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- Josefsson, Ulrika, 1965, et al.
(författare)
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Person-centred web-based support - development through a Swedish multi-case study.
- 2013
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Ingår i: BMC medical informatics and decision making. - : Springer Science and Business Media LLC. - 1472-6947. ; 13:1
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Tidskriftsartikel (refereegranskat)abstract
- Departing from the widespread use of the internet in modern society and the emerging use of web applications in healthcare this project captures persons' needs and expectations in order to develop highly usable web recourses. The purpose of this paper is to outline a multi-case research project focused on the development and evaluation of person-centred web-based support for people with long-term illness. To support the underlying idea to move beyond the illness, we approach the development of web support from the perspective of the emergent area of person-centred care. The project aims to contribute to the ongoing development of web-based supports in health care and to the emerging field of person-centred care.Methods/designThe research design uses a meta-analytical approach through its focus on synthesizing experiences from four Swedish regional and national cases of design and use of web-based support in long-term illness. The cases include children (bladder dysfunction and urogenital malformation), young adults (living close to persons with mental illness), and two different cases of adults (women with breast cancer and childbearing women with type 1 diabetes). All of the cases are ongoing, though in different stages of design, implementation, and analysis. This, we argue, will lead to a synthesis of results on a meta-level not yet described.
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- Ranerup, Agneta, 1960, et al.
(författare)
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Role of Theories in the Design of Web-Based person-Centered Support: A Critical Analysis
- 2014
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Ingår i: International Journal of Chronic Diseases. - New York, NY : Hindawi Limited. - 2356-6981 .- 2314-5749. ; 2014
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Tidskriftsartikel (refereegranskat)abstract
- Objective.The aim of this study was to provide a critical understanding of the role of theories and their compatibility with a person centered approach in the design and evaluation of web-based support for themanagement of chronic illness. Methods. Exploration of web-based support research projects focusing on four cases: (1) preschool children aged 4–6 with bladder dysfunction and urogenital malformation; (2) young adults aged 16–25 living with mental illness; (3) women with type 1 diabetes who are pregnant or in early motherhood; and (4) women who have undergone surgery for breast cancer. Data comprised interviews with research leaders and documented plans. Analysis was performed bymeans of a cross-case methodology. Results.The used theories concerned design, learning, health and well-being, or transition. All web support products had been developed using a participatory design (PD). Fundamental to the technology design and evaluation of outcomes were theories focusing on learning and on health and wellbeing. All theories were compatible with a person-centered approach. However, a notable exception was the relatively collective character of PD and Communities of Practice. Conclusion. Our results illustrate multifaceted ways for theories to be used in the design and evaluation of web-based support.
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- Skärsäter, Ingela, 1952, et al.
(författare)
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Web-based learning and support – a person-centred care approach in long-term illness.
- 2012
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Ingår i: Scandinavian Conference on Health Informatics.
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Konferensbidrag (övrigt vetenskapligt/konstnärligt)abstract
- The poster outlines a research project that aims to develop and evaluate a person-centred model of web-based learning and support for people with long-term illness. Departing from the widespread use of the internet in modern society and the emerg-ing use of web interventions in healthcare 1-3 the multi-case project captures persons’ needs and expectations in order to develop highly usable web recourses. To support the underly-ing idea to move beyond the illness, we approach the develop-ment of web support from the perspective of the emergent area of person-centred care (PCC).
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- Sparud-Lundin, Carina, 1964-, et al.
(författare)
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Use of participatory design in the development of person-centred web-based support for persons with long-term illness
- 2013
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Ingår i: European Journal for Person Centered Healthcare. - Buckingham, UK : University of Buckingham Press. - 2052-5648 .- 2052-5656. ; 1:2, s. 369-380
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Tidskriftsartikel (refereegranskat)abstract
- Background: E-health solutions are increasingly being developed to meet patients’ preferences and promote their participation in healthcare. Few studies have explored the participatory design process from the perspective of person-centeredness, including how it becomes materialized in technology. This paper explores how applied participatory approaches and the design of 4 web-based interventions directed towards long-term illness correspond to key areas of person-centeredness. Methods: Data were collected during 2009 to 2012, from 4 Swedish research projects. The analysis followed an inductive approach involving a step-wise cross-case analysis. The purpose was to create shared knowledge and understanding of each separate case and to generate relevant categories.Results: A number of question areas describe the dialogue with the case participants. Results of the dialogue are categorized into 4 support areas: psychological/emotional, personal, information and technical. Person-centeredness becomes visible in the participatory design process as the approach promotes the development of a holistic view of the person and the illness and a partnership between patients and carers. The use of communication technology exemplifies concrete materialization of person-centeredness in the design of the web-based supports. The purpose of the web supports and the shaping of the actual use of the functionalities are more abstract forms of materialization.Conclusions: Our results contribute to a central development area within eHealth involving increased opportunities for patients to contribute actively in real time, obtaining access to information and sometimes interacting with carers. However, neither participatory approaches nor technology for online information and communication, can guarantee person-centeredness in isolation.
