| 1. |
- Hagedoorn, Ellen I, et al.
(författare)
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Psychometric evaluation of a revised Family Collaboration Scale
- 2019
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Ingår i: Geriatric Nursing. - : MOSBY-ELSEVIER. - 0197-4572 .- 1528-3984. ; 40:5, s. 463-472
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Tidskriftsartikel (refereegranskat)abstract
- Measuring family caregivers experiences of collaboration with nurses is important in the context of health care reforms that advocate an increased role of families in care. The Family Collaboration Scale (FCS) measures collaboration between nurses and family caregivers, however, the scale has a broad scope. Thus, the aim of this study was to construct a measure that is focused on collaboration only. After revision, a 25-item version of the FCS was sent to 777 family caregivers of hospitalized patients (amp;gt;= 70 years). Psychometric evaluation was employed by the Non-Parametric Item Response Theory to evaluate how items of the revised FCS behave. In total, 302 (39%) family caregivers were found eligible, mean (SD) age 65 (13) and 71% female. A 20-item FCS is proposed showing good psychometric properties. This study contributes to the limited knowledge of measuring collaboration between family caregivers and nurses. (C) 2019 Elsevier Inc. All rights reserved.
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| 2. |
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| 3. |
- Näsström, Lena, 1967-, et al.
(författare)
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Exploring partners' perspectives on participation in heart failure home care : a mixed-method design
- 2017
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Ingår i: Journal of Advanced Nursing. - : Blackwell Munksgaard. - 0309-2402 .- 1365-2648. ; 73:5, s. 1208-1219
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Tidskriftsartikel (refereegranskat)abstract
- Aim. To describe the partners' perspectives on participation in the care for patients with heart failure receiving home care. Background. Partners are often involved in care of patients with heart failure and have an important role in improving patients' well-being and self-care. Partners have described both negative and positive experiences of involvement, but knowledge of how partners of patients with heart failure view participation in care when the patient receives home care is lacking. Design. A convergent parallel mixed-method design was used, including data from interviews and questionnaires. Methods. A purposeful sample of 15 partners was used. Data collection lasted between February 2010 - December 2011. Interviews were analysed with content analysis and data from questionnaires (participation, caregiving, health-related quality of life, depressive symptoms) were analysed statistically. Finally, results were merged, interpreted and labelled as comparable and convergent or as being inconsistent. Results. Partners were satisfied with most aspects of participation, information and contact. Qualitative findings revealed four different aspects of participation: adapting to the caring needs and illness trajectory, coping with caregiving demands, interacting with healthcare providers and need for knowledge to comprehend the health situation. Results showed confirmatory results that were convergent and expanded knowledge that gave a broader understanding of partner participation in this context. Conclusion. The results revealed different levels of partner participation. Heart failure home care included good opportunities for both participation and contact during home visits, necessary to meet partners' ongoing need for information to comprehend the situation.
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| 4. |
- Näsström, Lena, et al.
(författare)
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Exploring partners' perspectives on participation in heart failure home-care - a mixed method design
- 2016
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Ingår i: European Journal of Cardiovascular Nursing. - : Sage Publications. - 1474-5151 .- 1873-1953. ; 15:1 Suppl, s. S70-S70
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- Introduction: Previous research has shown that partners and other family members are involved in the care for patients with heart failure, and have an important role regarding outcomes in chronic illness. This involvement included support, both emotionally and practically, and partners often contributed to self-care activities. Partners quality of life may be negatively affected when caring for a person with heart failure, and worse mental health have also been reported. Partners have described both positive and negative experiences of involvement in care, but there is a lack of knowledge of how partners of patients with heart failure view participation in care when the patients receive home-care.Purpose: The aim of this study was to gain a broader understanding of the partners’ perspectives on participation in the care for patients with heart failure receiving structured home-care.Methods: A convergent parallel mixed method design was applied with data from interviews analysed with qualitative content analysis, and questionnaires statistically analysed (n=15). Initially results were analysed separately and thereafter merged in a final interpretation with regard to whether they were comparable and convergent, expanded the understanding, or were inconsistent.Results: Partners scored that they were satisfied with most aspects of participation, information and contact. Qualitative findings revealed four different aspects of participation; adapting to the caring needs and illness trajectory, coping with caregiving demands, interacting with health care providers, and need for knowledge to comprehend the situation. Combining the two datasets showed both confirmatory results that were convergent and also gave expanded knowledge that broaden the understanding of partner participation in this context.Conclusions: The results revealed different levels of partner participation, with most partners being satisfied with their participation in care, but some partners expressed a fear of demands to come in the future. Heart failure home-care included good opportunities for both participation and contact during home visits, necessary to meet partners’ ongoing need for information to comprehend the situation.
