| 1. |
- Nilsson, Sofia, et al.
(författare)
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EXPERIENCES OF COMMUNICATION AND INFORMATION FROM HEALTH CARE STAFF REGARDING REPRODUCTIVE HEALTH: A QUALITATIVE STUDY OF FEMALE CHILDHOOD CANCER SURVIVORS IN SWEDEN
- 2024
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Ingår i: Journal of Cancer Rehabilitation. - 2704-6494. ; 7, s. 53-56
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Tidskriftsartikel (refereegranskat)abstract
- Background With increasing number of childhood cancer survivors, there is a growing population of adult survivors that reach reproductive age. Long-term side effects of cancer treatment can include damage to the reproductive organs and lead to premature ovarian failure. The purpose of the study was to examine female childhood cancer survivors’, participating in long-term follow-up, experiences of communication and information regarding fertility and reproductive health outcomes. We also aimed to investigate how they experienced the transition from pediatric to adult health services. Methods Participants for the study were all part of a longitudinal project, identified through the Long-Term Follow-Up Clinic at the Oncology Department at Sahlgrenska University Hospital, Sweden. Fifty-four female childhood cancer survivors treated with chemotherapy and/or radiotherapy before 18 years of age were included between 2016 and 2018. During the years 20182022, twenty-five of the participants reached the age of 25 and were invited to conduct a semi-structured interview. Twenty-two agreed to participate. The interview includes questions about fertility, collaboration with healthcare and communication regarding reproductive options when diagnosed with cancer. Interview data was analysed inductively using a thematic analysis. Results The analysis of the data resulted in three main themes; (1) Communication challenges, (2) Information about potential infertility and (3) Follow-up – a broader perspective, with a total of 9 subthemes. Many of the women expressed lack of information regarding reproductive health and a disappointment in their follow-up. Conclusion It is evident that the young women have felt a lack of information regarding fertility, reproductive health outcomes and options after their cancer treatment. The results of our study also indicate that transition from pediatric health care to adult health care needs to be facilitated and supported.
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| 2. |
- Kjellberg, Sara
(författare)
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Förord
- 2023
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Ingår i: Allas bibliotek - vår berättelse. - : Malmö universitet. - 9789178774319 - 9789178774326 ; , s. 7-8
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Bokkapitel (populärvet., debatt m.m.)
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| 3. |
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| 4. |
- Örtegren, Sara, et al.
(författare)
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A qualitative study on self-image, mental well-being and fertility among female young adult childhood cancer survivors.
- 2023
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Ingår i: Reproductive, Female and Child Health. - : Wiley. - 2768-7228. ; 2:2, s. 103-111
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Tidskriftsartikel (refereegranskat)abstract
- Introduction Young female adult childhood cancer survivors have frequently been reported to be concerned about their health, in particular their future fertility. The aim of this study was to examine how self-image, mental health and perceptions of the fertility of young female adults are affected by the illness. Methods A qualitative study with interviewer-administered semistructured questions was performed from May 2018 to October 2020 at Sahlgrenska University Hospital, Sweden. Fourteen women participated in the study. The median age of the participants was 27 (25–31) years. Results The interviews were recorded and analysed inductively by a thematic approach. Forty-one codes were created, of these 21 initial codes were found to be related to the aim of the present study. Subsequently, four broad themes were created and these were reanalysed and constituted three main themes, resulting in the labelling: ‘An experience for better and worse’, ‘An everyday life similar and yet different from peers’ and ‘An uncertain fertility’, and a relevant number (11) of inclusive subthemes. Participants expressed that the experience of surviving childhood cancer both strengthened and impaired their everyday life and implied the lack of information about fertility. Conclusions Although a long time, over 10 years, had passed since the cancer treatment for all participants, the experiences of the illness were still present in their lives, both for better and worse. Healthcare workers need to keep this complexity in mind when facing young childhood cancer survivors. Thus, there is a need for individualized support regarding fertility and mental health.
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| 5. |
- Kjellberg, H., et al.
(författare)
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Apical root resorptions in girls with Turner syndrome: a controlled longitudinal study
- 2022
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Ingår i: European Journal of Orthodontics. - : Oxford University Press (OUP). - 0141-5387 .- 1460-2210.