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- Berg, Linda, 1961, et al.
(författare)
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Characterisation of Cancer Support and Rehabilitation Programmes: A Swedish Multiple Case Study
- 2014
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Ingår i: The open nursing journal. - : Bentham Science Publishers Ltd.. - 1874-4346. ; 8, s. 1-7
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Tidskriftsartikel (refereegranskat)abstract
- Cancer support and rehabilitation are suggested to be an integral part of cancer care strategies. This study focuses on comparativeness of cancer support and rehabilitation programmes. The aim of this study was to analyse available cancer support and rehabilitation programmes in Sweden presented as complementary to cancer rehabilitation at cancer clinics. A multiple case study design was chosen in order to inquire the small number of existing supportive and rehabilitative cancer programmes. Based on the structures, processes and outcomes of the nine included programmes, three types of cancer support and rehabilitation programmes were identified: multimodal rehabilitation, comprehensive cancer support and art therapy. Cancer support and rehabilitation programmes offer a variety of activities and therapies which are highly valuable and relevant for people with cancer. The typology of cancer support and rehabilitation programmes and comparability between programmes need further inquiry.
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- Browall, Maria, et al.
(författare)
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Patients' experience of important factors in the healthcare environment in oncology care
- 2013
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Ingår i: International Journal of Qualitative Studies on Health and Well-Being. - : Informa UK Limited. - 1748-2623 .- 1748-2631. ; 8
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Tidskriftsartikel (refereegranskat)abstract
- Background and objective. The aim of this study was to describe what factors of the healthcare environment are perceived as being important to patients in oncology care. Setting and participants. The sample was 11 patients with different cancer diagnoses in an oncology ward at a university hospital in west Sweden. Results. Analysis of the patients' perceptions of the environment indicated a complex entity comprising several aspects. These came together in a structure consisting of three main categories: safety, partnership with the staff, and physical space. The care environment is perceived as a complex entity, made up of several physical and psychosocial aspects, where the physical factors are subordinated by the psychosocial factors. It is clearly demonstrated that the patients' primary desire was a psychosocial environment where they were seen as a unique person; the patients wanted opportunities for good encounters with staff, fellow patients, and family members, supported by a good physical environment; and the patients valued highly a place to withdraw and rest. Conclusions. This study presents those attributes that are valued by cancer patients as crucial and important for the support of their well-being and functioning. The results show that physical aspects were subordinate to psychosocial factors, which emerged strongly as being the most important in a caring environment.
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| 12. |
- Ventura, Filipa, et al.
(författare)
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An integrative review of supportive e-health programs in cancer care.
- 2013
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Ingår i: European journal of oncology nursing : the official journal of European Oncology Nursing Society. - : Elsevier BV. - 1532-2122 .- 1462-3889. ; 17:4, s. 498-507
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: This integrative review aims to gather more knowledge of the design of supportive e-health interventions for patients diagnosed with cancer and subsequently analyze and synthesize that knowledge in a potential explanatory model for those interventions. METHODS: PubMed, CINAHL and PsycINFO were searched for abstracts dating from 2000 through to June 2012. Eligible articles concerned education or support for adult cancer patients, and were provided either on the Internet or using CD-ROM or DVD. RESULTS: Twenty-eight quantitative studies constituted the final sample, revealing that supportive e-health programs in the field of cancer are being used and are helpful to individuals despite their age, gender, literacy level and disease-stage. Each e-health program usually constitutes a single service with a variety of multimedia features, which leads to different designs yet with common outcomes. Some of these outcomes are theoretically explained, although a structure that links all aspects of the intervention is rarely found. Moreover, different designs have also been adopted for testing the interventions' effectiveness. CONCLUSION: E-health interventions that allow supportive needs to be satisfied are leading to positive effects for individuals with different preferences and priorities. Even though several communalities could be found across interventions, methodological aspects of design, implementation and evaluation still vary, leading to some inconsistency. Models and applied theories are needed to clarify such issues, thus enhancing the credibility and applicability of supportive e-health programs across target populations.
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| 14. |
- Ventura, Filipa, et al.
(författare)
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Evaluation of a Web-based Educational Program for Women Diagnosed with Breast Cancer: Why is the Intervention Effect Absent?
- 2013
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Ingår i: MEDINFO 2013. Proceedings of the MEDINFO 2013 conference, Copenhagen, Denmark, August 2013. - : IOS Press. - 0926-9630. - 9781614992882 ; , s. 1132-
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Konferensbidrag (refereegranskat)abstract
- To provide accurate and tailored information to women diagnosed with breast cancer a web-based educational program was developed and tested in a randomized controlled trial for impact on health self-efficacy, healthcare participation, and anxiety and depression levels. Multilevel modelling with an intention-to-treat analysis revealed no treatment effect on the above-mentioned outcomes. Reasons for the non-identified effect are discussed and raise methodological questions concerning e-health supportive interventions for further research.
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