| 1. |
- Ahlström, Britt Hedman, 1954-, et al.
(author)
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Difficulties in everyday life : Young persons with attention-deficit/hyperactivity disorder and autism spectrum disorders perspectives. A chat-log analysis.
- 2014
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In: International Journal of Qualitative Studies on Health and Well-being. - : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 9, s. 23376-
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Journal article (peer-reviewed)abstract
- This study focuses on the everyday life of young persons with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD). There are follow-up studies describing ADHD, and ASD in adults, and residual impairments that affect life. Few qualitative studies have been conducted on the subject of their experiences of everyday life, and even fewer are from young persons' perspectives. This study's aim was to describe how young persons with ADHD and ASD function and how they manage their everyday life based on analyses of Internet-based chat logs. Twelve young persons (7 males and 5 females aged 15-26) diagnosed with ADHD and ASD were included consecutively and offered 8 weeks of Internet-based Support and Coaching (IBSC). Data were collected from 12 chat logs (445 pages of text) produced interactively by the participants and the coaches. Qualitative content analysis was applied. The text was coded and sorted into subthemes and further interpreted into themes. The findings revealed two themes: "fighting against an everyday life lived in vulnerability" with the following subthemes: "difficult things," "stress and rest," and "when feelings and thoughts are a concern"; and the theme "struggling to find a life of one's own" with the following subthemes: "decide and carry out," "making life choices," and "taking care of oneself." Dealing with the problematic situations that everyday encompasses requires personal strength and a desire to find adequate solutions, as well as to discover a role in society. This study, into the provision of support and coaching over the Internet, led to more in-depth knowledge about these young persons' everyday lives and revealed their ability to use IBSC to express the complexity of everyday life for young persons with ADHD and ASD. The implications of the findings are that using online coaching makes available new opportunities for healthcare professionals to acknowledge these young persons' problems.
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| 2. |
- Ali, Lilas, 1981, et al.
(author)
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Daily life for young adults who care for a person with mental illness: a qualitative study
- 2012
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In: Journal of Psychiatric and Mental Health Nursing. - Chichester : Wiley. - 1351-0126 .- 1365-2850. ; 19:7, s. 610-617
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Journal article (peer-reviewed)abstract
- Accessible summary The burden of caring for a person with mental illness has been transferred to families and close friends. Daily life for young informal carers is unpredictable and they need to stay alert and prepared for events beyond their control. Young informal carers are concerned young adults who support a family member or friend unconditionally. Supporting a friend is related to as a great a sense of individual responsibility as supporting a family member. Abstract This study describes the daily life and management strategies of young informal carers of family members or friends with mental illness. Twelve young adults (three men and nine women; 1625 years old) in Sweden were voluntarily recruited between February and May 2008. Data collected through eight individual semi-structured interviews and one focus group interview were analysed using qualitative content analysis. The findings revealed nine subthemes that were further grouped into three main themes: showing concern, providing support and using management strategies. Participants lived in constant readiness for something unexpected to happen to the person they cared for, and their role in the relationship could change quickly from family member or friend to guardian or supervisor. Supporting a friend was considered as large a personal responsibility as supporting a family member. Their management strategies were based on individual capacities and their ability to step aside should the situation become too demanding. These young informal carers need support in caring for the mentally ill. As the internet becomes increasingly fundamental to daily life, support could be provided most effectively through person-centred web sites.
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| 3. |
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| 4. |
- Ali, Lilas, 1981, et al.
(author)
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Support for young informal carers of persons with mental illness : A mixed-method study
- 2013
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In: Issues in Mental Health Nursing. - New York : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 34:8, s. 611-618
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Journal article (peer-reviewed)abstract
- The aim of this study was to explore how young (16-25 year old) informal carers of a person with a mental illness experience and use support. In a mixed method approach, we interviewed 12 young carers, and 241 completed a self-administered questionnaire. While the young carers strive to maintain control, their main support seems to be others in their lives, who often define the situation differently. The carers said web-support, counseling, and group counseling might be helpful, yet very few had any professional support. Young carers are greatly in need of support and it should be provided.
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| 7. |
- Andrén, Ulla, 1955-, et al.
(author)
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Student’s trajectory through the education into the labour market
- 2014
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In: Conference Proceedings Abstracts. ; , s. 1-23
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Conference paper (other academic/artistic)abstract
- A range of programmes and new vocations emerge as an answer to societal changes that suggest new work functions as well as new sub-specializations of already existing professions and work functions. In 2010, a multidisciplinary designed training programme started at the University West in Social Psychiatric Care (SPC). The new occupation can be said to fall within the category of pre-professions, a third generation of professionals seeking professional status. The possibility for employment is broad and unspecified and in worst case might go no further than the students' hopes of new careers. Against this background, an inside perspective is given from students experiences. The purpose was to gain a deeper understand of student's trajectory through a new education into the labour market. Eleven female students were interviewed prior to graduation. A hermeneutical phenomenological approach was conducted in order to identify central themes important in students professional becoming. As preliminary result three themes were identified. The theme 'tensions between high and low position' concerning level of involvement in treatment and care or in morea dministrative leading function, were connected to power and payment. The theme 'generalistor specialist' concerned specialist in the respect of expert on broadness suitable for coordinating positions, otherwise broadness was defined as knowing everything anddifficulties in finding professional identity. The theme 'change and tradition' concerned questions concerning establishment where new vocations seek legitimacy among employers and colleagues in the workplace. Standing at the threshold to labour market is an existentially challenging position between hope and despair.
