| 1. |
- Ebbevi, David, et al.
(författare)
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Ignoring and collective passivity in relation to information systems : How actors avoided engagement with data about wait times in Swedish healthcare
- 2024
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Ingår i: Information and Organization. - 1471-7727 .- 1873-7919. ; 34:3
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Tidskriftsartikel (refereegranskat)abstract
- Although digital technology (DT) is often introduced with the aim of enhancing organizational knowledge transfer and learning, these aims often fail to materialize. The information systems (IS) literature attributes such unexpected outcomes to inappropriate technology design and implementation, as well as to overuse, misuse, and non-use of technology. However, we know little about how actors misuse or fail to use technology and data, thereby failing to acquire and act upon the knowledge necessary to achieve organizational learning. Leveraging the literature on strategic ignorance, we explore how actors expected to use technology for learning purposes justify their non-engagement with it. Studying an implementation of a DT with the purpose of facilitating organizational learning on basis of provided data in health care, we identify seven ignoring justifications through which the target users of the DT avoided key knowledge acquisition and knowledge-based action activities. These sensemaking behaviors accumulated to a state of collective passivity in relation to the DT. Our conceptualization contributes to and connects theories of organizational learning in the IS literature and strategic ignoring.
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| 2. |
- Essén, Anna, et al.
(författare)
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Farlig innovation : Vad kan vi lära av Macchiarini skandalen?
- 2023
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Ingår i: Management of Innovation and Technology : forskningsinformation från stiftelsen IMIT - Institute for Management of Innovation and Technology. - : Stiftelsen IMIT (Institute for Management of Innovation and Technology). - 2002-8873. ; , s. 6-7
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Karolinska drömde stort: ett Nobelpris skulle komma med geniet Macchiarini. De 'innovativa' metoder Macchiarini utvecklade var dock skadliga. Några synade hans bluff tidigt: visselblåsarna. Under många år avfärdades och misstänkliggjordes denna lilla grupp. Allt medan bedragaren fick fortsätta. Den akademiska hierarkin skyddade Macchiarini. Hans förmenta 'mod' motiverade ett etiskt undantagstillstånd. Byråkratiska regler blev den sköld som ansvariga ställde sig bakom.
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| 3. |
- Hauffman, Anna, et al.
(författare)
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Cocreated internet-based stepped care for individuals with cancer and concurrent symptoms of anxiety and depression : Results from the U-CARE AdultCan randomized controlled trial
- 2020
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Ingår i: Psycho-Oncology. - : John Wiley & Sons. - 1057-9249 .- 1099-1611. ; 29:12, s. 2012-2018
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Tidskriftsartikel (refereegranskat)abstract
- Objective The aim was to evaluate the effects of cocreated internet-based stepped care (iCAN-DO) on anxiety, depression, posttraumatic stress, and health-related quality of life (HRQoL) in individuals with cancer and self-reported anxiety and/or depression symptoms, compared with standard care.Methods Clinically recruited individuals with breast, colorectal, or prostate cancer underwent online screening with the Hospital Anxiety and Depression Scale (HADS). Those with anxiety and/or depression symptoms (>7 on any of the HADS subscales) were randomized to iCAN-DO or standard care. iCAN-DO comprised psychoeducation and self-care strategies (step 1) and internet-based cognitive behavioral therapy (iCBT, step 2). Data were collected before randomization and at 1, 4, 7, and 10 months and analyzed with intention-to-treat regression analysis and randomization tests.Results Online screening identified 245 (27%) of 909 individuals who reported anxiety and/or depression symptoms. They were randomized to iCAN-DO (n = 124) or standard care (n = 121). Of them 49% completed the 10-month assessment, and in the iCAN-DO group 85% accessed step 1 and 13% underwent iCBT. iCAN-DO decreased the levels of symptoms of depression (−0.54, 95% confidence interval: −1.08 to −0.01, P < .05) and the proportion of individuals with symptoms of depression (P < .01) at 10 months, compared with standard care, according to HADS. There were no significant effects on anxiety, posttraumatic stress, or HRQoL.Conclusion Internet-based stepped care improves symptoms of depression in individuals with cancer. Further studies are needed to gain knowledge on how to optimize and implement internet-based support in oncology care.
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| 4. |
- Krohwinkel Karlsson, Anna, et al.
(författare)
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Assessing Whether Mission-Driven Innovation Makes a Difference: Mission Impossible? Developing a Guiding Framework for the Evaluation of Five Mission Driven Environments for Health in Sweden
- 2022
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Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
- Mission-driven innovation (MDI) policies are founded on governmental attempts to address fundamental but complex societal challenges. The rationale behind such attempts is typically to influence the directionality of innovation towards addressing the perceived challenge. This report focuses on a particular instance of MDI policy executed by Sweden’s innovation agency, Vinnova: the funding of five so-called “mission-driven environments” (MDEs) in 2019. The policy in question is called ‘Vision-Driven Health’ and was initiated in 2019 to support the establishment of inter-organizational and cross-disciplinary coalitions that work towards a common vision and a long-term systemic transformation within the Swedish health care and life science sector.
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| 5. |
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Människan i skogen, skogen i människan : Miun Research Exhibition
- 2021
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Konstnärligt arbeteabstract
- Med utställningen Människan i skogen, skogen i människan vill projektet belysa ett antal aktuella och viktiga frågor för vår region och samtid, samlade under ett tema: skog och hållbar utveckling. I utställningen får besökaren möta kunskap och perspektiv från fem forskare och forskargrupper vid Mittuniversitetet. Forskarna är verksamma inom biologi, ekoteknik, historia, litteraturvetenskap respektive turismvetenskap. Forskningens olika perspektiv länkas i utställningen samman genom sina förhållningssätt till tid, såsom avgörande för förståelse, kunskap och handling. De olika forskningsinriktningarna visar också fram spänningar mellan olika synsätt på skog och kan tillsammans ge flera svar och berättelser om skogens värden. En arbetsgrupp vid Universitetsbiblioteket står för gestaltning och produktion av utställningen.
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| 6. |
- Barrett, Michael, et al.
(författare)
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Algorithmic Reconfiguring of Service Ecosystems Through New Forms of Multilateral Surveillance
- 2020
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Research has explored how algorithmic processes reshape individual tasks in organizations. But less work has explored their implications on the wider service ecosystem. Using data about the “DAS” algorithms in the Swedish rheumatology setting between 1995 and 2019, we examine how the use of algorithms can reconfigure service delivery across the service ecosystem. We identify two algorithmic translation processes that enabled the incorporation of consumer self-evaluations in the multiple service nodes of the studied ecosystem. These processes implied new forms of multilateral surveillance, which had implications on the service delivery and the values that were generated by the ecosystem. By showing how concealed algorithms can make consumers’ voice watch-able and action-able across multiple nodes in the ecosystem, our work challenges traditional conceptualizations of algorithmic black-boxing as reducing human agency. We further theorize algorithmically mediated multi-actor surveillance, in which service nodes are both being watched and watching others, thus also challenging the view of surveillance as involving one “invisible” controlling many visible actors. These results open up new avenues of inquiry about the role of algorithmic processes in enabling new forms of multilateral surveillance that in turn condition value creation in service ecosystems.
