| 1. |
- Boman, Åse, et al.
(författare)
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Fathers of Children With Type 1 Diabetes : Perceptions of a Father's Involvement From a Health Promotion Perspective
- 2014
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 20:3, s. 337-354
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Tidskriftsartikel (refereegranskat)abstract
- This study describes how fathers of children diagnosed with type 1 diabetes understand their involvement in their child's daily life from a health promotion perspective. Sixteen Swedish fathers of children living with type 1 diabetes were interviewed. Manifest and latent content analysis was used to identify two themes: the inner core of the father's general parental involvement and the additional involvement based on the child's diabetes. The former was underpinned by the fathers' prioritization of family life and the fathers being consciously involved in raising the child, and the latter by the fathers promoting and controlling the child's health and promoting and enabling the child's autonomy. The results highlight that the quality of the fathers' involvement is essential in the management of a child's chronic illness. It is important for pediatric diabetes health care professionals to assess the quality of fathers' involvement to promote the child's health.
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| 2. |
- Ekstedt, Mirjam, et al.
(författare)
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Health Care Professionals' Perspectives of the Experiences of Family Caregivers During In-Patient Cancer Care
- 2014
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 20:4, s. 462-486
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Tidskriftsartikel (refereegranskat)abstract
- Being a family member of a patient who is being treated in an acute care setting for cancer often involves a number of challenges. Our study describes Norwegian cancer care health professionals' perceptions of family members who served as family caregivers (FCs) and their need for support during the in-hospital cancer treatment of their ill family member. Focus group discussions were conducted with a multidisciplinary team of 24 experienced social workers, physicians, and nurses who were closely involved in the patients' in-hospital cancer treatment and care. Drawing on qualitative hermeneutic analysis, four main themes describe health professionals' perceptions of FCs during the patient's in-hospital cancer care: an asset and additional burden, infinitely strong and struggling with helplessness, being an outsider in the center of care, and being in different temporalities. We conclude that it is a challenge for health care professionals to support the family and create room for FC's needs in acute cancer care. System changes are needed in health care, so that the patient/FC dyad is viewed as a unit of care in a dual process of caregiving, which would enable FCs to be given space and inclusion in care, with their own needs simultaneously considered alongside those of the patient.
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| 3. |
- Ericson-Lidman, Eva, et al.
(författare)
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Being closely connected to health care providers experiencing burnout : putting one's life on hold to help.
- 2010
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 16:1, s. 101-123
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Tidskriftsartikel (refereegranskat)abstract
- Being closely connected to a person experiencing illness may be a trying experience.This study aimed to illuminate meanings of being closely connected to health care providers experiencing burnout. Ten interviews were conducted with five people closely connected (i.e., family members or supportive friends) to health care providers recovering from burnout. The interviews were tape-recorded and transcribed verbatim, and the resulting text was interpreted using a phenomenological-hermeneutic method. One consequence of being closely connected to health care providers experiencing burnout is putting one's life on hold to help. In facing an almost unmanageable burden, those closely connected revealed their own suffering, emphasizing their need for support. Health care professionals need to be aware that those who are closely connected to a person experiencing burnout may lack knowledge about burnout and its related challenges. It is to be hoped such knowledge would allow significant others to better support the person experiencing burnout and promote their own health.
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| 4. |
- Lindahl, Berit, 1955, et al.
(författare)
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Being the Parent of a Ventilator-Assisted Child: Perceptions of the Family-Health Care Provider Relationship When Care Is Offered in the Family Home
- 2013
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 19:4, s. 489-508
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Tidskriftsartikel (refereegranskat)abstract
- The number of medically fragile children cared for at home is increasing; however, there are few studies about the professional support these families receive in their homes. The aim of the study was to understand the meanings that parents had about the support they received from health care professionals who offered care for their ventilator-assisted child in the family home. A phenomenological-hermeneutic method was used. Data included the narratives of five mother-father couples living in Sweden who were receiving professional support for their ventilator-assisted child. The findings indicate that receiving professional support meant being at risk of and/or exposed to the exercise of control over family privacy. The professional support system in the families' homes worked more by chance than by competent and sensible planning. In good cases, caring encounters were characterized by a mutual relationship where various occupational groups were embraced as a part of family life. The findings are discussed in light of compassionate care, exercise of power, and the importance of holistic educational programs. © The Author(s) 2013.
