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Sökning: WFRF:(Meyer Jürgen) > (2020-2022)

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1.
  • Andersen, Peter M., 1962-, et al. (författare)
  • Caregivers’ divergent perspectives on patients’ well-being and attitudes towards hastened death in Germany, Poland and Sweden
  • 2022
  • Ingår i: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration. - : Taylor & Francis. - 2167-8421 .- 2167-9223. ; 23:3-4, s. 252-262
  • Tidskriftsartikel (refereegranskat)abstract
    • Background: During the course of amyotrophic lateral sclerosis (ALS), patients and their families are faced with existential decisions concerning life-prolonging and -shortening measures. Correct anticipation of patient’s well-being and preferences is a prerequisite for patient-centered surrogate decision making.Methods: In Germany (N = 84), Poland (N = 77) and Sweden (N = 73) patient-caregiver dyads were interviewed. Standardized questionnaires on well-being (ADI-12 for depressiveness; ACSA for global quality of life) and wish for hastened death (SAHD) were used in ALS patients. Additionally, caregivers were asked to fill out the same questionnaires by anticipating patients’ perspective (surrogate perspective).Results: Caregivers significantly underestimated patients’ well-being in Germany and Poland. For Swedish caregivers, there were just as many who underestimated and overestimated well-being. The same was true for wish for hastened death in all three countries. For Swedish and Polish patients, caregivers’ estimation of well-being was not even associated with patients’ responses and the same was true for estimation of wish for hastened death in all three countries. Older caregivers and those with the most frequent encounter with the patient were the closest in their rating of well-being and wish for hastened death to the patients’ actual state, while caregivers with chronic disease him/herself were more likely to underestimate patient’s well-being.Discussion: Despite distinct cultural differences, there was a clear discrepancy between patients’ and caregivers’ perspective on patients’ well-being and preferences towards life in all three countries. This possible bias in caregivers’ judgment needs to be taken into account in surrogate decision making.
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2.
  • Kurt, Filiz, et al. (författare)
  • The KPI-Model : an integrated KPI assessment methodology to estimate the impact of different innovations in the railway sector
  • 2022
  • Ingår i: Proceedings of the 4th SmartRaCon Scientific Seminar. - Braunschweig : Deutsches Zentrum für Luft- und Raumfahrt e.V. Institut für Verkehrssystemtechnik. ; , s. 97-107
  • Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
    • The Shift2Rail Joint Undertaking (S2R) has set impact targets for the future rail system. Those targets of the KPIs, calculated by comparing future KPIs in the year 2030 to baseline KPIs as of 2013, are defined in the Shift2Rail Master Plan. These include among others to double the capacity (+100%), half the life cycle costs (LCC) (-50%) and to increase punctuality by improving reliability by 50% [1]. In order to keep track of the realisation of these targets and to measure their degree of fulfilment a quantitative KPI model has been developed. The modelling approach and implementation are discussed in this contribution.
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