| 1. |
- Pan, Yi-Ling, et al.
(author)
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Utility of the early delay and disabilities code set for exploring the linkage between ICF-CY and assessment reports for children with developmental delay
- 2019
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In: Infants and young children. - : Wolters Kluwer. - 0896-3746 .- 1550-5081. ; 32:3, s. 215-227
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Journal article (peer-reviewed)abstract
- The International Classification of Functioning, Disability and Health (ICF) offers a universal language of codes to document childhood functioning. The ICF-CY Code Set for Infants with Early Delay and Disabilities (EDD Code Set) has been developed to facilitate the practical application of the ICF for children. The purpose of this study was to examine the utility of the EDD Code Set by exploring the linkage between ICF and children's assessment reports. We reviewed 30 Comprehensive Assessment Reports (CAR) for children with developmental delay (DD), aged 9-34 months in a joint evaluation center. Meaningful concepts in compulsory and supplementary sections of the CAR were identified and linked to the EDD Code Set. Linkage was measured by (a) number of linked codes and (b) average of code-only and code-with-qualifier percentages. Content in the CAR was linked to 72 of the 82 EDD codes with more codes linked from the supplementary (71) than the compulsory section (58). The largest proportion of linked codes was activities and participation (85%). The EDD Code Set can be used to examine the ICF linkage of pediatric assessment reports and guide future development or revision of pediatric documentation and participation-based intervention.
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| 2. |
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Advances in Pattern-Based Ontology Engineering
- 2021
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Editorial collection (peer-reviewed)abstract
- Ontologies are the corner stone of data modeling and knowledge representation, and engineering an ontology is a complex task in which domain knowledge, ontological accuracy and computational properties need to be carefully balanced. As with any engineering task, the identification and documentation of common patterns is important, and Ontology Design Patterns (ODPs) provide ontology designers with a strong connection to requirements and a better communication of their semantic content and intent.This book, Advances in Pattern-Based Ontology Engineering, contains 23 extended versions of selected papers presented at the annual Workshop on Ontology Design and Patterns (WOP) between 2017 and 2020. This yearly event, which attracts a large number of researchers and professionals in the field of ontology engineering and ontology design patterns, covers issues related to quality aspects of ontology engineering and ODPs for data and knowledge representation, and is usually co-located with the International Semantic Web Conference (ISWC), apart from WOP 2020, which was held virtually due to the COVID-19 pandemic. Topics covered by the papers collected here focus on recent advances in ontology design and patterns, and range from a method to instantiate content patterns, through a proposal on how to document a content pattern, to a number of patterns emerging in ontology modeling in various situations and applications.The book provides an overview of important advances in ontology engineering and ontology design patterns, and will be of interest to all those working in the field.
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| 3. |
- Allwood, Jens, 1947, et al.
(author)
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Intercultural Dynamics of First Acquaintance: Comparative Study of Swedish, Chinese and Swedish-Chinese First Time Encounters
- 2011
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In: C. Stephanidis (Ed.): Universal Access in HCI, Part IV, 2011, LNCS 6768. Springer-VErlag, Berlin Heidelberg.. - Berlin, Heidelberg : Springer Berlin Heidelberg. - 0302-9743. ; 6768, s. 12-21, s. 12-21
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Journal article (peer-reviewed)abstract
- Today, intercultural first acquaintance meetings are becoming more and more frequent. The aim of this study is to describe, analyze and compare Swedish, Chinese and Swedish-Chinese first acquaintance interactions. Our focus lies on a classification of the topics in mono- and intercultural first-time encounters. The analysis is based on 12 arranged face-to-face first acquaintance interactions between Chinese-Chinese, Swedish-Swedish and Swedish-Chinese students (4 of each dyad). The interactions are video-recorded and transcribed. In addition, semi-structured interviews with the participants have been conducted to get a better understanding of their communication. The method of activity-based communication analysis is used to analyze the data. The result of the study is a classification and a cross-cultural comparison of topics and the order of their occurrence in first time encounters. In addition, the study sheds light on the similarities and differences between Chinese and Swedish communication patterns.
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| 4. |
- Blomqvist, Eva, et al.