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| 7. |
- Berg, Lotta, et al.
(författare)
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Jakt med pil och båge
- 2021
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- Ett antal länder tillåter jakt med pil och båge, medan flera andra länder har förbjudit den. I de fall där jakt med pil och båge är tillåten kan detta gälla endast vissa arter av däggdjur och fåglar. I vissa fall omfattas även vattenlevande djur. Av våra nordiska grannländer har Norge och Island totalförbud mot jakt med pil och båge, medan Danmark och Finland i olika utsträckning tillåter sådan jakt. Inget nordiskt land tillåter jakt med pil och båge på älg. Danmark och Finland har krav på utbildning och godkänt bågskytteprov för bågjägare. Olika argument för och emot har använts, inte alltid med vetenskapligt stöd, och det går inte att avgöra vilka argument som haft avgörande betydelse för att tillåta eller förbjuda jakt med pil och båge på nationell nivå. Jakt med pil och båge är sedan 1938 förbjuden i Sverige. Kul- och hagelvapen legaliserades ursprungligen inte utifrån etiska principer för minimerat onödigt lidande, utan är i bruk i Sverige och flera andra länder som en följd av tradition och hävd. Frågan om ett eventuellt tillåtande av jakt med pil och båge i Sverige har aktualiserats och Naturvårdsverket föreslog 2018 nya föreskrifter om detta. Den båge som föreslagits för jakt i Sverige är compoundbågen, som ger de kraftfullaste och säkraste skotten, jämfört med långbågen och recurvebågen. Utvecklingen av bågar, pilar och sikten fortgår dock. Vid all form av jakt med kula, hagel eller pil ska projektilens rörelseenergi omvandlas till en kroppsskada som så snabbt som möjligt leder till medvetslöshet och död för det träffade djuret. En pil från en compoundbåge har en anslagshastighet av c:a 70-80 m/s, vilket kan jämföras med c:a 400 m/s för en hagelsvärm och 700-1200 m/s för en gevärskula. Pilens anslagsenergi är c:a 75 J, medan energin hos en samlad hagelsvärm (på nära håll) är c:a 3200 J och hos en gevärskula 1600-16 500 J. En pil som färdas fritt har en uppskattad maximal räckvidd av en halv kilometer medan en kula kan färdas i flera kilometer. Jakt med pil och båge är mer tidskrävande än jakt med kulvapen, d.v.s. färre djur kan fällas under en given tidrymd. Penetrationsdjupet hos en pil varierar beroende på dess hastighet, pilspetsens utformning och typen av vävnad som träffas, och har i en experimentell studie angetts vara 17-60 cm i mjukvävnad. Ju större anslagshastighet, smalare pilspets och mjukare vävnad, desto längre penetrerar pilen och en pil från en modern compoundbåge kan även perforera kroppen på ett stort hjortdjur. Om skottet perforerar, d.v.s. passerar rakt igenom djuret, har projektilen kvar en del energi när den lämnar kroppen och förmågan att orsaka kroppsskada är därför lägre. Till skillnad från en kula orsakar en pil inte någon temporär kavitet med påföljande sekundära vävnadsskador i den träffade djurkroppen, utan endast en smal permanent kavitet eller skottkanal. Det innebär sannolikt att det blir än viktigare med en korrekt träff. Jakt med pil och båge utförs oftast som vak-, vakt-, lock- eller smygjakt, och jägaren är vanligen kamouflerad. Pil och båge ska endast användas på kort avstånd, sannolikt under ca 30-35 m, och helst på stillastående djur. Rekommendationerna om skjutavstånd skiljer dock mellan länder. Jägarens omdöme är en viktig förutsättning för en djurvälfärdsmässigt acceptabel jakt. Det är oklart om jakt med pil och båge kräver större kompetens, skicklighet och noggrannhet än jakt med andra vapen. Utländsk forskning indikerar dock att bågjägare hittills har varit mer benägna än jägare med kuleller hagelvapen att bry sig om själva jakten, snarare än jaktutbytet (köttet), samt att bågjägare i större utsträckning än andra jägare har tagit sin jaktmetod på allvar och aktivt har övat upp sina färdigheter. 6 Det är svårt att dra generella slutsatser om djurs subjektiva upplevelser och stresspåverkan av jakt och skott, eftersom de i hög grad beror på individuella faktorer. Jaktformer som innebär att djuret inte upptäcker en ensam jägare förrän i eller strax före skottögonblicket är sannolikt mindre stressande än jaktformer som innebär att djuret under längre tid drivs eller ställs, eller där djuret upplever närvaro av hundar eller ett stort antal personer. Från djurvälfärdssynpunkt är sannolikt tiden från skottögonblicket till medvetslöshet viktigare än tiden till död. Såväl tiden till medvetandeförlust som till död beror på vilka organ och vävnader som skadas och i synnerhet hur snabbt blod förloras så att syrebrist uppstår i hjärnan. Stor skada på stora artärer leder till en snabb förblödning och ett djur i rörelse förblöder sannolikt snabbare än ett stillastående. Det saknas kunskap för att avgöra om det finns en avgörande skillnad i tid och grad av stress från träff till medvetslöshet mellan pil och kula eller hagel. Forskningsunderlaget är begränsat eller obefintligt vad gäller de flesta arter av vilt under rådjurs storlek, inklusive vattenlevande däggdjur och fåglar, under naturliga förhållanden. Orörlighet efter ett välplacerat skott används ofta som tecken på död, men säger inte mycket om vare sig medvetandegraden eller hjärtaktiviteten. Vid jakt med pil och båge är bröstkorgen, i hjärtlungregionen, det eftersträvade träffområdet. Skadeförloppet efter pilskott i huvudet eller halsen på större vilt är inte närmare känt, men beror sannolikt på var och från vilken vinkel pilen träffar, samt om den vid träff i huvudet har förmåga att penetrera kraniet. Skott i andra kroppsdelar, såsom buken eller extremiteterna, orsakar normalt inte förblödning, men däremot skador som kan medföra lidande för djuret och vara livshotande på längre sikt. Smärta kan orsakas av olika stimuli och de flesta vävnader har smärtreceptorer. Inte allt trauma ger omedelbart upphov till smärta men vid djupa skador, såsom djupa skärsår eller hugg upplever en majoritet av människor en omedelbar smärta. Vid t.ex. skadeskjutning kan smärta orsakas av ökat tryck i området på grund av blödningar, ödem och inflammation. I situationer där djuret är skadeskjutet och ett andraskott behövs för att fälla djuret kan användning av pil och båge försvåras om djuret rör sig snabbt eller avlägsnar sig från skottplatsen, vilket riskerar att leda till ökat lidande hos djuret. Underlaget för att bedöma risken för skadeskjutning med olika vapen och hos olika djurslag är dock otillräckligt. Olika viltarter har olika anatomiska, fysiologiska och mentala förutsättningar, vilket tar sig uttryck i skiftande sinnesförmågor och beteenderepertoarer, och de lever i olika ekologiska sammanhang. Därför varierar förutsättningarna vid jakt kraftigt mellan djurslagen. Forskning talar för att stora djur rör sig längre än små djur efter att ha blivit skjutna. Emellertid är forskningen om jakt på djur som är mindre än rådjur mycket begränsad. Det är svårt att generalisera en subjektiv upplevelse som lidande. Flera tolkningar av begreppet onödigt lidande är dessutom möjliga, baserade på t.ex. lidandets intensitet och varaktighet, avsikterna bakom det handlande som orsakar lidandet samt uppfyllandet av människors och djurs intressen. Det är inte möjligt att med enbart naturvetenskapliga metoder avgöra vad som i jaktsammanhang kan betraktas som