policies and services aiming at increased service user empowerment.
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| 8. |
- Petersson, Christina, et al.
(författare)
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Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY)
- 2013
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Ingår i: Health and Quality of Life Outcomes. - : Springer Science and Business Media LLC. - 1477-7525. ; 11:1, s. 1-10
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Tidskriftsartikel (refereegranskat)abstract
- Children with chronic conditions often experience a long treatment which can be complex and negatively impacts the child's well-being. In planning treatment and interventions for children with chronic conditions, it is important to measure health-related quality of life (HrQoL). HrQoL instruments are considered to be a patient-reported outcome measure (PROM) and should be used in routine practice. Purpose: The aim of this study was to compare the content dimensions of HrQoL instruments for children's self-reports using the framework of ICF-CY. Method: The sample consist of six instruments for health-related quality of life for children 5 to 18 years of age, which was used in the Swedish national quality registries for children and adolescents with chronic conditions. The following instruments were included: CHQ-CF, DCGM-37, EQ-5D-Y, KIDSCREEN-52, Kid-KINDL and PedsQL 4.0. The framework of the ICF-CY was used as the basis for the comparison. Results: There were 290 meaningful concepts identified and linked to 88 categories in the classification ICF-CY with 29 categories of the component body functions, 48 categories of the component activities and participation and 11 categories of the component environmental factors. No concept were linked to the component body structures. The comparison revealed that the items in the HrQoL instruments corresponded primarily with the domains of activities and less with environmental factors. Conclusions: In conclusion, the results confirm that ICF-CY provide a good framework for content comparisons that evaluate similarities and differences to ICF-CY categories. The results of this study revealed the need for greater consensus of content across different HrQoL instruments. To obtain a detailed description of children's HrQoL, DCGM-37 and KIDSCREEN-52 may be appropriate instruments to use that can increase the understanding of young patients' needs.
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| 9. |
- Wennick, Anne, et al.
(författare)
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What it is like being a sibling of a child newly diagnosed with type 1 diabetes : an interview study
- 2012
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Ingår i: European Diabetes Nursing. - : Wiley-Blackwell. - 1551-7853 .- 1551-7861. ; 9:3, s. 88-92
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Tidskriftsartikel (refereegranskat)abstract
- Although previous studies have stressed that having a brother or sister with a chronic condition may affect the healthy sibling, few have specifically focused on healthy siblings of children with type 1 diabetes. Hence, this study aimed to illuminate what it is like to be a brother or sister of a childnewly diagnosed with type 1 diabetes. Individual interviews were conducted with seven siblings aged 10–17 years(median=12)from six different families. Each interview was analysed using content analysis.Three different categories emerged – Living differently, Being concerned andParticipating in caring for the affected child – indicating that, for the healthy sibling, theillness entails a transformed everyday life including worry about the affected child and theneed to help in the home. In conclusion, the paediatric health care service may need to develop new strategies to meet the siblings’ desired level of knowledge in educational team sessions relatedto diabetes. As the sibling relationship is probably the longest one that an affected child will experience in her/his lifetime, it is worth investing in it to promote this long-term support resource.Eur Diabetes Nursing 2012; 9(3): 88–92
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