| 1. |
- Winberg, Cecilia, et al.
(författare)
-
Feeling controlled or being in control? : Apps for self-management among older people with neurological disability
- 2021
-
Ingår i: Disability and Rehabilitation. - : Taylor & Francis. - 1748-3107 .- 1748-3115. ; 16:6, s. 603-608
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose: The aim of this paper was to describe how people living with a neurological disability such as multiple sclerosis, Parkinson’s disease and stroke reason regarding using apps to facilitate self-management in everyday life.Material and methods: A qualitative research approach with a focus group methodology was used. The sample comprised 16 participants, 11 men and 5 women, with an average age of 64 years (ranging from 51–80 years). Six participants were diagnosed with multiple sclerosis, six with Parkinson’s disease and four with stroke. Data were analyzed using thematic analysis, which is a method for identifying, analyzing and reporting patterns.Results: The results formed two themes. The first theme “using apps to have control of my health” comprises two subthemes; “monitor and take responsibility for a healthy lifestyle” and “compensate to facilitate everyday life”. The second theme “using the app as a tool and means for communication” also comprised two subthemes; “dare to trust the app” and “feeling safe when sharing information with health care professionals”.Conclusions: The use of apps put increased responsibility on the person and had the possibility to make them more involved in their own care. The use of an app can facilitate a healthy lifestyle and help to monitor disease-specific symptoms. In order to be able to use apps for communication with the health care sector legislation and safety issues need to be considered.
|
|
| 2. |
|
|
| 3. |
- Christiansen, Iben, et al.
(författare)
-
Crosscurrents of Swedish Mathematics Teacher Education
- 2021
-
Ingår i: International Perspectives on Mathematics Teacher Education. - Charlotte, North Carolina : Information Age Publishin (IAP).
-
Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- Mathematics teacher education includes the mathematics content teachers need to understand, the ways that pedagogical approaches are developed, the messages about the nature of mathematics teaching and learning, and the interface between tertiary preparation and school contexts. Scholars from Sweden, France, Malawi, Singapore, New Zealand, Brazil, the USA, and Canada provide insights for the mathematics education community’s understanding of how teacher educators in different countries structure, develop, and implement their respective mathematics teacher education programs. Several themes emerged across the chapters, including: varied approaches to developing culturally responsive pedagogies and/or Indigenous perspectives to ensure equity for all students; issues and challenges in fostering partnerships and collaborations among various stakeholders, with partnerships involving connections with mathematics classroom teachers, school districts, and/or mathematicians or mathematics departments; strategies for developing mathematics knowledge for teaching, providing insights into messages about what it means to learn mathematics in terms of content and pedagogy; and preparing teachers who have flexibility and resourcefulness. This book will be of interest to those responsible for higher education, including teacher educators, researchers in mathematics teacher education, instructors of graduate courses preparing future teacher educators, as well as policy makers.
|
|
| 4. |
|
|
| 5. |
|
|
| 6. |
- Pettersson, Cecilia, 1963-
(författare)
-
Bostaden som hem och arbetsplats
- 2020
-
Ingår i: Arbetsterapeuten. - Nacka. - 0345-0988. ; :5, s. 30-31
-
Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)
|
|
| 7. |
- Pettersson, Cecilia, 1963, et al.
(författare)
-
Enablers and Barriers in the Physical Environment of Care for Older People in Ordinary Housing: A Scoping Review
- 2020
-
Ingår i: Journal of Housing for the Elderly. - : Informa UK Limited. - 0276-3893 .- 1540-353X. ; 34:3, s. 332-350
-
Forskningsöversikt (refereegranskat)abstract
- Our aim was to explore enablers and barriers in ordinary housing for older people in care. We systematically searched Scopus, Web of Science, and Google Scholar for relevant published research and gray material. The search resulted in a final sample of eight publications, four of which focused on accessibility for older people with dementia. Thematic analysis resulted in two themes: safety and accessibility. Future studies should focus on modifications to ordinary housing to achieve safe and comfortable environments for people who want to age in place and those who provide them with care.
|
|
| 8. |
- Pettersson, Cecilia, 1963-, et al.