onödigt lidande. Fullständiga riskbedömningar av djurvälfärd vid jakt saknas. I jämförelse med jakt med kul- eller hagelvapen medför bågjakt djurvälfärdsrisker med avseende på framför allt tiden från skott till medvetslöshet och skadeskjutning. Bristen på vetenskapligt 7 underlag, inte minst vad gäller småvilt, innebär indirekt också en djurvälfärdsrisk. Bågjakt kan samtidigt eventuellt medföra bättre förutsättningar för avläkning efter skadeskjutning om djuret inte återfinns. En samlad riskbedömning av djurvälfärden vid jakt med pil och båge behöver ta hänsyn till alla tänkbara risker respektive tänkbara fördelar och väga dem mot motsvarande risker respektive fördelar med kul- eller hagelvapen. Fara för människor och egendom i samband med jakt kan förutom olycksfall även antas omfatta störningsmoment i landskapet där jakt bedrivs, t.ex. oljud, människors oro och konkurrerande markanvändning. I Sverige skadas årligen c:a 500 människor i samband med jakt och av dem får i genomsnitt två personer så allvarliga skador att de dör. Cirka 12 % av de dödliga jaktolyckorna drabbar människor som inte deltagit i jakten. De vanligaste skadorna vid jakt med kul- eller hagelvapen är skär- och klämskador, frakturer från fall, hundbett och hörselskador. Av dessa bör risken för hörselskada och hundbett minska vid bågjakt. Det korta skjutavståndet och en minimal risk för rikoschetter bör också minska risken för olyckor med dödlig utgång vid jakt med pil och båge. Jakt med pil och båge är tyst och anses därför inte vara störande för omgivningen, men allmänheten kan uppleva jaktens smygande karaktär som skrämmande. Den låga ljudnivån kan möjligen även öka risken för tjuvjakt. Jakt med pil och båge kan under vissa förhållanden vara ett fungerande verktyg för att förvalta viltstammar, men det behövs mer tid för att minska en viltpopulation med pil och båge än med kulvapen. Det är oklart om jakt med pil och båge skulle öka möjligheterna till god viltförvaltning under svenska förhållanden. Jakt med pil och båge kan anses vara mer miljövänlig än jakt med kul- eller hagelvapen, eftersom pilen inte innehåller bly eller andra giftiga ämnen. I vilken grad införande av jakt med pil och båge skulle kunna påverka den totala mängden bly som hamnar i naturen är dock oklart, eftersom det beror på i vilken grad pil och båge vid ett eventuellt införande av sådan jakt skulle ersätta k
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| 8. |
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| 9. |
- Blomberg, Oscar, et al.
(författare)
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Adaptation of a guided low-intensity behavioral activation intervention for people with dementia in Sweden : a qualitative study exploring the needs and preferences of key stakeholders
- 2024
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Ingår i: BMC Geriatrics. - : Springer. - 1471-2318. ; 24:113
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundDespite depression being prevalent in people with dementia, contributing to negative health outcomes and placing increased burden on individuals and family members, access to psychological interventions is limited. A potential solution is guided low-intensity behavioral activation, supported by informal caregivers and guided by healthcare professionals. However, it is necessary to adapt interventions to meet the needs and preferences of key stakeholders to enhance acceptability and relevance. Study objectives were to: (1) explore needs and preferences concerning the content and delivery model of the guided low-intensity behavioral activation intervention; and (2) adapt the intervention to ensure cultural appropriateness, relevancy, and acceptability to people with dementia and their caregivers in Sweden.MethodsSemi-structured interviews and focus group discussions were conducted with key stakeholders, including healthcare professionals (n = 18), community stakeholders (n = 7), people with dementia (n = 8), and informal caregivers (n = 19). A draft of the written low-intensity behavioral activation intervention and a description of the proposed intervention delivery model were provided to participants. Open-ended questions explored the perceived relevance of the intervention, alongside needs and preferences concerning content and delivery. A manifest content analysis approach was adopted.ResultsContent analysis resulted in three categories: Content, Delivery procedures, and Illness trajectory. Results highlighted a need to consider the intervention Content via increased cultural adaptation to the Swedish context, and increasing the inclusiveness of intervention content. Delivery procedures were identified as needing to be flexible given the unpredictable nature of caring for people with dementia, with the provision of additional guidance to informal caregivers supporting the intervention. Illness trajectory was viewed as essential to consider, with the intervention regarded as suitable for those early in the dementia trajectory, alongside a need to reduce workbook text to minimize burden given dementia symptomology.ConclusionsThe intervention and proposed delivery model were generally well received by all stakeholders. We were able to identify key adaptations to enhance cultural appropriateness, relevancy, and acceptability for a currently neglected population. Results will inform a feasibility study to explore the feasibility and acceptability of the intervention and study procedures to inform the design of a future superiority randomized controlled trial.
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| 10. |
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| 11. |
- Bobbio, Emanuele, et al.
(författare)
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Incidental cardiac findings on somatostatin receptor PET/CT: What do they indicate and are they of clinical relevance?
- 2022
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Ingår i: Journal of nuclear cardiology : official publication of the American Society of Nuclear Cardiology. - : Springer Science and Business Media LLC. - 1532-6551. ; 29:3, s. 1159-1165
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Tidskriftsartikel (refereegranskat)abstract
- We present the case of a 47-year-old man with a history of recurrent episodes of frontal headache, fever, and chest discomfort as well as longstanding, difficult to treat arterial hypertension. Clinical work-up revealed the unexpected finding of an underlying pheochromocytoma as well as recent "silent" myocardial infarction. Our case highlights the importance of paying attention to incidental cardiac findings on somatostatin receptor positron emission tomography/computed tomography, as routinely performed in patients with clinically suspected neuroendocrine tumors. These incidental cardiac findings cannot only indicate a primary or secondary (metastatic) neuroendocrine tumor, but also areas of myocardial inflammation, as somatostatin receptors cannot only be found on the majority of neuroendocrine tumors, but also among other tissues on the surface of activated macrophages and lymphocytes. The detection of myocardial inflammation is of clinical importance and its underlying etiology should be evaluated to prompt eventual necessary treatment, as it is a potential driving force for cardiac remodeling and poor prognosis.
