| 1. |
- Edlund, Jens, Docent/Associate Professor, 1967-, et al.
(författare)
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A Multimodal Digital Humanities Study of Terrorism in Swedish Politics: An Interdisciplinary Mixed Methods Project on the Configuration of Terrorism in Parliamentary Debates, Legislation, and Policy Networks 1968–2018
- 2022
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Ingår i: Intelligent Systems and Applications. Proceedings of the 2021 Intelligent Systems Conference, September 2–3, 2021 / Arai K. (eds). - Cham : Springer. - 2367-3370 .- 2367-3389. - 9783030821951 ; , s. 435-449
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Konferensbidrag (refereegranskat)abstract
- This paper presents the design of one of Sweden’s largest digital humanities projects, SweTerror, that through an interdisciplinary multi-modal methodological approach develops an extensive speech-to-text digital HSS resource. SweTerror makes a major contribution to the study of terrorism in Sweden through a comprehensive mixed methods study of the political discourse on terrorism since the late 1960s. Drawing on artificial intelligence in the form of state-of-the-art language and speech technology, it systematically analyses all forms of relevant parliamentary utterances. It explores and curates an exhaustive but understudied multi-modal collection of primary sources of central relevance to Swedish democracy: the audio recordings of the Swedish Parliament’s debates. The project studies the framing of terrorism both as policy discourse and enacted politics, examining semantic and emotive components of the parliamentary discourse on terrorism as well as major actors and social networks involved. It covers political responses to a range of terrorism-related issues as well as factors influencing policy-makers’ engagement, including political affiliations and gender. SweTerror also develops an online research portal, featuring the complete research material and searchable audio made readily accessible for further exploration. Long-term, the project establishes a model for combining extraction technologies (speech recognition and analysis) for audiovisual parliamentary data with text mining and HSS interpretive methods and the portal is designed to serve as a prototype for other similar projects.
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| 2. |
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| 3. |
- Olsson, Cecilia, 1971-, et al.
(författare)
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Healthcare professionals’ perceptions of palliative care quality in a combined acute oncology-palliative care unit: A cross-sectional study
- 2021
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Ingår i: Nordic journal of nursing research. - : Sage Publications. - 2057-1585 .- 2057-1593. ; 41:3, s. 121-130
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Tidskriftsartikel (refereegranskat)abstract
- It is a challenge to ensure high-quality palliative care. The aim was to investigate the perceptions of health care professionals(HCPs) working in a combined acute oncology-palliative care unit regarding the quality of the palliative care received by thepatients and how important the care was to the patients. A Swedish total-survey cross-sectional study including 41 HCPs (54%response rate) was conducted with the 52 items Quality from the Patient’s Perspective – Palliative Care instrument, answeredin two different ways: as actual care received and subjective importance. The STROBE-checklist was used. The areas forimprovements were related to symptom relief, spiritual and existential needs, information, patient participation, continuity ofcare, care planning, cooperation and coordination of care, as subjective importance scores were higher than correspondingscores for care received (p .025). Providing high-quality palliative care alongside curative treatments for cancer patients isknown to be challenging and could explain the results in this study. Implementation of a person-centred palliative care modelbased on the hospice philosophy could be a solution.
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| 4. |
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| 5. |
- Papakokkinou, Eleni, et al.
(författare)
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Excess Morbidity Persists in Patients With Cushing’s Disease During Long-term Remission : A Swedish Nationwide Study
- 2020
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Ingår i: Journal of Clinical Endocrinology and Metabolism. - Washington : Oxford University Press. - 0021-972X .- 1945-7197. ; 105:8, s. 2616-2624
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Tidskriftsartikel (refereegranskat)abstract
- Context: Whether multisystem morbidity in Cushing's disease (CD) remains elevated during long-term remission is still undetermined.Objective: To investigate comorbidities in patients with CD.Design, setting, and patients: A retrospective, nationwide study of patients with CD identified in the Swedish National Patient Register between 1987 and 2013. Individual medical records were reviewed to verify diagnosis and remission status.Main outcomes: Standardized incidence ratios (SIRs) with 95% confidence intervals (CIs) were calculated by using the Swedish general population as reference. Comorbidities were investigated during three different time periods: (i) during the 3 years before diagnosis, (ii) from diagnosis to 1 year after remission, and (iii) during long-term remission.Results: We included 502 patients with confirmed CD, of whom 419 were in remission for a median of 10 (interquartile range 4 to 21) years. SIRs (95% CI) for myocardial infarction (4.4; 1.2 to 11.4), fractures (4.9; 2.7 to 8.3), and deep vein thrombosis (13.8; 3.8 to 35.3) were increased during the 3-year period before diagnosis. From diagnosis until 1 year after remission, SIRs (95% CI were increased for thromboembolism (18.3; 7.9 to 36.0), stroke (4.9; 1.3 to 12.5), and sepsis (13.6; 3.7 to 34.8). SIRs for thromboembolism (4.9; 2.6 to 8.4), stroke (3.1; 1.8 to 4.9), and sepsis (6.0; 3.1 to 10.6) remained increased during long-term remission.Conclusion: Patients with CD have an increased incidence of stroke, thromboembolism, and sepsis even after remission, emphasizing the importance of early identification and management of risk factors for these comorbidities during long-term follow-up.
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| 6. |
- Ragnarsson, Oskar, 1971, et al.