(författare)
-
Enabling social participation for older people : The content of reablement by age, gender, and level of functioning in occupational therapists' interventions
- 2022
-
Ingår i: Scandinavian Journal of Occupational Therapy. - : Informa Healthcare. - 1103-8128 .- 1651-2014. ; 29:6, s. 522-529
-
Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Social participation and the ability to build and maintain social relationships is emphasized as important for older people's health and well-being.AIM: To explore if social participation is addressed and whether age, gender and level of functioning are associated with the composition of occupational therapy interventions within the context of reablement.METHOD: In this cross-sectional study, invitations to participate were sent to 60 municipalities in Sweden. 318 occupational therapists participated and described the character of initiated interventions made during 3 weeks through web-based surveys.RESULT: 1392 cases were reported in the age span of 19-103 years, 61.7% were women. A higher proportion of persons having no home care and minor functional dependency got interventions with a focus on social participation to a higher extent than persons with major functional dependency. Occupational therapists' interventions vary as related to functional limitation, age, and gender.CONCLUSION: The results indicate that the severity of functional limitation impacts the focus of the intervention whereas age and gender do not. There is a need for social participation to be more clearly addressed within the context of reablement.SIGNIFICANCE: To develop a person-centred intervention, one needs to consider aspects of age, gender, and functions.
|
|
| 9. |
- Pettersson, Cecilia, 1963-, et al.
(författare)
-
Environments for Care Provision in Ordinary Housing : A Transdisciplinary Exploration of Pros and Cons
- 2020. - 1
-
Ingår i: Architecture for Residential Care and Ageing Communities. - New York, NY : Routledge, 2021. : Routledge. - 9780367358716 - 9780429342370
-
Bokkapitel (refereegranskat)abstract
- Ageing in place is a global trend with high priority on the political agenda. In Sweden, as in many other countries, a transfer from high specialty hospital care to home health care is ongoing, which calls for the need of new knowledge concerning transdisciplinary teamwork, not only between professionals but also between different levels in the health care organization. The situation that unfolds when someone’s home becomes an arena for care opens a complex context, including possible conflicts between a feeling of home and a supportive and attractive workplace. To support the process of healthy ageing, and employing staff in home- and healthcare, it is important to conduct transdisciplinary research on the interaction between researchers from different disciplines, including older people and their living environment, staff performing home- and healthcare to older people living in ordinary housing and stakeholders in society. In this chapter, we will describe in what way a transdisciplinary research approach is appropriate when planning for a study, how this can contribute to research on ageing in place, and also share lessons learnt from this process.
|
|
| 10. |
|
|
| 11. |
- Pettersson, Cecilia, 1963, et al.
(författare)
-
The impact of the physical environment for caregiving in ordinary housing: Experiences of staff in home- and health-care services
- 2021
-
Ingår i: Applied Ergonomics. - : Elsevier BV. - 0003-6870 .- 1872-9126. ; 92
-
Tidskriftsartikel (refereegranskat)abstract
- The strong driving forces for ageing in place demand sustainable solutions for the housing and care of older people and the health and safety of home- and health-care staff. The aim of the study was to elucidate staff experiences of providing home- and health-care to older people living in ordinary housing. This study was part of a larger project investigating the relation between home design and conditions for care in ordinary housing. The data were gathered through focus group interviews with staff in home- and health-care. Three main themes were found according to staff experiences of particular rooms' sizes and proportions, spatial configurations, and aspects to consider when designing new housing. This study contributes important knowledge about essential features of the physical environment for staff providing home- and health-care for older people in their own homes and to aid the development of functionally sustainable housing to minimise injuries to staff.
|
|
| 12. |
- Pettersson, Cecilia, 1963-, et al.