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| 12. |
- Bockgård, Gustav, docent, et al.
(författare)
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Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings : Insights From Women With Lived Experience of Homelessness
- 2024
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Ingår i: Qualitative Health Research. - : Sage Publications. - 1049-7323 .- 1552-7557. ; 34:7, s. 676-690
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Tidskriftsartikel (refereegranskat)abstract
- Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during interviews about health with 13 women experiencing homelessness. Conversation analysis revealed clear patterns regarding the use of the photos during the interviews. The photos were referred to 118 times over the total interview length, 6 hours and 23 minutes, with the interviewer making 62% of the referrals and the women accounting for 38%. Fifty-nine percent of the referrals occurred within the first 5 minutes of the interviews. The women used the photos to trigger associations and emotions, to describe photo content, or in a minor role during the interview. Interpretations from an advisory board of six women with lived experiences of homelessness suggested that the photos did not engage participants as intended, highlighting the importance of considering participants’ perspectives when designing photo-elicitation methods. The feedback also provided valuable insights into interview locations and incentives in research that may have influenced the women’s willingness to use the photos. This study emphasizes the importance of understanding the complexity of choosing researcher-generated photos in interviews with underserved, hard-to-reach populations.
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| 13. |
- Damm, Anna Piil, et al.
(författare)
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Duration of Mentoring Relationship Predicts Child Well-Being : Evidence from a Danish Community-Based Mentoring Program
- 2022
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Ingår i: International Journal of Environmental Research and Public Health. - : MDPI. - 1661-7827 .- 1660-4601. ; 19:5
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Tidskriftsartikel (refereegranskat)abstract
- While a substantial body of literature suggests that lasting community mentoring relationships can have a range of positive effects on youths, little is known about these effects in the Nordic welfare context, where community mentees may have lower risk profiles compared to many previous samples. This study explores how the duration (length) of child mentoring relationships predicts parental perceptions of child well-being among 197 children served by Denmark's most extensive community-based youth mentoring program. We find that children who have had a mentor for at least one year are perceived to have significantly higher well-being. In contrast, we find no significant differences in well-being between children who had mentors for less than one year and children on a waiting list. Previous research, conducted in primarily North American contexts, finds that longer mentoring relationships substantially improve school behavior and reduce risk taking. Our results add to the literature by indicating that a minimum mentoring relationship duration of one year appears to be similarly important in promoting well-being for youths involved in community-based mentoring programs in a Nordic welfare context.
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| 14. |
- Essén, Anna, et al.
(författare)
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Adjusting platform business models : Digital health platforms in regulated industries
- 2022
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Ingår i: Management of Innovation and Technology. - : Institute for Management of Innovation and Technology (IMIT). - 2001-208X. ; :3, s. 3-4
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Tidskriftsartikel (populärvet., debatt m.m.)abstract
- Digital platforms are spreading very fast and new opportunities are emerging in the realm of digital services. But, can any firm easily succeed with a new platform business model? Well, reality seems to be quite complex. Focusing on digital health platforms as examples of new business models in highly regulated sectors, we outline the challenges that platforms should prepare for.
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| 15. |
- Essén, Anna, et al.
(författare)
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Data sustainability: Data governance in data infrastructures across technological and human generations
- 2023
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Ingår i: Information and Organization. - : Elsevier Ltd. - 1873-7919 .- 1471-7727. ; 33:1
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Tidskriftsartikel (refereegranskat)abstract
- The paper highlights the importance of data sustainability in the data infrastructures aimed at long-term knowledge discoveries. Data sustainability refers to data's capacity to endure across technological and human generations, and it problematizes the data governance literature from a temporal perspective. Existing work has already moved the literature from the organizational setting to more complex interorganizational settings, highlighting discrepancies between normative data governance models and organizational practices. We broaden this literature temporally by examining and outlining research directions for data sustainability from different meta-theoretical perspectives – evolutionary, relational, and durational. Data sustainability across technological and human generations navigates complementary and competing temporal demands: Data need to transition across socio-technical regimes over time, yet be embedded in social and material networks to be meaningful; historical and present data also must remain available and accessible in near and distant futures, for going back in time and seeing new data linkages and combinations. We argue that data sustainability is critical in ensuring progression in social and environmental sustainability. The paper contributes both to data governance and sustainability literatures. •Data sustainability refers to data's capacity to endure across technological and human generations.•Recent advances in digital technologies have created new opportunities but also competing challenges in terms of data sustainability.•Data may be locked in old socio-technical regimes and unable to transition to next socio-technical regimes; data may fail to translate within and get embedded into social and material networks; without continuing data investments, past data become inaccessible and lose meaning for the future.•Studies can advance data governance by addressing data sustainability challenges.
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| 16. |
- Essen, Anna, et al.
(författare)
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Entering non-platformized sectors: The Co-evolution of legitimacy debates and platform business models in digital health care
- 2023
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Ingår i: Technovation. - : Elsevier. - 0166-4972 .- 1879-2383. ; 121
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Tidskriftsartikel (refereegranskat)abstract
- Digital platforms have deeply transformed a wide variety of sectors. However, new platform business models often face critical legitimacy challenges. Consequently, new entrants must continuously design and redesign their business model components, particularly when entering non-platformized sectors that are highly regulated. We draw on a longitudinal case study of the emergence of digital healthcare platforms in Sweden between 2013 and 2020. The analysis unravels a dynamic process of redesigning platform business models and their constituent components in response to legitimacy debates, suggesting that permission to operate can be fragile and subject to continuous negotiation. Our findings contribute to current insights into platforms, business models, and digital innovation in complex institutional contexts. Furthermore, our work carries implications for managers and policy makers in the digital health area.
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| 17. |
- Essén, Anna, et al.
(författare)
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Explaining Ignoring – Working with Information that Nobody Uses
- 2022
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Ingår i: Organization Studies. - : SAGE Publications. - 0170-8406 .- 1741-3044. ; 43:5, s. 725-747
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Tidskriftsartikel (refereegranskat)abstract
- Research has demonstrated how ignorance is made, manipulated and called upon; how it is the result of strategies, activities and structures. This article extends the literature on ignorance by exploring actors’ own explanations of their self-inflicted ignorance following acts of ignoring. By means of a case analysis, we explore how actors explain and justify ignoring data they themselves produced. We provide a multifaceted model of how ignoring actors’ own rationales, facilitated by contextual conditions, enables persistent acts of ignoring the content and dysfunction of collectively upheld systems. We contribute to the understanding of ignorance by demonstrating how self-inflicted ignorance is made possible by the combination of ignoring rationales and their facilitators, which configures buffers against knowledge-seeking efforts.
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| 18. |
- Essén, Anna, et al.