(författare)
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Overall and Disease-Specific Mortality in Patients With Cushing Disease: A Swedish Nationwide Study
- 2019
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Ingår i: Journal of Clinical Endocrinology and Metabolism. - : ENDOCRINE SOC. - 0021-972X .- 1945-7197. ; 104:6, s. 2375-2384
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Tidskriftsartikel (refereegranskat)abstract
- Context: Whether patients with Cushing disease (CD) in remission have increased mortality is still debatable. Objective: To study overall and disease-specific mortality and predictive factors in an unselected nationwide cohort of patients with CD. Design, Patients, and Methods: A retrospective study of patients diagnosed with CD, identified in the Swedish National Patient Registry between 1987 and 2013. Medical records were systematically reviewed to verify the diagnosis. Standardized mortality ratios (SMRs) with 95% CIs were calculated and Cox regression models were used to identify predictors of mortality. Results: Of 502 identified patients with CD (n = 387 women; 77%), 419 (83%) were confirmed to be in remission. Mean age at diagnosis was 43 (SD, 16) years and median follow-up was 13 (interquartile range, 6 to 23) years. The observed number of deaths was 133 vs 54 expected, resulting in an overall SMR of 2.5 (95% CI, 2.1 to 2.9). The commonest cause of death was cardiovascular diseases (SMR, 3.3; 95% CI, 2.6 to 4.3). Excess mortality was also found associated with infections and suicide. For patients in remission, the SMR was 1.9 (95% CI, 1.5 to 2.3); bilateral adrenalectomy and glucocorticoid replacement therapy were independently associated with increased mortality, whereas GH replacement was associated with improved outcome. Conclusion: Findings from this large nationwide study indicate that patients with CD have excess mortality. The findings illustrate the importance of achieving remission and continued active surveillance, along with adequate hormone replacement and evaluation of cardiovascular risk and mental health.
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| 7. |
- Ragnarsson, Oskar, 1971, et al.
(författare)
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The incidence of Cushing’s disease : a nationwide Swedish study
- 2019
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Ingår i: Pituitary. - : Springer. - 1386-341X .- 1573-7403. ; 22:2, s. 179-186
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Tidskriftsartikel (refereegranskat)abstract
- Background: Studies on the incidence of Cushing’s disease (CD) are few and usually limited by a small number of patients. The aim of this study was to assess the annual incidence in a nationwide cohort of patients with presumed CD in Sweden.Methods: Patients registered with a diagnostic code for Cushing’s syndrome (CS) or CD, between 1987 and 2013 were identified in the Swedish National Patient Registry. The CD diagnosis was validated by reviewing clinical, biochemical, imaging, and histopathological data.Results: Of 1317 patients identified, 534 (41%) had confirmed CD. One-hundred-and-fifty-six (12%) patients had other forms of CS, 41 (3%) had probable but unconfirmed CD, and 334 (25%) had diagnoses unrelated to CS. The mean (95% confidence interval) annual incidence between 1987 and 2013 of confirmed CD was 1.6 (1.4–1.8) cases per million. 1987–1995, 1996–2004, and 2005–2013, the mean annual incidence was 1.5 (1.1–1.8), 1.4 (1.0–1.7) and 2.0 (1.7–2.3) cases per million, respectively. During the last time period the incidence was higher than during the first and second time periods (P < 0.05).Conclusion: The incidence of CD in Sweden (1.6 cases per million) is in agreement with most previous reports. A higher incidence between 2005 and 2013 compared to 1987–2004 was noticed. Whether this reflects a truly increased incidence of the disease, or simply an increased awareness, earlier recognition, and earlier diagnosis can, however, not be answered. This study also illustrates the importance of validation of the diagnosis of CD in epidemiological research.
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| 8. |
- Sundström, Johan, Professor, 1971-, et al.
(författare)
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Risk factors for subarachnoid haemorrhage : a nationwide cohort of 950 000 adults
- 2019
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Ingår i: International Journal of Epidemiology. - : Oxford University Press. - 0300-5771 .- 1464-3685. ; 48:6, s. 2018-2025
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Subarachnoid haemorrhage (SAH) is a devastating disease, with high mortality rate and substantial disability among survivors. Its causes are poorly understood. We aimed to investigate risk factors for SAH using a novel nationwide cohort consortium.METHODS: We obtained individual participant data of 949 683 persons (330 334 women) between 25 and 90 years old, with no history of SAH at baseline, from 21 population-based cohorts. Outcomes were obtained from the Swedish Patient and Causes of Death Registries.RESULTS: During 13 704 959 person-years of follow-up, 2659 cases of first-ever fatal or non-fatal SAH occurred, with an age-standardized incidence rate of 9.0 [95% confidence interval (CI) (7.4-10.6)/100 000 person-years] in men and 13.8 [(11.4-16.2)/100 000 person-years] in women. The incidence rate increased exponentially with higher age. In multivariable-adjusted Poisson models, marked sex interactions for current smoking and body mass index (BMI) were observed. Current smoking conferred a rate ratio (RR) of 2.24 (95% CI 1.95-2.57) in women and 1.62 (1.47-1.79) in men. One standard deviation higher BMI was associated with an RR of 0.86 (0.81-0.92) in women and 1.02 (0.96-1.08) in men. Higher blood pressure and lower education level were also associated with higher risk of SAH.CONCLUSIONS: The risk of SAH is 45% higher in women than in men, with substantial sex differences in risk factor strengths. In particular, a markedly stronger adverse effect of smoking in women may motivate targeted public health initiatives.
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| 9. |
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| 10. |
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| 11. |
- Bergersen, Emily Beatrice, et al.
