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Sökning: L773:0926 9630 OR L773:1879 8365 > (2020-2024)

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1.
  • Ahlin, Karin, 1963- (författare)
  • The Demonstration of a Tool for Self-Estimating Digital Competence
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 302, s. 494-495
  • Tidskriftsartikel (refereegranskat)abstract
    • This study presents the results from a demonstration of a tool for self-estimation of digital competence for nurses and assistant nurses. The data was gathered from twelve participants working as leaders of older care homes. The results show that digital competence is of importance in health and social care, that the dimension of motivation is of utmost importance and that the presentation of the survey results should be flexible.
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2.
  • Ahmad, Awais, et al. (författare)
  • Designing for Human Well-Being : A Case Study with Informal Caregivers of Individuals with Cancer
  • 2022
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 294, s. 214-218
  • Tidskriftsartikel (refereegranskat)abstract
    • Informal Caregivers such as a spouse, other close relatives or friends of cancer patients can play an essential role in home-based treatment and care. However, the informal caregivers might not be prepared for this responsibility, and they might have several unmet requirements for taking care of patients in the home environment. The informal caregivers’ physical, social and psychological health is also profoundly affected due to the health conditions of their relatives. We propose a User-centred Positive Design as a hybrid framework by merging the traditional User-cantered design and positive design frameworks to enhance the informal caregivers’ subjective well-being. Our ongoing project (Carer-eSupport) will be used as a case study, and its main objective is to co-create and evaluate a web-based support system for informal caregivers of people with cancer. The proposed framework can be used for the design and development of health information systems with a special focus on users’ wellbeing and positive emotions.
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3.
  • Amirahmadi, Ali, 1994-, et al. (författare)
  • A Masked Language Model for Multi-Source EHR Trajectories Contextual Representation Learning
  • 2023
  • Ingår i: Caring is Sharing - Exploiting the Value in Data for Health and Innovation - Proceedings of MIE 2023. - Amsterdam : IOS Press. - 1879-8365 .- 0926-9630. - 9781643683881 ; 302, s. 609-610, s. 609-610
  • Konferensbidrag (refereegranskat)abstract
    • Using electronic health records data and machine learning to guide future decisions needs to address challenges, including 1) long/short-term dependencies and 2) interactions between diseases and interventions. Bidirectional transformers have effectively addressed the first challenge. Here we tackled the latter challenge by masking one source (e.g., ICD10 codes) and training the transformer to predict it using other sources (e.g., ATC codes).
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4.
  • Bärkås, Annika, et al. (författare)
  • Patients' Access to Their Psychiatric Records : A Comparison of Four Countries
  • 2022
  • Ingår i: Challenges of Trustable AI and Added-Value on Health. - Amsterdam; Berlin; Washington, DC : IOS Press. - 9781643682846 - 9781643682853 ; 294, s. 510-514
  • Konferensbidrag (refereegranskat)abstract
    • Several Nordic and Baltic countries are forerunners in the digitalization of patient ehealth services and have since long implemented psychiatric records as parts of the ehealth services. There are country-specific differences in what clinical information is offered to patients concerning their online patient accessible psychiatric records. This study explores national differences in Sweden, Norway, Finland, and Estonia in patient access to their psychiatric records. Data was collected through a socio-technical data collection template developed during a workshop series and then analyzed in a cross-country comparison focusing on items related to psychiatry records online. The results show that psychiatric records online are offered to patients in all four countries, and provide the same functionality and similar psychiatry information. Overall, the conclusion is that experiences of various functionalities should be scrutinized to promote transparency of psychiatric records as part of the national eHealth services to increase equality of care and patient empowerment.
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5.
  • Bärkås, Annika, et al. (författare)
  • Patients' Experiences of Demanded Access to Online Health Records
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 1424-1425
  • Tidskriftsartikel (refereegranskat)abstract
    • Patient-Accessible Electronic Health Records (PAEHR) is particularly controversial in mental healthcare. We aim to explore if there is any association between patients with mental health conditions and the experience of someone demanding access to their PAEHR. A chi-square test showed a significant association between group belonging and experiences of someone demanding access to the PAEHR.
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6.
  • Bärkås, Annika, et al. (författare)
  • Patients' Experiences of Unwanted Access to Their Online Health Records
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 302, s. 356-357, s. 356-357
  • Tidskriftsartikel (refereegranskat)abstract
    • Patient-Accessible Electronic Health Records (PAEHR) are particularly disputed in mental healthcare. We aim to explore if there is any association between patients having a mental health condition and someone unwanted seeing their PAEHR. A chi-square test showed a statistically significant association between group belonging and experiences of someone unwanted seeing their PAEHR.
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7.
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8.
  • Citoler, Alba Puyuelo, et al. (författare)
  • Designing a Social Snus Cessation Mobile Application with an Integrated AI Function
  • 2024
  • Ingår i: Studies in health technology and informatics. - 1879-8365 .- 0926-9630. ; 316, s. 532-533
  • Tidskriftsartikel (refereegranskat)abstract
    • The application of artificial intelligence (AI) in healthcare is expected to be increased in the coming years. There has been little attention paid on exploring how social aspects and AI can be integrated into mobile applications to support the people who want to quit snus. Our research aims to design a prototype of a social snus cessation mobile application for university students in Sweden, incorporating an AI function. This paper presents a work-in-progress of our research.
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9.
  • Dudkina, Anna, et al. (författare)
  • Patient Input into the Electronic Health Record : Co-Designing Solutions with Patients and Healthcare Professionals.