(författare)
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Health app policy: international comparison of nine countries' approaches
- 2022
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Ingår i: npj Digital Medicine. - : Springer Nature. - 2398-6352 .- 2398-6352. ; 5:1
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Tidskriftsartikel (refereegranskat)abstract
- An abundant and growing supply of digital health applications (apps) exists in the commercial tech-sector, which can be bewildering for clinicians, patients, and payers. A growing challenge for the health care system is therefore to facilitate the identification of safe and effective apps for health care practitioners and patients to generate the most health benefit as well as guide payer coverage decisions. Nearly all developed countries are attempting to define policy frameworks to improve decision-making, patient care, and health outcomes in this context. This study compares the national policy approaches currently in development/use for health apps in nine countries. We used secondary data, combined with a detailed review of policy and regulatory documents, and interviews with key individuals and experts in the field of digital health policy to collect data about implemented and planned policies and initiatives. We found that most approaches aim for centralized pipelines for health app approvals, although some countries are adding decentralized elements. While the countries studied are taking diverse paths, there is nevertheless broad, international convergence in terms of requirements in the areas of transparency, health content, interoperability, and privacy and security. The sheer number of apps on the market in most countries represents a challenge for clinicians and patients. Our analyses of the relevant policies identified challenges in areas such as reimbursement, safety, and privacy and suggest that more regulatory work is needed in the areas of operationalization, implementation and international transferability of approvals. Cross-national efforts are needed around regulation and for countries to realize the benefits of these technologies.
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| 19. |
- Frishammar, Johan, et al.
(författare)
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Digital health platforms for the elderly? Key adoption and usage barriers and ways to address them
- 2023
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Ingår i: Technological forecasting & social change. - : Elsevier. - 0040-1625 .- 1873-5509. ; 189
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Tidskriftsartikel (refereegranskat)abstract
- Digital healthcare platforms (DHPs) represent a relatively new phenomenon that could provide a valuable complement to physical primary care – for example, by reducing costs, improving access to healthcare, and allowing patient monitoring. However, such platforms are mainly used today by the younger generations, which creates a “digital divide” between the younger and the elderly. This article aims to identify: i) the perceived key barriers that inhibit adoption and usage of DHPs by the elderly, and ii) what DHP providers can do to facilitate increased adoption and usage by the elderly. The article draws on qualitative interviews with elderly and complementary process data from a major Swedish DHP. We find that the elderly perceives two key barriers to initial adoption of DHPs: i) negative attitudes and technology anxiety and ii) one key barrier affecting both adoption and usage – lack of trust. The analysis also identifies multiple development suggestions for DHP improvement to better accommodate the needs of the elderly, including suggestions for application development and tailored education activities. We provide an integrated framework outlining the key barriers perceived and ways to address them. In so doing, we contribute to the literature on mHealth and to the literature on platforms in healthcare.
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| 20. |
- Frishammar, Johan, et al.
(författare)
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Older Individuals and Digital Healthcare Platforms: Usage Motivations and the Impact of Age on Postadoption Usage Patterns
- 2023
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Ingår i: IEEE transactions on engineering management. - : Institute of Electrical and Electronics Engineers (IEEE). - 0018-9391 .- 1558-0040. ; 70:8, s. 2903-2919
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Tidskriftsartikel (refereegranskat)abstract
- Digital healthcare platforms have enabled patients to receive healthcare in ways that were impossible previously—for example, by providing a “safer” way to meet, as underscored by the Covid-19 pandemic. This article investigates whether older and younger primary care users display behavioral differences on digital healthcare platforms. The article adopts a mixed-method approach in which one-way ANOVA analysis on a sample of 152 000 patient journeys was combined with qualitative interview data. The findings highlight significant differences in usage between elderly and younger patients. The elderly spends more time during use—for example, during anamnesis, onboarding, and in queues. We also outline how the key antecedent factors that are most central to platform usage, such as perceived usefulness, perceived ease of use, digital maturity, and trust, play out in the elderly user context. The study contributes to the nascent literature on digital healthcare platforms and the postadoption usage of information and communication technologies by the elderly. The article also outlines research implications in the area of DHPs and mHealth for elderly users, and it discusses the practical implications for both platform owners and healthcare professionals, where platform design and information management are particularly important for elderly users.
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| 21. |
- Frishammar, Johan, et al.
(författare)
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Older Individuals and Digital Healthcare Platforms: Usage Motivations and the Impact of Age on Postadoption Usage Patterns
- 2023
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Ingår i: IEEE Transactions on Engineering Management. - : Institute of Electrical and Electronics Engineers Inc.. - 1558-0040 .- 0018-9391. ; 70:8, s. 2903-2919
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Tidskriftsartikel (refereegranskat)abstract
- Digital healthcare platforms have enabled patients to receive healthcare in ways that were impossible previously-for example, by providing a "safer" way to meet, as underscored by the Covid-19 pandemic. This article investigates whether older and younger primary care users display behavioral differences on digital healthcare platforms. The article adopts a mixed-method approach in which one-way ANOVA analysis on a sample of 152 000 patient journeys was combined with qualitative interview data. The findings highlight significant differences in usage between elderly and younger patients. The elderly spends more time during use-for example, during anamnesis, onboarding, and in queues. We also outline how the key antecedent factors that are most central to platform usage, such as perceived usefulness, perceived ease of use, digital maturity, and trust, play out in the elderly user context. The study contributes to the nascent literature on digital healthcare platforms and the postadoption usage of information and communication technologies by the elderly. The article also outlines research implications in the area of DHPs and mHealth for elderly users, and it discusses the practical implications for both platform owners and healthcare professionals, where platform design and information management are particularly important for elderly users.
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| 22. |
- Giritli Nygren, Katarina, 1971-, et al.
(författare)
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20 years of studies of risk and intersectionality
- 2022
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Ingår i: Book of Abstracts. - 9788660224400 ; , s. 62-
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Konferensbidrag (refereegranskat)abstract
- This paper maps a current trend in risk research, namely intersectional analysis of risk. In the last decades the concept of risk has spread into almost all kinds of societal domains. The original focus on technical and environmental risks has transferred to areas such as health, crime, regulation, social inequality, public and social policy, and global risk as well as the management of risks in everyday life and intimate relationships. Scientific advances and the global media have together created a long string of alarms about risks of different magnitude: from more recent the Covid 19 pandemic, to terrorist threats. The distribution and impact of these risks are not equal, instead they tend to follow and reinforce already existing structural inequalities. In the wake of this development we have seen a growing body of feminist and intersectional approaches in the study of risk. The two perspectives informs each other: On the one hand, the intersectional perspective advance risk research by clarifying how new complexities in the reproduction of social inequalities brought about by globalization and the intersections between social class, gender, ethnicity, and other social categorisations, are connected to the production of risks. Risk research, on the other hand, inform intersectional analysis by clarifying the mechanisms in risk governance that are reproducing old inequalities (i.e., class and gender) and producing new inequalities. Through a systematic literature review, this paper aims to map insights and viewpoints from scholars regarding intersectional analyses of risks associated with inequality on an individual, group or community level, including analyses of individual perception and behaviour, policy, mass media and discourses.
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| 23. |
- Hanberger, Adam, et al.