(author)
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Preface
- 2021
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In: Advances in Pattern-Based Ontology Engineering. - Amsterdam : IOS Press. - 9781643681740 - 9781643681757 ; , s. i-viii
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Book chapter (peer-reviewed)
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| 5. |
- Huang, Yaqi, et al.
(author)
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Application of the International Classification of Functioning, Disability and Health (ICF) in dementia research and practice : A scoping review
- 2023
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In: Aging & Mental Health. - : Taylor & Francis. - 1360-7863 .- 1364-6915. ; 27:2, s. 357-371
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Research review (peer-reviewed)abstract
- OBJECTIVES: The International Classification of Functioning, Disability and Health (ICF) endorsed by the World Health Organization provides a conceptual framework for describing functioning and disability based on a biopsychosocial model. Although dementia is one of the leading causes of disability, yet little is known on the extent to how the ICF has been utilized in dementia research and practice. The study aimed to examine and map the current applications of the ICF with dementia from a body of earlier studies and to explore the potential use in person-centred dementia care.METHODS: The Arksey and O'Malley framework was used to guide the searching, selecting, and synthesizing process. The scoping review was reported following The Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Review (PRISMA-ScR) guidelines.RESULTS: A total of 34 studies were included. The applications of ICF were classified into 4 themes: (1) in clinical practice and the education of health professionals (n = 20); (2) community support services and income support (n = 3); (3) population-based, census, or survey data (n = 10); (4) advocacy and empowerment purposes (n = 1).CONCLUSION: The ICF has made a major impact on dementia in clinical settings. Findings strongly support applying the ICF to person-centered dementia care. In the future, more empirical studies are needed to expand the scope of ICF use in dementia research and practice.
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| 6. |
- Karltorp, Kersti, et al.
(author)
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Three incumbents restructuring the Swedish energy and steel regimes : the case of Hybrit
- 2024
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In: Industry and Innovation. - Abingdon : Routledge. - 1366-2716 .- 1469-8390.
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Journal article (peer-reviewed)abstract
- This paper addresses the role of incumbent firms in driving transitions that entail multiple sectors, conditioned by multiple regimes. We analyse the case ‘HYBRIT’, a radical innovation venture championed by three incumbents from the steel and energy regimes. We investigate what conditions the incumbents’ agency and how they enacted their agency targeting restructuring of the regime elements–actors, institutions, and materiality. We find that eight endogenous and exogenous factors coincide and condition the incumbents’ agency, from which they act in a novel direction of change. We contribute by showing how the collaboration within and across regimes enabled the accomplishment of actions that would have been challenging for individual incumbents to achieve alone. In this setting of scale-intensive industries, incumbents have characteristics that give them a significantly larger capacity to stimulate change than newcomers. The timing and combination of endogenous and exogenous factors, enabling incumbents to collectively drive a transition. © 2024 Informa UK Limited, trading as Taylor & Francis Group.
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| 7. |
- Kilgour, Gaela, et al.
(author)
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Participating together in CP-ACHIEVE : Experiences, opportunities and reflections from a collaborative research team of people with lived experience of cerebral palsy and health care professionals
- 2024
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In: Childhood. - : Sage Publications. - 0907-5682 .- 1461-7013.
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Journal article (peer-reviewed)abstract
- The Australian Centre for Health, Independence, Economic participation and Value Enhanced care for adolescents and young adults with Cerebral Palsy (CP-ACHIEVE) is a Centre of Research Excellence (CRE), funded for 5-year by the National Health and Medical Research Council of Australia. The vision of CP-ACHIEVE is an Australia where people with cerebral palsy receive excellent healthcare throughout their lives and live in, and contribute to, supportive communities that welcome and enable their participation. CP-ACHIEVE began with the ethical commitment to bring together people with lived experience of cerebral palsy, researchers, and health professionals to develop and conduct research informed by, and relevant to, people with cerebral palsy and their allies. From inception, co-research and collaboration with (not 'to' or 'about') young people with cerebral palsy (10 to 30 years of age) and their families has been central to our work. In this paper, we describe the CP-ACHIEVE values, structure and strategy for this approach, and its implementation at each stage of the research process. We then provide an example of the strategy in action, using a qualitative exploration of CP-ACHIEVE's Participation Theme team's experiences of collaboration and involvement as co-researchers. Active participation in research for young people with lived experience of cerebral palsy and their families is a fundamental human right, based on their right to be active agents in decisions that affect them. In this paper we explore how our collaborative approach, and the integration of diverse views, has enhanced the relevance, quality, usefulness, and translation of our research. We also describe (i) the structural elements of our research group that have facilitated our work together, (ii) our challenges, and (iii) how the ownership of our research by people with cerebral palsy is driving future research directions and empowering involvement of people with lived experience beyond CP-ACHIEVE. We offer this knowledge and our experiences to assist other research teams in their journeys towards collaborative research alongside people with lived experience of disability.