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 316, s. 1477-1481
  • Tidskriftsartikel (refereegranskat)abstract
    • Patient-generated health data (PGHD) is the person's health-related data collected outside the clinical environment. Integrating this data into the electronic health record (EHR) supports better patient-provider communication and shared decision-making, empowering patients to actively manage their health conditions. In this study, we investigated the essential features needed for patients and healthcare providers to effectively integrate PGHD functionality into the EHR system. Through our collaborative design approach involving healthcare professionals (HCPs) and patients, we developed a prototype and suggestion, using Estonia as a model, which is the ideal approach for collecting and integrating PGHD into the EHR.
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10.
  • Eftring, Håkan, et al. (författare)
  • 360-Degree Films for Cognitive Inclusion at Workplaces
  • 2022
  • Ingår i: Transforming our World through Universal Design for Human Development - Proceedings of the 6th International Conference on Universal Design, UD 2022. - 1879-8365 .- 0926-9630. - 9781643683041 ; 297, s. 127-134
  • Konferensbidrag (refereegranskat)abstract
    • Persons with stress-related disorders, mental disorders and neuropsychiatric disabilities are in particular vulnerable to cognitive challenges at the workplace. The barriers faced by persons with communicative, social and cognitive disabilities are most often invisible to persons in the environment. The objective of the study presented in this paper is to develop and test a tool that increases awareness by inviting persons without disabilities to experience how cognitive barriers can look like in the workplace. Three 360-degree films were developed iteratively in close collaboration with users. Each film has one part highlighting difficulties and one part highlighting solutions. The films were evaluated with employers, employment experts, special support persons, HR staff and students. The results show that the films were realistic and useful for both supporting employment and for general awareness and insight.
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11.
  • Eftring, Håkan, et al. (författare)
  • From Face-to-Face to Online UDeL Camps : Supporting Staff at Higher Education Institutions in Developing Universal Design for eLearning (UDeL)
  • 2021
  • Ingår i: Universal Design 2021 : From Special to Mainstream Solutions - From Special to Mainstream Solutions. - 1879-8365 .- 0926-9630. - 9781643681900 ; 282, s. 144-160
  • Konferensbidrag (refereegranskat)abstract
    • The TINEL Project is running a series of camps for staff at higher education institution to support them in developing inclusive eLearning. The first camp was conducted face-to-face, but the coronavirus pandemic meant that the second camp was conducted online. This created a case study in inclusive eLearning in itself and allowed us to experience and reflect on the challenges and opportunities of inclusive online teaching and learning. This paper presents the structure and content of the two camps, our reflections on moving from a face-to-face to an online situation and our elaboration how the UDL principles apply to eLearning to create Universal Design for eLearning (UDeL). We found that because we already had a syllabus for the camp prepared, transferring it to an online camp did not present a great number of challenges. Some aspects of the online situation were actually advantageous (e.g. presenting all materials digitally and making them fully accessible) while others were difficult to overcome (e.g. engaging all participants in online activities and discussions). We provide a set of recommendations of how to implement the three principles of UDL in eLearning situations.
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12.
  • Eide, A. H., et al. (författare)
  • Barriers for Accessing Assistive Products in Low- and Middle-Income Countries (LMICs)
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - : NLM (Medline). - 0926-9630 .- 1879-8365. ; 306, s. 297-302
  • Tidskriftsartikel (refereegranskat)abstract
    • WHO implemented the Rapid Assistive Technology Assessment in 2021. This is a household survey on self-reported use, need and barriers for accessing AT in 35 countries globally. In order to obtain comparable data, all surveys followed guidelines developed by WHO, including national two-stage random sampling of households. The 2021 rATA survey included 32 of a total of 140 LMICs globally. Around 40 % of the total respondents (all countries) estimated travel distance to be <5 km, varying from less than 10 % to almost 60 % among the countries. Around 15 % had to travel more than 50 km, varying from 1.3 % to 37.5 %. More individuals living in rural as compared to urban areas had to travel more than 25 km to get their main assistive product. Gender differences were marginal. By far the most prevalent barrier to access assistive products was "Cannot afford", amounting to 39.9% and varying from 6.7 % to 79.1 % among countries. This was followed by "No support" with 14.3 %, varying from 2.3 % to 36.9 %, and "Not available" with 8.1 %, varying from 1 % to 21.5 %. More barriers were reported in rural than urban areas and women report more barriers than men. Variation between countries in both travel time and barriers is substantial and country-specific service development is needed to guide service development.
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13.
  • Enström, Clara, et al. (författare)
  • Visualizing Future Breast Cancer Prognosis by Generative AI
  • 2024
  • Ingår i: Studies in health technology and informatics. - 1879-8365 .- 0926-9630. ; 316, s. 724-725
  • Tidskriftsartikel (refereegranskat)abstract
    • In Sweden, 30 percent of breast cancer cases are detected between screenings, leading to later staged cancer diagnoses. Aileen Health is preventing later staged cancers by making a breast cancer prognosis with generative AI. This study investigates how breast radiologists perceive AI-generated images and their usability as cancer prognosis. Through literature review and formative usability testing, the research study emphasizes the challenges when integrating AI-generated medical images into clinical decision-making. Furthermore, our findings stress the importance of avoiding cognitive overload and following mental models. Future research should focus on radiologists' use of breast cancer prognosis at various urgency levels, as well as AI accuracy of generated images.
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14.
  • Georgsson, Mattias, 1969- (författare)
  • A Review of Usability Methods Used in the Evaluation of Mobile Health Applications for Diabetes.
