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| 2. |
- Ahlström, Gerd
(författare)
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Personal assistance for patients living with a severe neurological disorder.
- 2006
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Ingår i: Journal of Neuroscience Nursing. - 0888-0395. ; 38:3, s. 183-193
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Tidskriftsartikel (refereegranskat)abstract
- Patients with neurological diseases increasingly are being cared for at home. The purpose of this study was to describe stressful everyday experiences in connection with neurological disorders, to learn how people cope with such experiences, and gain knowledge about coping resources. Twenty-seven persons receiving personal assistance were interviewed twice at home. The 54 interviews were subjected to inductive content analysis. The persons encountered many problems in everyday life and usually handled them by means of acceptance, avoidance, practical problem solving, and reappraisal. Dependence on personal assistance gave rise to a sense of helplessness, but it was also the major coping resource. Nurses can improve home care by giving instruction and guidance to persons working as personal assistants.
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| 3. |
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| 4. |
- Isaksson, Ann-Kristin, 1961-, et al.
(författare)
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From symptom to diagnosis : illness experiences of multiple sclerosis patients.
- 2006
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Ingår i: Journal of Neuroscience Nursing. - : Ovid Technologies (Wolters Kluwer Health). - 0888-0395 .- 1945-2810. ; 38:4, s. 229-237
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Tidskriftsartikel (refereegranskat)abstract
- This interview study describes 61 multiple sclerosis (MS) patients' conceptions of the disease before they were diagnosed and their experiences of the initial symptoms and the diagnosis. Qualitative content analysis was applied. The patients' perception of MS was in most cases disablement and death, but some narrated a more nuanced image of MS. The experiences of the initial symptoms and the diagnosis were stressful. The patients became and remained vulnerable through diagnosis. They managed the situation in a variety of ways to acquire strength. Nurses who encounter MS patients require specialized knowledge to understand the vulnerability of these patients and to provide support.
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| 5. |
- Isaksson, Ann-Kristin, 1961-, et al.
(författare)
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Managing chronic sorrow : experiences of patients with multiple sclerosis
- 2008
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Ingår i: Journal of Neuroscience Nursing. - : American Association of Neuroscience Nurses. - 1945-2810 .- 0888-0395. ; 40:3, s. 180-191
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Tidskriftsartikel (refereegranskat)abstract
- The goals of this study were to describe the ways in which patients with multiple sclerosis (MS) manage chronic sorrow and to apply this information to the theoretical model of chronic sorrow. This descriptive study involved 38 participants with MS who were experiencing chronic sorrow. Using the theoretical model of chronic sorrow, we applied content analysis to participants' accounts of how they attempted to manage this sorrow. The findings showed that discomfort resulted from ineffective management of chronic sorrow, reflecting the vulnerability these patients experience and the lack of understanding of their needs and appropriate support from family, friends, and healthcare personnel. In some cases, however, the losses and emotional distress caused by MS were managed effectively, which led to increased comfort through personal growth and a greater appreciation of life, greater confidence, and hope for the future. The theoretical model was valuable in helping to describe participants' patterns of managing chronic sorrow. Healthcare personnel should acknowledge chronic sorrow as one aspect of psychological distress in MS. Knowledge of patients' experiences of chronic sorrow should be included in the education for neuroscience nurses. Furthermore, it is necessary to develop support interventions for patients with chronic sorrow and their families.
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| 6. |
- Jumisko, Eija, et al.