(författare)
-
The struggle for access : a qualitative document study of how people using wheeled mobility devices experience exclusion and discrimination
- 2024
-
Ingår i: Disability and Rehabilitation. - : Informa Healthcare. - 1748-3107 .- 1748-3115. ; 19:3, s. 537-545
-
Tidskriftsartikel (refereegranskat)abstract
- Purpose The overall aim of this study was to describe experiences of discrimination due to inaccessibility among people using mobility devices.Material and methods We conducted a thematic qualitative analysis of 88 complaints about wheeled mobility device use, inaccessibility, and discrimination submitted to the Swedish Equality Ombudsman (DO) during 2015 and 2016.Results The analysis resulted in three themes: instigating change by invoking laws and regulations and highlighting lack of compliance; demanding to be recognised, understood, and listened to; and struggling for equal access and social participation. Regulations and treaties were invoked as the basis for complaints by people using mobility devices regarding their lack of access to physical environments and impediments to their enjoyment of their full right to participate in and contribute to society. The complaints described feelings of discrimination, the disadvantages and exclusion due to physical inaccessibility, and experiences of being prevented from living one’s life as others do.Conclusions Complaints filed by people using mobility devices showed that they were denied access to a wide range of contexts, including offices, theatres, restaurants, schools, and public transportation, though they desired to live an active and social life outside their homes. Filing a complaint was a way to take action, highlight present inaccessibility, and express a hope for change.IMPLICATIONS FOR REHABILITATION• Difficulties experienced by people using wheeled mobility devices can reveal knowledge important for revising existing design and renovation standards for housing and public buildings.• Documenting facilitators and barriers in different environments is important for giving voice to the needs of wheeled mobility device users and revealing standards that need to be strongly enforced or revised.• People using wheeled mobility devices should be supported in finding solutions in inaccessible environments, both to fulfil their wishes and to enable their participation in society.
|
|
| 13. |
- Sawatzky, Richard, et al.
(författare)
-
Predictors of preparedness for recovery following colorectal cancer surgery: a latent class trajectory analysis.
- 2023
-
Ingår i: Acta Oncologica. - 0284-186X .- 1651-226X. ; 62:12, s. 1625-1634
-
Tidskriftsartikel (refereegranskat)abstract
- With an interest in providing knowledge for person-centred care, our overall goal is to contribute a greater understanding of diversity among patients in terms of their preparedness before and up to six months after colorectal cancer surgery. Our aim was to describe and provide a tentative explanation for differences in preparedness trajectory profiles.The study was explorative and used prospective longitudinal data from a previously published intervention study evaluating person-centred information and communication. The project was conducted at three hospitals in Sweden. Patient-reported outcomes measures, including the Longitudinal Preparedness for Colorectal Cancer Surgery Questionnaire, were collected before surgery, at discharge, and four to six weeks, three months, and six months after surgery. Clinical data were retrospectively obtained from patients' medical records. We used latent class growth models (LCGMs) to identify latent classes that distinguish subgroups of patients who represent different preparedness trajectory profiles. To determine the most plausible number of latent classes, we considered statistical information about model fit and clinical practice relevance. We used multivariable regression models to identify variables that explain the latent classes.The sample (N=488) comprised people with a mean age of 68years (SD = 11) of which 44% were women. Regarding diagnoses, 60% had colon cancer and 40% rectal cancer. The LCGMs identified six latent classes with different preparedness for surgery and recovery trajectories. The latent classes were predominantly explained by differences in age, sex, physical classification based on comorbidities, treatment hospital, global health status, distress, and sense of coherence (comprehensibility and meaningfulness).Contrary to the received view that emphasizes standardized care practices, our results point to the need for adding person-centred and tailored approaches that consider individual differences in how patients are prepared before and during the recovery period related to colorectal cancer surgery.
|
|
| 14. |
- Spang, Lisa, 1988-, et al.