  • 2020
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 273, s. 228-233
  • Tidskriftsartikel (refereegranskat)abstract
    • Mobile health applications for diabetes are developed like never before and many patients use them for their personalized health needs. With increased use, an increased number of usability evaluations are performed to assure that the applications function as intended. In this review the goal was to determine what usability methods are currently used in the evaluation of mobile health applications for diabetes and how these are used.METHODS: A literature review was conducted to identify applicable studies in the databases ACM Digital Library, Cinahl and Pubmed between the years 2015 and 2020. After the inclusion and exclusion criteria were applied, 32 articles remained that were included in the final review.RESULTS: Most of the studies included one established usability engineering method such as an expert-based and/or user-based method or a validated questionnaire/instrument. Some also included a combination of these. Others used methods of their own design; commonly questionnaires and interviews either on their own or in combination.CONCLUSION: To achieve an adequate level of evidence and quality in the evaluation, it is important that at least one is an established usability engineering method or a validated instrument. This to assure and continue to build the evidence base in this area.
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15.
  • Gharehbaghi, Arash, 1972-, et al. (författare)
  • A-Test Method for Quantifying Structural Risk and Learning Capacity of Supervised Machine Learning Methods
  • 2022
  • Ingår i: Studies in Health Technology and Informatics. - Amsterdam, The Netherlands : IOS Press. - 0926-9630 .- 1879-8365. ; 289, s. 132-135
  • Tidskriftsartikel (refereegranskat)abstract
    • This paper presents an original method for studying the performance of the supervised Machine Learning (ML) methods, the A-Test method. The method offers the possibility of investigating the structural risk as well as the learning capacity of ML methods in a quantitating manner. A-Test provides a powerful validation method for the learning methods with small or medium size of the learning data, where overfitting is regarded as a common problem of learning. Such a condition can occur in many applications of bioinformatics and biomedical engineering in which access to a large dataset is a challengeable task. Performance of the A-Test method is explored by validation of two ML methods, using real datasets of heart sound signals. The datasets comprise of children cases with a normal heart condition as well as 4 pathological cases: aortic stenosis, ventricular septal defect, mitral regurgitation, and pulmonary stenosis. It is observed that the A[1]Test method provides further comprehensive and more realistic information about the performance of the classification methods as compared to the existing alternatives, the K-fold validation and repeated random sub-sampling.
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16.
  • Gharehbaghi, Arash, et al. (författare)
  • Distinguishing Septal Heart Defects from the Valvular Regurgitation Using Intelligent Phonocardiography
  • 2020
  • Ingår i: Digital Personalized Health and Medicine. - : IOS Press. - 9781643680828 - 9781643680835 ; 270, s. 178-182
  • Konferensbidrag (refereegranskat)abstract
    • This paper presents an original machine learning method for extracting diagnostic medical information from heart sound recordings. The method is proposed to be integrated with an intelligent phonocardiography in order to enhance diagnostic value of this technology. The method is tailored to diagnose children with heart septal defects, the pathological condition which can bring irreversible and sometimes fatal consequences to the children. The study includes 115 children referrals to an university hospital, consisting of 6 groups of the individuals: atrial septal defects (10), healthy children with innocent murmur (25), healthy children without any murmur (25), mitral regurgitation (15), tricuspid regurgitation (15), and ventricular septal defect (25). The method is trained to detect the atrial or ventricular septal defects versus the rest of the groups. Accuracy/sensitivity and the structural risk of the method is estimated to be 91.6%/88.4% and 9.89%, using the repeated random sub sampling and the A-Test method, respectively.
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17.
  • Gharehbaghi, Arash, et al. (författare)
  • Recurrent vs Non-Recurrent Convolutional Neural Networks for Heart Sound Classification
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365.
  • Tidskriftsartikel (refereegranskat)abstract
    • Convolutional Neural Network (CNN) has been widely proposed for different tasks of heart sound analysis. This paper presents the results of a novel study on the performance of a conventional CNN in comparison to the different architectures of recurrent neural networks combined with CNN for the classification task of abnormal-normal heart sounds. The study considers various combinations of parallel and cascaded integration of CNN with Gated Recurrent Network (GRN) as well as Long- Short Term Memory (LSTM) and explores the accuracy and sensitivity of each integration independently, using the Physionet dataset of heart sound recordings. The accuracy of the parallel architecture of LSTM-CNN reached 98.0% outperforming all the combined architectures, with a sensitivity of 87.2%. The conventional CNN offered sensitivity/accuracy of 95.9%/97.3% with far less complexity. Results show that a conventional CNN can appropriately perform and solely employed for the classification of heart sound signals.
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18.
  • Hagström, Josefin, et al. (författare)
  • Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 1422-1423
  • Tidskriftsartikel (refereegranskat)abstract
    • Patients feeling offended by reading records online is a concern among healthcare professionals, however previously published work has focused on adult patients. Here, a survey was used to explore and compare experiences of offense among adolescents (15-19 years old) and young adults (20-24 years old). Findings indicated that while the ratio of those offended did not differ between adolescents and young adults, reasons for feeling offended did.
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19.
