| 1. |
- Berg, Linda, 1961, et al.
(författare)
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Characterisation of Cancer Support and Rehabilitation Programmes: A Swedish Multiple Case Study
- 2014
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Ingår i: The open nursing journal. - : Bentham Science Publishers Ltd.. - 1874-4346. ; 8, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- Cancer support and rehabilitation are suggested to be an integral part of cancer care strategies. This study focuses on comparativeness of cancer support and rehabilitation programmes. The aim of this study was to analyse available cancer support and rehabilitation programmes in Sweden presented as complementary to cancer rehabilitation at cancer clinics. A multiple case study design was chosen in order to inquire the small number of existing supportive and rehabilitative cancer programmes. Based on the structures, processes and outcomes of the nine included programmes, three types of cancer support and rehabilitation programmes were identified: multimodal rehabilitation, comprehensive cancer support and art therapy. Cancer support and rehabilitation programmes offer a variety of activities and therapies which are highly valuable and relevant for people with cancer. The typology of cancer support and rehabilitation programmes and comparability between programmes need further inquiry.
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| 2. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(författare)
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Grief related to the experience of being the sibling of a child with cancer
- 2014
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Ingår i: Cancer Nursing. - 0162-220X .- 1538-9804. ; 37:5, s. E1-E7
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Tidskriftsartikel (refereegranskat)abstract
- Background: Few studies have described the well siblings' experience of grief when a brother or sister is treated for cancer. Knowing how sibling grief is expressed will guide clinician and family efforts to provide appropriate support.Objective: The aim of this study was to describe siblings' reports of grief related to the experience of having a brother or sister with cancer.Methods: A qualitative descriptive method was chosen based on open-ended interviews with 29 siblings aged 8 to 24 years. Qualitative content analysis was applied to the interview data.Results: Four categories of grief were identified: anticipatory grief after receiving information about the cancer diagnosis, grief and concern about the ill sibling's loss of a normal life, grief about being unimportant and forgotten in the family, and grief that continues after the sibling's death as a kind of bond.Conclusion: Despite variations in age and gender among participating siblings, their thoughts were similar. Grief was experienced differently from the time of the diagnosis onward, in the form of concerns related to the illness and situation of the ill sibling. Grief related to sibling bonds remained after death.Implication for practice: This study recommends offering siblings realistic information about their ill sibling and support for them in their situation from diagnosis and continuously thereafter. To meet the needs of well siblings, it is necessary to ask the siblings about their thoughts and discuss with them their emotions and worries.
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| 3. |
- Jenholt Nolbris, Margaretha, 1956
(författare)
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Kommunikation med barn som är anhöriga
- 2014
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Ingår i: Kommunikation med barn och unga i vården. - Stockholm : Liber. - 9789147114061 ; , s. 181-189
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Bokkapitel (övrigt vetenskapligt/konstnärligt)
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| 4. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(författare)
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Parents’ experience of their healthy children’s participation in e-health support when a child in the family has cancer.
- 2014
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Ingår i: SIOP 2014. 46th Congress of the International Society Paediatric Oncology. 22-24 Oct. 2014, Toronto, Kanada..
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- Purpose The aim of this study was to investigate parents’ experience of their healthy children’s participation in e-health support when a child in the family has cancer. Method A qualitative descriptive method was employed in this interview study. Parents from families with a child with cancer and healthy siblings were individually interviewed about their experience of their healthy child’s participation in a person-centered support intervention combining education, learning and reflection. The sick child was newly diagnosed with cancer and had been receiving treatment for a maximum of 1 month. The data were collected during spring 2012. Seven parents participated in the study, 5 mothers and 2 fathers in 5 families with 14 healthy children. The interviews were conducted more in the form of a conversation between the interviewer and parent. A qualitative content analysis was used to draw a systematic conclusion from the text and to extract its message. Result The result comprises 3 preliminary themes. The parents perceived that: 1) ‘The healthy child via his/her contact could think and form an opinion through asking questions and receiving answers’; 2) ‘The healthy child was acknowledged and involved during the intervention’; and 3) ‘The child became calmer and more hopeful’. The parents felt unburdened as professionals in healthcare provided their healthy children with professional information about the sick child’s cancer and also support in understanding and managing their own reactions. Conclusion These results allow for a better understanding of the parents’ experiences of the situation of their healthy children. The study also indicates that a person centred nursing intervention using e-health in order to help the families may ease family burden.