(författare)
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Adolescents' and young people's needs and preferences for support when living with a parent with life-threatening cancer : a grounded theory study
- 2022
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Ingår i: BMC Palliative Care. - : BMC. - 1472-684X. ; 21:1
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Tidskriftsartikel (refereegranskat)abstract
- Background Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescents' and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness or premature death caused by severe mental illness, substance abuse, self-harm and suicide attempts. The aim of this study was to explore adolescents' and young people's needs and preferences for support as they live with a parent with life-threatening cancer. Methods Qualitative interviews were conducted with 10 respondents (17-24 years) in Norway and Sweden. Data were analysed through grounded theory according to Charmaz. Results Adolescents' and young peoples' needs and preferences for support were described through the main category 'To feel safe and secure and to be prepared' and further broken down into five subcategories 'Relationships in the immediate family-balancing support and protection'; 'The social network-support and normalcy in a carefully selected group'; 'Maintaining everyday life-challenges in school and working life'; 'The right support at the right time-competence, trust and continuity in meeting health care professionals'; and 'Support outside the home-an opportunity for full transparency'. Conclusion Adolescents' and young peoples' preferences for support when living with a parent facing life-threatening illness are individual and unique, but they share a common need to feel safe and secure and to be prepared. Adolescents and young people express that they primarily want support from parents and friends, but they also want support from health care professionals, especially in situations when the ill parent becomes worse. Therefore, it is of the utmost importance for health care professionals to identify the most vulnerable adolescents and young people by mapping their social networks and paying extra attention to their needs for support when there is deterioration in the parent's illness state. This study also highlights the importance for health care professionals to establish a good relationship with adolescents and young people to meet their needs and preferences for support. In addition, information and support are needed in a timely manner and adapted to the life-threatening ill parent's illness state and individual's needs and preferences to optimise preparedness.
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| 12. |
- Bergersen, Emily Beatrice, et al.
(författare)
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Children and adolescents' preferences for support when living with a dying parent : An integrative review
- 2022
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Ingår i: Nursing Open. - : Wiley. - 2054-1058. ; 9:3, s. 1536-1555
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To identify and synthesize the evidence base regarding children and adolescents' preferences for support when living with a dying parent. Design: Integrative literature review study. Methods: Searches were conducted in PubMed, CINAHL, PsycINFO, the Cochrane Library, Sociological Abstracts and Scopus, between 1 October 2019 and May 2021. Data were analysed and synthesized using integrative thematic analysis according to the analysis stages specified by Whittermore and Knafl. Results: Twenty-two articles were identified. Children and adolescents' preferences for support were described through one overarching theme, Striving to achieve control and balance, together with six subthemes; "Involvement in the sick parent's care and treatment"; "Wanting to be with the sick parent but needing respite"; "Information must be continuous and individually adapted"; "emotional and communicative support from parents and family members"; "professional, compassionate and informative support"; and "support in friendships and opportunities to maintain normality."
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| 13. |
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| 14. |
- Bergersen, Emily Beatrice
(författare)
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When a parent is affected by a life-threatening illness : Exploring children’s and parents’ needs for support
- 2023
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis explored the needs and preferences for support in families with children when one of the parents is affected by a life-threatening illness. In this thesis a variation of designs were used, from a literature review, to an interview study, a survey, and a long-term follow-up of an intervention. The results show that there are both individual and shared needs and preferences within a family when a parent has a life-threatening illness, and that HCP should adapt their approach to support accordingly. The children preferred practical and emotional involvement in their parent's illness, while at the same time needing respite and a sense of normality. Parents preferred more individualised illness-related information provided by the HCP, as well as more guidance on how to care for and support their children. Both children and parents who lack social support are particularly vulnerable. Therefore, it is important for healthcare personnel to systematically map families' social network. Moreover, continuous support should be offered throughout all stages of the parents' illness trajectory, including the time after death to meet their needs.
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| 15. |
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| 16. |
- Bjuresäter, Kaisa, 1970-, et al.
(författare)
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Self-reported Professional Competence Among Swedish Contact Nurses in Cancer Care : A Cross-sectional Study
- 2022
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Ingår i: Cancer Care Research Online. - : Wolters Kluwer. - 2691-3623. ; 2:3, s. e024-e024
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Tidskriftsartikel (refereegranskat)abstract
- Background: Since 2011, patients in Swedish cancer care have been offered a contact nurse (CN). The CN role is to improve patient participation, care continuity, and provide information and manage patients’ symptoms and needs across the whole continuum of the cancer pathway. A competence profile for the CN role is yet to be developed, and it is important to assess CNs’ self-reported competence to assure that they are well equipped for the role.Objectives: To assess self-reported professional competence among contact nurses working in Swedish cancer care and relate the findings to education level and clinical experience.Methods: The Nurse Professional Competence scale short form (35 items) was used to assess the nurses’ professional competence. Data were collected through a web-based survey in 2017 in 2 regional cancer centers in Sweden.Results: One hundred eight CNs participated in the study and reported highest scores in “value-based nursing care” and lowest scores in “development, leadership, and organization of nursing care.” Higher age, extended clinical work experience, and academic degree were significantly associated with higher competence.Conclusions: CNs with extensive work experience and CNs with an academic degree reported higher scores concerning their generic competence. There is a need in future studies to assess CNs’ specific competence in cancer care.Implications for Practice: There is room for improvement in the competence development of CNs, primarily in the areas of leadership and organization of nursing care.What is Foundational: CNs’ competence regarding leadership and organization should be improved, preferably as part of academic education.
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| 17. |
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| 18. |
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| 19. |
- Charalambous, Andreas, et al.