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| 8. |
- Andrén, Ulla, 1955-, et al.
(author)
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Utveckling av ett nytt yrke inom socialpsykiatrisk vård
- 2019
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Reports (other academic/artistic)abstract
- The program in Social Psychiatric Care is a three-year program at the university level leading to a vocational qualification in social psychiatric care and a bachelor's degree in the field of Health Sciences. Until the spring of 2018, six litters have graduated. Students in the social psychiatric care program often have personal interest, previous professional experience from the business areas or inspiration from related friends working in the field of activity. Personal experiences of problems in the fields of activity are also prominent among the students. Students believe that personal experience, willingness and ability is important in order to work within the profession. Characteristics of the students are also an interest and a clear empathetic willingness to work with people and they consider that the profession primarily requires characteristics such as altruism, empathy, social skills and deeper knowledge and understanding in the field. Upon completion of education, students want a career role where they can help other people, feel motivated, or they aim for specific positions or areas of activity. Both managers and alumni from the Social Psychiatric Care program value the broad professional competence that the program leads to. Psychiatric competence is emphasized as particularly valuable by both alumni and managers. This competence means that they also complement the other professions in the activities. Students consider themselves possessed a professional identity that involves introducing psychiatric and custody skills to organizations that previously lacked these perspectives. Something that also brings new approaches to patients, users and clients. Being able to use knowledge from several disciplines are considered to be a strength and competence that are well-needed in environments where people with mental ill health are cared for. The alumni perceive their knowledge as both interdisciplinary and interprofessional.
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| 9. |
- Björk, Maria, et al.
(author)
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Att vara barn och möta sjukdom
- 2012
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In: Att möta familjer inom vård och omsorg. - Lund : Studentlittartur AB. - 9789144072661 ; , s. 191-206
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Book chapter (pop. science, debate, etc.)
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| 10. |
- Dahlqvist Jönsson, Patrik, 1974-, et al.
(author)
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Problematization of perspectives on health promotion and empowerment in mental health nursing : within the research network "MeHNuRse" and the Horatio conference, 2012
- 2014
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In: International Journal of Qualitative Studies on Health and Well-being. - Abingdon : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 9, s. 22945-
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Journal article (peer-reviewed)abstract
- Mental illness is increasing worldwide, while society's response seems to be a trend toward narrower and more specialized mental health care. This development is creating great demands on mental health nurses to include a health promotion perspective in care and support of persons with mental illness. A health promotion perspective emphasizes cooperation and communication with people who suffer from long-term mental illness, focusing on their independence and health. From a health perspective, every human being is an actor in his/her own life, with an inherent ability to make his/her own choices. However, persons who suffer from long-term mental illness are at risk of losing power and control over areas of their lives and their health. Mental health nurses are in a position to support these individuals in promoting health and in maintaining or regaining control over their lives. The emphasis of this paper is to problematize mental health nurses' responsibility to provide health-promoting nursing care in relation to empowerment by means of emancipation, self-efficacy, and self-management. We argue that mental health nurses can work from a health-promoting perspective by using these concepts and that this challenges some of the traditional ideas of health promotion in mental health nursing. The theoretical background discussions in this paper have their origin in the research network ''Mental Health Nursing Research in Scandinavia'' (MeHNuRse) and from the professional discussions developed during a 2012 workshop that included mental health nurses and researchers at the European Horatio Festival in Stockholm.
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| 11. |
- Hansson, Anders, 1953-, et al.
(author)
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Flawed communications: Health professionals' experience of collaboration in the care of frail elderly patients
- 2018
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In: Scandinavian Journal of Public Health. - : SAGE Publications. - 1403-4948 .- 1651-1905. ; 46:7, s. 680-689
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Journal article (peer-reviewed)abstract
- Aims: Frail elderly patients who have multiple illnesses do not fare well in modern health care systems, mainly due to a lack of care planning and flawed communication between health professionals in different care organisations. This is especially noticeable when patients are discharged from hospital. The aim of this study was to explore health care professionals' experience of obstacles and opportunities for collaboration. Methods: Health professionals were invited to participate in three focus groups, each consisting of a hospital physician, a primary care physician, a hospital nurse, a primary care nurse, a municipal home care nurse or an assistant officer, a physical or occupational therapist and a patient or a family member representative. These individual people were then asked to discuss the obstacles and opportunities for communication between themselves and with the patients and their relatives when presented with the case report of a fictitious patient. Content analysis was used to identify categories. Results: Several obstacles were identified for effective communication and care planning: insufficient communication with patients and relatives; delayed collaboration between care-givers; the lack of an adequate responsible person for care planning; and resources not being distributed according to the actual needs of patients. The absence of an overarching responsibility for the patient, beyond organisational borders, was a recurring theme. These obstacles could also be seen as opportunities. Conclusions: Obstacles for collaboration were found on three levels: societal, organisational and individual. As health care professionals are well aware of the problems and also see solutions, management for health care should support employees' own initiatives for changes that are of benefit in the care of frail elderly patients with multiple illnesses.
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| 12. |
- Hansson, Anders, et al.
(author)
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Vem tar bollen? : går vården för de mest sjuka äldre att förbättra?