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| 5. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(författare)
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Siblings of children with cancer - Their experiences of participating in a person-centered support intervention combining education, learning and reflection : Pre- and post-intervention interviews.
- 2014
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Ingår i: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 18:3, s. 254-260
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To evaluate a person-centered intervention, directed to siblings with a brother or sister newly diagnosed with cancer that combines education, learning and reflection about cancer.METHOD: Qualitative methods with pre- and post-intervention semi-structured interviews were conducted. Fourteen siblings aged 9-22 years participated. A qualitative content analysis was carried out.RESULTS: The result comprises of five themes: 'grasping for knowledge about cancer, 'thinking for hours and having nightmares', 'experiencing physical pain', 'being emotional in several ways', 'waiting for a normal, good life despite the uncertain future". Pre-intervention; a low level of knowledge of cancer treatments and its side effects was revealed; siblings slept poorly, lay awake thinking and had nightmares about cancer; they felt pain in different parts of their body; they felt emotional and angry and were anxious as cancer is life-threatening; in the future the sick child will finished treatment and recovered. Post-intervention; siblings described having specific knowledge, felt more informed, and that it was easier to understand the sick child's situation; they slept better, but still had a lot on their minds regarding the sick child; most siblings said they no longer experienced pain, felt better and were happier but could still get sad; in the future the sick child would be healthy, not exactly as before, but almost.CONCLUSION: Person-centered intervention helps siblings to be more knowledgeable about the sick child's cancer, leading to a more realistic view about treatments and consequences. Further studies of person-centered interventions for siblings are important.
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| 6. |
- Ranerup, Agneta, 1960, et al.
(författare)
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Role of Theories in the Design of Web-Based person-Centered Support: A Critical Analysis
- 2014
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Ingår i: International Journal of Chronic Diseases. - New York, NY : Hindawi Limited. - 2356-6981 .- 2314-5749. ; 2014
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Tidskriftsartikel (refereegranskat)abstract
- Objective.The aim of this study was to provide a critical understanding of the role of theories and their compatibility with a person centered approach in the design and evaluation of web-based support for themanagement of chronic illness. Methods. Exploration of web-based support research projects focusing on four cases: (1) preschool children aged 4–6 with bladder dysfunction and urogenital malformation; (2) young adults aged 16–25 living with mental illness; (3) women with type 1 diabetes who are pregnant or in early motherhood; and (4) women who have undergone surgery for breast cancer. Data comprised interviews with research leaders and documented plans. Analysis was performed bymeans of a cross-case methodology. Results.The used theories concerned design, learning, health and well-being, or transition. All web support products had been developed using a participatory design (PD). Fundamental to the technology design and evaluation of outcomes were theories focusing on learning and on health and wellbeing. All theories were compatible with a person-centered approach. However, a notable exception was the relatively collective character of PD and Communities of Practice. Conclusion. Our results illustrate multifaceted ways for theories to be used in the design and evaluation of web-based support.
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| 7. |
- Simeonsdotter Svensson, Agneta, 1950, et al.
(författare)
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Experiences of SKYPE communication in education and research - data collection concerning young children with long-term illness
- 2014
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Ingår i: Early Child Development and Care. - : Informa UK Limited. - 0300-4430 .- 1476-8275. ; 184:7, s. 1017-1030
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Tidskriftsartikel (refereegranskat)abstract
- The purpose of this paper is to provide knowledge about communication using SKYPE with young children with chronic illness; advantages and barriers are investigated related to education and data issues collection. A qualitative exploratory research method was applied to interviews and notes via SKYPE between children and their web teachers. The data were analysed using phenomenography. The findings are based on five children aged between three and six years and presented in two main categories and seven subcategories. The advantages were: being able to be at home; well-known being and convenience for the child and the family; being to watch and observe each other; being supported by the family; the family were able to contribute to the development of the intervention; and attend ones possible regardless of geographical distance. Barriers were that the images could drop out of range of the computer camera and the SKYPE Internet connection works intermittently with audio or picture.
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| 8. |
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