(författare)
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A scoping review of trials of interventions led or delivered by cancer nurses
- 2018
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Ingår i: International Journal of Nursing Studies. - : Elsevier. - 0020-7489 .- 1873-491X. ; 86, s. 36-43
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Advances in research and technology coupled with an increased cancer incidence and prevalence have resulted in significant expansion of cancer nurse role, in order to meet the growing demands and expectations of people affected by cancer (PABC). Cancer nurses are also tasked with delivering an increasing number of complex interventions as a result of ongoing clinical trials in cancer research. However much of this innovation is undocumented, and we have little insight about the nature of novel interventions currently being designed or delivered by cancer nurses.OBJECTIVES: To identify and synthesise the available evidence from clinical trials on interventions delivered or facilitated by cancer nurses.DATA SOURCES AND REVIEW METHODS: A systematic review of randomised controlled trials (RCT), quasi-RCTs and controlled before and after studies (CBA) of cancer nursing interventions aimed at improving the experience and outcomes of PABC. Ten electronic databases (CENTRAL, MEDLINE, AMED, CINAHL, EMBASE, Epistemonikos, CDSR, DARE, HTA, WHO ICTRP) were searched between 01 January 2000 and 31 May 2016. No language restrictions were applied. Bibliographies of selected studies and relevant Cochrane reviews were also hand-searched. Interventions delivered by cancer nurses were classified according to the OMAHA System. Heat maps were used to highlight the volume of evidence available for different cancer groups, intervention types and stage of cancer care continuum.RESULTS: The search identified 22,450 records; we screened 16,169 abstracts and considered 925 full papers, of which 214 studies (247,550 participants) were included in the evidence synthesis. The majority of studies were conducted in Europe (n = 79) and USA (n = 74). Interventions were delivered across the cancer continuum from prevention and risk reduction to survivorship, with the majority of interventions delivered during the treatment phase (n = 137). Most studies (131/214) had a teaching, guidance or counselling component. Cancer nurse interventions were targeted at primarily breast, prostate or multiple cancers. No studies were conducted in brain, sarcoma or other rare cancer types. The majority of the studies (n = 153) were nurse-led and delivered by specialist cancer nurses (n = 74) or advanced cancer nurses (n = 29), although the quality of reporting was poor.CONCLUSIONS: To the best of our knowledge, this is the first review to synthesise evidence from intervention studies across the entire cancer spectrum. As such, this work provides new insights into the nature of the contribution that cancer nurses have made to evidence-based innovations, as well as highlighting areas in which cancer nursing trials can be developed in the future.
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| 20. |
- Edlund, Sara, 1983-, et al.
(författare)
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Facing negative emotions : Evaluation of a brief training in validating communication for contact nurses in cancer care
- 2023
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Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 66
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Tidskriftsartikel (refereegranskat)abstract
- Background: Contact nurses in cancer care (CNCC) often face challenges when communicating with patients and their families. The overall aim was to evaluate a brief digital validation training for CNCC, to test whether it was associated with increased validation and decreased invalidation. Associations between communication skills in validation and markers of work-related stress were also investigated. Methods: This intervention study investigated associations between the training and validation skills using a within-group design with repeated measures (at pre, post, and eight-week follow-up). Additionally, associations between the training and occupational self-efficacy, self-validation, and exhaustion symptoms were explored. Results: Seventeen CNCCs (all female with relatively long work experience) completed a five-week digital training program. Results indicated a statistically significant increase in validation and a statistically significant decrease in invalidation, showing that the nurses improved their communication skills following the training. No changes were found in markers of work-related stress. Conclusion: The results indicate that digital validation training for CNCCs is potentially beneficial by means of improving communication skills. This study further demonstrates that a brief digital training in validating communication to CNCC is associated with improved person-centered communication regarding strong negative emotions.
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| 21. |
- Eklund, Anna Josse, 1968-, et al.
(författare)
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Experiences of the clinical learning environment in peer learning: A mixed method study from bachelor students’ and main preceptors’ perspectives
- 2023
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Ingår i: Nordic journal of nursing research. - : Sage Publications. - 2057-1585 .- 2057-1593. ; 43:1
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Tidskriftsartikel (refereegranskat)abstract
- There is a lack of clinical placements for bachelor nursing students (BNS). Due to this, stringent educational models for clinical practice need to be developed. The aim was to describe bachelor nursing students’ and main preceptors’ experiences of the clinical learning environment during peer learning. This mixed method study was based on a joint project between the Karlstad University and the Region Värmland, Sweden, where peer learning was launched in two geriatric clinical education wards. A total of 23 bachelor nursing student and four main preceptors participated. The data were collected in parallel, qualitative data through focus group interviews and reflective journals, and quantitative data with the CLES + T scale between November 2017 and February 2018. A directed content analysis of all results was performed. The COREQ Checklist was used. The student–patient and the student–main preceptor relationships were important for the students’ development. The students described the educational atmosphere as comfortable and safe and that the staff were knowledgeable about them. Peer learning with close interaction between patients and all staff can create authenticity, which in turn drives the BNSs’ professional development. All staff should be involved in the supervision of the students and include them as members of the nursing team.
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| 22. |
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| 23. |
- Gjevjon, E. R., et al.