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| 5. |
- Strömberg, Anna, 1967-, et al.
(författare)
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Psychometric Validation of the Heart Failure Caregiver Questionnaire (HF-CQ (R))
- 2017
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Ingår i: Patient. - : ADIS INT LTD. - 1178-1653 .- 1178-1661. ; 10:5, s. 579-592
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Tidskriftsartikel (refereegranskat)abstract
- Background The Heart Failure Caregiver Questionnaire (HF-CQ (R)) was developed to assess subjective outcomes of heart failure caregivers. The HF-CQ (R) comprises 21 questions on three domains, namely physical, emotional/psychological and lifestyle. The objective of this study was to evaluate the psychometric properties of the HF-CQ (R). Methods Patients (n = 150) with heart failure and their primary caregivers (n = 150) were recruited from 11 sites in USA. Caregivers completed the HF-CQ (R) and additional questionnaires, namely Caregiver Reaction Assessment, Work Productivity and Activity Impairment questionnaire, EuroQol-5 domain, and the Hospital Anxiety and Depression Scale. Patient-completed Global Impression of Severity, construct validity, concurrent validity, reliability and responsiveness of the HF-CQ (R) were also assessed. Results In the physical and lifestyle domains, all items showed acceptable validity. No high correlations between HF-CQ (R) scores and other caregiver-completed instruments, including the Hospital Anxiety and Depression Scale, Work Productivity and Activity Impairment questionnaire, EuroQol-5 domain or Caregiver Reaction Assessment, were reported. The intra-class correlation coefficient exceeded the threshold for reliability (amp;gt;0.7) across the physical well-being (0.785), emotional/psychological (0.797), lifestyle (0.787) and total scores (0.850), indicating acceptable reliability. Internal consistency results using Cronbachs alpha showed the total aggregate score of 0.942 to be reliable. In the responsiveness analyses, each of the three scales and the total score showed responsiveness to changes defined by the Caregiver Global Impression of Severity. The overall caregiver burden score increased with increased severity of illness in the cared-for patients. Conclusions The study provides initial evidence for the acceptable validity of the HF-CQ (R) as an instrument to measure heart failure caregiver burden.
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| 6. |
- Ågren, Susanna, et al.
(författare)
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Caregiving tasks and caregiver burden; effects of an psycho-educational intervention in partners of patients with post-operative heart failure
- 2015
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Ingår i: Heart & Lung. - : Elsevier. - 0147-9563 .- 1527-3288. ; 44:4, s. 270-275
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Tidskriftsartikel (refereegranskat)abstract
- Objective: To evaluate the effects of a psycho-educational intervention on caregiver burden in partners of patients with postoperative heart failure. Background: Since partners of cardiac surgery patients play a significant role in the patients recovery, it is important to address their needs during hospitalization and after discharge. Methods: Forty-two patients with postoperative heart failure and their partners participated in a randomized controlled pilot study. Dyads in the intervention group received psycho-educational support from a multidisciplinary team. Dyads in the control group received usual care. Results: No significant differences were found in the performance of caregiving tasks and perceived caregiver burden in the control versus the intervention group. Conclusion: A pilot study exploring the effects of a psycho-educational intervention in patients and their partners did not reveal significant effects with regard to reduced feelings of burden in partners. Alleviating caregiver burden in partners may need a more intense or specific approach. (C) 2015 Elsevier Inc. All rights reserved.
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