  • Hagström, Josefin, et al. (författare)
  • Adolescents Identifying Errors and Omissions in Their Electronic Health Records : A National Survey
  • 2023
  • Ingår i: Caring is Sharing. - : IOS Press. - 9781643683881 - 9781643683898 ; 302, s. 242-246
  • Konferensbidrag (refereegranskat)abstract
    • Patient accessible electronic health records (PAEHRs) have been proposed as a means to improve patient safety and documentation quality, as patients become an additional source to detect mistakes in the records. In pediatric care, healthcare professionals (HCP) have noted a benefit of parent proxy users correcting errors in their child's records. However, the potential of adolescents has so far been overlooked, despite reports of reading records to ensure accuracy. The present study examines errors and omissions identified by adolescents, and whether patients reported following up with HCPs. Survey data was collected during three weeks in January and February 2022 via the Swedish national PAEHR. Of 218 adolescent respondents, 60 reported having found an error (27.5%) and 44 (20.2%) had found missing information. Most adolescents did not take any action upon identifying an error or an omission (64.0%). Omissions were more often perceived as serious than errors. These findings call for development of policy and PAEHR design that facilitates reports of errors and omissions for adolescents, which could both improve trust and support the individual's transition into an involved and engaged adult patient.
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20.
  • Hagström, Josefin, et al. (författare)
  • Minor and Parental Access to Electronic Health Records : Differences Across Four Countries
  • 2022
  • Ingår i: Challenges of Trustable AI and Added-Value on Health. - : IOS Press. - 9781643682846 - 9781643682853 ; 294, s. 495-499
  • Konferensbidrag (refereegranskat)abstract
    • An increasing number of countries are implementing patient access to electronic health records (EHR). However, EHR access for parents, children and adolescents presents ethical challenges of data integrity, and regulations vary across providers, regions, and countries. In the present study, we compare EHR access policy for parents, children and adolescents in four countries. Documentation from three areas: upper age limit of minors for which parents have access; age at which minors obtain access; and possibilities of access restriction and extension was collected from Sweden, Norway, Finland, and Estonia. Results showed that while all systems provided parents with automatic proxy access, age limits for its expiry differed. Furthermore, a lower minimum age than 18 for adolescent access was present in two of four countries. Differences between countries and potential implications for adolescents are discussed. We conclude that experiences of various approaches should be explored to promote the development of EHR regulations for parents, children and adolescents that increases safety, quality, and equality of care.
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21.
  • Hedvall, Per-Olof, et al. (författare)
  • Towards 3rd Generation Universal Design: Exploring Nonclusive Design
  • 2022
  • Ingår i: Transforming our World through Universal Design for Human Development, Proceedings of the Sixth International Conference on Universal Design, 7-9 September 2022, Brescia, Italy / Ilaria Garofolo, Giulia Bencini, Alberto Arenghi (eds.). - Amsterdam : IOS Press. - 0926-9630 .- 1879-8365. - 9781643683041
  • Konferensbidrag (refereegranskat)abstract
    • In this paper, we identify and describe early signs of a shift towards 3rd generation UD, of which “nonclusive design” is an essential part. The paper explores the significance of such a shift using examples of the built and designed environment and of signage. Nonclusive design means design that resists categorisations of bodies/roles and that does not come with predefined or presupposed limits in terms of who it is meant for. We outline seven themes characterising the shift towards nonclusive design: 1) from included to undefined users, 2) from person to function, 3) from adaptism to variation, 4) from separation to convergence, 5) from reactive to proactive, 6) from unaware to aware, and 7) from explicit to tacit. Nonclusive design directs attention to context instead of the individual, focusing on possibilities, functions and facilities. It has a convergent character, highlighting variation and unity rather than separation. Nonclusive design presupposes awareness, knowledge and proactive development void of adaptism. It incorporates human variation without reiterating patterns of norm-deviation. We argue that the continued growth of UD demands, is part of, and contributes to a shift in culture, with nonclusive, intersectional thinking as a key future driver. In such a culture, 3rd generation UD can contribute as a common guiding mindset, as a source for innovation, as a way to listen for diversity in all its forms, and as a way to lead towards a sustainable society.
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22.
  • Hucíková, Anežka, et al. (författare)
  • User Needs of Young Czech Adults with Multiple Sclerosis in a Lifestyle App Design
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365.
  • Tidskriftsartikel (refereegranskat)abstract
    • This paper presents a study that examined desired functionality, content, and design of a mobile application for young Czech adults living with Multiple Sclerosis (MS). The study was structured around a high-fidelity prototype developed for the corresponding user group in Norway. Both groups were active on social media and willing to contribute to designing an application promoting a healthy lifestyle and well-being. Adopting the content analysis, the study first compared the social content shared within the Facebook communities in the Norwegian and Czech user groups that were active. Regardless of the similarities, the Czech group expected that solutions regarding main functionalities and content should stand out from other competitive applications offered on the market. Most of all, they would like to see healthcare staff being engaged in content creation by providing credible information, especially regarding new treatments and clinical trials. Enhanced interaction between all the stakeholders (patients, and healthcare providers) would add value and relevance to the content already provided by social media.
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23.
  • Hägglund, Maria, Lektor, 1975-, et al. (författare)
  • Mobile Access and Adoption of the Swedish National Patient Portal
  • 2020
  • Ingår i: Integrated Citizen Centered Digital Health and Social Care. - : IOS Press. - 9781643681443 - 9781643681450 ; 275, s. 82-86
  • Konferensbidrag (refereegranskat)abstract
    • Patient portals are used as a means to facilitate communication, performing administrative tasks, or accessing one's health record. In a retrospective analysis of real-world data from the Swedish National Patient Portal 1177.se, we describe the rate of adoption over time, as well as how patterns of device usage have changed over time. In Jan 2013, 53% of all visits were made from a computer, and 38% from a mobile phone. By June 2020, 77% of all visits were made from a mobile phone and only 20% from a computer. These results underline the importance of designing responsive patient portals that allow patients to use any device without losing functionality or usability.
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24.
