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- Fridh, Isabell, 1954, et al.
(författare)
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Extensive human suffering : a point prevalence survey of patients' most distressing concerns during inpatient care
- 2015
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 29, s. 444-453
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Tidskriftsartikel (refereegranskat)abstract
- AIM: To explore patients' most distressing concerns during a hospital stay.BACKGROUND: The characteristics of hospitalised patients have changed. Care is provided at a higher age, lengths of stay have fallen and the nursing workload is increasing. It is presumed that hospitalised patients are more seriously ill and have more palliative needs than previously. Studies show that inpatients suffer from more distress than similar outpatients although there is a lack of overall knowledge about inpatients' distress and major concerns, regardless of age, diagnosis or care setting.METHODS: This study was part of a point prevalence survey (PPS) concerning symptom prevalence. Of the 710 patients who participated in the PPS, 678 (95%) answered an open-ended question in a questionnaire: What is your main concern or what is most distressing or troublesome for you at present? Using a life-world approach, the text was analysed qualitatively and patients' concerns were interpreted in two main dimensions, an intersubjective dimension and a temporal dimension.FINDINGS: The patients reported extensive suffering due to illness, symptoms and failing health. Patients were concerned about family members, existential issues and the future. Three aspects of the patients' most distressing concerns were interpreted: The suffering self, The suffering person in close relations and The suffering person in a threatening world.CONCLUSION: Hospitalised patients are affected by severe illness, distressing symptoms and existential quandaries, revealing extensive human suffering in the midst of the demanding activities that take place during an ordinary day in a hospital. To support patients and alleviate suffering, hospital staff need to be more sensitive to patients' most distressing concerns. This presupposes a hospital environment in which the value system supports caring and comforting behaviour.
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| 2. |
- Malmgren, Kristina, 1952, et al.
(författare)
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Subjective experiences of epilepsy surgery in adults
- 2015
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Ingår i: Long-Term Outcomes of Epilepsy Surgery in Adults and Children. - Cham : Springer. - 9783319177830 ; , s. 209-224
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Bokkapitel (refereegranskat)abstract
- This chapter reviews the limited literature on patients’ subjective expectations and experiences of epilepsy surgery. Patients with drug-resistant epilepsy have widespread fears and misconceptions about epilepsy surgery and often see it as a “last resort.” Their expectations of epilepsy surgery include driving, employment, greater independence, and a better social life, as well as less likely changes such as improved memory and cognition. Patients with more practical expectations have been shown to be more likely to consider surgery a success. Certain gender and racial differences have also emerged in a few studies. Adjustment to life after surgery, especially the need to discard the sick role for those who become seizure-free, has been shown to take several years. Studies of patient-perceived memory changes after temporal lobe resection (TLR) fail to show signifi cant relationships between subjective and objective postoperative memory function. Perceived sexual changes after TLR include improvement in sexuality in those seizure-free but also hypersexuality in some. Patients’ perceptions of recurrence of seizures after epilepsy surgery are dominated by psychological issues (perceived loss of self-control, reduced self-confidence, day-to-day stress, and altered expectations for the future) but are also related to the presence of seizure improvement. While the majority of patients report satisfaction after epilepsy surgery, how this should be interpreted is not entirely clear, with a focus on dissatisfaction potentially providing more information. There are as yet no published studies of patient experiences with a follow-up of more than 2 years. In one recent preliminary report with a mean follow-up of 13 years, long-term perceptions of the impact of epilepsy surgery in principle equaled the perceptions at the 2-year follow-up. Further studies of patients’ long-term experiences after epilepsy surgery are needed. © Springer International Publishing Switzerland 2015.
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| 3. |
- Ozanne, Anneli, 1978
(författare)
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Omvårdnad vid Amyotrofisk lateralskleros (ALS)
- 2015
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Ingår i: Omvårdnad vid neurologiska sjukdomar. Redaktör Kristina Gottberg. - Lund : Studentlitteratur. - 9789144055008 ; , s. 19-45
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Bokkapitel (refereegranskat)
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