(författare)
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Attitudes towards comparison of male and female genital cutting in a Swedish Somali population
- 2021
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Ingår i: Acta Obstetricia et Gynecologica Scandinavica. - : John Wiley & Sons. - 0001-6349 .- 1600-0412. ; 100:4, s. 604-613
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Tidskriftsartikel (refereegranskat)abstract
- Introduction In Sweden, the law treats female genital cutting (FGC) differently from male genital cutting (MGC). However, the comparability of the medical, ethical, and legal aspects of genital cutting of girls and boys are increasingly discussed by scholars, although little is known about how practicing communities view these aspects. This study aimed to explore attitudes towards comparison of genital cutting of girls and boys among Swedish Somalis, and to investigate factors associated with considering the two practices to be comparable. Material and methods In a cross-sectional questionnaire with 648 Swedish Somali men and women from four Swedish cities, descriptive statistics and logistic regression were used for the analysis. Results Among the Swedish Somalis, 10% considered FGC and MGC to be comparable practices. A majority (98%) of the participants thought FGC could cause long-term health complications, but only 1% considered the physical health disadvantage of MGC would outweigh the physical health benefits. FGC was perceived to be a violation of children's rights by 60%, whereas this proportion for MGC was 3%. Individuals who had a dominant bridging social capital and those who expressed that performing FGC follows religion were more likely to think that FGC and MGC were comparable practices. Conclusions The increased global attention and emphasis on the comparability of genital cutting of boys and girls was not reflected in this study among Swedish Somalis. Rather, attitudes reflected the common description of the two practices in global public health campaigns, portraying FGC as a harmful practice violating children's rights, while describing MGC as a public health measure. Social interactions and separation of FGC from religion could explain why FGC and MGC were not considered comparable.
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| 24. |
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| 25. |
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| 26. |
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| 27. |
- Igelström, Helena, 1976-, et al.
(författare)
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Long-term effects on depression and anxiety of an internet-based stepped care intervention for patients with cancer and symptoms of depression and anxiety : The U-CARE AdultCan trial
- 2023
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Ingår i: Internet Interventions. - : Elsevier. - 2214-7829. ; 32
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Cancer is a serious disease that commonly causes significant psychological distress. The internet-based intervention (iCAN-DO), utilizing a stepped care approach for the treatment of anxiety and depression in individuals with cancer, has been shown to have favorable results for symptoms of depression at the primary endpoint, 10 months after randomization compared to standard care (SC). The aim of the present study was to evaluate the long-term effects of the intervention 18 and 24 months after randomization.METHODS: Patients with breast, colorectal, or prostate cancer and a score > 7 on either of the Hospital Anxiety and Depression Scale (HADS) subscales (n = 245) were recruited to the study in conjunction with a regular hospital visit. They were randomized to access to the stepwise iCAN-DO intervention for 24 months or to SC. Step 1 of the intervention comprised psycho-educative online material. In Step 2, internet-based cognitive-behavioral therapy with individual online support from a therapist was added. Step 2 was offered to those who reported persistent anxiety or depression symptoms (>7 on HADS), also at 1, 4, and/or 7 months after randomization. Missing data were imputed using the last rank carried forward method and used for the main analyses according to the intention-to-treat approach. Effects sizes (Cohen's d), and minimally clinically important difference (MCID) were calculated. Linear mixed models were used to analyze intervention effects over time.RESULTS: Symptoms of depression decreased significantly (p < 0.05) in the iCAN-DO group compared with the SC group from baseline to 18 months (d = 0.29), but not to 24 months (d = 0.27). Even though the average iCAN-DO group participant surpassed a MCID in symptoms of anxiety (>2 p) at both long-term follow-ups, the differences did not reach statistical significance, either at 18 months (p = 0.10) or 24 months (p = 0.09). Positive effects of iCAN-DO compared with the SC were also shown for some secondary HRQoL-outcomes; social functioning at 18 months (p = 0.02) and 24 months (p = 0.001), and sleep problems at 24 months (p = 0.01).CONCLUSION: A stepped-care internet-based intervention that has previously shown positive results for symptoms of depression at 10 months did show similar positive long-term effects also at 18 months. For symptoms of anxiety, no effect could be shown. The internet may provide an effective format for interventions to reduce symptoms of depression after cancer at patients' own choice of time, regardless of distance to a psycho-oncology clinic.
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| 28. |
- Johansson, Birgitta, 1959-, et al.
(författare)
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The effect of internet-administered support (carer eSupport) on preparedness for caregiving in informal caregivers of patients with head and neck cancer compared with support as usual: a study protocol for a randomized controlled trial.
- 2024
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Ingår i: BMC cancer. - 1471-2407. ; 24:1
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Tidskriftsartikel (refereegranskat)abstract
- Informal caregivers (ICs) of patients with cancer provide essential and mainly uncompensated care. A self-perceived preparedness to care for the patient is associated with a lower caregiver burden, described as the extent to which caregiving is perceived as having adverse effects on IC functioning and well-being. ICs' well-being is associated with patient-perceived quality of care, suggesting that interventions to optimize ICs' health are essential in order to improve patient care. Head and neck cancer (HNC) is the seventh most common malignant disease in the world. The disease and its treatment have a significant negative impact on the patient's health and quality of life. Symptoms usually interfere with swallowing, food and fluid intake, breathing, speaking, and communication. ICs frequently manage patients' symptoms and side effects, especially problems related to nutrition and oral pain, without being properly prepared. Carer eSupport is an Internet-administered intervention, based on focus group discussions with ICs, developed in collaboration with ICs and healthcare professionals, tested for feasibility, and deemed feasible. This study protocol outlines the methods of investigating the effects of Carer eSupport plus support as usual (SAU) on self-reported preparedness for caregiving, caregiver burden, and well-being in the ICs of patients with HNC, compared with ICs receiving SAU only.In this randomized controlled trial, 110 ICs of patients with HNC, undergoing radiotherapy combined with surgery and/or medical oncological treatment, will be randomized (1:1) to Carer eSupport plus SAU or SAU only. Data will be collected at baseline (before randomization), post-intervention (after 18 weeks), and 3 months after post-intervention. The primary outcome is self-reported preparedness for caregiving. Secondary outcomes are self-reported caregiver burden, anxiety, depression, and health-related quality of life. The effect of Carer eSupport plus SAU on preparedness for caregiving and secondary outcomes, compared with SAU only, will be evaluated by intention to treat analyses using linear regression models, mixed-model regression, or analysis of covariance.If proven effective, Carer eSupport has the potential to significantly improve ICs' preparedness for caregiving and their wellbeing, thereby improving patient-perceived quality of care and patient wellbeing.ClinicalTrials.gov; NCT06307418, registered 12.03.2024 (https://clinicaltrials.gov/search? term=NCT06307418).
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| 29. |
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| 30. |
- Svedin, Frida, Doktorand, et al.
(författare)
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Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA) : a study protocol using codesign and participatory action research.
