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- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Being in transit and in transition : The experience of time at the place, when living with severe incurable disease - a phenomenological study
- 2014
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 28:3, s. 458-468
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study is to describe the experience of time as it presents itself at the place being situated when living with severe incurable disease and receiving palliative care. The empirical data consist of 26 open-ended interviews with 23 patients receiving palliative care at home, at a palliative day care, in a palliative bed unit in hospital or in a nursing home in Norway. A common meaning of a shifting space for living emerged from the analysis and was revealed through three different aspects: (i) Transition from a predictable to an unpredictable time: To live with severe incurable disease marks a transition to a changed life involving an ongoing weakened and altered body with bothersome symptoms making experience of time different and unpredictable. (ii) Transition between a safe and unsafe time: When time is unpredictable, feeling safe is revealed as essential to how time is experienced at the place being situated. (iii) To be in transition from a homely to a homeless existence: In a time of increased bodily weakness, unpredictable ailments and displacements, the sense of belonging to the place is revealed as significant to the experience of time. Not knowing where to be in a time of change is like an existential cry of distress where the foothold in existence is lost. The findings are discussed and interpreted as an embodied experience originating from the passage of time continually affecting life sometimes so fundamentally that it marks a transition to a changed space of life that is reflected in the experience of time. © 2013 Nordic College of Caring Science.
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| 2. |
- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Entering a World with No Future : A phenomenological study describing the embodied experience of time when living with severe incurable disease
- 2013
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Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 27:1, s. 165-174
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Tidskriftsartikel (refereegranskat)abstract
- A phenomenological study describing the embodied experience of time when living with severe incurable disease This article presents findings from a phenomenological study exploring experience of time by patients living close to death. The empirical data consist of 26 open-ended interviews from 23 patients living with severe incurable disease receiving palliative care in Norway. Three aspects of experience of time were revealed as prominent: (i) Entering a world with no future; living close to death alters perception of and relationship to time. (ii) Listening to the rhythm of my body, not looking at the clock; embodied with severe illness, it is the body not the clock that structures and controls the activities of the day. (iii). Receiving time, taking time; being offered - not asked for - help is like receiving time that confirms humanity, in contrast to having to ask for help which is like taking others time and thereby revealing own helplessness. Experience of time close to death is discussed as an embodied experience of inner, contextual, relational dimensions in harmony and disharmony with the rhythm of nature, environment and others. Rhythms in harmony provide relief, while rhythms in disharmony confer weakness and limit time. © 2012 The Authors. Scandinavian Journal of Caring Sciences © 2012 Nordic College of Caring Science.
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| 3. |
- Ellingsen, Sidsel, 1959-, et al.
(författare)
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Experience of Time when Living with Incurable Disease : A Qualitative Study
- 2011
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Ingår i: 12th Congress of the European Association for Palliative Care (EAPC), Lisbon, Portugal, 18-21 May, 2011. - Newmarket : Hayward Medical Communications. ; , s. 190-190
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Background: The healthcare system’s unilateral focus on clock time has given motivation to explore the diversity of time and in particular the impact of time in vulnerable patients. When living with severe incurable disease, the diversity and impact of time become prominent.Aim: Knowledge on patients’ experiences of time may be helpful both in planning, organizing, preparing and performing treatment and care for patients with short life expectancy. Especially to open up the communication with the patient and his/her relatives, this knowledge is important and therefore of general interest.Theoretical frame: The philosophical and theoretical approach in this study is phenomenological. Edmund Husserl, the founder of modern phenomenology, has stated that consciousness of time is the most important area in phenomenology. Martin Heidegger, known as a master in phenomenology after Husserl, emphasizes the impact of our relationship to time with respect to being.Method: An unstructured open-ended in-depth interview has been used with support of a theme guide reflecting different aspects of time. The data consist of 26 interviews from 23 participants receiving palliative care. The study was carried out from April 2009 to February 2010 in the respondent’s home or at different palliative care units in Hordaland County in Norway.Preliminary result: Time, context and care are related. The patients feeling of security for themselves and their relatives determine whether the time feels good or bad. It is evident that our relationship to time is expressed by body language. The body also communicates a rhythm, when health worker and the patients have different rhythm the care can become an unpleasant experience. Patients, relatives and health workers are in different aspects of time, normally we are prospective, when death are approaching the future become uncertain, which can entail that it is a challenge to meet in harmony in the present.