- 2016
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Reports (other academic/artistic)abstract
- Bakgrund Flera svenska rapporter visar att de mest sjuka äldre ofta far illa på grund av bristande samordning och oklar ansvarsfördelning mellan olika behandlingsinstanser. Primärvården, hemtjänsten och den kommunala hemsjukvården anses i otillräcklig omfattning ta över ansvaret efter utskrivningen av de sjuka äldre från sjukhuset. Svenska erfarenheter stämmer väl med vad man funnit i flera internationella studier: sjukvården är illa rustad för att möta de mest sjuka äldres komplexa behov av vård och omsorg.
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| 13. |
- Hedman Ahlström, Britt, 1954-, et al.
(author)
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Children's view of a major depression affecting a parent in the family
- 2011
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In: Issues in Mental Health Nursing. - New York, NY : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 32:9, s. 560-567
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Journal article (peer-reviewed)abstract
- This study aims to elucidate, from the children's perspective, the meaning for family life of a parent suffering a major depression disorder. Eight children and young adults were interviewed. Phenomenological-hermeneutic analysis generated two themes: (1) "Being a rescuing observer" with the subthemes, "Being attentive" and "Being considerate," and (2) "Being a frustrated observer" with the subthemes, "feeling discomfort" and "being out of it." Children's lives alternate between responsibility and loneliness as they wait for reciprocity in family life to return to normal. Children need support in order to manage their sense of responsibility and loneliness adequately.
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| 14. |
- Hedman Ahlström, Britt, 1954, et al.
(author)
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Children's View of a Major Depression Affecting a Parent in the Family : Children's view of parenteral depression
- 2011
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In: Issues in Mental Health Nursing. - : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 32:9, s. 560-7
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Journal article (peer-reviewed)abstract
- This study aims to elucidate, from the children's perspective, the meaning for family life of a parent suffering a major depression disorder. Eight children and young adults were interviewed. Phenomenological-hermeneutic analysis generated two themes: (1) "Being a rescuing observer" with the subthemes, "Being attentive" and "Being considerate," and (2) "Being a frustrated observer" with the subthemes, "feeling discomfort" and "being out of it." Children's lives alternate between responsibility and loneliness as they wait for reciprocity in family life to return to normal. Children need support in order to manage their sense of responsibility and loneliness adequately
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| 15. |
- Hedman Ahlström, Britt, 1954-
(author)
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Depression och familjeliv
- 2009
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In: Psykisk hälsa. - Stockholm : Svenska föreningen för psykisk hälsovård. - 0033-3212. ; 50:2, s. 32-38
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Journal article (pop. science, debate, etc.)
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| 16. |
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| 17. |
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| 18. |
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| 19. |
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| 20. |
- Hedman Ahlström, Britt, 1954-, et al.
(author)
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Focus on Every-day Life: Internet-based Support and Coaching for Young Adults with Neuropsychiatric Disorders - A Chat-log Analysis
- 2012
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In: Programme and Abstract Book Horatio: 2nd European Festival of Psychiatric nursing - in Stockholm 2012.
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Conference paper (peer-reviewed)abstract
- BackgroundFew studies conducting qualitative research regarding treatment, daily living, and need of support for young adults with neuropsychiatric disorders such as ADHD, autism spectrum conditions, and Tourette’s disorder have been published. The objective of this study is to describe how young adults with neuropsychiatric disorders function and manage their everyday life based on chat log analysis. MethodsThis study is part of a larger intervention project, NP Young Coaching, a structured internet-based support and coaching program for young adults with neuropsychiatric disorders. Twelve young adults between age 15 and 25 years were included in the study. They received coaching during eight weeks over the internet (chat and e-mail) twice a week. The texts composed in the chat sessions constituted the data for the analysis, and the 12 chat logs consisted of 445 pages. Qualitative content analysis was conducted in NVivo 9. The text was divided into meaning units. All the meaning units were labelled with codes which were compared regarding differences and similarities, and thereafter sorted into subthemes and themes.ResultsTwo themes became visible: ‘ways of functioning in everyday life’ with the subthemes; ‘difficult things’, ‘stress and rest’ and ‘when feelings and thoughts are a concern’, and the theme ‘ways of managing everyday life’ with the subthemes; ‘decide and carry out’ and ‘making choices for life’. The young adults described their ways of functioning which showed that they were dealing with difficult things such as being treated unfairly, feeling offended by teachers and peers and being undeservedly accused for behaving egoistically.They also experienced hard words from teasing siblings, friends and parents, which was a source of sorrow. The young adults described that their feelings of stress were caused by being too busy and feeling too unfocused in social situations. Tiredness was the starting point of feeling stressed and leading to guilt for not getting things done. The young adults were drained of energy and had serious sleeping problems. Feelings and thoughts were a concern when they were dissatisfied with the body, felt obsessive, and anxious. Feelings of discomfort were described as a consequence of losing control in personal emotional downturns. Ways of managing everyday life included decisions to plan and following those plans. To enable that, control was important as well as managing time. The young adults made choices for life and wanted to succeed. They had high expectations of themselves, and strove for high scores and described distinct ideas about what would be their future profession. ConclusionsThis study led to a more in-depth knowledge about these young adults’ everyday lives through support and coaching over the Internet, and showed their ability to use the chat for expressing what every-day life meant to them. The implications of the findings are that by using e-coaching for this population, new opportunities are available for health care professionals to acknowledge these young adults’ problems, and online coaching could facilitate the contact between the young adult and the medical and healthcare service.
