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Quality of Life, Ca...
Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study
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- Handels, Ron L. H. (författare)
- Karolinska Institutet
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- Skoldunger, Anders (författare)
- Karolinska Institutet
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- Bieber, Anja (författare)
- Martin Luther Univ Halle Wittenberg, Med Fac, Inst Hlth & Nursing Sci, Halle, Saale, Germany
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- Edwards, Rhiannon Tudor (författare)
- Bangor Univ, Ctr Hlth Econ & Med Evaluat, Bangor, Gwynedd, Wales
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- Goncalves-Pereire, Manuel (författare)
- Univ Nova Lisboa, Fac Ciencias Med, Chron Dis Res Ctr, CEDOC,NOVA Med Sch, Lisbon, Portugal
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- Hopper, Louise (författare)
- Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland
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- Irving, Kate (författare)
- Dublin City Univ, Sch Nursing & Human Sci, Dublin, Ireland
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- Jelley, Hannah (författare)
- Bangor Univ, Dementia Serv Dev Ctr Wales DSDC, Bangor, Gwynedd, Wales
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- Kerpershoek, Liselot (författare)
- Maastricht Univ, Alzheimer Ctr Limburg, Sch Mental Hlth & Neurosci, Dept Psychiat & Neuropsychol, Maastricht, Netherlands
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- Marques, Maria J. (författare)
- Univ Nova Lisboa, Fac Ciencias Med, Chron Dis Res Ctr, CEDOC,NOVA Med Sch, Lisbon, Portugal
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- Meyer, Gabriele (författare)
- Martin Luther Univ Halle Wittenberg, Med Fac, Inst Hlth & Nursing Sci, Halle, Saale, Germany
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- Michelet, Mona (författare)
- Vestfold Hlth Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway;Univ Oslo, Fac Med, Inst Hlth & Soc, Oslo, Norway;Oslo Univ Hosp, Dept Geriatr Med, Oslo, Norway
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- Portolani, Elisa (författare)
- IRCCS Ctr San Giovanni di Dio Fatebenefratelli, Alzheimers Unit, Memory Clin, Brescia, Italy
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- Rosvik, Janne (författare)
- Vestfold Hlth Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway;Oslo Univ Hosp, Dept Geriatr Med, Oslo, Norway
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- Selbaek, Geis (författare)
- Vestfold Hlth Trust, Norwegian Natl Advisory Unit Ageing & Hlth, Tonsberg, Norway;Innlandet Hosp Trust, Ctr Old Age Psychiat Res, Ottestad, Norway;Univ Oslo, Fac Med, Inst Hlth & Soc, Oslo, Norway
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- Stephan, Astrid (författare)
- Martin Luther Univ Halle Wittenberg, Med Fac, Inst Hlth & Nursing Sci, Halle, Saale, Germany
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- de Vugt, Marjolein (författare)
- Maastricht Univ, Alzheimer Ctr Limburg, Sch Mental Hlth & Neurosci, Dept Psychiat & Neuropsychol, Maastricht, Netherlands
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- Wolfs, Claire (författare)
- Maastricht Univ, Alzheimer Ctr Limburg, Sch Mental Hlth & Neurosci, Dept Psychiat & Neuropsychol, Maastricht, Netherlands
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- Woods, Bob (författare)
- Bangor Univ, Dementia Serv Dev Ctr Wales DSDC, Bangor, Gwynedd, Wales
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- Zanetti, Orazio (författare)
- IRCCS Ctr San Giovanni di Dio Fatebenefratelli, Alzheimers Unit, Memory Clin, Brescia, Italy
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- Verhey, Frans (författare)
- Maastricht Univ, Alzheimer Ctr Limburg, Sch Mental Hlth & Neurosci, Dept Psychiat & Neuropsychol, Maastricht, Netherlands
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- Wimo, Anders (författare)
- Karolinska Institutet,Uppsala universitet,Centrum för klinisk forskning, Gävleborg,Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Neurogeriatr, Stockholm, Sweden
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(creator_code:org_t)
- 2018
- 2018
- Engelska.
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Ingår i: Journal of Alzheimer's Disease. - 1387-2877 .- 1875-8908. ; 66:3, s. 1027-1040
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.3...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- Background: With 10.5 million people with dementia in Europe and $301 billion associated costs, governments face challenges organizing access to care. Objective: To examine the costs related to formal and informal care use and quality of life for people with dementia in eight European countries, and explore the association with unmet needs. Methods: Cross-sectional data from 451 persons with dementia and their informal caregivers of the Actifcare cohort study were obtained. Formal and informal care use was multiplied by country specific unit prices of services. Needs were measured using the CANE and health-related quality of life (HRQOL) of the person with dementia (both self- and proxy-rated) and informal caregiver's quality of life using EQ-5D-5L, ICECAP-O, DEMQOL-U, and CarerQol utility scores. The association between costs and country, European region, and unmet needs was assessed using multi-level linear regression. Results: Self-rated EQ-5D-5L utility score was higher than proxy-rated (0.84 and 0.71, respectively). Informal caregivers' utility score was 0.84. Across eight countries annual mean costs of formal and informal care were approximately (sic)17,000. Unmet needs were not associated with annual costs of care, nor with proxy-rated HRQOL, but were associated with self-rated HRQOL. Conclusion: We found varying relationships between unmet needs and quality of life, and no association between unmet needs and care costs, although the results were sensitive to various factors. Future research should further investigate the relation between unmet needs, quality of life and costs to generate a better understanding of the effects of (un)timely access to care.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- Access to care
- costs
- dementia
- health-economics
- quality of life
- unmet needs
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- Av författaren/redakt...
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Handels, Ron L. ...
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Skoldunger, Ande ...
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Bieber, Anja
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Edwards, Rhianno ...
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Goncalves-Pereir ...
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Hopper, Louise
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visa fler...
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Irving, Kate
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Jelley, Hannah
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Kerpershoek, Lis ...
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Marques, Maria J ...
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Meyer, Gabriele
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Michelet, Mona
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Portolani, Elisa
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Rosvik, Janne
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Selbaek, Geis
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Stephan, Astrid
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de Vugt, Marjole ...
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Wolfs, Claire
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Woods, Bob
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Zanetti, Orazio
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Verhey, Frans
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Wimo, Anders
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Klinisk medicin
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och Neurologi
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Journal of Alzhe ...
- Av lärosätet
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Uppsala universitet
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Karolinska Institutet