| 1. |
- Mallander, Ove, et al.
(författare)
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Self-advocacy for people with intellectual disability in Sweden — organizational similarities and differences
- 2018
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Ingår i: Disability Studies Quarterly. - Columbus, OH : Ohio State University Libraries. - 1041-5718 .- 2159-8371. ; 38:1
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Tidskriftsartikel (refereegranskat)abstract
- Self-determination and the ability to express opinions and preferences are fundamental to all people. Self-advocacy (SA) among people with intellectual disability (PWID) presents opportunities for them to develop skills to have a say and influence changes in their local environments. The aim of this article is to explore and understand organizational similarities and differences of SA groups for PWID in Sweden by focusing their structures and activities. Within the theoretical framework of Resource-Dependency and New Institutional Perspectives, data from six Swedish SA groups belonging to two different national organizations, have been analyzed.Factors such as affinity and expectations show limited differences, while power distribution, rules and the role of support persons point to greater diversity. However, good relations within the local organizational field seems to be essential to maintain strong SA for PWID.
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| 2. |
- Mallander, Ove
(författare)
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Young adults with intellectual disabilities in Sweden : power, self-determination and self-organiz´sation in everyday life
- 2015
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Ingår i: Research and practice in intellectual and developmental disabilities. - : Routledge. - 2329-7018 .- 2329-7026. ; 2:2, s. 194-206
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Tidskriftsartikel (refereegranskat)abstract
- Sweden has been one of the countries at the forefront of policymaking for people with intellectual disabilities worldwide. Culminating in the 1994 Swedish LSS Act (Act Concerning Support and Service for Persons with Certain Functional Impairments), the aim of Swedish policy has been to ensure good living conditions and self-determination for people with intellectual disabilities. The primary purpose of this article was to explore Swedish research on the implementation of disability policies, and the extent to which the control that people with intellectual disabilities have over their everyday lives has changed as a result of these forward-looking policies. Swedish research that focuses on self-determination and was published within the last two decades was reviewed. Findings of the study have been drawn from 11 dissertations and 5 articles. As far as the author is aware, this is the first time these findings have been made available to a non-Swedish-speaking audience. Research reviewed included outcomes relating to selfdetermination arising from the process of deinstitutionalisation for residents of group homes and in individualised service planning. Results of the study have highlighted a gap between policy aims and service provision, which is similar to that described by Tideman (2000); and that people with intellectual disabilities have limited influence over the decisions that affect their lives. The final section of the article discusses possibilities for increased self-determination arising from the self-organisation by people with intellectual disabilities, and new directions in self-advocacy that are emerging in Sweden.
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| 3. |
- Mineur, Therése, 1970-, et al.
(författare)
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Self-advocacy in Sweden-an analysis of impact on daily life and identity of self-advocates with intellectual disability
- 2017
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Ingår i: Cogent Social Sciences. - Abingdon : Cogent OA. - 2331-1886. ; 3
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Tidskriftsartikel (refereegranskat)abstract
- Self-determination and the ability to express opinions and preferences are fundamental to all people. Some people with intellectual disability no longer accept a subordinated role as disabled and new self-advocacy groups have evolved. The aim of this study was to analyse the meaning and importance of engagement in a self-advocacy group for self-advocates daily life and identity. An interpretative abductive approach was used to analyse data from interviews with 26 self-advocates from six self-advocacy groups in Sweden in relation to the theoretical concepts; recognition, social capital, culture capital and self-determination. The key finding is that the vast majority of the participants experienced a changed self-perception, as more skilled, social and confident people, depending on group affiliation, their personal engagement and positions within the group. The conclusion is that self-advocacy is important for daily life and identity of people with intellectual disability. The self-organized movements indicate an important change in society and the results are of importance not only for the target group but for shaping future support and treatment from society of people with intellectual disability.
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| 4. |
- Mineur, Therese, 1970-, et al.
(författare)
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Self-advocacy in Sweden - impact on identity and social relations
- 2015
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Konferensbidrag (refereegranskat)abstract
- Aim: In recent years an increased number of adults with intellectual disability in Sweden have been organized in self-advocacy groups since they no longer accept the perceived subordinate role as a disabled person in society. The aim of this study was to gain an understanding of the importance of being a member in a self-advocacy group and what impact it had on the members' daily life, relationships, self-determination and identity.Method: An interpretative approach was used to analyze data from interviews with 26 participants in four different groups. The semi-structured interviews were supplemented with eight interviews conducted with support workers, focus-group interviews, observations during meetings and document reviews.Findings: The findings suggest that the participants' engagement in a self-advocacy group is meaningful in several but varies ways. An improved life-situation consisting of strengthened control in every-day life and increased self-confidence are of great importance, but equally important is the perceived possibility to help others and make a difference in their lives. Self-advocacy is primarily understood in terms of achieved independence and social connections within the group, but also as influencing outsiders' attitudes.Conclusions: The self-advocacy movements indicate a significant change in society and are important for the target group as well as for shaping future support and treatment.
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| 5. |
- Tideman, Magnus, 1959-, et al.
(författare)
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Policy and practice for people with intellectual disability in Sweden
- 2015
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Konferensbidrag (refereegranskat)abstract
- Aim: Ideologically propelled by the Normalization Principle the Swedish policy and service system for people with intellectual disability has since the 1960 undergone drastic changes like deinstitutionalization and decentralisation of services to the local municipalities. The aim of this paper focusing the post-normalization disability policy and practice is to present a research-based examination of the current situation for people with intellectual disability in Sweden.Method: Meta-analysis of current Swedish research in the field of intellectual disability.Findings: This paper highlights the right-based law as well as the current trends and challenges faced by people with intellectual disability. The paradox of increased self-advocacy movement at the same time as the categorization of children and youth as intellectual disabled is increasing is discussed as well as the discrepancies in service provision and the increasing number of private service providers.Conclusions: People with intellectual disability in Sweden face a number of challenges in a considerably transformed welfare system. Comparisons of similarities and differences in for example the self-advocacy movement or the marketization between the Australian National Disability Insurance Scheme and the Swedish rights-based legislation should be useful for knowledge and development in both countries.
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