  • Hägglund, Maria, Lektor, 1975-, et al. (författare)
  • The Future of Online Video Consultations in Primary Care : A Qualitative Study
  • 2023
  • Ingår i: Caring is Sharing - Exploiting the Value in Data for Health and Innovation - Proceedings of MIE 2023. - : IOS Press. - 1879-8365 .- 0926-9630. - 9781643683881 - 9781643683898 ; 302, s. 942-946
  • Konferensbidrag (refereegranskat)abstract
    • The COVID-19 pandemic has significantly increased the use of remote services such as video consultations (VCs). In Sweden, private healthcare providers offering VCs have grown substantially since 2016 and have been controversial. Few studies have focused on physicians' experiences of providing care in this context. Our overall aim was to study physicians' experiences of VCs, here focusing on their suggestions for future improvements. Twenty-two semi-structured interviews were performed with physicians working for an online healthcare provider in Sweden, and analyzed through inductive content analysis. Two themes emerged related to desired future improvements of VCs; blended care and technical innovation.
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25.
  • Jingar, Monika, et al. (författare)
  • Exploring Limitations of User Interface Design to Understanding the Gap Between Technology and Seniors
  • 2021
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 281, s. 931-935
  • Tidskriftsartikel (refereegranskat)abstract
    • Participating in social activities promotes healthy ageing, whereas loneliness and isolation are known to cause adverse effects on both physical and mental wellbeing. Technology that exists in society today can facilitate healthy ageing. However, a gap can be seen between seniors and technology in today's internet and communication technological device's user interfaces. Due to limited prior knowledge of interacting with touch screen devices, seniors sometimes have difficulties using them. This research aims to explore the user interfaces and their elements designed using a human-centered design methodology by involving seniors as activate participants in the design process. This work's outcome can improve current user interface design practices in touch screen devices, which might be seen as contributing step to understand the gap between seniors and technology.
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26.
  • Jonsson, Oskar, et al. (författare)
  • Understanding Person-Environment Relationships as Criteria to Support the Operationalization of Universal Designing
  • 2022
  • Ingår i: Transforming our World through Universal Design for Human Development - Proceedings of the 6th International Conference on Universal Design, UD 2022. - 1879-8365 .- 0926-9630. - 9781643683041 ; 297, s. 12-19
  • Konferensbidrag (refereegranskat)abstract
    • To reach a broader understanding of person-environment relationships as building blocks for universal design in research and practice, this paper combine and discuss three types of interaction between individuals and environments - instrumental, non-instrumental, and non-physical - and five constituent concepts, i.e. accessibility, usability, aesthetic experience, the experience of meaning and emotional experience. Theoretical frameworks/models for person-environment relationships are synthesized and combined based on a literature review and the author's previous experiences. The author proposes to classify accessibility and usability as instrumental person-environment interaction, aesthetic experience as non-instrumental interaction, and experience of meaning and emotional experience as non-physical interaction. At the same time, acknowledge the potential of the three types of interaction to embed cues and choices to accommodate the widest variety and number of people throughout their lifespans. This paper contributes to understanding person-environment relationships as criteria to support research strategies and the operationalization of universal designing.
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27.
  • Kharko, Anna, et al. (författare)
  • Mapping Patients' Online Record Access Worldwide : Preliminary Results from an International Survey of Healthcare Experts
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 114-118
  • Tidskriftsartikel (refereegranskat)abstract
    • While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.
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28.
  • Kitkowska, Agnieszka, et al. (författare)
  • Improving Well-Being in Schools - Lessons Learned from IoT Experts
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - Amsterdam : IOS Press. - 0926-9630 .- 1879-8365. ; 302, s. 666-670, s. 666-670
  • Tidskriftsartikel (refereegranskat)abstract
    • The Internet of Things (IoT) is a source of knowledge about the surrounding environment and people in such an environment. The insights collected by IoT can provide the knowledge needed to improve people’s health and overall well-being. Schools are one environment where IoT is scarcely applied, yet, it is expected that this is where children and teenagers spend most of their time. Drawing on previous findings, this paper presents preliminary results from qualitative inquiry investigating how and what IoT-based solutions could support health and well-being in elementary educational settings.
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29.
  • Kokkinakis, Dimitrios, 1965, et al. (författare)
  • Cluster-Based BERTopic Modeling on Swedish COVID-19 Vaccine Posts
  • 2024
  • Ingår i: The 34th Medical Informatics Europe Conference. - Amsterdam • Washington, DC : IOS Press. - 0926-9630 .- 1879-8365.
  • Konferensbidrag (refereegranskat)abstract
    • This paper explores the prevalent themes across multiple threads on the popular Swedish discussion forum Flashback. Among its diverse array of topics, the forum actively engages users in addressing and debating questions pertaining to COVID-19 vaccines and vaccination. Through distinguishing between positive and negative perspectives within posts across 14 relevant thread discussions, we employ BERTopic, a modular topic modeling framework, which utilizes pre-trained language models and applies clustering techniques to identify prevailing topics. This enables us to conduct a nuanced exploration of overarching themes, offering valuable insights into the multifaceted nature of the discussions regarding COVID-19 vaccines and vaccination in Sweden.
  •  
30.