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| 21. |
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| 22. |
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| 23. |
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| 26. |
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| 28. |
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| 29. |
- Hedman Ahlström, Britt, 1954, et al.
(author)
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Major depression – The experiences of a family
- 2007
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In: Familien i sundhed, lidelse og omsorg – fra vugge til grav. NCCS Konference (Nordic College of Caring Science), Århus Danmark, 22-24 mars 2007.
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Conference paper (peer-reviewed)
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| 30. |
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| 31. |
- Hedman Ahlström, Britt, 1954-, et al.
(author)
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Performance and social life perceived by young persons with ADHD and autism. A chat-log analysis.
- 2015
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In: Psychology research. ; 5:2, s. 114-124
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Journal article (peer-reviewed)abstract
- This study focuses on young persons with ADHD (attention-deficit/hyperactivity disorder) and ASD (autism spectrum disorders), and on their everyday life. Follow-up studies on ADHD and ASD persisting into adulthood describe residual impairments affecting everyday life. Previous studies have focused on interventions and programmes aiming to support these young persons in their attempts to learn, understand and manage social interaction in real life. However, few studies involve the young person’s reflections on their own view of their everyday life. The aim was to elucidate how young persons with ADHD and ASD describe aspects of everyday life based on analysis of Internet-based chat logs. Twelve young persons (seven males and five females aged 15-26 years) with ADHD and ASD participated in an eight-week IBSC (internet-based support and coaching) study, comprising chat via Internet. Data consisted of 12 chat logs (445 pages of text) produced interactively by the participants and their personal coaches. The text was analysed using qualitative content analysis. Two themes were revealed: (1) “When performance is an achievement” with the subthemes; “to cope with the problems caused by the disability”, “the impact of treatment on performance”, and “to perform well enough”; and (2) “When social life is an achievement” with the subthemes; “desire for closeness” and “dealing with social relations”. The study reveals the young persons’ efforts to overcome obstacles to performance and social interaction stemming from their disabilities. They master strategies in terms of SOC while simultaneously they actuate their laborious transition into adulthood. Their ability to express these processes in an IBSC chat became evident. Using e-coaching in this population makes available new opportunities for health-care professionals to pay serious attention to these young persons’ problems.
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| 32. |
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| 33. |
- Hedman Ahlström, Britt, 1954, et al.
(author)
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Stöd via Internet för syskon till barn och ungdomar med en nyligen diagnostiserad cancersjukdom
- 2010
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In: Konfernsbidrag 22 - 23 september 2010 i Kalmar Familjefokuserad omvårdnad Den tredje nordiska konferensen.
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Conference paper (peer-reviewed)abstract
- Stöd via internet för syskon till barn och ungdomar med en nyligen diagnostiserad cancersjukdom Syfte: Syftet med studien är att beskriva hur upplevelsen och utvecklingen av en påbörjad sorg/försorg och dess utveckling till psykisk ohälsa kan förhindras med tidig utbildning om cancer, öppna stödgruppssamtal och reflektionsdagbok via Internet, för syskon till ett barn eller ungdom med en nyligen diagnostiserad cancersjukdom. Metod: En intervention med perspektiv på syskonens och familjens livsvärld och vardagsliv genomförs. Kvalitativ data samlas in genom intervjuer med syskon till en cancersjuk bror eller syster före och efter interventionen som består av utbildning om cancer, öppna stödgruppssamtal och reflektionsdagbok via Internet. Efteråt intervjuas föräldrar om interventionens betydelse för familjelivet. Resultat: Förväntat resultat är att syskonen genom att delta i denna tidiga intervention med utbildning, stöd och reflektion förväntas syskonen lära sig bibehålla hälsa och få redskap att hantera upplevelsen och utvecklingen av en påbörjad sorg/försorg, så att utveckling till psykisk ohälsa förhindras. Betydelse: Syskon förstår att de inte är ensamma i sin situation och får kunskap om broderns eller systerns cancersjukdom, samt hur familjen kan reagera. En modell skapas som kan införas inte enbart för syskon till cancersjuka barn eller ungdomar utan även till andra familjer med ett barn eller ungdom med en allvarlig sjukdom, psykisk som fysisk, och/eller med funktionsnedsättning.
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| 34. |
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| 35. |
- Hedman Ahlström, Britt, 1954-, et al.
