| 1. |
- Dalheim-Englund, Ann-Charlotte, et al.
(författare)
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Getting along with disease-engendered uncertainty in asthma child families
- 2006
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Ingår i: New Developments in Parent-Child Relation. - : New York: Nova Science Publishers. - 1600211704
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Bokkapitel (övrigt vetenskapligt/konstnärligt)abstract
- All communities set high expectations on parents and to raise a child is a challenging responsibility. Being a parent includes feelings of pleasure, but is also associated with concem and extra work. If the child is stricken by a chronic illness their concem and extra work more often than not will increase. One of the most common chronic diseases among children world-wide is asthma and it constitutes a considerable health problem. Current literature shows that asthma brings uncertainty and extra work to family life, which influences many aspects of a farnily's health and social life. In a Swedish study, it is found that mothers and fathers of children with asthma manage their uncertainty in different ways - mothers mostly act in a protecting manner and express feelings of sadness, while fathers act in a liberating manner and express feelings of acceptance. Furthermore, another Swedish study points out the fact that the relations among asthma family members are govemed by uncertainty and characterized by control, tight bonds and feelings of being forsaken and lack of understanding. From the literature and studies mentioned above, one can assume that living under such circumstances may not only affect family members' present life, but it may also affect their future. Uncertainty puts a great drain on the family, e.g. misunderstanding between parents can occur, siblings may feel forsaken and the child with asthma may be prevented from taking an own responsibility for life with the disease. One way to get a deeper understanding of human relations is to use different perspectives. In this article, we will try to illurninate asthma family life and relations by using an existentialistic, a Hegelian as well as a gender perspective.
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| 2. |
- Dalheim Englund, Ann-Charlotte, et al.
(författare)
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Having a child with asthma : quality of life for Swedish parents
- 2004
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Ingår i: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 13:3, s. 386-395
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Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: Asthma is the most common chronic childhood disease. Childhood asthma contributes significantly to morbidity among children and has a significant impact on the quality of life (QoL) and daily routines of both the children and their parents. AIM AND OBJECTIVE: The purpose of this study was to investigate how Swedish parents of children with asthma experience their QoL, and to investigate whether there were differences concerning QoL between parents within the same family. The purpose was also to investigate possible connections between their QoL and background variables. METHOD: A total of 371 parents of children with asthma (57% mothers and 43% fathers) participated in the study. The Paediatric Asthma Caregiver's Quality Of Life Questionnaire (PACQLQ) was used to measure the parents' QoL, i.e. how the child's asthma interferes with the parents' normal activities and how it has made them feel. RESULTS: The findings show that most parents of children with asthma evaluated their QoL as close to the positive end of the scale, and there was close agreement in the scoring between parents within the same family. Significant associations were found between parents' lower QoL outcome and living in the North of Sweden. There were also significant associations between fathers' lower QoL outcome and having a child younger than 13 years of age and mothers' lower QoL outcome and having a child with severe asthma. Although the result shows that a child's asthma did not influence the parents' QoL to a greater degree, it is still important for healthcare workers to help these parents to sustain and improve their well-being. CONCLUSIONS: The fact that they just evaluated their QoL during the preceding week only, and did so at the time when their children were being treated with asthma medication, might have influenced the results in a positive direction.
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| 3. |
- Dalheim Englund, Ann-Charlotte, et al.
(författare)
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I have to Turn Myself Inside Out” : Caring for Immigrant Families of Children With Asthma
- 2012
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Ingår i: Clinical Nursing Research. - : Sage Publications, Inc.. - 1054-7738 .- 1552-3799. ; 21:2, s. 224-242
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Tidskriftsartikel (refereegranskat)abstract
- In multicultural societies, health care professionals encounter immigrant families of children with asthma. They play an important role in supporting these families, but few studies have focused on this phenomenon. The aim of the present study is to gain a broader understanding of the challenges health care professionals face in their encounters with non-Western immigrant parents of children with asthma. Seventeen professional caregivers were interviewed, and their narratives were analyzed using qualitative content analysis. The results show that health care professionals’ main challenges when encountering immigrant parents can be described by the theme, “Turning oneself inside out.” This theme is characterized by five categories: gender and professional issues, impact on professional relationships, communication challenges, unfamiliar disease and treatment perceptions, and time issues. The results highlight the importance of providing health care professionals with support and organizational conditions that increase opportunities to understand the unique situation of these families
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| 4. |
- Dalheim Englund, Ann-Charlotte, et al.
