| 1. |
- Bärkås, Annika, et al.
(författare)
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Patients' Access to Their Psychiatric Records : A Comparison of Four Countries
- 2022
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Ingår i: Challenges of Trustable AI and Added-Value on Health. - Amsterdam; Berlin; Washington, DC : IOS Press. - 9781643682846 - 9781643682853 ; 294, s. 510-514
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Konferensbidrag (refereegranskat)abstract
- Several Nordic and Baltic countries are forerunners in the digitalization of patient ehealth services and have since long implemented psychiatric records as parts of the ehealth services. There are country-specific differences in what clinical information is offered to patients concerning their online patient accessible psychiatric records. This study explores national differences in Sweden, Norway, Finland, and Estonia in patient access to their psychiatric records. Data was collected through a socio-technical data collection template developed during a workshop series and then analyzed in a cross-country comparison focusing on items related to psychiatry records online. The results show that psychiatric records online are offered to patients in all four countries, and provide the same functionality and similar psychiatry information. Overall, the conclusion is that experiences of various functionalities should be scrutinized to promote transparency of psychiatric records as part of the national eHealth services to increase equality of care and patient empowerment.
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| 2. |
- Bärkås, Annika, et al.
(författare)
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Patients' Experiences of Demanded Access to Online Health Records
- 2024
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Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 1424-1425
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Tidskriftsartikel (refereegranskat)abstract
- Patient-Accessible Electronic Health Records (PAEHR) is particularly controversial in mental healthcare. We aim to explore if there is any association between patients with mental health conditions and the experience of someone demanding access to their PAEHR. A chi-square test showed a significant association between group belonging and experiences of someone demanding access to the PAEHR.
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| 3. |
- Bärkås, Annika, et al.
(författare)
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Patients' Experiences of Unwanted Access to Their Online Health Records
- 2023
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Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 302, s. 356-357, s. 356-357
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Tidskriftsartikel (refereegranskat)abstract
- Patient-Accessible Electronic Health Records (PAEHR) are particularly disputed in mental healthcare. We aim to explore if there is any association between patients having a mental health condition and someone unwanted seeing their PAEHR. A chi-square test showed a statistically significant association between group belonging and experiences of someone unwanted seeing their PAEHR.
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| 4. |
- Falkman, Göran, 1968-, et al.
(författare)
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Collaboration Patterns in an Online Community of Practice in Oral Medicine
- 2008
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Ingår i: eHealth Beyond the Horizon – Get IT There. - Amsterdam : IOS Press. - 9781586038649 ; 136, s. 175-80
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Konferensbidrag (refereegranskat)abstract
- SOMWeb is an online collaboration system based on Semantic Web technologies, which is used for knowledge sharing and dissemination within an oral medicine community in Sweden. Based on a previous study of the use of SOMWeb, general patterns of interaction and communicative activities involved in community collaboration have been identified. The patterns for one such activity, distance consultation, are described and modeled using techniques from the Pragmatic Web. It is also shown how patterns could inform system design
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| 5. |
- Falkman, Göran, 1968-, et al.
(författare)
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SOMWeb - Towards an Infrastructure for Knowledge Sharing in Oral Medicine
- 2005
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Ingår i: Connecting Medical Informatics and Bio-Informatics: Proceedings of MIE2005 - The XIXth International Congress of the European Federation for Medical Informatics. - Amsterdam : IOS Press. - 1586035495 ; 116, s. 527-32, s. 527-532
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Konferensbidrag (refereegranskat)abstract
- In a net-based society, clinicians can come together for cooperative work and distance learning around a common medical material. This requires suitable techniques for cooperative knowledge management and user interfaces that are adapted to both the group as a whole and to individuals. To support distributed management and sharing of clinical knowledge, we propose the development of an intelligent web community for clinicians within oral medicine. This virtual meeting place will support the ongoing work on developing a digital knowledge base, providing a foundation for a more evidence-based oral medicine. The presented system is founded on the use and development of web services and standards for knowledge modelling and knowledge-based systems. The work is conducted within the frame of a well-established cooperation between oral medicine and computer science.
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| 6. |
- Hagström, Josefin, et al.
(författare)
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Adolescents' and Young Adults' Experiences of Offense from Reading Their Health Records Online
- 2024
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Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 310, s. 1422-1423
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Tidskriftsartikel (refereegranskat)abstract
- Patients feeling offended by reading records online is a concern among healthcare professionals, however previously published work has focused on adult patients. Here, a survey was used to explore and compare experiences of offense among adolescents (15-19 years old) and young adults (20-24 years old). Findings indicated that while the ratio of those offended did not differ between adolescents and young adults, reasons for feeling offended did.
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| 7. |
- Moll, Jonas, 1982-, et al.
(författare)
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The Effect of Patient Accessible Electronic Health Records on Communication and Involvement in Care : A National Patient Survey in Sweden
- 2020
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Ingår i: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 270, s. 1056-1060, s. 1056-1060
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Tidskriftsartikel (refereegranskat)abstract
- During recent years, patient accessible electronic health records (PAEHRs) have been implemented nationally in Sweden, as well as internationally, as a means of supporting patient engagement and shared decision making. Few studies have, however, investigated the long-term effects of PAEHRs on communicaiton with care professionals and involvement in care. The national survey study presented here, answered by 2587 patients in Sweden, focuses on these aspects specifically. The results show that the Swedish PAEHR system Journalen has had a positive impact on communication with care overall (84% agree or strongly agree with that communication with medical staff has improved), but only 31% agree or strongly agree with that the content of the PAEHR is discussed with care professionals. Journalen also seems to have a positive impact on involvement in care, but the results are mixed when it comes to effects on shared decision making.
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| 8. |
- Scandurra, Isabella, 1973-, et al.
(författare)
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Experiences of Novel e-Health Services for Patients - Pros, Cons and Future Challenge. Workshop
- 2013
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Ingår i: Proceedings of the 14th World Congress on Medical and Health Informatics (MEDINFO 2013). - Amsterdam, Netherlands : IOS Press. - 0926-9630 .- 1879-8365. - 9781614992882 - 9781614992899 ; , s. 1254-
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Konferensbidrag (refereegranskat)abstract
- It is crucial to involve the patient in the development of patient accessible eHealth systems. But who, how and when? Patient involvement in development of e-health services for citizens has gained little attention to date. It is important to highlight the experiences, pros and cons, and explore new issues and future challenges that arise for all different stakeholders involved in e-health development.One source of inspiration for this workshop is the European funded SUSTAINS project which aims to deploy e-health services with the patient as an important actor. Another is the Swedish research project My Care Pathways where focus is on development of new e-health services that enable the patient to follow and interact with their care processes.This workshop aims to discuss the experiences made in ongoing European deployment projects of online e-health services as well as methods to improve patient participation in such development based on current evaluations and future needs.The objective is to collect and disseminate various experiences from novel e-health service deployment in Europe; during the workshop active participation is desired via twitter and other eLearning tools, and afterwards the results of the workshop are published on easily accessible web sites.
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