| 1. |
- Janlöv, Ann-Christin, et al.
(författare)
-
Family members' experience of participation in the needs assessment when their older next of kin becomes in need of public home help: An interview study.
- 2006
-
Ingår i: International Journal of Nursing Studies. - : Elsevier BV. - 1873-491X .- 0020-7489. ; 43:8, s. 1033-1046
-
Tidskriftsartikel (refereegranskat)abstract
- Background The policy that older people should be able live in their own homes in spite of extensive care and social service needs means that close family members are increasingly involved in help provision. Ways must be found to facilitate their situation. Their participation in the needs assessment of their next of kin may be crucial. Objectives The aim of the study was to illuminate close family members’ experience of having an older next of kin becoming in need of public home help, their participation in the needs assessment procedure and the decisions about their next of kins’ public home help. Participants The sample was 27 close family members (mean age 63, range 42–93 years) chosen by their older needs-assessed next of kin. Methods An interview using a thematic interview guide formed an everyday dialogue jointly constructed by the interviewer and the interviewee. Thereafter an interpretative content analysis was conducted on the transcribed interviews. Results One overarching category was illuminated: “Feeling disconfirmed or confirmed in the needs assessment, when feeling pressed by the responsibility and struggling to balance the needs of the family.” Four principal categories with sub-categories were derived: (1) Experiencing existential ruminations and the need to help. (2) Help giving and receiving as a difficult balance between needs. (3) Feeling overlooked or acknowledged as having an influence on the needs assessment. (4) Hopes about the home help being fulfilled or dashed. Conclusion The findings imply that the main focus is on the help seeker, overlooking the contribution of family members representing and providing help. A more holistic needs assessment approach is required with a framework and working methods that involve and support the family as a whole.
|
|
| 2. |
- Janlöv, Ann-Christin, et al.
(författare)
-
Older persons' experience of being assessed for and receiving public home help: do they have any influence over it?
- 2006
-
Ingår i: Health & Social Care in the Community. - : Hindawi Limited. - 0966-0410 .- 1365-2524. ; 14:1, s. 26-36
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this qualitative study was to explore older persons' experience of participation in and influence on decisions about public home help/care when undergoing needs assessment and receiving public home help. A purposive sample of 28 home help recipients over the age of 75 were selected. Data were collected by means of in-depth interviews. A content analysis revealed one overarching category: 'Having to be satisfied, adjust, and walk a fine line when balancing between needs and available help'; and three principal categories: Balancing the comfort and guilt – receiving help from the family at the limits of their capacity; 'A necessary evil'– balancing feelings and resources against having no choice but to accept; Incorporating the home help into daily life to gain a sense of continuity. The findings indicate that older persons have difficulties coping and adapting to their new life situation and have no actual influence over the decisions about their home help. The officer told them what was available. This implies a need to pay attention to the frail persons' mental state in the needs assessment and to ensure adequate understanding of information. Further, it suggests that the needs assessment and the home help officer should to a larger extent focus on individual needs as a whole, involve and encourage the older person to strengthen his or her sense of being in control.
|
|
| 3. |
- Janlöv, Ann-Christin
(författare)
-
PARTICIPATION IN NEEDS ASSESSMENT OF OLDER PEOPLE PRIOR TO PUBLIC HOME HELP Older persons', their family members', and assessing home help officers' experiences.
- 2006
-
Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Aim: The overall aim of this thesis was to illuminate older persons' experience of becoming in need of public home help and their family members' experience of this situation. Further, the aim was to illuminate experiences of participation in the needs assessment process of older people and influence on decisions about public home help from the perspective of older needs-assessed persons, their family members, assessing home help officers and external home help officers. Method: A qualitative hermeneutic approach and triangulation of sources was used as the methodological strategy. A purposive sample of older persons aged 75 and over, who had gone through the needs assessment process and lived in their ordinary homes, was selected consecutively, retrospectively from home help officers' files on decisions about public home help in two municipalities. Data were collected about the same topic - older needs-assessed persons and family members' participation in the needs assessment, through personal interviews with those involved, the older needs-assessed persons (n=28, age 75-96, Paper I-II), family members (n=27, age 42-93, Paper III) the assessing home help officers (n=5, age 29-50, 26 interviews), and an additional focus group interview with home help officers (n=9) (Paper IV). Analysis: A qualitative content analysis was used (Paper I-IV) to interpret concrete and abstract meaning content, the latter inspired by hermeneutics to convey the meaning of the utterance, which in each study was interpreted as one overarching category that encompassed principal categories and sub-categories. Findings: To the older persons becoming in need of public home help it meant "Experiencing discontinuity in life as a whole - the countdown has begun" (Paper I). Further, their participation and influence on decisions about public home help when undergoing needs assessment and receiving public home help meant "Having to be satisfied, adjust, and walk a fine line when balancing between needs and available help" (Paper II). To family members with an older next of kin becoming in need of public home help, their participation in the needs assessment procedure and the decisions about their next of kin's public home help meant "Feeling disconfirmed or confirmed in the needs assessment, when feeling pressed by the responsibility and struggling to balance the needs of the family" (Paper III). To home help officers, the participation of older help recipients and family members in the needs assessment procedure and the decisions made about public home help meant "Having to establish boundaries towards family influence and at the same time use them as a resource" (Paper IV). These findings seem to correspond to and provide an understanding of the meaning of older needs-assessed persons' and family members' participation in the needs assessment as a whole. Conclusion: The needs assessment marked a turning point that can be understood and framed as a larger distressing life transition for both older persons and family members, which could cause difficulties for adequate participation in the needs assessment. Both older persons and family members experienced the needs assessment as difficult to comprehend, they lacked knowledge regarding aims, procedures, and rights and had not perceived what was the actual needs assessment. The older persons' actual ability to participate and communicate varied, and family members could be necessary as representatives, which created a moral conflict for the home help officers. Home help officers' attitudes towards their professional responsibility seemed to influence their management of older persons' and family members' participation. The needs assessment focused solely on the older individual's present situation and mainly physical and practical disabilities and needs, while mental, existential, social and medical needs tended to be neglected. The older persons and family members had little opportunity to participate in the process or to influence the decisions. Older persons felt that help offered in accordance with municipal guidelines had to be accepted, and family members felt mainly disconfirmed in the needs assessment encounter. The forms of the needs assessment and organisational conditions must be reviewed to promote the sense of coherence and participation of those involved.
|
|
| 4. |
- Janlöv, Ann-Christin, et al.
(författare)
-
The experience of older people of entering into the phase of asking for public home help - a qualitative study
- 2005
-
Ingår i: International Journal of Social Welfare. - : Wiley. - 1369-6866 .- 1468-2397. ; 14:4, s. 326-336
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this qualitative study was to explore older persons' (n = 28, 75-96 years of age) experience of becoming in need of public home help, their experience of participation and of having influence on the needs assessment procedure and the decisions made about public home help. A content analysis revealed a broad overarching category, labelled: experiencing discontinuity in life as a whole - the countdown has begun. In addition, four principal categories emerged from the data: comparing the past with the present and losing parts of oneself and connectedness; worrying about the losses and what they will bring about; struggling against losing abilities to avoid dependency and home help; and struggling with conflicting feelings about being/becoming in need of help, and from whom. That older people can so perceive their life situation needs to be recognised if they are to be empowered to become involved in and exert influence on the assessment process and its outcome as well as on their life situation as a whole.
|
|