(författare)
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Are we prepared to educate the next generation of bachelor nursing students? : A discussion paper
- 2022
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Ingår i: Nordic journal of nursing research. - : Sage Publications. - 2057-1585 .- 2057-1593. ; 42:2, s. 59-61
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Tidskriftsartikel (refereegranskat)abstract
- This paper answers a call from Nordic colleagues for new strategies in education to meet the needs of a new generation of bachelor nursing students regarding the development of clinical skills. We, as they, believe that educational models targeting the development of clinical skills must be customised to meet the learning style of the current and future generations of bachelor nursing students. In this paper we put forward that using a comprehensive, collaborative, student-centred approach will assist younger generations’ learning processes. We describe a pedagogical model of peer learning that combines collaboration, reflection and assessment aligned with learning outcomes. Such an approach, we believe, is likely to be in line with expectations, needs and preconditions of the current and future generations of nursing students.
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| 24. |
- Granrud, Marie Dahlen, et al.
(författare)
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Health Care Personnel's Perspectives on Quality of Palliative Care During the COVID-19 Pandemic - A Cross-Sectional
- 2023
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Ingår i: Journal of Multidisciplinary Healthcare. - : Dove Medical Press. - 1178-2390. ; 16, s. 2893-2903
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The provision of high-quality palliative care is challenging, especially during a pandemic like COVID-19. The latter entailed major consequences for health care systems and health care personnel (HCP) in both specialist and community health care services, in Norway and worldwide. The aim of this study was to explore how the HCP perceived the quality of palliative care in nursing homes, medical care units, and intensive care units during the COVID-19 pandemic. Methods: This study had a cross-sectional design. A total of 290 HCP from Norway participated in the study (RR = 25.8%) between October and December 2021. The questionnaire comprised items concerning respondents' demographics and quality of care, the latter measured by the short form of the Quality from the Patient's Perspective-Palliative Care instrument, adapted for HCP. The STROBE checklist was used. Results: This study shows that the HCP scored subjective importance as higher in all dimensions, items and single items than their perception of the actual care received. This could indicate a need for improvement in all areas. Information about medication, opportunity to participate in decisions about medical and nursing care and continuity regarding receiving help from the same physician and nurse are examples of areas for improvement. Conclusion: Study results indicate that HCP from nursing homes, medical care units, and intensive care units perceived that quality of palliative care provided was not in line with what they perceived to be important for the patient. This indicate that it was challenging to provide high-quality palliative care during the COVID-19 pandemic.
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| 25. |
- Granrud, MD, et al.
(författare)
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Health Care Personnel's Perspectives on Quality of Palliative Care During the COVID-19 Pandemic : A Cross-Sectional Study
- 2023
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Ingår i: Journal of Multidisciplinary Healthcare. - : Dove Medical Press. - 1178-2390. ; 16, s. 2893-2903
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: The provision of high-quality palliative care is challenging, especially during a pandemic like COVID-19. The latter entailed major consequences for health care systems and health care personnel (HCP) in both specialist and community health care services, in Norway and worldwide. The aim of this study was to explore how the HCP perceived the quality of palliative care in nursing homes, medical care units, and intensive care units during the COVID-19 pandemic. Methods: This study had a cross-sectional design. A total of 290 HCP from Norway participated in the study (RR = 25.8%) between October and December 2021. The questionnaire comprised items concerning respondents' demographics and quality of care, the latter measured by the short form of the Quality from the Patient's Perspective-Palliative Care instrument, adapted for HCP. The STROBE checklist was used. Results: This study shows that the HCP scored subjective importance as higher in all dimensions, items and single items than their perception of the actual care received. This could indicate a need for improvement in all areas. Information about medication, opportunity to participate in decisions about medical and nursing care and continuity regarding receiving help from the same physician and nurse are examples of areas for improvement. Conclusion: Study results indicate that HCP from nursing homes, medical care units, and intensive care units perceived that quality of palliative care provided was not in line with what they perceived to be important for the patient. This indicate that it was challenging to provide high-quality palliative care during the COVID-19 pandemic.
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| 26. |
- Gärling, Tommy, 1941, et al.
(författare)
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Impact of Performance of Out-of-Home Activities on Affective and Cognitive Subjective Well-Being
- 2009
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Ingår i: IAREP/SABE konferens "Behavioural Economics, Economic Psychology: Theory and Policy", Halifax, Nova Scotia, Canada July 7-11 2009..
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Konferensbidrag (refereegranskat)abstract
- Research shows that at an individual level, both affective and cognitive subjective well-being (SWB) are partly related to stable, possibly genetically determined personality traits. Other research demonstrates that SWB depends on life circumstances. For instance, indivduals with a higher income tend to have a higher SWB, although SWB does not seem to increase in proportion to increases in income over time. Previous research also provides evidence for the impact activity participation has on SWB. In contrast to life circumstances “happening” to people, performance of activities requires effort, and it has been asserted that performance of activities therefore add to SWB by being instrumental in achieving life goals (cognitive SWB). Performance of activities also lead to enjoyable affective experiences (affective SWB). Previous research has targeted activities that people themselves choose because they feel the activities are important to them. In the present study we investigate the impact on SWB of frequent out-of-home activities which people perform because of obligations, needs, or desires. The extent to which performance of such out-of-home activities increase or reduce SWB would be an important input to societal cost-benefit analyses of policies. In a survey of a population-based sample of 1,330 Swedish citizens, we examine the relationships between affective reactions to performing out-of-door activities (work or school; purchase of non-durables; other purchases; participating in sports, exercise or outdoor activities; participating in hobby, religious, course or club activities; visiting relatives or friends; visiting restaurant, café or entertainment/culture events; picking up or leaving children at school or day-care centre; participating in children’s leisure activities) and their impact on weekly affective SWB, global affective SWB and cognitive SWB. Multiple linear regression analyses yielded effects on SWB of socio-demographic variables (sex, age, income, education, urban vs rural residential area, marital status, children, and employment) consistent with previous research. Most variance was accounted for in cognitive SWB (7%), next most (3%) in global affective SWB and least in weekly affective SWB (2%). In contrast, reported affective reactions to performing the out-of-home activities in the previous week accounted for most variance (30%) in weekly affective SWB, next most (21%) in global affective SWB, and least (12%) in cognitive SWB. The effects of performance of activities on cognitive SWB were fully mediated by global affective SWB and the effects on the latter partially mediated by weekly affective SWB. Approximately 1% to 3 % of the variance in SWB accounted for by the sociodemographic variables was mediated by the affective reactions to performing the out-of-home activities. Taken together the results demonstrate how much more relative to life circumstances SWB depends on enjoyment in performing everyday activities. Furthermore, even though activities or episodes representing enjoyable peak events are better remembered by people and therefore has a positive impact, enjoying the hassles of everyday life appears to also have an important impact on SWB.