(författare)
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Social support outside work and return to work among women on long-term sick leave working within human service organizations
- 2016
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Ingår i: Applied Nursing Research. - : Saunders Elsevier. - 0897-1897 .- 1532-8201. ; 30, s. 187-193
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To investigate the relationships between return to work and social support outside work among women on long-term sick leave from human service organizations. Background: Work is an important part of life and is, in general, considered to be supportive of health and wellbeing. Few studies have thoroughly investigated the importance of aspects of social support outside work for return to work. Methods: A cohort of women on long-term sick leave was followed with questionnaires from 2005 to 2012. Results: The availability of social attachment increased the women's work ability, return to work, and vitality significantly more over time. There were positive relationships between return to work and seeking support in terms of emotional support and comfort and expressing unpleasant feelings. Conclusions: Important resources to increase return to work can be found in factors outside work, such as close social relationships and support seeking. Thus, it is important to take the woman's whole life situation into account and not focus solely on aspects related to the workplace.
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| 5. |
- Englund, Ann-Charlotte, et al.
(författare)
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Being the parent of a child with asthma
- 2001
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Ingår i: Pediatric Nursing. - : Jannetti Publications, Inc.. - 0097-9805. ; 27:4, s. 365-373
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Tidskriftsartikel (refereegranskat)abstract
- The aim of this study is to describe what it means to be parents of a child with asthma. Unstructured interviews were carried out with 12 mothers and 12 fathers of children with asthma living in Sweden. The parents' accounts were analyzed using a phenomenological-hermeneutic approach. The results revealed that parents were living a strenuous life and their actions involved both protecting and liberating. Parents also reported feelings of sadness and acceptance. In most cases, mothers acted in a protecting manner and expressed feelings of sadness; fathers acted in a liberating manner and expressed feelings of acceptance. To gain a deeper understanding of the parents' actions and feelings, study results were interpreted through philosophical perspectives described by Ruddick (1989), Mayeroff (1965), and Hegel (1975). These interpretations show that the feelings and actions of these parents exist in a dialectical relation with one another. Results emphasize the importance of a good partnership between the parents and the nurse, where the nurse shows consideration for the parents' unique actions and feelings and understands and supports parents in the care of their child with asthma.
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| 6. |
- Jarling, Aleksandra, et al.
(författare)
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A responsibility that never rests – the life situation of a family caregiver to an older person
- 2020
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Ingår i: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 34:1, s. 44-51
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Tidskriftsartikel (refereegranskat)abstract
- Background When the ageing population increases, the burden and responsibility of close family members will likely increase. Those closely related who assume a great responsibility can be significantly affected in health, well-being and daily life.Aim This study aims to describe the life situation when family caregivers are imposed responsibility for an older person with complex care needs in their own home.Methods In this Swedish qualitative study, ten family caregivers were strategically selected in order to achieve variations in the life situation. A reflective lifeworld research design based on phenomenological philosophy was used throughout the data collection with the lifeworld interviews and the analytic process.Findings In terms of extensive responsibility, the life situation is complex and involves emotions that are difficult to manage. In essence, a paradoxical life situation is described which is experienced as both voluntarily and nonchosen at the same time. The responsibility never rests. The essential meaning is further illustrated with three constituents: loss of freedom, contradictory feelings and affected relationships.Conclusion A life situation with extensive responsibility for an older family member interferes with the whole life situation with an impact on health and relationships with other people. The findings are crucial for professional caregivers in order to capture the nature of family support in a way that enables a meaningful life for both the family caregiver and the older person being cared for. Knowledge of this will give professional caregivers an increased awareness of the life situation of family caregivers and provide a better understanding of the support they are longing for, and, in some countries, such as Sweden, also are entitled to by law.
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| 7. |
- Jarling, Aleksandra, et al.
(författare)
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A responsibility that never rests - To be a family caregiver to an older person
- 2019
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712.
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Tidskriftsartikel (refereegranskat)abstract
- BackgroundWhen the ageing population increases, the burden and responsibility of close family members will likely increase. Those closely related who assume a great responsibility can be significantly affected in health, well‐being and daily life.AimThis study aims to describe the life situation when family caregivers are imposed responsibility for an older person with complex care needs in their own home.MethodsIn this Swedish qualitative study, ten family caregivers were strategically selected in order to achieve variations in the life situation. A reflective lifeworld research design based on phenomenological philosophy was used throughout the data collection with the lifeworld interviews and the analytic process.FindingsIn terms of extensive responsibility, the life situation is complex and involves emotions that are difficult to manage. In essence, a paradoxical life situation is described which is experienced as both voluntarily and nonchosen at the same time. The responsibility never rests. The essential meaning is further illustrated with three constituents: loss of freedom, contradictory feelings and affected relationships.ConclusionA life situation with extensive responsibility for an older family member interferes with the whole life situation with an impact on health and relationships with other people. The findings are crucial for professional caregivers in order to capture the nature of family support in a way that enables a meaningful life for both the family caregiver and the older person being cared for. Knowledge of this will give professional caregivers an increased awareness of the life situation of family caregivers and provide a better understanding of the support they are longing for, and, in some countries, such as Sweden, also are entitled to by law.
