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European PanCareFol...
European PanCareFollowUp Recommendations for surveillance of late effects of childhood, adolescent, and young adult cancer
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- van Kalsbeek, Rebecca J. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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- van der Pal, Helena J.H. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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- Kremer, Leontien C.M. (författare)
- Academic Medical Center of University of Amsterdam (AMC),University Medical Center Utrecht
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- Bardi, Edit (författare)
- St. Anna Children's Hospital
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- Brown, Morven C. (författare)
- University of Newcastle upon Tyne
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- Effeney, Rachel (författare)
- European Society for Paediatric Oncology (SIOP Europe)
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- Winther, Jeanette F. (författare)
- Aarhus University Hospital,Danish Cancer Society
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- Follin, Cecilia (författare)
- Lund University,Lunds universitet,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
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- den Hartogh, Jaap (författare)
- Childhood Cancer International (CCI)
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- Haupt, Riccardo (författare)
- Gaslini Children's Hospital
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- Hjorth, Lars (författare)
- Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Sena effekter efter barncancerbehandling,Forskargrupper vid Lunds universitet,LUCC: Lunds universitets cancercentrum,Övriga starka forskningsmiljöer,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Late effects after childhood cancer treatment,Lund University Research Groups,LUCC: Lund University Cancer Centre,Other Strong Research Environments,Skåne University Hospital
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- Kepak, Tomas (författare)
- St. Anne's University Hospital Brno
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- Kepakova, Katerina (författare)
- St. Anne's University Hospital Brno
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- Levitt, Gill (författare)
- Great Ormond Street Hospital
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- Loonen, Jacqueline J. (författare)
- Radboud University Medical Center
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- Mangelschots, Marlies (författare)
- Catholic University of Leuven
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- Muraca, Monica (författare)
- Gaslini Children's Hospital
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- Renard, Marleen (författare)
- Catholic University of Leuven
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- Sabic, Harun (författare)
- Childhood Cancer International (CCI)
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- Schneider, Carina U. (författare)
- Childhood Cancer International (CCI)
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- Uyttebroeck, Anne (författare)
- Catholic University of Leuven,University Hospitals Leuven
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- Skinner, Roderick (författare)
- Royal Victoria Infirmary,Kepler University Hospital Linz
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- Mulder, Renée L. (författare)
- Princess Maxima Center for Pediatric Oncology/Hematology
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(creator_code:org_t)
- Elsevier BV, 2021
- 2021
- Engelska 13 s.
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Ingår i: European Journal of Cancer. - : Elsevier BV. - 0959-8049. ; 154, s. 316-328
- Relaterad länk:
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http://dx.doi.org/10... (free)
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http://www.ejcancer....
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https://lup.lub.lu.s...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- Background: Long-term follow-up (LTFU) care for childhood, adolescent, and young adult (CAYA) cancer survivors is essential to preserve health and quality of life (QoL). Evidence-based guidelines are needed to inform optimal surveillance strategies, but many topics are yet to be addressed by the International Late Effects of Childhood Cancer Guideline Harmonization Group (IGHG). Therefore, the PanCareFollowUp Recommendations Working Group collaborated with stakeholders to develop European harmonised recommendations in anticipation of evidence-based IGHG guidelines. Methods: The PanCareFollowUp Recommendations Working Group, consisting of 23 late effects specialists, researchers, and survivor representatives from nine countries, collaborated in the first Europe-wide effort to provide unified recommendations in anticipation of evidence-based guidelines. A pragmatic methodology was used to define recommendations for topics where no evidence-based IGHG recommendations exist. The objective was to describe the surveillance requirements for high-quality care while balancing the different infrastructures and resources across European health care systems. The process included two face-to-face meetings and an external consultation round involving 18 experts from 14 countries. Results: Twenty-five harmonised recommendations for LTFU care were developed collaboratively and address topics requiring awareness only (n = 6), awareness, history and/or physical examination (n = 9), or additional surveillance tests (n = 10). Conclusions: The PanCareFollowUp Recommendations, representing a unique agreement across European stakeholders, emphasise awareness among survivors and health care providers in addition to tailored clinical evaluation and/or surveillance tests. They include existing IGHG guidelines and additional recommendations developed by a pragmatic methodology and will be used in the Horizon 2020–funded PanCareFollowUp project to improve health and QoL of CAYA cancer survivors.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
Nyckelord
- Aftercare
- Cancer survivors
- Neoplasms
- Patient participation
- Practice guideline
- Quality of life
- Survivorship
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van Kalsbeek, Re ...
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van der Pal, Hel ...
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Kremer, Leontien ...
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Bardi, Edit
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Brown, Morven C.
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Effeney, Rachel
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Winther, Jeanett ...
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Follin, Cecilia
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den Hartogh, Jaa ...
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Haupt, Riccardo
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Hjorth, Lars
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Kepak, Tomas
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Kepakova, Kateri ...
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Levitt, Gill
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Loonen, Jacqueli ...
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Mangelschots, Ma ...
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Muraca, Monica
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Renard, Marleen
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Sabic, Harun
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Schneider, Carin ...
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Uyttebroeck, Ann ...
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Skinner, Roderic ...
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Mulder, Renée L.
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