(author)
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The meaning of major depression in family life : The viewpoint of the ill parent
- 2010
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In: Journal of Clinical Nursing. - Oxford : Wiley. - 0962-1067 .- 1365-2702. ; 19:1-2, s. 284-293
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Research review (peer-reviewed)abstract
- Aim and objective. The aim was to elucidate the meaning of major depression in family life from the viewpoint of an ill parent. Background. Major depression according to Diagnostic and Statistical Manual of Mental Disorders is common and may appear repeatedly over several years, and affects family life. Depression in parents has a negative impact on family function and children’s health; however, studies regarding the deeper understanding of major depression in family life are lacking. Design. A qualitative explorative study using narrative interviews with eight parents who were identified with major depression. Methods. A phenomenological-hermeneutic method of interpretation was used for analysing interview texts and included naïve understanding, a structural analysis where text was divided into meaning units, which were condensed and abstracted, and finally a comprehensive understanding. Result. Two themes were extracted: ‘to be afflicted in an almost unmanageable situation’ with sub-themes ‘feeling hopelessly bad’, ‘being worthless’, ‘being unsatisfied’ and the theme ‘to reconcile oneself to the situation’ with sub-themes ‘being active’, ‘being satisfied’ and ‘maintaining parenthood’. Conclusion. Comprehensive understanding revealed the parents’ simultaneous suffering and dignity in family life; suffering with serious lack of well-being and health, destroyed self-confidence and unhappiness, and dignity with strength, confidence and joy in children. The movement between suffering and dignity complicated family life. Dignity was threatened by the awareness that suffering in major depression was recurrent. Dignity had to be repeatedly restored for self and the family, and family dignity has to be restored before others outside the family circle. Relevance to clinical practice. A deeper understanding of the meaning of major depression in family life is helpful and for healthcare professionals to prevent individual and family suffering by assisting and preserving dignity.
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| 36. |
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| 38. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(author)
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Parents’ experience of their healthy children’s participation in e-health support when a child in the family has cancer.
- 2014
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In: SIOP 2014. 46th Congress of the International Society Paediatric Oncology. 22-24 Oct. 2014, Toronto, Kanada..
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Conference paper (other academic/artistic)abstract
- Purpose The aim of this study was to investigate parents’ experience of their healthy children’s participation in e-health support when a child in the family has cancer. Method A qualitative descriptive method was employed in this interview study. Parents from families with a child with cancer and healthy siblings were individually interviewed about their experience of their healthy child’s participation in a person-centered support intervention combining education, learning and reflection. The sick child was newly diagnosed with cancer and had been receiving treatment for a maximum of 1 month. The data were collected during spring 2012. Seven parents participated in the study, 5 mothers and 2 fathers in 5 families with 14 healthy children. The interviews were conducted more in the form of a conversation between the interviewer and parent. A qualitative content analysis was used to draw a systematic conclusion from the text and to extract its message. Result The result comprises 3 preliminary themes. The parents perceived that: 1) ‘The healthy child via his/her contact could think and form an opinion through asking questions and receiving answers’; 2) ‘The healthy child was acknowledged and involved during the intervention’; and 3) ‘The child became calmer and more hopeful’. The parents felt unburdened as professionals in healthcare provided their healthy children with professional information about the sick child’s cancer and also support in understanding and managing their own reactions. Conclusion These results allow for a better understanding of the parents’ experiences of the situation of their healthy children. The study also indicates that a person centred nursing intervention using e-health in order to help the families may ease family burden.
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| 39. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(author)
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Siblings of children with cancer : their experiences before and after participating in a support intervention combining education, learning and reflection
- 2012
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In: Pediatric Blood & CancerSpecial. Issue: 44th Congress of the International Society of Paediatric Oncology (SIOP) 2012, London, United Kingdom, 5th–8th October, 2012. - : Wiley. ; , s. 965-1152
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Conference paper (peer-reviewed)abstract
- Purpose: The objective was to evaluate an intervention that combines education, learning and reflection about cancer delivered via internet and email, regarding the provision of support and prevention of illness in siblings with a brother or sister newly diagnosed with cancer. Methods: A descriptive qualitative approach was used. The intervention consisted of lectures and e-mail conversations with siblings supplemented by a personal diary, designed to encourage reflections about open questions concerning thoughts and experiences of being the sibling of a child with cancer. Fourteen siblings with a brother or sister newly diagnosed with cancer participated and were interviewed before and after the intervention. A qualitative content analysis was used for the analyses. Results: The analysis revealed the theme ‘to live as normal a life as possible’ comprising five subthemes; ‘sleeping problems’, ‘physical pain’, ‘emotional affections’ and ‘changes in the future for the whole family’. Life was affected by the child with cancer. Before the intervention the siblings mostly described how new situation led, in everyday life, to suffering, fear, feelings of insecurity and doubts about the future. After the intervention the siblings were more informed about and prepared for the cancer treatments and their sideeffects and the threat of death so close to them.Conclusion: The siblings reflected on and dealt with difficult existential questions. The intervention helped the siblings to better understand cancer, their own reactions and their family situation. This should encourage health-care professionals to acknowledge siblings and to support them when their sister or brother has been diagnosed with cancer.
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| 40. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(author)
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Siblings of children with cancer - Their experiences of participating in a person-centered support intervention combining education, learning and reflection : Pre- and post-intervention interviews.
- 2014
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In: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 18:3, s. 254-260
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Journal article (peer-reviewed)abstract
- PURPOSE: To evaluate a person-centered intervention, directed to siblings with a brother or sister newly diagnosed with cancer that combines education, learning and reflection about cancer.METHOD: Qualitative methods with pre- and post-intervention semi-structured interviews were conducted. Fourteen siblings aged 9-22 years participated. A qualitative content analysis was carried out.RESULTS: The result comprises of five themes: 'grasping for knowledge about cancer, 'thinking for hours and having nightmares', 'experiencing physical pain', 'being emotional in several ways', 'waiting for a normal, good life despite the uncertain future". Pre-intervention; a low level of knowledge of cancer treatments and its side effects was revealed; siblings slept poorly, lay awake thinking and had nightmares about cancer; they felt pain in different parts of their body; they felt emotional and angry and were anxious as cancer is life-threatening; in the future the sick child will finished treatment and recovered. Post-intervention; siblings described having specific knowledge, felt more informed, and that it was easier to understand the sick child's situation; they slept better, but still had a lot on their minds regarding the sick child; most siblings said they no longer experienced pain, felt better and were happier but could still get sad; in the future the sick child would be healthy, not exactly as before, but almost.CONCLUSION: Person-centered intervention helps siblings to be more knowledgeable about the sick child's cancer, leading to a more realistic view about treatments and consequences. Further studies of person-centered interventions for siblings are important.