  • Kokkinakis, Dimitrios, 1965, et al. (författare)
  • The Prevalence of mRNA Related Discussions during the Post-COVID-19 Era
  • 2023
  • Ingår i: Caring is Sharing - Exploiting the Value in Data for Health and Innovation - Proceedings of MIE 2023. - : IOS Press. - 1879-8365 .- 0926-9630. - 9781643683881 ; 302, s. 798-802
  • Konferensbidrag (refereegranskat)abstract
    • Vaccinations are one of the most significant interventions to public health, but vaccine hesitancy and skepticism are raising serious concerns for a portion of the population in many countries, including Sweden. In this study, we use Swedish social media data and structural topic modeling to automatically identify mRNA-vaccine related discussion themes and gain deeper insights into how people's refusal or acceptance of the mRNA technology affects vaccine uptake. Our point of departure is a scientific study published in February 2022, which seems to once again sparked further suspicion and concern and highlight the necessity to focus on issues about the nature and trustworthiness in vaccine safety. Structural topic modelling is a statistical method that facilitates the study of topic prevalence, temporal topic evolution, and topic correlation automatically. Using such a method, our research goal is to identify the current understanding of the mechanisms on how the public perceives the mRNA vaccine in the light of new experimental findings.
  •  
31.
  • Lee, Eunji, 1980, et al. (författare)
  • Development of Verified Innovation Process for Healthcare Solutions (VIPHS): A Stepwise Model for Digital Health
  • 2023
  • Ingår i: Studies in health technology and informatics. - 1879-8365 .- 0926-9630. ; 302, s. 736-740
  • Tidskriftsartikel (refereegranskat)abstract
    • Many digital health projects often stop in the pilot or test phase. Realisation of new digital health services is often challenging due to lack of guidelines for the step-by-step roll-out and implementation of the systems when changing work processes and procedures are needed. This study describes development of the Verified Innovation Process for Healthcare Solutions (VIPHS) - a stepwise model for digital health innovation and utilisation using service design principles. A multiple case study (two cases) involving participant observation, role play, and semi-structured interviews were conducted for the model development in prehospital settings. The model might be helpful to support realisation of innovative digital health projects in a holistic, disciplined, and strategic way.
  •  
32.
  • Linge, Helena, et al. (författare)
  • Secure Sharing of Health-Related Data : Research Description of the VINTER, DELFIN, and HEIDA Projects
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - : NLM (Medline). - 0926-9630 .- 1879-8365. ; 302, s. 143-144
  • Tidskriftsartikel (refereegranskat)abstract
    • The need for secure and integrity-preserved data sharing has become increasingly important in the emerging era of changed demands on healthcare and increased awareness of the potential of data. In this research plan, we describe our path to explore the optimal use of integrity preservation in health-related data contexts. Data sharing in these settings is poised to increase health, improve healthcare delivery, improve the offering of services and products from commercial entities, and strengthen healthcare governance, all with a maintained societal trust. The HIE challenges relate to legal boundaries and to the importance of maintaining accuracy and utility in the secure sharing of health-related data.
  •  
33.
  • Marzano, Luca, 1995-, et al. (författare)
  • Application of Process Mining for Modelling Small Cell Lung Cancer Prognosis
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 302, s. 18-22
  • Tidskriftsartikel (refereegranskat)abstract
    • Process mining is a relatively new method that connects data science and process modelling. In the past years a series of applications with health care production data have been presented in process discovery, conformance check and system enhancement. In this paper we apply process mining on clinical oncological data with the purpose of studying survival outcomes and chemotherapy treatment decision in a real-world cohort of small cell lung cancer patients treated at Karolinska University Hospital (Stockholm, Sweden). The results highlighted the potential role of process mining in oncology to study prognosis and survival outcomes with longitudinal models directly extracted from clinical data derived from healthcare.
  •  
34.
  • Moll, Jonas, 1982-, et al. (författare)
  • The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care : A National Patient Survey in Sweden
  • 2020
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 270, s. 1056-1060, s. 1056-1060
  • Tidskriftsartikel (refereegranskat)abstract
    • During recent years, patient accessible electronic health records (PAEHRs) have been implemented nationally in Sweden, as well as internationally, as a means of supporting patient engagement and shared decision making. Few studies have, however, investigated the long-term effects of PAEHRs on communicaiton with care professionals and involvement in care. The national survey study presented here, answered by 2587 patients in Sweden, focuses on these aspects specifically. The results show that the Swedish PAEHR system Journalen has had a positive impact on communication with care overall (84% agree or strongly agree with that communication with medical staff has improved), but only 31% agree or strongly agree with that the content of the PAEHR is discussed with care professionals. Journalen also seems to have a positive impact on involvement in care, but the results are mixed when it comes to effects on shared decision making.
  •  
35.
  • Muli, Irene, et al. (författare)
  • Healthcare Professionals' Experiences of the Work Environment After Patients' Access to Their Electronic Health Records - A Qualitative Study in Primary Care.
  • 2022
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 294, s. 530-534
  • Tidskriftsartikel (refereegranskat)abstract
    • For healthcare personnel, the work environment is already challenging, and when eHealth systems are introduced they are often considered to further add to the complexity. This paper investigates the impact of patients' access to their electronic health records on healthcare professionals' work environment in a primary care setting in Sweden. A work environment theory-driven analysis, focusing on perceived demands, control and support, was conducted on 14 semi-structured interviews of different primary care professionals. The professionals expressed a slight increase in demands, loss of control and some increase and decrease of support. This study discusses insights on how patients' access to health records can have an impact on healthcare professionals' work environment.
  •  
36.
  • Muli, Irene, et al. (författare)
  • Patients' Experiences of Initiating Video Consultations.
