| 1. |
- Andershed, Birgitta, et al.
(författare)
-
Involvement of relatives in care of the dying in different care cultures : development of a theoretical understanding
- 1999
-
Ingår i: Nursing Science Quarterly. - : SAGE Publications. - 0894-3184 .- 1552-7409. ; 12:1, s. 45-51
-
Tidskriftsartikel (refereegranskat)abstract
- A prerequisite for the staff to be able to guide relatives through the dying trajectory is that the staff members know what the relative wants and can do. The aim of this study was threefold: (a) to identify and categorize family members' involvement in the care of a dying relative, (b) to develop a theoretical understanding of their involvement, and (c) to discuss the congruence or incongruence between the empirical results and key concepts in Swanson's and Watson's theories of caring. The results show that the relatives' involvement could be classified into three categories: to know, to be, and to do. Good correspondence was found between these three categories and key concepts in Swanson's and Watson's theories of caring.
|
|
| 2. |
- Andershed, Birgitta, et al.
(författare)
-
Involvement of relatives in the care of the dying in different care cultures : involvement in the dark or in the light?
- 1998
-
Ingår i: Cancer Nursing. - : Ovid Technologies (Wolters Kluwer Health). - 0162-220X .- 1538-9804. ; 21:2, s. 106-111
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this prospective study was to increase existing knowledge about the involvement of relatives in care of the dying and to shed light on the relatives' sense of coherence. Six relatives were followed via qualitative interviews during the patients' final period of life and after their deaths. The patients died in different forms of care: surgical department, nursing home, inpatient hospice ward, and at home. What the relatives had in common was that they had, in different ways, followed the patient from the first symptoms, through different forms of care, up until death. Some participated very actively in the care. Relatives' involvement in care can be described as involvement in the light or involvement in the dark. Involvement in the light is based on a trusting relationship between the family and the staff. Involvement in the dark is based on insufficient interplay and collaboration, in which the relatives are not seen or acknowledged by the staff, but instead must grope around in the dark when they try to support the patient. Rapid course of illness can be a risk factor for involvement in the dark. It seems that the relatives' sense of coherence was an important factor enabling them to be involved in the light. Humanistic care can constitute a buffer, thereby increasing the possibilities for relatives to be involved in the light.
|
|
| 3. |
|
|
| 4. |
|
|
| 5. |
|
|
| 6. |
- Andershed, Birgitta, et al.
(författare)
-
Patterns of care for patients with cancer before and after the establishment of a hospice ward
- 1997
-
Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 11:1, s. 42-50
-
Tidskriftsartikel (refereegranskat)abstract
- A majority of people die in acute hospital care, in a culture of quickness primary aimed at curing. There are indications that hospice care in various forms will spread during the present decade in Sweden. The hospice philosophy contributes to a culture of slowness, where the patient is not only allowed but is encouraged to live at his own pace. As a first step in establishing for whom hospice inpatient care is the best alternative, patient flow to a newly started hospice ward was studied. All patients (n = 1464) who died at the Medical Centre Hospital with a primary diagnosis of cancer during the period of study were compared regarding place of death, diagnosis, gender, age and length of the last period of care. The year before the ward was established, 82% of patients died in acute hospital care compared with 59% during the hospice ward's third year of operation. A total of 315 patients (22%) died in the hospice ward during the study period. The percentage of these patients over the age of 80 was significantly higher (p = 0.0001), and they also had a longer continuous final period of care. More women (57%) than men (43%) were cared for at the hospice ward. The hospice ward has in this way influenced the pattern of care in the hospital.
|
|
| 7. |
- Andershed, Birgitta, et al.
(författare)
-
The illness trajectory : for patients with cancer who died in two different cultures of care
- 1998
-
Ingår i: Omega. - 0030-2228 .- 1541-3764. ; 37:4, s. 251-272
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this study has been to retrospectively examine the illness trajectory for a consecutive group of sixty-seven patients with cancer who died at a surgical department or were referred from there to an inpatient hospice ward where they died. Relatives of fifty-two patients were interviewed after the patient's death and all sixty-seven medical records were studied. The data was analyzed with support of Glaser and Strauss' concept of a dying trajectory. A surprising result was that as many as forty-four patients had a short trajectory, and nineteen of these had one month or less between diagnosis and death. Patients at surgical wards followed a faster trajectory and were in a somewhat poorer state of health when compared to patients at the inpatient hospice ward. In the case of trajectories within three months, there is no time to lose, and it is important that caring delay are avoided.
|
|
| 8. |
|
|
| 9. |
- Sahlberg-Blom, Eva, et al.
(författare)
-
The last month of life : continuity, care site and place of death
- 1998
-
Ingår i: Palliative Medicine. - : SAGE Publications. - 0269-2163 .- 1477-030X. ; 12:4, s. 287-296
-
Tidskriftsartikel (refereegranskat)abstract
- A hospice ward was opened in 1991 at the Örebro MedicalCentre Hospital (ÖMCH) in Sweden. Shortly afterwards, aresearch project was started, which aimed to describe differentaspects of the final period of life of a group of cancer patients.This exploratory study is part of this project and aims to assesscontinuity in the site of care for a group of severely ill cancerpatients during the final stages of their lives, and their placeof death within different cultures of care.This prospective study involved 56 adults with cancer who hadbeen admitted to six specialized departments at ÖMCH. Demographicand diagnostic data, documentation of when the patients changedfrom one care form to another, as well as place of death wereobtained. The analysis of continuity in terms of care site involvedcare-oriented cultures (hospice ward, hospital-based home care,primary care-based home care and nursing home) and cure-orientedcultures (acute hospital wards).Considered as a group, the patients spent one-third of theirtime at home during their final month of life, with or withoutformal caregivers. For individual patients, however, there weregreat variations with regard to continuity of care site andcare form. A pattern was found for the type of cancer the patientshad and where they were during their final month. Ten patientsdied in their own homes, and of the 46 who died in an institution,approximately the same number died in a care-oriented cultureas in a cure-oriented culture.
|
|
