| 1. |
- Hartell, Eva, 1973-, et al.
(författare)
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Informerat samtycke i flerspråkig skolmiljö
- 2021
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Ingår i: Lärarnas forskningskonferens 2021. ; , s. 45-
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Konferensbidrag (refereegranskat)abstract
- Bedömning av transversella färdigheter i STEM (ATSSTEM) är ett innovativt utveckling- och forskningsprojekt med en experimentell design, som syftar till att förbättra digitala bedömningsformer av elevers kunskaper och ämnesövergripande färdigheter inom STEM [matematik, naturvetenskap och teknik]. Detta Erasmus+ projekt bedrivs i grundskolor och gymnasieskolor runt om i Europa och pågår mellan 2019–2022. Haninge kommun och Institutionen för lärande vid Kungliga Tekniska högskolan deltar i ATSSTEM-partnernätverket tillsammans med 11 andra utbildningsinstitutioner som befinner sig på olika nivåer av utbildningssystemet i åtta europeiska länder. Ämnesövergripande undervisningsupplägg med fokus på Agenda 2030 utvecklas och prövas tillsammans med lärare från skolor runt om i Europa. Från Sverige deltar sju grundskolor i Haninge kommun. Frågeställningar - Hur kommunicerar vi informerat samtycke i en flerspråkig miljö? - Hur kan vi kommunicera med vårdnadshavare på andra språk än svenska om potentiella fördelarna och risker med praktiknära skolforskning för deras barn? - Hur kan vi engagera vårdnadshavare med olika språkbakgrund för att få dem att känna sig del av forskningen och förklara vårdnadshavarnas och elevernas rättigheter och de garantier de kan förvänta sig? - Vilka logistik- och kostnadskrav ställer detta på forskargrupper? - Hur resurssätter vi lärare och forskare att kommunicera med vårdnadshavare i flerspråkiga miljöer med avseende på informerat samtycke? Resultat och diskussion I syfte att säkerställa att vårdnadshavare och elever på pilotskolorna kunde tillgodogöra sig innehållet i samtyckesformuläret beslutade projektgruppen att översätta dokumentet till några av de mest förekommande språken i Haninge engelska, arabiska, polska, ryska och turkiska. Vi vill till detta seminarium bjuda in publiken till en dialog där vi diskuterar och delar erfarenheter i den etiskt utmanande frågan om hur man kommunicerar informerat samtycke i en flerspråkig skolmiljö.
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| 2. |
- Hartell, Eva, 1973-, et al.
(författare)
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Seeking informed consent in a multilingual school environment : ATSSTEM - project
- 2021
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Ingår i: PATT38 Book of Abstracts. - Turku, Finland. ; , s. 29-30
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Konferensbidrag (refereegranskat)abstract
- Assessment of Transversal Skills in STEM (ATSSTEM) is an innovative policy experimentation project, which aims to enhance digital assessment of students’ transversal skills in STEM. This Erasmus+ project is situated in primary and secondary schools in and run between 2019– 2022. The Department of Education in Haninge municipality and the Department of Learning at KTH Royal Institute of Technology partake in the ATSSTEM partner network together with 11 other educational institutions, operating on different levels of the educational system across 8 European countries. Integrated STEM learning activities focusing Agenda 2030 is developed and piloted together with teachers in 7 primary and secondary schools in Haninge municipality in Sweden. Following regular ethical requirements for educational research projects; the research team seeks informed consent from the students’ guardians as the students involved are underaged. The pilot schools in municipality of Haninge are fortunate to have students from all over the world, and a number of families have recently immigrated to Sweden. STEM education has a strong policy focus at European and national levels on widening opportunities for under-represented groups. With the purpose to emphasis informed, we therefore decided to translate the informed consent form to a number of languages [e.g. Arabic, Spanish and Polish] spoken at home in our pilot schools. We would like to invite audience to discuss and share experience in the ethically challenging matter of communicating informed consent in a multilingual school environment with the following suggested prompts.How can we communicate with parents in other languages (and with different cultural expectations) about the potential benefits of research to their children?How can we engage parents from different backgrounds to make them feel part of research and explain the rights of parents and students and the safeguards they can expect?What logistic and costs requirements does this place on research teams? How do we resource teachers and researchers to communicate with parents in multi-lingual environments?
