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- Laakso, Katja, 1968, et al.
(författare)
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Communication and health-related quality of life in individuals receiving home mechanical ventilation
- 2009
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Ingår i: International Journal of Therapy and Rehabilitation. - 1741-1645. ; 16:12, s. 648-655
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Tidskriftsartikel (refereegranskat)abstract
- Aims: While in clinical reality many ventilator-supported individuals have been observed to experience difficulties with their communication, research in this area is still scarce. The article aims to address this gap by looking at communicative activity and participation and health-related quality of life (HRQL) in individuals receiving home mechanical ventilation (HMV). The study focuses on how patients themselves experience their communicative participation and HRQL, and whether there might be a relationship between demographic factors, HRQL, and communicative activity and participation. Methods: Nineteen individuals receiving HMV via tracheostomy (n=17) or non-invasive means (n=2) participated in the study. Three different questionnaires were used: the generic Sickness Impact Profile, the disease-specific Severe Respiratory Insufficiency questionnaire, and the Living with Dysarthria questionnaire measuring communicative participation. Communicative activity was assessed in terms of speech intelligibility. Findings: The study found that speech intelligibility is decreased in individuals receiving HMV and that these individuals experience high levels of dysfunction in their communication. Still, communicative participation was not severely impaired. The study did not demonstrate any significant correlation between quality of life measures and communicative participation or intelligibility. Conclusions: Communication was one of the areas of HRQL with which the participants experienced difficulties. Nevertheless, the results of the study show that communicative participation and intelligibility levels do not contribute independently to the reduced HRQL.
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| 4. |
- Laakso, Katja, 1968, et al.
(författare)
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Ventilator-supported communication – a case study of patient and staff experiences
- 2009
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Ingår i: Journal of Medical Speech - Language Pathology. - 1065-1438. ; 17:4, s. 153-164
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Tidskriftsartikel (refereegranskat)abstract
- Communicative abilities and opportunities are affected by ventilator care. The purpose of this case study was to investigate both a nurse's and a ventilator-supported patient's experiences of communication during ventilator care, with the overall aim of contributing to increased knowledge and awareness of issues related to communication with a ventilator-supported patient. An explorative/descriptive embedded single-case study design was applied, and a qualitative approach guided data collection and analysis. Initially, field observations were carried out in an intensive care unit (ICU) setting, and led to the development of the case (ventilator-supported communication) and the units of analysis. This was followed by semistructured interviews with the participants: an individual receiving home mechanical ventilation (HMV) and a nurse from an ICU setting. Interviews were analyzed according to thematic content analysis. Five main categories emerged from the analysis: (1) to understand and to make oneself understood is important, (2) allowing communication to take time, (3) it takes practice to learn how to speak on a ventilator, (4) different situations require different communicative strategies and (5) knowing a person facilitates communication. The findings are discussed in relation to communicative participation, and suggestions for future research are given.
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