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Mapping exercise an...
Mapping exercise and status update of eight established registries within the TREatment of ATopic eczema (TREAT) Registry Taskforce
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- Bosma, A. L. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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- Musters, A. H. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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- Bloem, M. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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- Gerbens, L. A. A. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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- Middelkamp-Hup, M. A. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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- Haufe, E. (författare)
- Center for Evidence-based Health Care (ZEGV), Medical Faculty Carl Gustav Carus, TU Dresden, Dresden, Germany,Medizinsche Klinik und Poliklinik I, Dresden
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- Schmitt, J. (författare)
- Center for Evidence-based Health Care (ZEGV), Medical Faculty Carl Gustav Carus, TU Dresden, Dresden, Germany,Medizinsche Klinik und Poliklinik I, Dresden
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- Barbarot, S. (författare)
- Nantes Université, Department of Dermatology, CHU Nantes, UMR 1280 PhAN, INRAE, Nantes, France
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- Seneschal, J. (författare)
- Department of Dermatology and Pediatric Dermatology, National Reference Center for Rare Skin Diseases, University Hospital of Bordeaux, France,Centre Hospitalier Universitaire de Bordeaux
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- Staumont-Sallé, D. (författare)
- Department of Dermatology, University Hospital of Lille, INFINITE (Institute for Translational Research in Inflammation) Inserm, Lille, France
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- Johansson, E. K. (författare)
- Karolinska Institute,Karolinska Institutet,Karolinska University Hospital
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- Bradley, M. (författare)
- Karolinska Institute,Karolinska Institutet,Karolinska University Hospital
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- von Kobyletzki, Laura B. (författare)
- Örebro University,Lund University,Lunds universitet,Örebro universitet,Institutionen för medicinska vetenskaper,Occupational and Environmental Dermatology, Malmö, Lund University, Sweden; Centrum for clinical research, Örebro University, Örebro, Sweden,Yrkes- och miljödermatologi,Forskargrupper vid Lunds universitet,Lund University Research Groups
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- Vittrup, I. (författare)
- Department of Dermatology and Allergy, Copenhagen University Hospital - Herlev and Gentofte, Copenhagen, Denmark; Department of Dermatology and Venereology, Copenhagen University Hospital - Bispebjerg and Frederiksberg, Copenhagen, Denmark
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- Ruge, I. Frier (författare)
- Department of Dermatology and Allergy, Copenhagen University Hospital - Herlev and Gentofte, Copenhagen, Denmark; Department of Dermatology and Venereology, Copenhagen University Hospital - Bispebjerg and Frederiksberg, Copenhagen, Denmark
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- Thyssen, Jacob P. (författare)
- Department of Dermatology, Bispebjerg Hospital, University of Copenhagen, Copenhagen, Denmark
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- Vestergaard, C. (författare)
- Department of Dermatology Aarhus University hospital, Aarhus, Denmark
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- de Vega, M. (författare)
- Research Unit, Academia Española de Dermatologia y Venereologia, Madrid, Spain
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- García-Doval, I. (författare)
- Research Unit, Academia Española de Dermatologia y Venereologia, Madrid, Spain
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- Chiricozzi, A. (författare)
- Dermatologia, Fondazione Policlinico Universitario A. Gemelli IRCCS, Rome, Italy; Dermatologia, Università Cattolica del Sacro Cuore, Rome, Italy,Catholic University of the Sacred Heart, Rome,Policlinico Universitario Agostino Gemelli
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- Stingeni, Luca (författare)
- Dermatology Section, Department of Medicine and Surgery, University of Perugia, Perugia, Italy
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- Calzavara-Pinton, Piergiacomo (författare)
- Department of Dermatology, ASST Spedali Civili of Brescia, University of Brescia, Brescia, Italy
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- Ardern-Jones, M. R. (författare)
- Clinical Experimental Sciences, Faculty of Medicine, University of Southampton, UK; Department of Dermatology, University Hospitals Southampton NHS Foundation Trust, Southampton, UK
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- Reynolds, N. J. (författare)
- Institute of Translational and Clinical Medicine, Faculty of Medical Sciences, Framlington Place, Newcastle University, Newcastle upon Tyne, UK; Department of Dermatology, Royal Victoria Infirmary, Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
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- Flohr, C. (författare)
- Unit for Population-Based Dermatology Research, St John's Institute of Dermatology, Guy's and St Thomas' NHS Foundation Trust and King's College London, London, UK
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- Spuls, P. I. (författare)
- Department of Dermatology, Amsterdam UMC, location Academic Medical Center, University of Amsterdam, Amsterdam Public Health, Infection and Immunity, The Netherlands
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(creator_code:org_t)
- 2022-09-10
- 2023
- Engelska.
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Ingår i: Journal of the European Academy of Dermatology and Venereology. - : Blackwell Publishing. - 0926-9959 .- 1468-3083. ; 37:1, s. 123-136
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https://doi.org/10.1...
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http://dx.doi.org/10... (free)
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- BACKGROUND: the TREatment of ATopic eczema (TREAT) Registry Taskforce is a collaborative international network of registries collecting data of atopic eczema (AE) patients receiving systemic and phototherapy with the common goal to provide long-term real-world data on the effectiveness, safety and cost-effectiveness of therapies. A core dataset, consisting of domains and domain items with corresponding measurement instruments, has been developed to harmonize data collection.OBJECTIVES: we aimed to give an overview of the status and characteristics of the eight established TREAT registries, and to perform a mapping exercise to examine the degree of overlap and pooling ability between the national registry datasets. This will allow us to determine which research questions can be answered in the future by pooling data.METHODS: all eight registries were asked to share their dataset and information on the current status and characteristics. The overlap between the core dataset and each registry dataset was identified (according to the domains, domain items and measurement instruments of the TREAT core dataset).RESULTS AND CONCLUSIONS: a total of 4,702 participants have been recruited in the 8 registries as of 1st of May 2022. Of the 69 core dataset domain items, data pooling was possible for 69 domain item outcomes in TREAT NL (the Netherlands), 61 items in A-STAR (UK and Ireland), 38 items in TREATgermany (Germany), 36 items in FIRST (France), 33 items in AtopyReg (Italy), 29 items in Biobadatop (Spain), 28 items in SCRATCH (Denmark) and 20 items in SwedAD (Sweden). Pooled analyses across all registries can be performed on multiple important domain items, covering the main aims of analyzing data on the (cost-)effectiveness and safety of AE therapies. These results will facilitate future comparative or joint analyses.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Dermatologi och venereologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Dermatology and Venereal Diseases (hsv//eng)
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Bosma, A. L.
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Musters, A. H.
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Bloem, M.
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Gerbens, L. A. A ...
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Middelkamp-Hup, ...
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Haufe, E.
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visa fler...
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Schmitt, J.
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Barbarot, S.
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Seneschal, J.
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Staumont-Sallé, ...
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Johansson, E. K.
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Bradley, M.
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von Kobyletzki, ...
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Vittrup, I.
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Ruge, I. Frier
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Thyssen, Jacob P ...
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Vestergaard, C.
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de Vega, M.
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García-Doval, I.
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Chiricozzi, A.
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Stingeni, Luca
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Calzavara-Pinton ...
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Ardern-Jones, M. ...
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Reynolds, N. J.
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Flohr, C.
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Spuls, P. I.
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Örebro universitet
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Karolinska Institutet
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