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- Lannen, Patrizia, et al.
(författare)
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Absorbing information about a child's incurable cancer.
- 2010
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Ingår i: Oncology. - : S. Karger AG. - 0030-2414 .- 1423-0232. ; 78:3-4, s. 259-266
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: To assess parents' ability to absorb information that their child's cancer was incurable and to identify factors associated with parents' ability to absorb this information.PATIENTS AND METHODS: An anonymous mail-in questionnaire study was performed as a population-based investigation in Sweden between August and October of 2001. 449 parents who lost a child to cancer 4-9 years earlier (response rate 80%) completed the survey. 191 (43%) of the bereaved parents were fathers and 251 (56%) were mothers.RESULTS: Sixty percent of parents (n = 258) reported that they were able to absorb the information that their child's illness was incurable. Parents were better able to absorb this information when the information was given in an appropriate manner (RR 1.6; CI 1.3-2.0), when they shared their problems with others during the child's illness course (RR 1.4; CI 1.1-1.8) and when they had no history of depression (RR 1.3; CI 1.0-1.8). Parents who reported that they were able to absorb the information were more likely to have expressed their farewells to the child in their desired manner (RR 1.3; CI 1.0-1.5).CONCLUSIONS: Parents who received information that their child's illness was incurable in an appropriate manner are more likely to absorb that information. Whether or not parents are able to absorb the information that their child's cancer is incurable has implications in terms of preparation for the child's impending death.
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- Mack, Jennifer, Associate Professor
(författare)
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Making "Mesopotälje"
- 2010
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Konferensbidrag (refereegranskat)
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- Mack, Jennifer, Associate Professor
(författare)
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New Swedes in the new town
- 2013
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Ingår i: Use Matters. - London : Routledge. ; , s. 121-137
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Bokkapitel (refereegranskat)abstract
- Million Program boosters and designers explicitly intended to use architecture and urban design to level differences between people previously divided along socioeconomic and regional lines, providing housing affordable to all. A sense of swedish national belonging would emerge through the built environment, and the centrum became a social and spatial focal point. to follow philosopher Charles taylor, the swedish public sphere expanded from a mere “moral orderâ€-regulations defined by politicians and implemented by bureaucrats-to a “modern social imaginaryâ€-whereby citizens understood themselves as belonging to a retooled swedish nation.4 Forms of “spatial governmentality†seeped into the collective consciousness through standardized architectural forms.5 Jubilation around Ronna Centrum’s opening, then, celebrated more than just the opportunity to shop; the town center connected residents to their compatriots using similar services and spaces across the country.
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- Mack, Jennifer
(författare)
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Urban Design from Below : Immigration and the Spatial Practice of Urbanism
- 2014
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Ingår i: Public culture. - : Duke University Press. - 0899-2363 .- 1527-8018. ; 26:1, s. 153-185
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Tidskriftsartikel (refereegranskat)abstract
- Outlining a theory of “urban design from below,” this essay considers how so-called users have reshaped space at the urban scale, as I trace the history of immigrants’ transformations of a Swedish modernist new town neighborhood. Here a peripheral green strip that government planners of the 1960s classified as a buffer zone has slowly become a center of social and commercial life for Syriac Christians, a group that arrived en masse in the 1970s. Since then, this “blank” space has been gradually but significantly altered through Syriac architectural projects, including an Orthodox church, banquet halls, a soccer stadium, and a television station. Current portrayals of urban design offer dystopian views of the field’s “end” or emphasize informal, reactive processes. Instead, urban design from below occurs through action and accumulation: Syriac projects have altered the physical shape and function of a large swath of urban space, building by building. Critically, these structures were made through official site planning and building permits, even as they emerged out of the frictions between the prevailing logics of Swedish planning — emphasizing formal uniformity to achieve social equality — and a Syriac spatial practice of urbanism that has commissioned material difference. If the “from above” is typically assumed to be the plans and practices of professionals, and the “from below” is usually portrayed as grassroots activism with no lasting physical effects, I investigate how Syriac buildings have transformed not only individual sites but also the city at large.
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- Sawcer, Stephen, et al.
(författare)
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Genetic risk and a primary role for cell-mediated immune mechanisms in multiple sclerosis
- 2011
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Ingår i: Nature. - : Springer Science and Business Media LLC. - 0028-0836 .- 1476-4687. ; 476:7359, s. 214-219
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Tidskriftsartikel (refereegranskat)abstract
- Multiple sclerosis is a common disease of the central nervous system in which the interplay between inflammatory and neurodegenerative processes typically results in intermittent neurological disturbance followed by progressive accumulation of disability. Epidemiological studies have shown that genetic factors are primarily responsible for the substantially increased frequency of the disease seen in the relatives of affected individuals, and systematic attempts to identify linkage in multiplex families have confirmed that variation within the major histocompatibility complex (MHC) exerts the greatest individual effect on risk. Modestly powered genome-wide association studies (GWAS) have enabled more than 20 additional risk loci to be identified and have shown that multiple variants exerting modest individual effects have a key role in disease susceptibility. Most of the genetic architecture underlying susceptibility to the disease remains to be defined and is anticipated to require the analysis of sample sizes that are beyond the numbers currently available to individual research groups. In a collaborative GWAS involving 9,772 cases of European descent collected by 23 research groups working in 15 different countries, we have replicated almost all of the previously suggested associations and identified at least a further 29 novel susceptibility loci. Within the MHC we have refined the identity of the HLA-DRB1 risk alleles and confirmed that variation in the HLA-A gene underlies the independent protective effect attributable to the class I region. Immunologically relevant genes are significantly overrepresented among those mapping close to the identified loci and particularly implicate T-helper-cell differentiation in the pathogenesis of multiple sclerosis.
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