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| 5. |
- Lindahl, Berit, 1955, et al.
(författare)
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Family Members' Experiences of Everyday Life When a Child Is Dependent on a Ventilator: A Metasynthesis Study
- 2011
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Ingår i: JOURNAL OF FAMILY NURSING. - : Sage Publications, Inc.. - 1074-8407 .- 1552-549X. ; 17:2, s. 241-269
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Tidskriftsartikel (refereegranskat)abstract
- Children using mechanical ventilation for survival represent a small, but growing, vulnerable population in society. The aim of this study was to describe the existing qualitative research that examined family members’ experiences when a child is dependent on ventilator at home. A metasynthesis is an interpretative integration of qualitative research findings based on a systematic literature search. Twelve original research reports focusing on the life situation of ventilator- and technology-dependent children and their families published between 1998 and 2006 were selected as data. Themes from the metasynthesis included experiences of the ill child, siblings, and parents and the meaning of space and place. These findings provide an understanding of the family members’ experiences when a child is dependent on a ventilator for survival. Recommendations for future research with this population of families include a greater focus on professional support systems and family strengths and the use of longitudinal research methods using observation and interviews.
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| 6. |
- Moen, Øyfrid, 1969-, et al.
(författare)
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Contending and adapting every day: Norwegian parents' lived experience of having a child with ADHD
- 2011
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 17, s. 441-462
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Tidskriftsartikel (refereegranskat)abstract
- Attention deficit hyperactivity disorder (ADHD) is one of the most common childhood disorders, and little attention has been paid to the parents and their experiences. The aim of this study was to gain a deeper understanding of the Norwegian parents’ lived experiences of having a child with an ADHD diagnosis. A descriptive design using phenomenological approach was chosen as the research method. Individual qualitative interviews with nine parents, who were members of the ADHD Association, were conducted. The interviews were analyzed according to Colaizzi’s method. The essential structure of the parents’ experiences was Contending and Adapting Every Day—Windsurfing in unpredictable waters which was embedded in the interrelated main themes: Maintaining the Self and Parenthood, and Interacting With the Surrounding World. Being the parent of a child with ADHD is a demanding situation. Nurses need to address the needs of these parents and focus on the family unit.
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| 7. |
- Ringnér, Anders, 1975-, et al.
(författare)
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Talking via the child : discursively created interaction between parents and health care professionals in a pediatric oncology ward
- 2013
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 19:1, s. 29-52
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to describe discursively constructed interactions between parents and health care professionals (HCPs) in a pediatric oncology ward. Field notes from 70 focused participant observations and 16 informal interviews with 25 HCPs interacting with 25 parents of children with cancer were analyzed using discursive psychology. Six dominant interpretative repertoires (flexible parts of discourses used in everyday interaction) were found. Repertoires used by the HCPs were child, parent, or family oriented, mirroring the primary focus of the interaction. Parents used a spokesperson repertoire to use their own expertise to talk on behalf of the child; an observer repertoire, in which they kept in the background and interfered only when needed; or a family member repertoire to position themselves on a level equal to the ill child. The results are discussed in relation to philosophies influencing pediatric nursing, such as family-centered nursing and child-centered nursing.
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| 8. |
- Saveman, Britt-Inger
(författare)
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Family nursing research for practice : the Swedish perspective.
- 2010
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 16:1, s. 26-44
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Tidskriftsartikel (refereegranskat)abstract
- This article offers a synthesis of the significant developments and progress of family nursing in Sweden. A review was conducted to locate Swedish family nursing research produced over the past 10 years. CINAHL, Medline, and PubMed were the primary databases used to locate approximately 75 family nursing studies conducted in Sweden. The majority of the studies used descriptive methods with data collected from surveys and interviews involving nurses and family members either together or individually. Only a few of the studies examined family nursing interventions. This article also reports the results of a recent survey of Swedish nurses that examined how family nursing is used in practice. After 10 years of creating a strong foundation for family-focused nursing in Sweden, there is still a need for nurse researchers, educators, and administrators to collaborate in the implementation of family nursing to practice.
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| 9. |
- Saveman, Britt-Inger, et al.