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 309, s. 204-209
  • Tidskriftsartikel (refereegranskat)abstract
    • Implementation and adoption of video consultations (VCs) in healthcare are not straightforward. Experiences of initiating a VC could increase our understanding of adoption by patients. This study aims to report patients' experiences of installing and booking a VC in primary care. Most people found it easy to find and install the VC application. Those with a higher self-reported ability and habit of using digital services and the internet found it easier than those reporting lower ability and habit. About half of our respondents had booked their recent VC themselves, most of whom had done so through a telephone call or the application "Alltid Öppet". The booking process was perceived to be easy by most but more difficult compared to installation. The easy installation process might have led to higher adoption by older people. Nevertheless, during implementation more support should be provided to people with lower digital service and internet use abilities and habits as they might find VC set-up more difficult. More attention should be given to the booking process as it may be a barrier potentially influencing adoption.
  •  
37.
  • Muli, Irene, et al. (författare)
  • Primary Healthcare Professionals' Improvement Suggestions for the Patient Accessible Health Record
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 489-493
  • Tidskriftsartikel (refereegranskat)abstract
    • Patients' online record access is a worldwide phenomenon, where Sweden is one of the pioneers in actual countrywide implementation. Healthcare professionals (HCPs) have previously raised usability issues with e-health systems and proposed several solutions, yet no studies have explored PAEHRs from this perspective. The aim of this study was to describe primary HCPs' suggestions on how the Swedish online record could be improved. They (n=14) were asked what they would like to improve with the system to increase usability and usefulness for patients or for themselves. Suggestions covered expanding what patients could view, simplification of the service for both the patients and themselves, adding feedback functions, and limiting access to only signed records.
  •  
38.
  • Muli, Irene, et al. (författare)
  • Video Consultations and Environmental Sustainability - Usability's Impact on Long-Term Use.
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 316, s. 291-295
  • Tidskriftsartikel (refereegranskat)abstract
    • The rapid shift to digital healthcare, accelerated by the COVID-19 pandemic, holds promise for sustainable healthcare delivery and climate change mitigation. This study evaluates the Alltid öppet application through the lens of usability and patient satisfaction and their correlation with the intention for continued use. A cross-sectional analysis of primary care patients revealed that alignment with user needs significantly predicts long-term adoption, while frustration during use discourages it. Ease of use did not significantly affect the intention to continue, suggesting that usability alone is insufficient to drive sustained engagement. These findings highlight user-centred design's importance in digital healthcare solutions, suggesting that enduring adoption hinges on value perception and reducing user frustration. As the healthcare sector navigates its digital future, this study offers crucial insights into the design and implementation strategies that could underpin the environmental sustainability and resilience of healthcare systems.
  •  
39.
  • Ngugi, Philomena N, et al. (författare)
  • Impact of Electronic Medical Records Systems in Reporting HIV Health Data Indicators in Kenya.
  • 2022
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 294, s. 234-238
  • Tidskriftsartikel (refereegranskat)abstract
    • Electronic Medical Records Systems (EMRs) improve the quality of patient care and reduce medical errors. Nevertheless, their role in health data indicator reporting performance is unclear. We assessed reporting completeness and timeliness of HIV indicator data to the national aggregate reporting system, District Health Information Software 2 (DHIS2) in Kenya. We compared the reporting performance of facilities with and without EMRs implementation for the year 2013 as EMRs uptake was in progress. The comparative analysis involved 104 facilities implemented with and 152 without KenyaEMR system on three HIV programmatic areas. There were no statistically significant differences in performance regarding reporting completeness and timeliness by facilities with or without EMRs (p-values > 0.05 on all the three areas). The KenyaEMR system assessed in this study, therefore, cannot be associated with the transformed performance in reporting health indicators. This was probably due to the fact that the EMRs do not report electronically to DHIS2. Additional analysis can be conducted to compare reporting performance once data exchange functionality is fully established between KenyaEMR and DHIS2 systems.
  •  
40.
  • O'Sullivan, D., et al. (författare)
  • Inclusion4EU : Co-Designing a Framework for Inclusive Software Design and Development
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - : NLM (Medline). - 0926-9630 .- 1879-8365. ; 306, s. 497-502
  • Tidskriftsartikel (refereegranskat)abstract
    • Digital technology is now pervasive, however, not all groups have uniformly benefitted from technological changes and some groups have been left behind or digitally excluded. Comprehensive data from the 2017 Current Population Survey shows that older people and persons with disabilities still lag behind in computer and internet access. Furthermore unique ethical, privacy and safety implications exist for the use of technology for older persons and people with disabilities and careful reflection is required to incorporate these aspects, which are not always part of a traditional software lifecycle. In this paper we present the Inclusion4EU project that aims to co-design a new framework, guidelines and checklists for inclusive software design and development with end-users from excluded categories, academics with expertise in human-computer interaction and industry practitioners from software engineering.
  •  
41.
  • Peltonen, Laura-Maria, et al. (författare)
  • Nursing Informatics Research Trends : Findings from an International Survey.
  • 2021
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 284, s. 344-349
  • Tidskriftsartikel (refereegranskat)abstract
    • This follow-up survey on trends in Nursing Informatics (NI) was conducted by the International Medical Informatics Association (IMIA) Student and Emerging Professionals (SEP) group as a cross-sectional study in 2019. There were 455 responses from 24 countries. Based on the findings NI research is evolving rapidly. Current ten most common trends include: clinical quality measures, clinical decision support, big data, artificial intelligence, care coordination, education and competencies, patient safety, mobile health, description of nursing practices and evaluation of patient outcomes. The findings help support the efforts to efficiently use resources in the promotion of health care activities, to support the development of informatics education and to grow NI as a profession.
  •  
42.
  • Rossander, Anna, 1980 (författare)
  • How Do Informaticians and IT-Architects Collaborate, or Not? A Case Study from a Public Health Care Provider
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365.