- 2021
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Ingår i: BMJ Open. - : BMJ. - 2044-6055. ; 11:7
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Tidskriftsartikel (refereegranskat)abstract
- INTRODUCTION: Dementia is a worldwide health concern with incident rates continuing to increase. While depression prevalence is high in people with dementia and psychological interventions such as cognitive behavioural therapy (CBT) are effective, access to psychological interventions remains limited. Reliance on traditional CBT for people with dementia and depression may present difficulties given it is a complex psychological approach, costly to deliver, and professional training time is lengthy. An alternative approach is behavioural activation (BA), a simpler psychological intervention for depression. The present study seeks to work with people with dementia, informal caregivers, community stakeholders, and healthcare professionals, to adapt a guided low-intensity BA intervention for people with dementia and depression, while maximising implementation potential within the Swedish healthcare context.METHODS AND ANALYSIS: A mixed methods study using codesign, principles from participatory action research (PAR) and normalisation process theory to facilitate the cultural relevance, appropriateness and implementation potential of the intervention. The study will consist of four iterative PAR phases, using focus groups with healthcare professionals and community stakeholders, and semi-structured interviews with people with dementia and informal caregivers. A content analysis approach will be adopted to analyse the transcribed focus groups and semi-structured interviews recordings.ETHICS AND DISSEMINATION: The study will be conducted in accordance with the Declaration of Helsinki and data handled according to General Data Protection Regulation. Written informed consent will be obtained from all study participants. In accordance with the Swedish Health and Medical Services Act, capacity to consent will be examined by a member of the research team. Ethical approval has been obtained from the Swedish Ethical Review Authority (Dnr: 2020-05542 and Dnr: 2021-00925). Findings will be published in an open access peer-reviewed journal, presented at academic conferences, and disseminated among lay and healthcare professional audiences.
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| 31. |
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| 32. |
- Svedin, Frida, Doktorand, et al.
(författare)
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Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA)
- 2021
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Konferensbidrag (refereegranskat)abstract
- Global health and social care policy highlights the need to support people to ‘live well’ with dementia. This is of particular importance given the high burden placed on individuals with dementia, informal caregivers, and society. Depression is highly prevalent in people with dementia, stressing the importance of developing interventions to support people with both dementia and depression. Despite evidence-based psychological interventions (e.g., cognitive behavioral therapy (CBT)) being effective, access is limited. To overcome this psychological ‘treatment gap’, there have been global efforts made via the provision of low-intensity CBT (LI-CBT). Behavioural activation (BA), an example of a LI-CBT approach shown to be as effective as CBT in the treatment of depression. Research informed by the Medical Research Council complex interventions framework has been conducted in the United Kingdom to develop and test a guided low-intensity BA intervention adapted for people with dementia. An innovative aspect of the intervention is support to the person with dementia is provided by an informal caregiver, in turn the informal caregiver receives guidance from a healthcare professional. Initial results indicated the intervention was acceptable and feasible, and may therefore represent a solution for the Swedish context. However, before implementing in Sweden, there is a need for contextual adaptation. Using a mixed-methods study design, informed by principles from participatory action research, this study involved people with dementia, informal caregivers, healthcare professionals and community organisations to co-design and adapt the guided low-intensity BA intervention for the Swedish context. Through a series of iterative phases, we conduct interviews and focus groups with participants to gain feedback on the BA intervention to inform adaptations to improve the acceptability, relevancy, and feasibility of the intervention. After each phase we amend the intervention according to feedback. During the presentation the preliminary results and research progress will be presented.
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| 33. |
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| 34. |
- Svedin, Frida, Doktorand, 1995-, et al.
(författare)
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Developing and adapting a guided low-intensity behavioral activation intervention targeting depression in people with dementia for the Swedish context (The INVOLVERA Study)
- 2022
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Konferensbidrag (refereegranskat)abstract
- Introduction: Dementia continues to increase worldwide, with numbers set to rise from 50 million in 2021 to 150 million by 2050. Global health and social care policies highlight a need to support people with dementia to ‘live well’. This is of particular importance given the high burden caused by dementia on individuals, informal caregivers, and society. Depression is highly prevalent in people with dementia. Whilst evidence-based psychological interventions (e.g. Cognitive Behavioral Therapy (CBT)) have been shown effective, access remains limited. To overcome this psychological ‘treatment gap’, global efforts have been made to increase access via provision of low-intensity CBT. Behavioral activation (BA), an example of an evidence-based low-intensity CBT approach, may represent a solution for people with dementia and depression in Sweden. Given the promise of BA, research was conducted in the United Kingdom to develop and examine feasibility of a low-intensity BA intervention tailored to people with dementia. Findings indicated the intervention feasible and acceptable to people with dementia and their informal caregivers. Given the promise of the intervention, development work has taken place in Sweden to maximise acceptability, relevancy, and feasibility in the Swedish context.Method: A mixed-methods study involving people with dementia, informal caregivers, healthcare professionals, and non-governmental organisations (NGOs) to co-design and adapt the intervention for the Swedish context. Through iterative phases, interviews and focus groups were conducted with all stakeholders to gain feedback on the intervention. Results informed adaptations to improve intervention acceptability, relevancy, and feasibility. Interviews and focus groups were analysed using framework content analysis according to Normalization Process Theory (NPT) constructs (Coherence, Cognitive Participation, Collective Action, Reflexive Monitoring). Alongside, a Public Involvement group was established to further inform the intervention design.Results: Preliminary results indicate facilitators include: (1) intervention has the potential to fill a large psychological treatment gap given lack of current support (Coherence); (2) objectives and potential benefits of intervention were understood and agreed by stakeholders (Coherence). Barriers include: (1) lack of involvement and engagement from politicians, decision-makers, and managers (Collective Action); (2) lack of appropriate workforce providing guidance to the intervention in Sweden (Collective Action); (3) NGOs not recognising their potential role in the intervention (Cognitive Participation); (4) lack of time and financial resources (Collective Action); (5) healthcare professionals and NGOs acting gatekeepers for informal caregivers accessing support (Cognitive Participation).Discussion: Psychological needs of people with dementia and depression are currently unmet by Swedish healthcare. The proposed intervention has potential to meet unmet psychological needs and global priorities to support people with dementia to ‘live well’. Given barriers to intervention implementation are common, NPT provides a useful framework for understanding potential barriers and facilitators to implementation from the intervention development phase. Understanding barriers and facilitators to implementation at the intervention development phase may enhance future implementation potential if intervention is shown effective.Conclusion: Results inform the development of a tailored intervention, optimised to improve maximise acceptability, relevancy, and feasibility for people with dementia and depression. A subsequent feasibility study will further examine the feasibility and acceptability of the intervention.
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| 35. |
- Svedin, Frida, Doktorand, 1995-, et al.