(författare)
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Refinement and psychometric revalidation of the instrument : Families' Importance in Nursing Care - Nurses' Attitudes (FINC-NA)
- 2011
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 17:3, s. 312-329
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Tidskriftsartikel (refereegranskat)abstract
- The instrument Families’ Importance in Nursing Care–Nurses’ Attitudes (FINC-NA) was developed to measure nurses’ attitudes toward the importance of families in nursing care. The low variations in item responses, which affect the discrimination ability and unstable internal consistency, have been considered as limitations. The aim of this study was to refine and revalidate FINC-NA regarding score distribution, homogeneity, dimensionality, differential item functioning for gender, stability, and internal consistency. There were 246 registered nurses studying at advanced levels who answered the revised FINC-NA. The FINC-NA had five response alternatives. The findings showed that although some subscales still deviated from a normal distribution, the variability of the scores and the homogeneity was improved. In addition, the dimensionality was reproduced and minor problems with differential item functioning for gender were detected. All FINC-NA scales showed good reliability. The results allow the use of the revised FINC-NA in studies where an assessment of nurses’ attitudes toward families’ importance in nursing care is desired.
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| 10. |
- Sparud Lundin, Carina, 1964, et al.
(författare)
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Challenges, strategies and gender relations among parents of children recently diagnosed with type I diabetes
- 2013
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Ingår i: Journal of Family Nursing. - Thousand Oaks : Sage Publications. - 1074-8407 .- 1552-549X. ; 19:2, s. 249-273
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Tidskriftsartikel (refereegranskat)abstract
- This study explored (a) parents' process of changes and challenges in their patterns of daily activities after the onset of diabetes in their children; and (b) how personal gender relations can restrain or create functional strategies for managing the changes and challenges of illness. Interviews were conducted with 21 mothers and 15 fathers of 23 children with type 1 diabetes 8 to 10 months after onset. Using a constant comparative analysis method, the core category depicts how the illness forced parents to reconstruct their family project with respect to patterns of daily activities and gender structures. The emerging subcategories of reinforced mothering and adjusted fathering illustrate the parents' effort to handle contemporary and contradictory demands. With increased knowledge of the dynamics of gender relations of families in the context of a child's illness, health care professionals can assist in promoting well-being and functional strategies in families when a child is newly diagnosed with diabetes. © The Author(s) 2013.
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| 11. |
- Torgé, Cristina Joy
(författare)
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Freedom and Imperative : Mutual Care Between Older Spouses With Physical Disabilities
- 2014
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 20:2, s. 204-225
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Tidskriftsartikel (refereegranskat)abstract
- This article explores mutual caregiving between older spouses aging with physical disabilities. Nine older couples, where both partners had lived long lives with physical disabilities, were interviewed as dyads about mutual caregiving. The couples not only had access to different kinds and degrees of formal support but also provided mutual care to each other in a variety of ways. Interview coding using grounded theory led to two overarching categories from which motivation for mutual caregiving could be understood. These categories were Mutual care as freedom and Mutual care as imperative. The results extend understanding about how older couples with disabilities attached meaning to their mutual caregiving, and why mutual care was sometimes preferable, despite the availability of other sources of help and despite practical difficulties of providing this help. These findings suggest that health care professionals need to be sensitive to the dynamics of the couple relationship and carefully explore the couple’s preferences for how formal support can best be provided in ways that honor and sustain the integrity of the couple relationship
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| 12. |
- Östlund, Ulrika, et al.
(författare)
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Examining Family Responses to Family Systems Nursing Interventions : An Integrative Review
- 2014
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Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 20:3, s. 259-286
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Forskningsöversikt (refereegranskat)abstract
- To add to the small, but growing, number of literature reviews of family interventions in health care, a systematic literature search of Family Systems Nursing intervention research resulted in the inclusion of 17 empirical research reports. Family Systems Nursing intervention research to date has primarily used qualitative methods and a few quasi-experimental designs using pre-post outcome measures. Families' responses to Family Systems Nursing interventions were categorized in this integrative review using the cognitive, affective, and behavioral domains of family functioning proposed by Wright and Leahey. Family response in the cognitive domain found improved understanding, capability, and enhanced coping. The affective response categories showed caring more about each other and the family, improved family emotional well-being, and improved individual emotional well-being. Finally, family responses in the behavioral domain comprised caring more for each other and the family, improvement in interactions within and outside family, and healthier individual behavior. These findings may guide the design of future family nursing intervention research and the selection of family outcome measures to examine the usefulness of Family Systems Nursing interventions. More intervention research using experimental and quasi-experimental designs is needed to strengthen the evidence for Family Systems Nursing practice.
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