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| 8. |
- Lu, Qi, et al.
(author)
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Living on the edge : Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study
- 2019
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In: International Journal of Nursing Studies. - : Elsevier. - 0020-7489 .- 1873-491X. ; 94, s. 1-8
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Journal article (peer-reviewed)abstract
- Background: Globally, one-third of the 15 million people with stroke suffer permanent physical, cognitive, and emotional impairment. Because of traditional Chinese culture and the limited development of the primary healthcare system, most stroke survivors are cared for and live with their family after hospital discharge. However, previous literature shows a lack of qualitative studies on family caregivers’ experience of caring for their relatives in China.Objectives: The aim of this study was to explore the experience of family caregivers taking care of stroke survivors in China.Methods: An explorative design was used wherein qualitative semi-structured interviews were conducted with family caregivers in China. Family caregivers were selected from one city and three communities using a purposive sampling method until no new data were generated (n = 26). A thematic analysis was used for the data analysis in this study.Findings: Family caregivers’ experience was described as living on the edge, which pulled their lives in multiple directions, created an unstable situation, and reduced their well-being and health. The participants believed they had total responsibility and felt that this was expected from both themselves and society. Little external understanding and insufficient support was emphasised, resulting in the caregivers feeling all alone, drained by caring, and like prisoners in their own lives. The family caregivers had to face all of the family events and make all of the decisions by themselves. They expressed love for their family members with stroke, but this was often overshadowed by feelings of sadness, depression, sensitivity, and anger. This resulted in an inability to see how things could improve and in the family caregivers being uncertain about the future.Conclusion: All of these findings increased understanding and added knowledge of this topic that has been seldom studied in China. Healthcare authorities and professionals should recognise and understand the lives and situations of family caregivers since their relatives had a stroke to further identify their difficulties and needs. Appropriate and effective support, both from government and society, should be planned and implemented for family caregivers to relieve them from caring for their relatives with stroke and maintaining the quality of their own lives.
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| 9. |
- Lu, Qi, et al.
(author)
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Needs of family members caring for stroke survivors in China : A deductive qualitative content analysis study by using the caregiver task inventory-25
- 2022
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In: BMC Geriatrics. - : BioMed Central. - 1471-2318. ; 22:1
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Journal article (peer-reviewed)abstract
- BackgroundIn China, family caregivers are usually the main carers of relatives after stroke due to traditional Chinese culture and the limited development of the primary healthcare system. This responsibility often results in burdens and negative health outcomes. However, family caregivers seldom receive support. To improve informal care, as well as the health and well-being of family caregivers, it is important to identify their needs.ObjectiveThis study aimed to deductively explore the needs of family members caring for stroke survivors in China.MethodsTwenty-six semi-structured interviews were performed with family caregivers of stroke survivors who were selected from one city and three communities by purposive sampling. A deductive qualitative content analysis method was performed by using the Caregiver Task Inventory-25 (CTI-25), an instrument measuring the needs of family caregivers, as a framework.ResultsAll subscales, as well as all belonging items in the CTI-25, were identified in the present study, meaning that the family caregivers had needs related to learning to cope with new role, providing care according to care-receiver's needs, managing own emotional needs, appraising supportive resources, and balancing caregiving needs and one's own needs. Moreover, needs related to financial support, both direct and indirect, were identified but not part of the CTI-25.ConclusionThese findings identified that family caregivers of stroke survivors in China had various needs, which is important knowledge when assessing needs and improving health care for family caregivers. Cultural adjustments and modifications should be made if CTI-25 is used in mainland China. This study also indicated a comprehensive and holistic perspective (individual, community, and social level) when identifying, assessing needs or implementing interventions to support family caregivers.
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| 10. |
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