(författare)
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The meaning of living with traumatic brain injury in people with moderate or severe traumatic brain injury
- 2005
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Ingår i: Journal of Neuroscience Nursing. - : Ovid Technologies (Wolters Kluwer Health). - 0888-0395 .- 1945-2810. ; 37:1, s. 42-50
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Tidskriftsartikel (refereegranskat)abstract
- A traumatic brain injury (TBI) extensively affects the injured person's daily life. Research based on the perspectives of people with TBI can increase understanding of the challenges they face and the possibility of supporting them in managing their lives. The aim of this study was to elucidate the meaning of living with TBI as narrated by the people with moderate or severe TBI. The data were collected by means of qualitative research interviews with 12 participants who had lived with TBI for 4-13 years. A phenomenological hermeneutic method was used to interpret the transcribed interviews. The study showed that people with TBI had lost their way and struggled to achieve a new normalcy. Losing one's way included experiences of waking up to unknown, missing relationships and experiencing the body as an enemy. Participants' struggles to attain a new normalcy included searching for an explanation, recovering the self, wishing to be met with respect, and finding a new way of living. Living with TBI seems to mean living with a perpetually altered body that changed the whole life and caused deep suffering, where feelings of shame and dignity competed with each other. Participants seem to be quite alone in their suffering and need more support from healthcare professionals.
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| 7. |
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| 8. |
- Liedström, Elisabeth, 1952-, et al.
(författare)
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Chronic sorrow in next of kin of patients with multiple sclerosis
- 2008
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Ingår i: The Journal of neuroscience nursing. - London : Lippincott Williams & Wilkins. - 0888-0395. ; 40:5, s. 304-311
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Tidskriftsartikel (refereegranskat)abstract
- The well-being of patients' next of kin can be an important factor with regard to the care and rehabilitation of patients with multiple sclerosis (MS). The aim of this qualitative study was to explore the presence and meaning of chronic sorrow in a group of next of kin of patients with MS. Using a semistructured interview guide as a basis, 44 next of kin were interviewed. The results showed that 35 (80%) of the participants were considered to have chronic sorrow based on predetermined criteria. Three main themes characterized the meaning of chronic sorrow: loss of security, loss of sense of community in family life, and loss of joy and recreation. This study indicates that nurses need to devote greater attention to the well-being of next of kin, offering support programs to help them cope with chronic sorrow.
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| 9. |
- Räty, Lena, 1948-, et al.
(författare)
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Epilepsy patients' Conceptions of Epilepsy as a Phenomenon
- 2009
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Ingår i: Journal of Neuroscience Nursing. - Philadelphia, USA : Lippincott Williams & Wilkins. - 0888-0395 .- 1945-2810. ; 41:4, s. 201-210
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Tidskriftsartikel (refereegranskat)abstract
- This study addressed epilepsy patients' conceptions of epilepsy as a phenomenon and emotions related to those conceptions. Nineteen outpatients were interviewed, and data were analyzed according to the phenomenographical methodology. Patients described epilepsy in six qualitatively different ways: Epilepsy is (a) an illness related to physical disturbances, (b) a condition related to physical disturbances, (c) a mental disturbance related to lack of mental capacity, (d) a handicap related to psychological and/or social aspects, (e) an identity related to being an epileptic, and (f) a punishment. The emotions confidence, happiness, hope, and annoyance were related to epilepsy as an illness or a condition, whereas shame, fear, sorrow, and guilt were related to the other four categories. This study indicated that, to patients, the phenomenon of epilepsy is above all a psychosocial nature and in that dimension closely related to negative emotions.
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| 10. |
- Silén, Marit, 1979-, et al.
(författare)
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Workplace Distress and Ethical Dilemmas in Neuroscience Nursing
- 2008
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Ingår i: Journal of Neuroscience Nursing. - 0888-0395 .- 1945-2810. ; 40:4, s. 222-231
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Tidskriftsartikel (refereegranskat)abstract
- This study concerns Swedish nurses' experiences of workplace stress and the occurrence of ethical dilemmas in a neurological setting. Qualitative interviews were conducted with 21 nurses. The interview results were subjected to qualitative latent content analysis and sorted into 4 content areas: workplace distress, ethical dilemmas, managing distress and ethical dilemmas, and quality of nursing. Common workplace stressors were high workload and lack of influence. These were perceived to have negative consequences for the quality of nursing. Ethical dilemmas mainly concerned decision making on initiation or withdrawal of treatment, which was experienced as a troublesome situation where conflicts could arise. The nurses managed the distress and ethical dilemmas by accepting and adjusting to the situation and seeking support from colleagues. They also endeavored to gain new strength in their private lives.
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