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| 4. |
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| 5. |
- Karlsson, Margareta, 1958-, et al.
(författare)
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Community nurses’ experiences of ethical dilemmas in palliative care : A Swedish study
- 2010
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Ingår i: International Journal of Palliative Nursing. - London : Mark Allen Group. - 1357-6321 .- 2052-286X. ; 16:5, s. 224-231
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Tidskriftsartikel (refereegranskat)abstract
- Aim: The aim of this study was to highlight community nurses' experiences of ethical dilemmas in palliative care.Background: There are many studies on palliative care but research on how community nurses experience ethical dilemmas in palliative home care is lacking. The ethical dilemmas to which these nurses are exposed seriously challenge their ethical competence.Method: Seven community nurses described their experiences of ethical dilemmas in palliative home care. The data was analysed by means of qualitative content analysis.Findings: The core themes that emerged were: powerlessness, frustration, and concern in relation to ethical dilemmas in palliative care. The nurses were motivated and felt responsibility for their patients' end of life, and their relatives, and took their duties seriously. They wanted to satisfy all parties; the patient, the relatives and other palliative care professionals.Conclusion: The study confirms the need for knowledge about how community nurses experience dilemmas in ethical decision-making. They have the freedom to act and the willingness to make decisions, but they lack competence and knowledge about how their colleagues' experience and deal with such issues.
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| 6. |
- Rask, Mikael, 1958-, et al.
(författare)
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Validity and reliability of a Swedish version of the Relationship Assessment Scale (RAS) : a pilot study
- 2010
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Ingår i: Canadian journal of cardiovascular nursing. - Ottawa : Canadian Council of Cardiovascular Nurses. - 0843-6096. ; 20:1, s. 16-21
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: There is a need for a short and easily administered scale, in the Swedish language, for assessing partner relationships in the health care of persons with cardiac disease. PURPOSE: To establish the reliability and validity of the Swedish version of the Relationship Assessment Scale (RAS). DESIGN: The present pilot study has a methodological design. FINDINGS: Content validity has been tested for relevance, clarity and readability. The scale was tested for construct validity with explorative factor analysis. The reliability was tested by internal consistency and test-retest analysis. The result showed a two-factor solution, which does not correspond to the original proposed one-factor solution. The factor analyses revealed two quite distinct factors of RAS, labelled "Relationship built on expectations and satisfaction of needs" and "Relationship built on love and devotion". CONCLUSIONS: The scale has satisfactory psychometric properties in terms of content validity, construct validity, homogeneity and stability in a population of persons with cardiac disease. Wider evaluations of the RAS for other populations and settings are recommended.
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| 9. |
- Roxberg, Åsa, 1953-
(författare)
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I det otänkbaras mitt
- 2011
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Ingår i: BestPractice Psykiatri/Neurologi Yrkesdialog mellan specialister. - : BestPractice ApS. - 1902-7583. ; 7:2, s. 18-20
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- SlutsatsDe som drabbats av naturkatastrof lever som i två världar, den tidigare välkända och den nuvarande oigenkännliga. Att samtidigt köpa mjölk och gravljus är ett exempel på denna komplexitet. I dessa världar söker de rekonstruera och möblera sitt inre rum att känna sig hemma i. I denna process behövs medmänniskor som uthärdar rekonstruktionen och som varsamt återför dem till detta arbete när de går vilse. Renoveringen är de drabbades möjlighet, en väg till en framtid med förändrade livsmål.
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| 10. |
- Roxberg, Åsa
(författare)
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I det otänkbaras mitt
- 2011
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Ingår i: BestPractice PSYKIATRI OG NEUROLOGI. ; 7:2, s. 18-20
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Tidskriftsartikel (refereegranskat)
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