(författare)
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Development and co-design of a behavioral activation intervention targeting depression among people with dementia for the Swedish context
- 2023
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Konferensbidrag (refereegranskat)abstract
- Background: Approximately 40% of people with dementia experience depression. Whilst psychological interventions are effective for the treatment of depression in dementia, access remains low. A behavioural activation self-help intervention, with support to the person with dementia to use the intervention provided by an informal caregiver, who themselves receives guidance from an occupational therapist (or other trained healthcare professional), may represent a solution.Objective: To develop a behavioral activation intervention targeting depression among people with dementia for the Swedish context together with key stakeholders.Methods: Semi-structured interviews and focus groups were held with people with dementia (n=8), informal caregivers (n=19), healthcare professionals (n=18), and non-governmental organisations (n=7) and analysed using manifest content analysis. A Public Advisory Group, consisting of informal caregivers of people with dementia (n=4), worked alongside the research team to support the interpretation and sense-making of research findings and co-design of the intervention.Results: An overarching theme ‘Tailoring and flexibility’ resulted from interviews and focus groups. Stakeholders expressed a need to adapt intervention material to increase relevancy and representativeness by: (1) adding multiple case stories to illustrate different life situations, age groups, ethnic backgrounds, and to increase relevance to Swedish society and culture; (2) designing new illustrations, as proposed illustrations were perceived old-fashioned and reinforced ageing and dementia stereotypes; and (3) reducing text to minimize treatment burden. Stakeholders also expressed a need for flexibility concerning intervention delivery and expressed a need for choice concerning: (1) location of guidance sessions to enable face-to-face sessions to be delivered in a familiar, safe, and convenient environment (e.g., home or familiar community setting); (2) mode of guidance (e.g., face-to-face, telephone, online); and (3) amount of guidance (e.g., frequency and number of guidance sessions).Conclusions: Results informed the development of a tailored intervention, optimised to improve acceptability, feasibility, and relevancy for people with dementia and depression. A planned feasibility study will further examine feasibility and acceptability of the intervention.Public involvement: Our Public Advisory Group has worked closely together with the research team to support the interpretation and sense-making of research findings and co-design the intervention to increase acceptability and relevancy of the intervention.
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| 36. |
- Svedin, Frida, Doktorand, 1995-, et al.
(författare)
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Effectiveness, acceptability, and completeness and quality of intervention reporting of psychological interventions for people with dementia or mild cognitive impairment : protocol for a mixed-methods systematic review
- 2023
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Ingår i: BMJ Open. - : BMJ Publishing Group Ltd. - 2044-6055. ; 13:12
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Tidskriftsartikel (refereegranskat)abstract
- Introduction: Mental health difficulties such as anxiety and depression have negative impacts on psychological well-being and are common in people with dementia and mild cognitive impairment. However, access to psychological treatments is limited. This mixed-method systematic review will: (1) examine the effectiveness of psychological interventions to improve mental health and psychological well-being in people with dementia or mild cognitive impairment; (2) examine the effectiveness of these psychological interventions to improve mental health and psychological well-being in informal caregivers; (3) examine potential clinical and methodological moderators associated with effectiveness; (4) explore factors associated with the acceptability of psychological interventions from the perspective of key stakeholders; and (5) examine the completeness and quality of intervention reporting.Methods and analysis: Electronic databases (ASSIA, CENTRAL, CINAHL, EMBASE, PsycINFO and MEDLINE) will be systematically searched and supplemented with expert contact, reference and citation checking, and grey literature searches. If possible, we will conduct a meta-analysis to examine the overall effectiveness of psychological interventions to improve mental health and psychological well-being in people with dementia or mild cognitive impairment and their informal caregivers; and examine potential clinical and methodological moderators associated with effectiveness. We will conduct a deductive framework synthesis, informed by the theoretical framework of acceptability, to explore factors associated with the acceptability of psychological interventions from the perspective of key stakeholders. In accordance with Joanna Briggs Institute guidance, we will adopt a convergent segregated approach to data synthesis and integration of quantitative and qualitative findings. We will examine the completeness and quality of intervention reporting according to the Template for Intervention Description and Replication checklist and guide.Ethics and dissemination: No primary data will be collected, and therefore, ethical approval is not required. Results will be disseminated through a peer-reviewed publication, academic conferences, and plain language summaries.PROSPERO registration number: CRD42023400514.
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| 37. |
- Tast Lahti, Elina, et al.
(författare)
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One Health surveillance : A cross-sectoral detection, characterization, and notification of foodborne pathogens
- 2023
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Ingår i: Frontiers In Public Health. - : Frontiers Media S.A.. - 2296-2565. ; 11
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Tidskriftsartikel (refereegranskat)abstract
- IntroductionSeveral Proficiency Test (PT) or External Quality Assessment (EQA) schemes are currently available for assessing the ability of laboratories to detect and characterize enteropathogenic bacteria, but they are usually targeting one sector, covering either public health, food safety or animal health. In addition to sector-specific PTs/EQAs for detection, cross-sectoral panels would be useful for assessment of the capacity to detect and characterize foodborne pathogens in a One Health (OH) perspective and further improving food safety and interpretation of cross-sectoral surveillance data. The aims of the study were to assess the cross-sectoral capability of European public health, animal health and food safety laboratories to detect, characterize and notify findings of the foodborne pathogens Campylobacter spp., Salmonella spp. and Yersinia enterocolitica, and to develop recommendations for future cross-sectoral PTs and EQAs within OH. The PT/EQA scheme developed within this study consisted of a test panel of five samples, designed to represent a theoretical outbreak scenario. MethodsA total of 15 laboratories from animal health, public health and food safety sectors were enrolled in eight countries: Denmark, France, Italy, the Netherlands, Poland, Spain, Sweden, and the United Kingdom. The laboratories analyzed the samples according to the methods used in the laboratory and reported the target organisms at species level, and if applicable, serovar for Salmonella and bioserotype for Yersinia. ResultsAll 15 laboratories analyzed the samples for Salmonella, 13 for Campylobacter and 11 for Yersinia. Analytical errors were predominately false negative results. One sample (S. Stockholm and Y. enterocolitica O:3/BT4) with lower concentrations of target organisms was especially challenging, resulting in six out of seven false negative results. These findings were associated with laboratories using smaller sample sizes and not using enrichment methods. Detection of Salmonella was most commonly mandatory to notify within the three sectors in the eight countries participating in the pilot whereas findings of Campylobacter and Y. enterocolitica were notifiable from human samples, but less commonly from animal and food samples. DiscussionThe results of the pilot PT/EQA conducted in this study confirmed the possibility to apply a cross-sectoral approach for assessment of the joint OH capacity to detect and characterize foodborne pathogens.
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| 38. |
- Velin, Lotta, et al.
(författare)
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Studenter - kraften för en progressiv rörelse för global hälsa?
- 2021
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Ingår i: Socialmedicinsk Tidskrift. - : Karolinska institutet. - 0037-833X. ; 98:2, s. 244-251
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Engagemang i global hälsa innebär stora möjligheter för lärande och personlig utveckling för studenter. Utöver den personliga nyttan för studenten tror vi att studenter utgör en samlad kraft för den progressiva global hälsa-rörelsen. I denna text vill vi dela ett studentperspektiv utifrån erfarenheter från två studentföreningar - Svenska Läkaresällskapets Kandidat- och Underläkarförening samt IFMSA-Sweden. För att belysa frågan presenterar vi även resultaten från en enkät vi genomfört bland svenska läkarstudenter.
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