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| 41. |
- Karlsson, Elisabet, et al.
(author)
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Loneliness despite the presence of others : Adolescents’ experiences of having a parent who becomes ill with cancer
- 2013
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In: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 17:6, s. 697-703
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Journal article (peer-reviewed)abstract
- AbstractAim The aim of this study was to describe young adults’ own perspectives on the experience of having a parent who developed cancer when the young adult was an adolescent. Method Narrative interviews were conducted with six young adults aged between 20 and 26. The interviews were analysed using qualitative content analysis. Results The main message that the young adults communicated in the interviews was interpreted as the overarching theme ‘Loneliness despite the presence of others’. Two domains with three categories each emerged: distance, comprising a feeling of loneliness, lacking the tools to understand, and grief and anger; and closeness, comprising belief in the future, comfort and relief, and a need for support. The young adults felt a loneliness that they had never experienced before, and they lacked the tools to understand the situation. They felt grief and anger over what the cancer had caused. However, they had still managed to regain faith in the future. They found comfort and relief in the thought that this would not necessarily happen to them again, and they gained support from talking to family and friends. Conclusion If all family members are given the same information, it becomes easier to talk about what is happening. This can reduce adolescent children’s experience of loneliness. Contact with health care professionals should be maintained throughout the period of illness. Many short informal contacts create relationships and trust that can be helpful if the worst happens and the parent dies.
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| 42. |
- Kerekes, Nora, 1969-, et al.
(author)
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Changes in Adolescents’ Psychosocial Functioning and Well-Being as a Consequence of Long-Term COVID-19 Restrictions
- 2021
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In: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 18:16
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Journal article (peer-reviewed)abstract
- This work studied self-reports from adolescents on how the COVID-19 pandemic has changed their behaviors, relationships, mood, and victimization. Data collection was conducted between September 2020 and February 2021 in five countries (Sweden, the USA, Serbia, Morocco, and Vietnam). In total, 5114 high school students (aged 15 to 19 years, 61.8% females) responded to our electronic survey. A substantial proportion of students reported decreased time being outside (41.7%), meeting friends in real life (59.4%), and school performance (30.7%), while reporting increased time to do things they did not have time for before (49.3%) and using social media to stay connected (44.9%). One third of the adolescents increased exercise and felt that they have more control over their life. Only a small proportion of adolescents reported substance use, norm-breaking behaviors, or victimization. The overall COVID-19 impact on adolescent life was gender-specific: we found a stronger negative impact on female students. The results indicated that the majority of adolescents could adapt to the dramatic changes in their environment. However, healthcare institutions, municipalities, schools, and social services could benefit from the findings of this study in their work to meet the needs of those young people who signaled worsened psychosocial functioning, increased stress, and victimization.
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| 43. |
- Lundström, Sofie, 1971-, et al.
(author)
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Health-related lifestyle and perceived health among people with severe mental illness : Gender differences and degree of sense of coherence
- 2019
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In: Archives of Psychiatric Nursing. - Maryland Heights, Missoury : Saunders Elsevier. - 0883-9417 .- 1532-8228. ; 33:2, s. 182-188
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Journal article (peer-reviewed)abstract
- People with severe mental illness (SMI) experience an increased risk of physical ill health and premature death, which appears to be partly related to unhealthy lifestyle habits. The aim of this study was to describe the distribution of health-related lifestyle habits and perceived health among people with severe mental illness. A further aim was to explore if there were any gender differences or differences based on degree of sense of coherence. The study adopted a cross-sectional design based on data from 65 people with SMI. The results show that degree of Sense of Coherence (SOC) does have relevance for perceived health and for dimensions of Quality of Life (QOL). Furthermore, among the participants with strong SOC, there were less daily smokers and they seemed to have less sedentary leisure time than those with low SOC. Men reported more anxiety/depression than women and women ate fruit more often than men, otherwise there were no gender differences. In comparison with the general population, people with SMI show a higher Body Mass Index are more sedentary, more often daily smokers, have lower SOC and perceive a lower QOL. This emphasizes the importance of health-promotion support that focuses on lifestyle changes, and support for strengthening SOC and QOL for people with SMI. © 2018 Elsevier Inc. All rights reserved
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| 44. |
- Lundström, Sofie, 1971-, et al.
