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- Pettersson, Katina, et al.
(författare)
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Prevalence and goal attainment with spinal orthoses for children with cerebral palsy
- 2019
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Ingår i: Journal of Pediatric Rehabilitation Medicine. - : IOS PRESS. - 1874-5393 .- 1875-8894. ; 12:2, s. 197-203
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Tidskriftsartikel (refereegranskat)abstract
- PURPOSE: Analyze the goals for treatment and attained goals for spinal orthoses in children with cerebral palsy (CP), and describe the use of spinal orthoses in relation to age, sex, gross motor function, and scoliosis.METHODS: Cross-sectional data for all children born between 2000 and 2014 and registered in the Swedish CP registry were analyzed in relation to age, sex, Gross Motor Function Classification System (GMFCS), and scoliosis. Treatment goals were to 1) prevent deformity; 2) improve stability/positioning; 3) improve head control; and 4) improve arm/hand function.RESULTS: Overall, 251 of the 2800 children (9%) used spinal orthoses, and the frequency increased significantly with age and GMFCS level; 147 of the 251 children had scoliosis. Several treatment goals were reported for most children. The most common goal was improved stability/positioning (96%), followed by head control (51%) and arm/hand function (38%). Only one third of the children used spinal orthoses to prevent deformities. The rate of goal attainment was 78-87% for the functional outcomes and 57% for the prevention of deformities.CONCLUSION: Although the goal of using spinal orthosis to prevent curvature progression remains important, we found that its functional benefits (stability, head control, arm/hand function) were of greater importance.
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| 2. |
- Pettersson, Katina, et al.
(författare)
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Psychometric evaluation of the Scandinavian version of the caregiver priorities and child health index of life with disabilities
- 2019
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Ingår i: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 41:2, s. 212-218
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Tidskriftsartikel (refereegranskat)abstract
- Purpose: To examine test-retest reliability and construct validity of the Scandinavian version of the caregiver priorities and child health index of life with disabilities (CPCHILD) questionnaire for children with cerebral palsy (CP).Methods: Families were recruited in Sweden and Norway and stratified according to the gross motor function classification system levels I-V for children born 2000-2011, mean age 7.9 (SD 3.2). Construct validity based on the first questionnaire (n = 106) was evaluated for known groups, using linear regression analysis. Intraclass correlation coefficient was used to estimate test-retest reliability (n = 64), and Cronbach's alpha was calculated as an indicator of internal consistency.Results: The questionnaire showed construct validity and the ability to discriminate between levels of gross motor function for the total score and all domain scores (p < 0.05). Test-retest reliability was high with intraclass correlation coefficient of 0.92 for the total score and of 0.72-0.92 for the domain scores. Cronbach's alpha was 0.96 for the total score and 0.83-0.96 for the domain scores.Conclusions: The Scandinavian version of the CPCHILD for children with CP seems to be a valid and reliable proxy measure for health related quality of life.
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| 3. |
- Pettersson, Katina
(författare)
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Scoliosis in cerebral palsy
- 2019
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Doktorsavhandling (övrigt vetenskapligt/konstnärligt)abstract
- BackgroundIndividuals with cerebral palsy (CP) have an increased risk for scoliosis, especially those with low gross motor function, affecting both quality of life and overall function. The aims were to increase the knowledge on the development of, and predictors for scoliosis and the use of spinal orthoses in individuals with CP, and also to evaluate the Caregiver Priorities and Child Health Index of Life with Disabilities (CPCHILD) questionnaire to examine health-related quality of life (HRQoL).MethodThe CPCHILD was distributed to 123 families and analysed for validity and test–retest reliability (Study I). Studies II–IV were based on registry data from the Cerebral Palsy Follow-up Programme (CPUP). Incidence was analysed for scoliosis related to age, sex and level of gross motor function according to the Gross Motor Function Classification System (GMFCS) for 962 individuals born 1990–2012 in southern Sweden (Study II). The use of spinal orthoses was analysed for 2800 children aged 1–14 years in relation to age, sex, GMFCS level, degree of scoliosis, treatment goals and goal attainment (Study III). The risk for developing severe scoliosis after 5 years of age and before the age of 16—with predictors based on risk factors at the age of 5—was analysed for 654 children with CP (Study IV).ResultsThe CPCHILD showed good construct validity and ability to discriminate between GMFCS levels, and test–retest reliability was high for total and domain scores (Study I). The number of people with scoliosis increased up to 20–25 years of age, and incidence was related to age, sex and GMFCS level (Study II). The use of spinal orthoses increased with age and GMFCS level, functional goals were most common, and goal attainment was high (57–87%) (Study III). The predictive ability of the risk score was high with an area under the curve value of 0.874 (Study IV).ConclusionSurveillance programmes for scoliosis in CP should be based on age, GMFCS level and should be initiated at a young age and continued into adulthood. The individual risk factors can help to initiate and implement preventive interventions and strategies at an early stage. Children with postural deficits with or at risk for scoliosis should be given the opportunity to explore the functional benefits of a spinal orthosis. The CPCHILD appears to be a valid and reliable proxy-reported measure for HRQoL in children with CP.
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