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| 3. |
- Acuña Mora, Mariela, 1990, et al.
(författare)
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The longitudinal association between patient empowerment and patient-reported outcomes: What is the direction of effect?
- 2022
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Ingår i: PloS one. - : Public Library of Science (PLoS). - 1932-6203. ; 17:11
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Tidskriftsartikel (refereegranskat)abstract
- Theoretical literature and cross-sectional studies suggest empowerment is associated with other patient-reported outcomes (PROs). However, it is not known if patient empowerment is leading to improvements in other PROs or vice versa.The present study aimed to examine the direction of effects between patient empowerment and PROs in young persons with congenital heart disease (CHD).As part of the STEPSTONES-CHD trial, adolescents with CHD from seven pediatric cardiology centers in Sweden were included in a longitudinal observational study (n = 132). Data were collected when patients were 16 (T0), 17 (T1) and 18 ½ years old (T2). The Gothenburg Young Persons Empowerment Scale (GYPES) was used to measure patient empowerment. Random intercepts cross-lagged panel models between patient empowerment and PROs (communication skills; patient-reported health; quality of life; and transition readiness) were undertaken.We found a significant cross-lagged effect of transition readiness over patient empowerment between T1 and T2, signifying that a higher level of transition readiness predicted a higher level of patient empowerment. No other significant cross-lagged relationships were found.Feeling confident before the transition to adult care is necessary before young persons with CHD can feel in control to manage their health and their lives. Clinicians interested in improving patient empowerment during the transitional period should consider targeting transition readiness.
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| 4. |
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| 5. |
- Hendry, Alexandra, et al.
(författare)
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Atypical Development of Attentional Control Associates with Later Adaptive Functioning, Autism and ADHD Traits
- 2020
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Ingår i: Journal of autism and developmental disorders. - : Springer Nature. - 0162-3257 .- 1573-3432. ; 50:11, s. 4085-4105
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Tidskriftsartikel (refereegranskat)abstract
- Autism is frequently associated with difficulties with top-down attentional control, which impact on individuals’ mental health and quality of life. The developmental processes involved in these attentional difficulties are not well understood. Using a data-driven approach, 2 samples (N = 294 and 412) of infants at elevated and typical likelihood of autism were grouped according to profiles of parent report of attention at 10, 15 and 25 months. In contrast to the normative profile of increases in attentional control scores between infancy and toddlerhood, a minority (7–9%) showed plateauing attentional control scores between 10 and 25 months. Consistent with pre-registered hypotheses, plateaued growth of attentional control was associated with elevated autism and ADHD traits, and lower adaptive functioning at age 3 years.
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| 6. |
- Karlström, Petter, et al.
(författare)
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CALL in the zone of proximal development : novelty effects and teacher guidance
- 2013
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Ingår i: Computer Assisted Language Learning. - : Informa UK Limited. - 0958-8221 .- 1744-3210. ; 26:5, s. 412-429
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Tidskriftsartikel (refereegranskat)abstract
- Digital tools are not always used in the manner their designers had in mind. Therefore, it is not enough to assume that learning through CALL tools occurs in intended ways, if at all. We have studied the use of an enhanced word processor for writing essays in Swedish as a second language. The word processor contained natural language processing technology to display linguistic information such as part of speech while students wrote their texts. We investigated how students' real classroom activity when using the tool corresponded to that which was planned by their teacher. Our contribution is on two levels: (1) a real-world analysis of occasionally problematic technology and (2) an elaboration on research methodology for conducting classroom studies within the sociocultural perspective. Our findings show that use of the tool varied greatly between sessions and that paying close attention to the near-future proficiencies of students is paramount. It is therefore important to account for novelty effects in CALL and to provide guidance to teachers concerning the use of such tools in their pedagogical context. We also suggest further elaborations of sociocultural theory and method in order to capture learners' classroom activities.