(författare)
-
Experiences of Close Relatives of Older Adults in Need of a Nursing Home : It Is We Who Manage Their Fragile Daily Life
- 2023
-
Ingår i: Health & Social Care in the Community. - : John Wiley & Sons. - 0966-0410 .- 1365-2524. ; 2023
-
Tidskriftsartikel (refereegranskat)abstract
- Home-based care is expanding, and we need to know more about what kind of support older adults need and how such support should be designed. One way to gain more knowledge is to study the experiences that underlie a nursing home application. However, older adults in need of nursing homes are often too weak to participate in research. Thus, this study aimed to describe the experiences of close relatives of the daily life of older adults in need of a nursing home. A qualitative approach was used, where fifteen relatives of nursing home applicants in central Sweden were interviewed using a study-specific interview guide. The interviews were analysed using thematic analysis. The findings are presented in one main theme "Being the person who manages a fragile life situation" with three underlying themes: Balancing and fulfilling expectations, striving to achieve a status quo, experiencing a breaking point, a change is inevitable, and waiting and moving into a nursing home, a period of tension. The main theme describes how the participants contributed to managing the older adults' life situation and acted as a representative in contacts with health and social care. They tried to offer support in their daily life but over time experienced a breaking point when ageing in place was no longer sustainable, resulting in a nursing home application. The rationale for a nursing home application was often a combination of the older adult's own wishes and the fact that their relatives felt there was a combined need for extensive care and physical proximity to staff, which cannot be provided in ordinary housing. Sometimes the decision to apply was also based on relatives no longer having the capacity to continue managing an older adult's fragile situation.
|
|
| 15. |
- Spang, Lisa, 1988-, et al.
(författare)
-
To be a relative to an older adult who have applied to a nursing home
- 2022
-
Konferensbidrag (refereegranskat)abstract
- Introduction: Ageing in place, is in most European societies a social norm and is made possible by home-based care services and by support from relatives. Yet some older adults describe ageing in place as an unsatisfying life situation and instead apply for a nursing home. Thus, relatives supporting these older adults´ daily lives are part of that experience but the knowledge of how that unsatisfying experience is shared by the relatives is limited. Hence, the study aimed to describe experiences of being a relative to a nursing home applicant.Method: Semi-structured interviews were conducted by phone with 15 relatives (spouse n=2, children n=13) to nursing home applicants. The data was collected in year 2020 during the covid-19 pandemic. Interviews were analyzed using a thematic analysis approach according to Braun and Clark. Results: Preliminary results show that the relatives have many expectations to handle, both from themselves, the nursing home applicant and healthcare. In addition, the covid-19 pandemic made it difficult to fulfill the expectations and the relatives consider both their own and the nursing home applicant’s situation as fragile. Final themes will be presented at the conference.Conclusion: Increased understanding of what experiences that influence everyday activities when ageing in place, could facilitate occupational therapists’ work with older adults living at home. For example, relatives should be included at an early stage of the occupational therapy process in order to provide insight into which areas of daily life occupational therapists should prioritize and support.
|
|
| 16. |
- Tavemark, Sofia, 1988-, et al.
(författare)
-
Tensions between infection control regulations and the home care working environment: An interview study with health care providers early during the COVID-19 pandemic
- 2022
-
Ingår i: Journal of Public Health Research. - : SAGE Publications. - 2279-9028 .- 2279-9036. ; 11:2
-
Tidskriftsartikel (refereegranskat)abstract
- Background: Therefore, the objective of this study was to elucidate caregivers' experiences of ordinary homes as a working environment in home care and home health care during the COVID-19 pandemic. At the beginning of the pandemic, hospital care was in focus and the care of older adults was criticized around the world. Design and methods: Semi-structured qualitative interviews were conducted in two municipalities in Sweden between March 2020 and May 2021. One large municipality (population 155,000) with experience of care recipients with COVID-19, and a smaller municipality (population 32,000) were included; both had a focus on preventing the spread of the infection. A total of 27 participants working in home care were interviewed; these were occupational therapists, physical therapists, nurses, and assistant nurses. The interview material was analyzed using content analysis. Results: The interviews provided a comprehensive insight into the complex work environment in municipal home care during the pandemic. The staff had to deal with constantly changing information and new guidelines. They were also given new tasks and work routines that demanded more planning and were time-consuming. The staff experienced higher workload and pressure during the pandemic and did not have enough time to recover. Conclusions: During a pandemic situation, the information must be comprehensive and gathered in one place, and the managers must ensure sufficient staffing levels, time for reflection, and support for prioritization. The managers must also ensure the mental health of staff and meet their needs for recovery, both at and outside work.
|
|
| 17. |
- Zelic, Renata, et al.