(author)
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Mental health nurses' experience of physical health care and health promotion initiatives for people with severe mental illness
- 2020
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In: International Journal of Mental Health Nursing. - Richmond : Wiley. - 1445-8330 .- 1447-0349. ; 29:2, s. 244-253
-
Journal article (peer-reviewed)abstract
- Health care for people with severe mental illness is often divided into physical health care and mental health care despite the importance of a holistic approach to caring for the whole person. Mental health nurses have an important role not only in preventing ill health, but also in promoting health, to improve the overall health among people with severe mental illness and to develop a more person-centred, integrated physical and mental health care. Thus, the aim of this study was to describe mental health nurses' experiences of facilitating aspects that promote physical health and support a healthy lifestyle for people with severe mental illness. Interviews were conducted with mental health nurses (n = 15), and a qualitative content analysis was used to capture the nurse's experiences. Analysis of the interviews generated three categories: (i) to have a health promotion focus in every encounter, (ii) to support with each person's unique prerequisites in mind and (iii) to take responsibility for health promotion in every level of the organization. The results show the importance of a health promotion focus that permeates the entire organization of mental health care. Shared responsibility for health and health promotion activities should exist at all levels: in the person-centred care in the relation with the patient, embedded in a joint vision within the working unit, and in decisions at management level.
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| 45. |
- Lundström, Sofie, 1971-, et al.
(author)
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The Meaning of the Lived Experience of Lifestyle Changes for People with Severe Mental Illness.
- 2017
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In: Issues in Mental Health Nursing. - Philadelphia, PA : Informa UK Limited. - 0161-2840 .- 1096-4673. ; 38:9, s. 717-725
-
Journal article (peer-reviewed)abstract
- The aim of this study was to elucidate the meaning of the lived experience of lifestyle changes as perceived by people with severe mental illness (SMI). People with SMI who have experience in managing lifestyle changes were interviewed (n = 10). The interviews were analyzed with a phenomenological hermeneutic approach. The findings reveal three themes: (1) struggling with inner and outer limitations, (2) on one's own but together with others and (3) longing for living a life in harmony. The meaning of lifestyle changes can be understood as a person's internal and external endeavors to make well-considered decisions about lifestyle changes. Support should focus on strengthening the person's self-efficacy and should be based on the person's experiences.
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| 46. |
- Sehlin, Helena, et al.
(author)
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Experiences of an internet-based support and coaching model for adolescents and young adults with ADHD and autism spectrum disorder : a qualitative study
- 2018
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In: BMC Psychiatry. - : Springer Science and Business Media LLC. - 1471-244X. ; 18:1
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Journal article (peer-reviewed)abstract
- BACKGROUND: There is a great demand for non-medical treatment and support targeting the needs of adolescents and young adults with autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD). There is also a lack of qualitative studies providing in-depth insight into these individuals' own experiences within this area. The current study aimed to explore how adolescents and young adults with ADHD, ASD or both experienced taking part in an internet-based support and coaching intervention.METHODS: Sixteen participants with ASD, ADHD or both who had participated in an 8-week internet-based support and coaching model, were interviewed using semi-structured interviews. Data was analyzed using qualitative content analysis.RESULTS: Analysis yielded three themes; Deciding to participate, Taking part in the coaching process and The significance of format. Various motives for joining were expressed by participants, such as viewing the technology as familiar and appealing and expecting it to be better suited to their situation. There was also a previously unfulfilled need for support among participants. In deciding to take part in the intervention the coaches' competence and knowledge were considered essential, often in the light of previously negative experiences. Taking part in the coaching process meant feeling reassured by having someone to turn to in view of shared obstacles to seeking and receiving help. The support was used for talking through and receiving advice on matters related to their diagnosis. Findings further revealed appreciation for aspects relating to the format such as communicating through the written word, being in one's own home and an experience of immediacy. Some disadvantages were voiced including incomplete personal interaction and failing technology. There were also suggestions for greater flexibility.CONCLUSIONS: The in-depth qualitative data obtained from this study suggest that the current model of support and the internet-based format have specific qualities that could play an important role in the support of adolescents and young adults with ADHD and ASD. Although not a replacement for face-to-face interaction, it could be a promising complement or alternative to other support and treatment options.TRIAL REGISTRATION: "Internet-based Support for Young People with ADHD and Autism - a Controlled Study" retrospectively registered in www.clinicaltrials.gov ( ClinicalTrials.gov Identifier: NCT02300597 ) at 2014-11-10.
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| 47. |
- Sehlin, Helena, et al.
(author)
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Internet-based support and coaching with complementary clinic visits for adolescents and young adults with ADHD and autism spectrum disorder - a controlled feasibility study
- 2020
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In: Journal of Medical Internet Research. - : JMIR Publications Inc.. - 1438-8871. ; 22:12
-
Journal article (peer-reviewed)abstract
- Background: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment. Objective: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings. Methods: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU; n=20). Outcome measures included self-report questionnaires assessing quality of life (Manchester Short Assessment for Quality of Life), sense of coherence (Sense Of Coherence 29), self-esteem (Rosenberg Self-Esteem Scale), and anxiety and depressive symptoms (Hospital Anxiety and Depression Scale [HADS] and Montgomery-Åsberg Depression Rating Scale-Self-reported, respectively). Results: Significant between-group effects were observed in measures of anxiety (HADS) at postintervention (P=.02) as well as at the 6-month follow-up (P=.004). Significant between-group effects were also noted for depressive symptoms (HADS) postintervention (P=.04). The between-group effects were partially explained by a deterioration in the TAU group. A significant increase in self-esteem (P=.04) as well as a decrease in anxiety (P=.003) at the 6-month follow-up was observed in the intervention group following IBSC. Findings from a qualitative study of the intervention are consistent with the results. Conclusions: The findings from this study suggest that IBSC holds promise as a feasible complement or alternative to traditional face-to-face health care meetings.
