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- Carlsson, Maria E., 1958-, et al.
(författare)
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Qualitative analysis of the questions raised by patients with gynecologic cancers and their relatives in an educational support group.
- 1999
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Ingår i: Journal of Cancer Education. - 0885-8195 .- 1543-0154. ; 14:1, s. 41-46
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND People's knowledge of cancer is generally inadequate to help them cope with a diagnosis of cancer. Educational support groups may allow cancer patients to receive information they want that is normally not covered in the individual clinical encounter. It was desired to identify the content of such information as reflected in the questions asked by cancer patients and their relatives in such support groups. METHOD The 329 questions asked by 41 patients and 11 of their relatives in 40 group sessions were analyzed and categorized. RESULTS The categories found are described. Almost 100 questions could be allocated to the category "the illness," of which the most common was, "Is cancer hereditary?" The questions made it clear that the patients had a wish and a need to understand cancer. CONCLUSION An educational support group provides a complement to, and not a substitute for, the clinical provision of medical information.
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- Carlsson, Maria, 1958-, et al.
(författare)
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How patients with gynecological cancer experience the information process
- 1998
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Ingår i: Journal of Psychosomatic Obstetrics and Gynaecology. - : Informa Healthcare. - 0167-482X .- 1743-8942. ; 19:4, s. 192-201
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Tidskriftsartikel (refereegranskat)abstract
- This qualitative study was designed to explore the kind of experiences women with a diagnosis of gynecological cancer have with regard to information given during their illness and how it could be improved. Data were collected through a semistructured interview which focused on the 24 women's experiences of the information given. The interviews were tape-recorded and transcribed verbatim for each participant, and analysed using a content analysis. Two main themes were revealed: to actively address questions, and the right to receive honest information. The results also include a short description on how information was offered, the patients' opinion of it and how the patients had sought information for themselves. When patients address questions they want honest answers. Some effort should also be made to identify patients who do not want information. If it is in accordance with the patient's and next-of-kin's wishes, efforts should be made to provide information at times when both can participate. Information given jointly to the patient and her family lessens the burden for the patient. In Sweden today, as a result of recent political decisions, caregivers must also consider the need to discuss economic issues.
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