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Tidskriftsartikel (refereegranskat)abstract
- Objectives To study, longitudinally, the development of apical root resorptions (ARRs) in Turner syndrome (TS) and to correlate these to the karyotype and orthodontic treatment. Materials and methods Thirty girls with TS participated in the study, mean age 10.8 years (6.6-23.4) at the first registration (T1), and 14.3 years (9.2-25.2) at the second registration (T2). Forty girls without TS, orthodontically untreated, served as controls. ARR was diagnosed in panoramic radiographs, and root/crown ratios of the lower permanent first molar were measured at T1 and T2 with a mean follow-up period of 42 (11-89) months. Results During the follow-up period, ARR was seen in 40% of all TS patients and in 2.5% in the control group. The majority displayed ARR on the distal root of the mandibular first permanent molars (30%). ARR at T2 was seen in 56% of 45,X and isochromosome karyotype and 21% of every other TS karyotype patients. AAR was seen in 5 out of 12 TS patients with orthodontic treatment. No statistically significant differences in root/crown ratios between T1 and T2 were found. Limitations The number of patients studied is limited, thus possible differences might be disguised for this reason. Spatial projection errors in panoramic radiograph recordings might have influenced measurement, resulting in an underestimation of ARR. Conclusions There is a higher risk for ARR in girls with TS and probably the risk is therefore probably also higher during orthodontic treatment. Thus, if treated, frequent radiographic follow-ups should be taken during the treatment. Protocol The protocol was not published before trial commencement.
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| 6. |
- Adman, Per, et al.
(författare)
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171 forskare: ”Vi vuxna bör också klimatprotestera”
- 2019
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Ingår i: Dagens nyheter (DN debatt). - Stockholm. - 1101-2447.
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Tidskriftsartikel (populärvet., debatt m.m.)abstract
- DN DEBATT 26/9. Vuxna bör följa uppmaningen från ungdomarna i Fridays for future-rörelsen och protestera eftersom det politiska ledarskapet är otillräckligt. Omfattande och långvariga påtryckningar från hela samhället behövs för att få de politiskt ansvariga att utöva det ledarskap som klimatkrisen kräver, skriver 171 forskare i samhällsvetenskap och humaniora.
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| 7. |
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| 8. |
- Kjellberg, Sara
(författare)
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Biblioteksdidaktik
- 2018
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Ingår i: Nordisk Tidsskrift for informations- og kulturformidling. - : Det Kgl. Bibliotek. - 2245-2931 .- 2245-294X. ; 7:1, s. 54-56
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Recension (övrigt vetenskapligt/konstnärligt)
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| 9. |
- Kjellberg, Sara, et al.
(författare)
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Researchers' online visibility : tensions of visibility, trust and reputation
- 2018
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Ingår i: Online information review (Print). - 1468-4527 .- 1468-4535.
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this paper is to understand what role researchers assign to online representations on the new digital communication sites that have emerged, such as Academia, ResearchGate or Mendeley. How are researchers’ online presentations created, managed, accessed and, more generally, viewed by academic researchers themselves? And how are expectations of the academic reward system navigated and re-shaped in response to the possibilities afforded by social media and other digital tools? Design/methodology/approach Focus groups have been used for empirical investigation to learn about the role online representation is assigned by the concerned researchers. Findings The study shows that traditional scholarly communication documents are what also scaffolds trust and builds reputation in the new setting. In this sense, the new social network sites reinforce rather than challenge the importance of formal publications. Originality/value An understanding of the different ways in which researchers fathom the complex connection between reputation and trust in relation to online visibility as a measure of, or at least an attempt at, publicity (either within academia or outside it) is essential. This paper emphasizes the need to tell different stories by exploring how researchers understand their own practices and reasons for them.
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| 10. |
- Sköld, Olle, 1983-
(författare)
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Documenting Videogame Communities : A Study of Community Production of Information in Social-Media Environments and its Implications for Videogame Preservation
- 2018
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- Drawing on the disciplines of library and information studies and archival studies, this study seeks to explore the production of information in online videogame communities and to elucidate how such insights can offer practical and conceptual support to the knotty issue of how to preserve those sociocultural aspects of videogames that exist 'beyond' the code and audiovisual data resources of the videogame itself. This is accomplished in two principal moves: (i) by delving into the current state of socioculturally-focused videogame preservation and; (ii) by inquiring into the production of information carried out by videogame communities in what arguably is one of their most important interfaces of interaction—discussion forums, wikis, and other social-media services. The study is based on four papers (I–IV). Paper I develops the theoretical framework of the study on the basis of practice theory and document theory. Papers II and III report on field-studies of videogame-community information production in the context of two processes of importance in community social life: memory-making (II) and knowledge production (III). Paper IV offers a qualitative systematic review of videogame-archiving literature, allowing Papers I–III to be situated in an archival context. The study employs multiple methods and encompasses several empirical sites of inquiry and was inspired by the framework of exploratory research and of 'bricolage' research strategies.The results of the study add to the present state of knowledge on how information in the social-media environments of the large and influential present-day videogaming domain emerges as a result of community practices of production, and how videogame-community social life is entangled with information production in such spaces. The study also furthers archival inquiry on the topic of videogame preservation by providing a description and analysis of what information objects videogame-related social media plausibly hold, and by what communal practices and processes they have been brought into existence. Furthermore, the study examines the consequences of collecting community-produced social media and framing it as documentation of the sociocultural aspects of videogames—a key issue in videogames preservation.
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