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| 27. |
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| 28. |
- Henoch, Ingela, 1956, et al.
(författare)
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Symptom dimensions as outcomes in interventions for patients with cancer : A systematic review
- 2018
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Ingår i: Oncology Nursing Forum. - : Oncology Nursing Society. - 0190-535X .- 1538-0688. ; 45:2, s. 237-249
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Tidskriftsartikel (refereegranskat)abstract
- PROBLEM IDENTIFICATION: Symptom experience in patients with cancer consists of several dimensions, often measured descriptively within various populations but seldom used as intervention outcomes. This review aims at describing symptom dimensions as outcomes of interventions designed to alleviate symptoms in patients with cancer and to describe these interventions' effects on at least two symptom dimensions. LITERATURE SEARCH: The PRISMA statement for reporting systematic reviews was used. Searches were undertaken in various indexing sites. DATA EVALUATION: Extracted data included design, participants, intervention and control group treatment, targeted symptom dimension, and summary of results. SYNTHESIS: 2,041 articles were identified and 15 were included. The symptom dimensions were intensity, distress, prevalence, frequency, consequences, and quality. Eleven interventions had significant effect on symptom dimensions, mostly on intensity and distress. IMPLICATIONS FOR PRACTICE: Oncology nurses need clinical skills to be able to understand patients' experiences through their narratives. Various interventions are targeted at symptoms, and these need to be implemented to provide evidence-based symptom management.
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| 29. |
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| 30. |
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| 31. |
- Jakobsson Bergstad, Cecilia, 1967, et al.
(författare)
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Influences of affect associated with routine out-of-home activities on subjective well-being
- 2012
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Ingår i: Applied Research in Quality of Life. - : Springer Publishing Company. - 1871-2584 .- 1871-2576. ; 7:1, s. 49-62
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Tidskriftsartikel (refereegranskat)abstract
- A survey of a random sample of 1,330 Swedish residents assessed the relationships between affect associated with performance of routine out-of-home activities, mood, and judgments of life satisfaction (cognitive subjective wellbeing, CSWB). Regression analyses showed that sociodemographic variables accounted for most variance in CSWB (7%) and least in mood (2%). In agreement with previous research, CSWB increased with income, employment, and cohabiting with a spouse, and had a U-formed relationship with age. Affect associated with routine activities accounted for more variance than the socio-demographic variables in mood (30%) and in CSWB (13%). Mood partially mediated the effect on CSWB of affect associated with the activities. The results suggest that future policy-related research should consider the possibility that community-provided resources that facilitate performance of routine out-of-home activities would increase life satisfaction
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| 32. |
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| 33. |
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| 34. |
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| 35. |
- Karlsson, Katarina, et al.
(författare)
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Exploring Symptom Clusters and Their Measurements in Patients With Lung Cancer: A Scoping Review for Practice and Research.
- 2023
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Ingår i: Oncology nursing forum. - : Oncology Nursing Society. - 1538-0688 .- 0190-535X. ; 50:6, s. 783-815
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Tidskriftsartikel (refereegranskat)abstract
- This scoping review aimed to explore symptom clusters (SCs) in patients with lung cancer and how included symptoms and symptom dimensions are measured.PubMed®, CINAHL®, Scopus®, and Cochrane Library were searched for studies published until December 31, 2021. Fifty-three articles were included.Data extracted included descriptive items and SC constellations. Patient-reported outcome instruments and measured symptom dimensions were described according to the middle-range theory of unpleasant symptoms.13 articles investigated SCs a priori and 40 de novo. Thirty-six instruments were used, mostly measuring intensity alone or in combination with timing. Qualitative articles (n = 6) provided rich descriptions within the distress, timing, and quality dimensions.Fatigue was the symptom found to most frequently co-occur with other symptoms in SCs. Fatigue, psychological symptoms, and nutritional aspects are emphasized as important areas for oncology nursing practice and further research to improve SC management for patients with lung cancer.