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| 7. |
- Kleberg, Johan Lundin, et al.
(författare)
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Autistic traits and symptoms of social anxiety are differentially related to attention to others' eyes in Social Anxiety Disorder
- 2017
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Ingår i: Journal of autism and developmental disorders. - : Springer Science and Business Media LLC. - 0162-3257 .- 1573-3432. ; 47:12, s. 3814-3821
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Tidskriftsartikel (refereegranskat)abstract
- Autism spectrum disorder (ASD) and social anxiety disorder (SAD) have partly overlapping symptoms. Gaze avoidance has been linked to both SAD and ASD, but little is known about differences in social attention between the two conditions. We studied eye movements in a group of treatment-seeking adolescents with SAD (N = 25), assessing SAD and ASD dimensionally. The results indicated a double dissociation between two measures of social attention and the two symptom dimensions. Controlling for social anxiety, elevated autistic traits were associated with delayed orienting to eyes presented among distractors. In contrast, elevated social anxiety levels were associated with faster orienting away from the eyes, when controlling for autistic traits. This distinction deepens our understanding of ASD and SAD.
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| 8. |
- Lundin Kleberg, Johan, et al.
(författare)
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Williams syndrome : reduced orienting to other's eyes in a hypersocial phenotype
- 2023
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Ingår i: Journal of autism and developmental disorders. - : Springer Nature. - 0162-3257 .- 1573-3432. ; 53:7, s. 2786-2797
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Tidskriftsartikel (refereegranskat)abstract
- Williams syndrome (WS) is a rare genetic condition associated with high sociability, intellectual disability, and social cognitive challenges. Attention to others' eyes is crucial for social understanding. Orienting to, and from other’s eyes was studied in WS (n = 37, mean age = 23, age range 9–53). The WS group was compared to a typically developing comparison participants (n = 167) in stratified age groups from infancy to adulthood. Typically developing children and adults were quicker and more likely to orient to eyes than the mouth. This bias was absent in WS. The WS group had reduced peak saccadic velocities, indicating hypo-arousal. The current study indicates reduced orienting to others’ eyes in WS, which may affect social interaction skills.
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| 9. |
- Lundin, Susanne, et al.
(författare)
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“With This Disease, You Take Whatever Chances There Are”—A Study on Socio-Cultural and Psychological Aspects of Experiments Regarding Huntington’s Disease
- 2016
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Ingår i: Open Journal of Medical Psychology. - : Scientific Research Publishing, Inc.. - 2165-9370 .- 2165-9389. ; 5, s. 72-72
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Tidskriftsartikel (refereegranskat)abstract
- Although relatively rare, Huntington’s disease (HD) has fatal consequences. There is no cure for the disease, which leads to an early death. Worldwide, scientists are trying to develop therapeutic methods that could cure the disease, including new molecular gene therapeutic methods. At Lund University, research on HD is now about to step from animal models to trials with humans. The project is special in its design since it involves both medical studies and socio-cultural and psychologi- cal research to explore and meet the many challenges that experimental trials with HD patients give rise to. The aim of the present study was to investigate the view- points of individuals affected by HD on the issues of participation and exerting in- fluence if taking part in a medical study on gene therapy that has not previously been tested on humans. A total of 16 participants, recruited through the national association for HD and through the neurological clinic at Lund University in Swe- den, took part in a focus group or in a survey study. A thematic analysis, to explore the transcribed text from the focus groups as well as from the written mail re- sponses, was conducted by means of Nvivo, a program for qualitative data analysis. Results showed three main themes expressing reasons for participation: participa- tion as a last resort, as an activity of hope, and as a way to take responsibility for the development of a cure that will benefit future generations. The responses relat- ing to the question about affected individuals’ view of exerting influence resulted in two themes. The first theme was having a voice when researchers design ex- periments, which may give a sense of receiving respect. The second was that influ- ence is an essential part of the information process before agreeing to take part in an experimental trail.
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