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| 8. |
- Jarling, Aleksandra, et al.
(författare)
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Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities
- 2018
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Ingår i: International Journal of Older People Nursing. - : Wiley. - 1748-3735 .- 1748-3743. ; 13:3
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Tidskriftsartikel (refereegranskat)abstract
- Abstract Background: In line with changing demographics, conditions for older people have also changed. Older people are expected to live and be cared for in their own home for as long as possible. Increasing age also increases the risk of multimorbidity and the need for social services and health care services. Home care, instituted by different laws, is complex and requires cooperation from an older person when his/her home becomes a workplace for service providers.Aim: This study aims to illuminate the meaning of being an older person with multimorbidity who lives alone and who is cared for in his/her own home.Design: This study uses a qualitative design with a lifeworld approach.Methods: Conducted in Sweden in 2016, the researchers interviewed 12 older persons that live alone and receive home care. Data was analysed using qualitative content analysis.Results: The findings illustrate four sub-themes: adapting to a caring culture, being exposed, participation with limitations and being dependent on forced relationships. The overall theme reveals that older people experience a life-changing situation when receiving home care and they become a guest in their own home.Conclusions: Becoming older with increased needs means to disrupt one’s life when one’s private home becomes a public arena. Caregivers need to be aware of the gap between their rights by law and an older person’s experiences of receiving home care. Only then can care be offered that enables older people to have a sense of control and experience their home as their own.Implications for Practice: The findings emphasise the need to view older people as being self-determinant and independent. Older people receiving home care need to be seen as individuals, and their entire life situation should be considered by also acknowledging the important role played by relatives and caregivers.
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| 9. |
- Jarling, Aleksandra, et al.
(författare)
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Perceptions of Professional Responsibility When Caring for Older People in Home Care in Sweden
- 2020
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Ingår i: Journal of Community Health Nursing. - : Taylor & Francis. - 0737-0016 .- 1532-7655. ; 37:3, s. 141-152
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Tidskriftsartikel (refereegranskat)abstract
- Older people in Sweden are increasingly being cared for in the own home, where professional caregivers play an important role. This study aimed to describe perceptions of caring responsibility in the context of older people’s homes from the perspective of professional caregivers from caring professions. Fourteen interviews were conducted with professional caregivers from different professions. The result show how professional caregivers perceive responsibility as limitless, constrained by time, moral, overseeing, meaningful and lonesome. Responsibility seems to affect caregivers to a large extent when the burden is high. Professional caregivers’ perceptions of responsibility, and the potential consequences of a perceived strained work situation therefore need to be addressed. The findings also indicate a need for professional support and guidance when it is difficult to distinguish between professional and personal responsibility.
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| 10. |
- Jarling, Aleksandra, et al.
(författare)
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Relationships first : Formal and informal home care of older adults in Sweden
- 2022
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Ingår i: Health & Social Care in the Community. - : Hindawi Limited. - 0966-0410 .- 1365-2524.
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Tidskriftsartikel (refereegranskat)abstract
- To a great extent, older people in Sweden, often with extensive care needs, are cared for in their own home. Support is often needed from both family and professional caregivers. This study aimed to describe and analyse different aspects of health, functioning and social networks, and how they relate to formal and informal care in the home among older adults. Analyses were performed utilising data from the OCTO-2 study, with a sample of 317 people living in Jonkoping County, aged 75, 80, 85 or 90 years, living in their own homes. Data were collected with in-person-testing. Based on receipt of care, the participants were divided into three groups: no care, informal care only, and formal care with or without informal care. Descriptive statistics and multinomial regression analysis were performed to explore the associations between received care and different aspects of health (such as multimorbidity, polypharmacy), social networks (such as loneliness, number of confidants) and functioning (such as managing daily life). The findings demonstrate that the majority of the participants received no care at home (61%). Multimorbidity and polypharmacy were more common among those receiving some kind of care in comparison to those who received no care; moreover, those receiving some kind of care also had difficulties managing daily life and less satisfaction with their social networks. The multinomial logistic regression analyses demonstrated that age, functioning in daily life, perceived general health and satisfaction with the number of confidants were related to receipt of care, but the associations among these factors differed depending on the type of care that was received. The results show the importance of a holistic perspective that includes the older person's experiences when planning home care. The results also highlight the importance of considering social perspectives and relationships in home care rather than focusing only on health factors.
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