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- Pyykko, Ilmari, et al.
(författare)
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Internet-based peer support for Menieres disease: a summary of web-based data collection, impact evaluation, and user evaluation
- 2017
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Ingår i: International Journal of Audiology. - : TAYLOR & FRANCIS LTD. - 1499-2027 .- 1708-8186. ; 56:7, s. 453-463
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Tidskriftsartikel (refereegranskat)abstract
- Objective: This paper presents a summary of web-based data collection, impact evaluation, and user evaluations of an Internet-based peer support program for Menieres disease (MD). Design: The program is written in html-form. The data are stored in a MySQL database and uses machine learning in the diagnosis of MD. The program works interactively with the user and assesses the participants disorder profile in various dimensions (i.e., symptoms, impact, personal traits, and positive attitude). The inference engine uses a database to compare the impact with 50 referents, and provides regular feedback to the user. Data were analysed using descriptive statistics and regression analysis. Study sample: The impact evaluation was based on 740 cases and the user evaluation on a sample of 75 cases of MD respectively. Results: The web-based system was useful in data collection and impact evaluation of people with MD. Among those with a recent onset of MD, 78% rated the program as useful or very useful, whereas those with chronic MD rated the program 55%. Conclusions: We suggest that a web-based data collection and impact evaluation for peer support can be helpful while formulating the rehabilitation goals of building the self-confidence needed for coping and increasing social participation.
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| 2. |
- Pyykko, Ilmari, et al.
(författare)
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Internet-Based Self-Help for Menieres Disease: Details and Outcome of a Single-Group Open Trial
- 2017
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Ingår i: American Journal of Audiology. - : AMER SPEECH-LANGUAGE-HEARING ASSOC. - 1059-0889 .- 1558-9137. ; 26:4, s. 496-506
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: In this article, we present the details and the pilot outcome of an Internet-based self-help program for Menieres disease (MD).amp; para;amp; para;Method: The Norton-Kaplan model is applied to construct a strategic, person-focused approach in the enablement process. The program assesses the disorder profile and diagnosis. In the therapeutic component of the program, the participant defines vision and time frame, inspects confounding factors, determines goals, establishes a strategy, and starts to work on the important problems caused by the disorder. The program works interactively, utilizes collaboration with significant others, and enhances positive thinking. Participants took part in an Internet-based self-help program. Data were collected interactively using open-ended and structured questionnaires on various disease-specific and general health aspects. The pilot outcome of 41 patients with MD was evaluated.amp; para;amp; para;Results: The analysis of the pilot data showed statistically significant improvement in their general health-related quality of life (p amp;lt; .001). Also, the outcome of the Posttraumatic Growth Inventory (Cann et al., 2010) showed small to moderate change as a result of the intervention.amp; para;amp; para;Conclusions: The Internet-based self-help program can be helpful in the rehabilitation of patients with MD to supplement medical therapy.
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