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- Bala, Sidona Valentina, et al.
(författare)
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Living with persistent rheumatoid arthritis : A BARFOT study
- 2017
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 26:17-18, s. 2646-2656
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Tidskriftsartikel (refereegranskat)abstract
- Aim and objective: To describe and understand the meaning of living with persistent rheumatoid arthritis. Background: A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a lack of knowledge about the meaning of living with this severe long-term illness, defined as persistent rheumatoid arthritis. Design: A descriptive design based on a hermeneutic phenomenological method was used. Methods: Ten adults with persistent rheumatoid arthritis and at least five years disease duration were interviewed. The interviews were analysed according to van Manen's method. Results: Living with persistent rheumatoid arthritis revealed four overall themes: an existence dominated by painful symptoms and treatment, radical changes and limitations in one's life, a continual struggle to cope with one's life and to master the illness, and a dependency on those who are close by and the world around. The lifeworld was affected to a varying extent and in various ways by the illness but also by the dependence on its treatment and care that was not experienced as sufficiently meeting needs in terms of security, access to and coordination of care as well as team and rehabilitation services. Conclusions: Persistent rheumatoid arthritis and its treatment entail a radical effect on the person's life and quality of life. Current ordinary rheumatology care does not seem to meet the individual needs of the person with persistent rheumatoid arthritis in an optimal way. Relevance to clinical practice: A greater knowledge about and understanding of the person who lives with persistent rheumatoid arthritis is important for facilitating the development of care and the relief of suffering. A holistic alternative to conventional clinical practice, such as person-centred care, could be tested as an innovative model of care. Our findings might serve as material for educational and counselling purposes for healthcare professionals.
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| 2. |
- Jeppsson, Margareth, et al.
(författare)
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How do nurses in palliative care perceive the concept of self-image?
- 2015
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Ingår i: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 29:3, s. 454-461
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Nursing research indicates that serious illness and impending death influence the individual's self-image. Few studies define what self-image means. Thus it seems to be urgent to explore how nurses in palliative care perceive the concept of self-image, to get a deeper insight into the concept's applicability in palliative care. AIM: To explore how nurses in palliative care perceive the concept of self-image. DESIGN: Qualitative descriptive design. METHOD: In-depth interviews with 17 nurses in palliative care were analysed using phenomenography. The study gained ethical approval. RESULTS: The concept of self-image was perceived as both a familiar and an unfamiliar concept. Four categories of description with a gradually increasing complexity were distinguished: Identity, Self-assessment, Social function and Self-knowledge. They represent the collective understanding of the concept and are illustrated in a 'self-image map'. The identity-category emerged as the most comprehensive one and includes the understanding of 'Who I am' in a multidimensional way. CONCLUSION: The collective understanding of the concept of self-image include multi-dimensional aspects which not always were evident for the individual nurse. Thus, the concept of self-image needs to be more verbalised and reflected on if nurses are to be comfortable with it and adopt it in their caring context. The 'self-image map' can be used in this reflection to expand the understanding of the concept. If the multi-dimensional aspects of the concept self-image could be explored there are improved possibilities to make identity-promoting strategies visible and support person-centred care.
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| 3. |
- Sonesson, Anders, et al.
(författare)
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Utvärdering av sjuksköterskeprogrammet vid Lunds universitet : Höstterminen 2012 - vårterminen 2014
- 2015
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Rapport (övrigt vetenskapligt/konstnärligt)abstract
- 2012 beslutade MedCUL (Medicinska fakultetens centrum för undervisning och lärande) och sjuksköterskeprogrammets ledning att påbörja en större utvärdering av sjuksköterskeutbildningen. Projektet består av två delar med delvis olika syften. Den första delen, som här redovisas för perioden höstterminen 2012 till och med vårterminen 2014, syftar till att ta fram underlag för förbättring av programmet. Den andra delen är ett forskningsprojekt där olika utvärderingsmetoder utprovas och jämförs. Tillvägagångssätten har varit fokusgrupper med studenter på termin tre respektive sex, enkäterna DREEM och CLES+T, intervjuer med enskilda studenter och lärare, samt analys av kursplaner och andra kursrelaterade dokument. Projektet påbörjades i samband med att programmet sjösatte en ny utbildningsplan höstterminen 2012 och de studenter som ingått i projektet representerar sex olika kohorter, fyra inom den tidigare utbildningsplanen och två inom den nuvarande. Denna rapport inleds med en sammanfattning av de olika tillvägagångssätt vi använt samt huvuddragen i resultaten (i rapportens appendix återfinns samtliga enkäter och frågemallar samt resterande resultat). I den avslutande diskussionen, där vi också ger förslag för utveckling, har vi begränsat oss till ett antal problemområden som vi menar framstått särskilt tydligt och är särskilt viktiga att göra något åt. Rapportens resultatdel rymmer dock mer än så och kan vara användbart för vidare analys och utvecklingsarbete.
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