(författare)
-
Interchangeability of light and virtual microscopy for histopathological evaluation of prostate cancer
- 2021
-
Ingår i: Scientific Reports. - : Nature Publishing Group. - 2045-2322. ; 11:1
-
Tidskriftsartikel (refereegranskat)abstract
- Virtual microscopy (VM) holds promise to reduce subjectivity as well as intra- and inter-observer variability for the histopathological evaluation of prostate cancer. We evaluated (i) the repeatability (intra-observer agreement) and reproducibility (inter-observer agreement) of the 2014 Gleason grading system and other selected features using standard light microscopy (LM) and an internally developed VM system, and (ii) the interchangeability of LM and VM. Two uro-pathologists reviewed 413 cores from 60 Swedish men diagnosed with non-metastatic prostate cancer 1998-2014. Reviewer 1 performed two reviews using both LM and VM. Reviewer 2 performed one review using both methods. The intra- and inter-observer agreement within and between LM and VM were assessed using Cohen's kappa and Bland and Altman's limits of agreement. We found good repeatability and reproducibility for both LM and VM, as well as interchangeability between LM and VM, for primary and secondary Gleason pattern, Gleason Grade Groups, poorly formed glands, cribriform pattern and comedonecrosis but not for the percentage of Gleason pattern 4. Our findings confirm the non-inferiority of VM compared to LM. The repeatability and reproducibility of percentage of Gleason pattern 4 was poor regardless of method used warranting further investigation and improvement before it is used in clinical practice.
|
|
| 18. |
- Zelic, Renata, et al.
(författare)
-
Prognostic Utility of the Gleason Grading System Revisions and Histopathological Factors Beyond Gleason Grade.
- 2022
-
Ingår i: Clinical Epidemiology. - : Dove Medical Press Ltd.. - 1179-1349. ; 14, s. 59-70
-
Tidskriftsartikel (refereegranskat)abstract
- Background: The International Society of Urological Pathology (ISUP) revised the Gleason system in 2005 and 2014. The impact of these changes on prostate cancer (PCa) prognostication remains unclear.Objective: To evaluate if the ISUP 2014 Gleason score (GS) predicts PCa death better than the pre-2005 GS, and if additional histopathological information can further improve PCa death prediction.Patients and Methods: We conducted a case-control study nested among men in the National Prostate Cancer Register of Sweden diagnosed with non-metastatic PCa 1998-2015. We included 369 men who died from PCa (cases) and 369 men who did not (controls). Two uro-pathologists centrally re-reviewed biopsy ISUP 2014 Gleason grading, poorly formed glands, cribriform pattern, comedonecrosis, perineural invasion, intraductal, ductal and mucinous carcinoma, percentage Gleason 4, inflammation, high-grade prostatic intraepithelial neoplasia (HGPIN) and post-atrophic hyperplasia. Pre-2005 GS was back-transformed using i) information on cribriform pattern and/or poorly formed glands and ii) the diagnostic GS from the registry. Models were developed using Firth logistic regression and compared in terms of discrimination (AUC).Results: The ISUP 2014 GS (AUC = 0.808) performed better than the pre-2005 GS when back-transformed using only cribriform pattern (AUC = 0.785) or both cribriform and poorly formed glands (AUC = 0.792), but not when back-transformed using only poorly formed glands (AUC = 0.800). Similarly, the ISUP 2014 GS performed better than the diagnostic GS (AUC = 0.808 vs 0.781). Comedonecrosis (AUC = 0.811), HGPIN (AUC = 0.810) and number of cores with ≥50% cancer (AUC = 0.810) predicted PCa death independently of the ISUP 2014 GS.Conclusion: The Gleason Grading revisions have improved PCa death prediction, likely due to classifying cribriform patterns, rather than poorly formed glands, as Gleason 4. Comedonecrosis, HGPIN and number of cores with ≥50% cancer further improve PCa death discrimination slightly.
|
|