  • Konferensbidrag (refereegranskat)abstract
    • Despite years of work from both informaticians and IT-architects interoperability within healthcare is still low. This explorative case study performed on a well-staffed public health care provider shows that the involved roles were unclear, processes did not include each other, and that tooling was incompatible. However, interest in collaboration was high and technical advances and inhouse development were seen as incentives for increased collaboration.
  •  
43.
  • Seth, Mattias, 1993, et al. (författare)
  • Reviewing Challenges in Specifying Interoperability Requirement in Procurement of Health Information Systems
  • 2024
  • Ingår i: Studies in Health Technology and Informatics. - 1879-8365 .- 0926-9630. ; 310, s. 8-12
  • Tidskriftsartikel (refereegranskat)abstract
    • Procurement of health information systems (HIS) is a complex and critical task that requires early identification of interoperability requirements. However, specifying adequate requirements is often associated with several challenges. We examined relevant peer-reviewed literature and public documents (policy documents, annual reports, and newspapers) to summarize existing challenges in specifying interoperability requirement during procurement of HISs. In this study, 32 public documents and 2343 peer-reviewed articles were found using Google search engine, Springer, PubMed and ScienceDirect. Collected data were analyzed using a thematic coding schema. Our result shows that challenges related to describing the needs properly, conflicting needs and knowledge gaps are shared between most articles. Further research in the direction of developing a model that can bridge knowledge gaps, facilitate interdisciplinary collaboration, and help to avoid fuzzy requirements is needed.
  •  
44.
  • Siira, Elin, 1987-, et al. (författare)
  • What Are We Talking About When We Talk About Information-Driven Care? A Delphi-Study on a Definition
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - Amsterdam : IOS Press. - 0926-9630 .- 1879-8365. ; 302, s. 346-347
  • Tidskriftsartikel (refereegranskat)abstract
    • In Sweden, the term information-driven care has recently been put forward by healthcare organizations and researchers as a means for taking a comprehensive approach to the introduction of Artificial Intelligence (AI) in healthcare. The aim of this study is to systematically generate a consensus definition of the term information-driven care. To this end, we are conducting a Delphi study utilizing literature and experts' opinions. The definition is needed to enable knowledge exchange on information-driven care and operationalize its introduction into healthcare practice. © 2023 European Federation for Medical Informatics (EFMI) and IOS Press.
  •  
45.
  • Vallo Hult, Helena, 1976-, et al. (författare)
  • Decreased Memory Bias via a Mobile Application : A Symptom Tracker to Monitor Children's Periodic Fever.
  • 2022
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 294, s. 915-919
  • Tidskriftsartikel (refereegranskat)abstract
    • Memory bias, the tendency to rely on certain events over others, can become an issue in chronic illnesses, especially when symptoms are reported retrospectively. This paper examines a case where continuous symptom registration can be facilitated, memory supported, and memory bias reduced by introducing a mobile application. The aim of the paper is to report on the design of an app for collecting subjective data over an extended period to continuously follow children with periodic fever. The research approach is qualitative, building on interview data. The design method is co-design, a collaborative and participatory approach involving researchers, physicians and other key stakeholders, with focus on the views of the parents. We argue that collecting data continuously through an app moves the discussion from memory to the specific data points, which is illustrated through trends shown in the visualizations of the data. Moreover, we highlight the importance of systematically collecting data over an extended period through a data-driven approach to both forward clinical practice and research on complex, often chronic topics such as periodic fever, which is genuinely under-researched to date.
  •  
46.
  • Vallo Hult, Helena, 1976-, et al. (författare)
  • Why and When Physicians Google : Resident Physicians' Information-Seeking Strategies During Patient Consultations
  • 2023
  • Ingår i: Studies in Health Technology and Informatics. - 0926-9630 .- 1879-8365. ; 305, s. 580-583
  • Tidskriftsartikel (refereegranskat)abstract
    • Physicians depend on access to accurate, up-to-date information and knowledge to make decisions and carry out their work. Today, access to online medical information has become easier than ever before. There is a stream of research interested in understanding how online health information intervenes and influences the patient-physician relationship. While many studies have focused on patients' online health information seeking, fewer studies have addressed how physicians seek and use online medical information. In this qualitative study, focus groups using clinical scenarios were conducted to examine why and when resident physicians turn to search engines like Google for medical information seeking at the point of care. The paper provides insights in physicians' perceptions and experiences of using digital tools for information seeking during patient consultations. Specifically, we identify and discuss information-seeking strategies of physicians during the patient consultation, contributing crucial knowledge for improving the quality of healthcare and patient outcomes.
  •  
47.
  • Ahmad, Awais, et al. (författare)
  • Designing for Human Well-Being: A Case Study with Informal Caregivers of Individuals with Cancer.
  • 2022
  • Ingår i: Studies in health technology and informatics. - 1879-8365.
  • Konferensbidrag (refereegranskat)abstract
    • Informal Caregivers such as a spouse, other close relatives or friends of cancer patients can play an essential role in home-based treatment and care. However, the informal caregivers might not be prepared for this responsibility, and they might have several unmet requirements for taking care of patients in the home environment. The informal caregivers' physical, social and psychological health is also profoundly affected due to the health conditions of their relatives. We propose a User-centred Positive Design as a hybrid framework by merging the traditional User-cantered design and positive design frameworks to enhance the informal caregivers' subjective well-being. Our ongoing project (Carer-eSupport) will be used as a case study, and its main objective is to co-create and evaluate a web-based support system for informal caregivers of people with cancer. The proposed framework can be used for the design and development of health information systems with a special focus on users' wellbeing and positive emotions.
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