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| 48. |
- Sehlin, Helena, et al.
(author)
-
Internet-Based Support and Coaching With Complementary Clinic Visits for Young People With Attention-Deficit/Hyperactivity Disorder and Autism : Controlled Feasibility Study
- 2020
-
In: Journal of Medical Internet Research. - Toronto, ON, Canada : JMIR Publications Inc.. - 1438-8871. ; 22:12
-
Journal article (peer-reviewed)abstract
- Background: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment. Objective: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings. Methods: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU; n=20). Outcome measures included self-report questionnaires assessing quality of life (Manchester Short Assessment for Quality of Life), sense of coherence (Sense Of Coherence 29), self-esteem (Rosenberg Self-Esteem Scale), and anxiety and depressive symptoms (Hospital Anxiety and Depression Scale [HADS] and Montgomery-Åsberg Depression Rating Scale-Self-reported, respectively). Results: Significant between-group effects were observed in measures of anxiety (HADS) at postintervention (P=.02) as well as at the 6-month follow-up (P=.004). Significant between-group effects were also noted for depressive symptoms (HADS) postintervention (P=.04). The between-group effects were partially explained by a deterioration in the TAU group. A significant increase in self-esteem (P=.04) as well as a decrease in anxiety (P=.003) at the 6-month follow-up was observed in the intervention group following IBSC. Findings from a qualitative study of the intervention are consistent with the results. Conclusions: The findings from this study suggest that IBSC holds promise as a feasible complement or alternative to traditional face-to-face health care meetings.
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| 49. |
- Sehlin, Helena, et al.
(author)
-
Internet-Based Support and Coaching With Complementary Clinic Visits for Young People With Attention-Deficit/Hyperactivity Disorder and Autism : Controlled Feasibility Study
- 2020
-
In: Journal of Medical Internet Research. - Toronto, ON, Canada : JMIR PUBLICATIONS, INC. - 1438-8871. ; 22:12
-
Journal article (peer-reviewed)abstract
- Background: Individuals with attention-deficit/hyperactivity disorder (ADHD) and autism spectrum disorder (ASD) can experience obstacles in traditional health care situations due to difficulties associated with their impairment. Objective: This controlled study aims to investigate the feasibility of an internet-based support and coaching intervention (IBSC), including 2 weekly chat sessions and 2 complementary clinic visits with coaches over the course of 8 weeks, for adolescents and young adults with ADHD and/or ASD in 2 naturalistic routine care settings. Methods: Individuals with ADHD and/or ASD aged 15-32 years were recruited in 2 clinical settings, where they received either IBSC (n=24) or treatment as usual (TAU; n=20). Outcome measures included self-report questionnaires assessing quality of life (Manchester Short Assessment for Quality of Life), sense of coherence (Sense Of Coherence 29), self-esteem (Rosenberg Self-Esteem Scale), and anxiety and depressive symptoms (Hospital Anxiety and Depression Scale [HADS] and Montgomery-Asberg Depression Rating Scale-Self-reported, respectively). Results: Significant between-group effects were observed in measures of anxiety (HADS) at postintervention (P=.02) as well as at the 6-month follow-up (P=.004). Significant between-group effects were also noted for depressive symptoms (HADS) postintervention (P=.04). The between-group effects were partially explained by a deterioration in the TAU group. A significant increase in self-esteem (P=.04) as well as a decrease in anxiety (P=.003) at the 6-month follow-up was observed in the intervention group following IBSC. Findings from a qualitative study of the intervention are consistent with the results. Conclusions: The findings from this study suggest that IBSC holds promise as a feasible complement or alternative to traditional face-to-face health care meetings.
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| 50. |
- Sfendla, Anis, et al.
(author)
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Risk and protective factors for drug dependence in two Moroccan high-risk male populations
- 2018
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In: PeerJ. - : PeerJ. - 2167-8359. ; 6
-
Journal article (peer-reviewed)abstract
- BackgroundSubstance use is linked to biological, environmental, and social factors. This study provides insights on protective and risk factors for drug dependence in two Moroccan, high-risk, male samples.MethodsData from the "Mental and Somatic Health without borders" (MeSHe) survey were utilized in the present study. The MeSHe survey assesses somatic and mental health parameters by self-report from prison inmates (n = 177) and outpatients from an addiction institution (n = 54). The "Drug dependence" and the "No drug dependence" groups were identified based on the Arabic version of the Drug Use Disorder Identification Test's (DUDIT) validated cutoff for identifying individuals with drug dependence, specifically in Morocco.ResultsThe majority of participants who had at least high school competence (67.6%), were living in a partnership (53.7%), were a parent (43.1%), and/or had a job (86.8%) belonged to the "No drug dependence" group, while the presence of mental health problems was typical among the "Drug dependence" group (47.4%). A multivariable regression model (χ2 (df = 5, N = 156) = 63.90, p < 0.001) revealed that the presence of depression diagnosis remains a significant risk factor, while a higher level of education, having a child, and being employed are protective factors from drug dependence.DiscussionFindings support the importance of increasing academic competence and treating depression as prevention from the persistence of drug addiction in male high-risk populations.
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