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Symptom relief duri...
Symptom relief during last week of life in neurological diseases
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- Ozanne, Anneli, 1978 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Sahlgrenska Academy,University of Gothenburg, Sweden;Sahlgrenska University Hospital, Sweden
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- Sawatzky, Richard (författare)
- Gothenburg University,Göteborgs universitet,Extern,Institutionen för vårdvetenskap och hälsa,External,Institute of Health and Care Sciences,University of Gothenburg, Sweden;Trinity Western Univ, Canada;St Pauls Hosp, Canada,St. Paul’s Hospital,Sahlgrenska Academy,Göteborgs universitet; Canada
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- Håkanson, Cecilia (författare)
- Sophiahemmet University,Sophiahemmet Högskola,Sophiahemmet University, Sweden,Sophiahemmet högskola
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- Alvariza, Anette (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Capio Palliativ vård Dalen
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- Fürst, Carl Johan (författare)
- Lund University,Lunds universitet,Bröstcancer-genetik,Sektion I,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,Breastcancer-genetics,Section I,Department of Clinical Sciences, Lund,Faculty of Medicine,The Institute for Palliative Care,Lund University Research Groups,Lund University, Sweden;Region Skåne, Sweden;Lund University, Sweden
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- Årestedt, Kristofer, 1968- (författare)
- Linnéuniversitetet,Linnaeus University,Kalmar County Council, Sweden,Institutionen för hälso- och vårdvetenskap (HV),Linnéuniversitetet; Region Kalmar län
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- Öhlén, Joakim, 1958 (författare)
- University of Gothenburg,Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences,University of Gothenburg, Sweden;Sahlgrenska University Hospital, Sweden,Sahlgrenska Academy
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(creator_code:org_t)
- 2019-07-09
- 2019
- Engelska.
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Ingår i: Brain and Behavior. - : Wiley. - 2162-3279. ; 9:8
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https://doi.org/10.1...
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https://gup.ub.gu.se...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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Abstract
Ämnesord
Stäng
- Objectives The aim of this study was to investigate symptom prevalence, symptom relief, and palliative care indicators during the last week of life, comparing them for patients with motor neuron disease (MND), central nervous system tumors (CNS tumor), and other neurological diseases (OND). Material & Methods Data were obtained from the Swedish Register for Palliative Care, which documents care during the last week of life. Logistic regression was used to compare patients with MND (n = 419), CNS tumor (n = 799), and OND (n = 1,407) as the cause of death. Results The most prevalent symptoms for all neurological disease groups were pain (52.7% to 72.2%) and rattles (58.1% to 65.6%). Compared to MND and OND, patients with CNS tumors were more likely to have totally relieved pain, shortness of breath, rattles, and anxiety. They were also more likely to have their pain assessed with a validated tool; to receive symptom treatment for anxiety, nausea, rattles, and pain; to have had family members receive end-of-life discussions; to have someone present at death; and to have had their family members offered bereavement support. Both patients with CNS tumor and MND were more likely than patients with OND to receive consultation with a pain unit and to have had end-of-life discussions. Conclusions The study reveals high symptom burden and differences in palliative care between the groups during the last week of life. There is a need for person-centered care planning based on a palliative approach, focused on improving symptom assessments, relief, and end-of-life conversations.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Medicinska och farmaceutiska grundvetenskaper -- Neurovetenskaper (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Basic Medicine -- Neurosciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Neurologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Neurology (hsv//eng)
Nyckelord
- amyotrophic lateral sclerosis
- brain neoplasms
- end of life
- motor neuron disease
- neurological disease
- palliative care
- amyotrophic-lateral-sclerosis
- palliative care
- of-life
- end
- register
- medication
- people
- death
- homes
- Behavioral Sciences
- Neurosciences & Neurology
- amyotrophic lateral sclerosis
- Omvårdnad
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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