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| 36. |
- Karlsson, Katarina
(författare)
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Exploring symptom clusters in patients with lung cancer
- 2024
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Licentiatavhandling (övrigt vetenskapligt/konstnärligt)abstract
- This thesis explored symptom clusters in patients with lung cancer before, during and after oncological treatment. A literature review and an interview study was used to explore the symptom cluster experience from the patients’ perspective. A large diversity of symptom cluster constellations were identified, in which fatigue was the most commonly occurring symptom, followed by dyspnea, pain, depression, cough and nutritional impact symptoms. Many symptom assessment instruments were identified, measuring mostly the intensity-dimension alone or in combination with timing. The results also stress that living with symptom clusters during treatment is more about survival than actually living. Patients’ symptom management strategies were shaped by impacting conditions such as knowledge and earlier experience of symptoms. Symptoms were often regarded as unavoidable by the patients and something to accept. How symptoms were recognized by health care professionals further added to the normalization of symptom clusters. Subsequently, patients would not always ask for support, and their quality of life was negatively affected. Holistic person-centered care including multi-dimensional symptom assessment is considered essential to ensure adequate symptom cluster management for patients with lung cancer.
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| 37. |
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| 38. |
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| 39. |
- Kling, Elisabeth, et al.
(författare)
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Säker och bättre vård vid livets slut : Erfarenheter av Liverpool Care Pathway i Arvika kommun
- 2016
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Konferensbidrag (refereegranskat)abstract
- Säker och bättre vård vid livets slut – Erfarenheter av Liverpool Care Pathway i Arvika kommunBakgrund: Liverpool Care Pathway (LCP) är en standardvårdplan som syftar till att säkerställa en god vård vid livets slutskede oavsett vårdform. Genom bedömning av centrala behov och symtom, tydliga mål, samt utvärdering av given vård innebär LCP en struktur för att kvalitetssäkra vården. I en strävan efter en god vård i livets slut för alla har användningen av LCP blivit alltmer utbredd, men trots detta är den utvärderad i begränsad omfattning. Mot denna bakgrund, samt att LCP under de senaste åren ifrågasatts är det angeläget att studera effekter av LCP på kvaliteten av vården i livets slutskede. Syfte: var att undersöka hur sjuksköterskor och omvårdnadspersonal i kommunal vård uppfattade att vården i livets slutskede påverkades efter införandet av LCP, samt vilken betydelse de anser att LCP fått för vården i livets slutskede. Metod: Deskriptiv tvärsnittsstudie med kvantitativ ansats. Data samlades in mellan januari och juni 2014 med en studiespecifik enkät (50 frågor) med utgångspunkt i LCP. Tjugotvå sjuksköterskor och 120 omvårdnadspersonal (svarsfrekvens 63 %) verksamma på en korttidsavdelning, fem särskilda boende och inom fyra hemtjänstgrupper deltog. Icke parametrisk statistik användes för att testa skillnader inom- och mellan grupper. Resultat: Både sjuksköterskor och omvårdnadspersonal ansåg att implementering av LCP inneburit att vårdens kvalitet i livet slut förbättrats. Omvårdnadspersonalen uppfattade att införandet av LCP innebar att patienterna erhöll bästa möjliga omvårdnad och medicinska vård i högre grad än sjuksköterskorna (p=.011). Att arbeta enligt LCP när patienten var döende innebar en vård som uppfattades både säker och av hög kvalitet av båda personalkategorierna. Vidare uppfattades LCP underlätta bedömning av patienternas symtom och behov, samt underlätta kommunikation och överföring av information mellan olika personalkategorier. Slutsats: Att vårda patienter i livets slut i kommunal vård innebär en stor utmaning för både omvårdnadspersonal och sjuksköterskor. Genom att strukturera och systematisera vården vid livets slut med LCP säkerställs bedömning av patienters symtom och behov, bemötande av patienter och närstående samt kommunikation inom teamet. Parametrar som är betydelsefulla för en säker och god vård.
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| 40. |
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| 41. |
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| 42. |
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| 43. |
- Larsson, Maria, et al.
(författare)
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Omvårdnad vid cancersjukdom
- 2021. - 3
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Ingår i: Klinisk omvårdnad 2. - Stockholm : Liber. - 9789147113606 ; , s. 403-499
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Klinisk omvårdnad 2 är del två av en serie om två böcker. Klinisk omvårdnad del 1 och 2 tydliggör vilka konsekvenser olika sjukdomar och skador har för patienten. Hur upplever patienten att vara sjuk, hur påverkas hens grundläggande behov och vilka copingstrategier behövs? Böckerna tillhandahåller systematisk kunskap om datainsamling, de kliniska bedömningar och omvårdnadsåtgärder som behövs för att kunna tillgodose patientens grundläggande behov samt om sjuksköterskans ansvar och kompetens i sin professionsutövning. Alla kapitel har en liknande struktur, vilket gör det enkelt att orientera sig. Texterna är granskade av svenska experter och anpassade till svenska förhållanden. Böckerna vänder sig till blivande sjuksköterskor och kan användas som referens för sjuksköterskor inom olika verksamhetsområden.
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| 44. |
- Larsson, Maria, 1968-, et al.
(författare)
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Sexual problems in patients with head and neck cancer- an area in need of further attention.
- 2011
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Ingår i: European Journal of Cancer. - 0959-8049 .- 1879-0852.
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Tidskriftsartikel (refereegranskat)abstract
- Background: Studies show that the incidence of sexual dysfunction ranges between 40% and 100% in patients where the tumor and treatment have a direct impact on sexuality. Head and neck cancer is a physically and emotionally devastating disease. Unlike other forms of cancer the disease and side-effects of treatment cannot be hidden as tumors of the head and neck affect the most visible area of the body. Treatment include surgery, radiotherapy and chemotherapy often in combination leading to severe side-effects such as facial disfigurement, pain in the mouth and throat, thick and ropy saliva and taste changes leading to malnutrition and loss of energy and strength. In addition, fatigue, social isolation and low self esteem – factors that are known to influence sexuality – are common and apparently, patients with head and neck cancer are at high risk to develop sexual problems. However, little is known regarding sexual problems and sexual adjustments among this group of patients under treatment as well as during the rehabilitation period. Therefore this study was conducted with the objective to examine occurrence of sexual problems during and after the medical treatment.Materials and method: In this descriptive study 40 consecutive patients treated with surgery and radiotherapy for head and neck cancer participated. Data were collected each week during radiotherapy and six and twelve months after completed radiotherapy using EORTC QLQ-30 and EORTC H&N35, for health-related quality of life. The questionnaires include specific questions regarding sexual functioning and sexual desire. Descriptive and non-parametric statistics were used.Results: Sexual problems were common and were reported to occur quite a lot or a lot by 60% after completed radiotherapy, 30% after six months, and by 32 % after one year. Data analysis is ongoing and further results will be presented at the conference.Conclusions: Sexual problems are common in patients with head and neck cancer and this issue needs to be further studied
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| 45. |
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| 46. |
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| 47. |
- Löfholm, Cecilia Andrée, et al.
(författare)
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Multisystemic therapy with conductdisordered young people: Stability of treatment outcomes two years after intake
- 2009
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Ingår i: Evidence and Policy. - 1744-2648 .- 1744-2656. ; 5, s. 373-397
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Tidskriftsartikel (refereegranskat)abstract
- The transfer of successful interventions between different contexts is of increasing interest to policy makers, practitioners and researchers. This study considers the findings of a Swedish trial of murtisystemic therapy (MST) in relation to the findings of other such trials in the US and Norway. The trial assessed treatment outcomes two years after referral to MST or treatment as usual (TAU) for 156 young people meeting the diagnostic criteria for conduct disorder A mixed factorial design was used.With an intent-to-treat approach, the results showed a general decrease in psychiatric problems and antisocial behaviours among participants across treatments. There were no significant differences between the two groups, and the lack of treatment effect did not appear to be caused by site differences or variations in programme maturity. © The Policy Press.
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| 48. |
- Monstein, Hans-Jurg, 1946-, et al.
(författare)
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Multiple displacement amplification of DNA from human colon and rectum biopsies: Bacterial profiling and identification of Helicobacter pylori-DNA by means of 16S rDNA-based TTGE and pyrosequencing analysis
- 2005
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Ingår i: Journal of Microbiological Methods. - : Elsevier BV. - 1872-8359 .- 0167-7012. ; 63:3, s. 239-247
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Tidskriftsartikel (refereegranskat)abstract
- Amplifying bacterial DNA by PCR from human biopsy specimens has sometimes proved to be difficult, mainly due to the low amount of bacterial DNA present. Therefore, nested or semi-nested 16S rDNA PCR amplification has been the method of choice. In this study, we evaluate the potential use of whole genome amplification of total DNA isolated from human colon and rectum biopsy specimens, followed by 16S rDNA PCR amplification of multiple displacement amplified (MDA)-DNA. Subsequently, a H. pylori-specific 16S rDNA variable V3 region PCR assay was applied directly on MDA-DNA and, combined with pyrosequencing analysis; the presence of H. pylori in some biopsies from colon in patients with microscopic colitis was confirmed. Furthermore, temporal temperature gradient gel electrophoresis (TTGE) of 16S rDNA amplicons using primers flanking variable regions V3, V4, and V9, was used to establish bacterial profiles from individual biopsies. A variation of the bacterial profiles in the colonic mucosa in microscopic colitis and in normal rectal mucosa was observed. In conclusion we find the MDA technique to be a useful method to overcome the problem of insufficient bacterial DNA in human biopsy specimens. (c) 2005 Elsevier B.V. All rights reserved.
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| 49. |
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| 50. |
- Nordaunet, Ole Martin, et al.
(författare)
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Fundamental nursing care focusing on older people’s needs and continuity of long-term care : A scoping review protocol
- 2023
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Ingår i: BMJ Open. - : BMJ Publishing Group Ltd. - 2044-6055. ; 13:3
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Tidskriftsartikel (refereegranskat)abstract
- Knowledge about long-term care services ability, regardless of if the service is home-based or facility-based, to provide an optimal and comprehensive fundamental nursing care (understood as focusing on physical, relational and psychosocial needs) consistently over time is sparse. Research into nursing indicates the presence of a discontinuous and fragmented healthcare service, and that fundamental nursing care such as mobilisation, nutrition and hygiene among older people (65 years and above) seems to be, regardless of reasons, systematically rationed by nursing staff. Thus, our scoping review aims to explore the published scientific literature on fundamental nursing care and continuity of care targeting older people’s needs while also describing identified nursing interventions with the same foci in a long-term care context. METHODS AND ANALYSIS: The upcoming scoping review will be conducted in accordance with Arksey and O’Malley’s methodological framework for scoping studies. Search strategies will be developed and adjusted to each database, for example, PubMed, CINAHL and PsychINFO. Searches will be limited to the years 2002-2023. Studies focusing our aim, regardless of study design, will be eligible for inclusion. Included studies will be quality assessed and data will be charted using an extraction form. Textual data will be presented through a thematic analysis and numerical data by a descriptive numerical analysis. This protocol adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocol checklist. ETHICS AND DISSEMINATION: The upcoming scoping review will take into consideration ethical reporting in primary research as part of the quality assessment. The findings will be submitted to an open-access peer-reviewed journal. Under the Norwegian Act on Medical and Health-related Research, this study does not need ethical clearance by a regional ethical review authority as it will not generate any primary data or obtain sensitive data or biological samples.
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