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Träfflista för sökning "WFRF:(Lundin Eva) ;hsvcat:6"

Sökning: WFRF:(Lundin Eva) > Humaniora

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1.
  • Wiszmeg, Andréa, et al. (författare)
  • Difficult Questions and Ambivalent Answers on Genetic Testing
  • 2012
  • Ingår i: Culture Unbound. Journal of Current Cultural Research. - : Linkoping University Electronic Press. - 2000-1525. ; 4, s. 463-480
  • Tidskriftsartikel (refereegranskat)abstract
    • A qualitative pilot study on the attitudes of some citizens in southern Sweden toward predictive genetic testing – and a quantitative nation wide opinion poll targeting the same issues, was initiated by the Cultural Scientific Research Team of BAGADILICO. The latter is an international biomedical research environment on neurological disease at Lund University. The data of the two studies crystallized through analysis into themes around which the informants’ personal negotiations of opinions and emotions in relation to the topic centred: Concept of Risk,‘Relations and Moral Multi-layers, Worry, Agency and Autonomy, Authority, and Rationality versus Emotion. The studies indicate that even groups of people that beforehand are non-engaged in the issue, harbour complex and ambivalent emotions and opinions toward questions like this. A certain kind of situation bound pragmatism that with difficulty could be shown by quantitative methods alone emerges. This confirms our belief that methodological consideration of combining quantitative and qualitative methods is crucial for gaining a more complex representation of attitudes, as well as for problematizing the idea of a unified public open to inquiry.
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2.
  • Lundin, Susanne, et al. (författare)
  • “With This Disease, You Take Whatever Chances There Are”—A Study on Socio-Cultural and Psychological Aspects of Experiments Regarding Huntington’s Disease
  • 2016
  • Ingår i: Open Journal of Medical Psychology. - : Scientific Research Publishing, Inc.. - 2165-9370 .- 2165-9389. ; 5, s. 72-72
  • Tidskriftsartikel (refereegranskat)abstract
    • Although relatively rare, Huntington’s disease (HD) has fatal consequences. There is no cure for the disease, which leads to an early death. Worldwide, scientists are trying to develop therapeutic methods that could cure the disease, including new molecular gene therapeutic methods. At Lund University, research on HD is now about to step from animal models to trials with humans. The project is special in its design since it involves both medical studies and socio-cultural and psychologi- cal research to explore and meet the many challenges that experimental trials with HD patients give rise to. The aim of the present study was to investigate the view- points of individuals affected by HD on the issues of participation and exerting in- fluence if taking part in a medical study on gene therapy that has not previously been tested on humans. A total of 16 participants, recruited through the national association for HD and through the neurological clinic at Lund University in Swe- den, took part in a focus group or in a survey study. A thematic analysis, to explore the transcribed text from the focus groups as well as from the written mail re- sponses, was conducted by means of Nvivo, a program for qualitative data analysis. Results showed three main themes expressing reasons for participation: participa- tion as a last resort, as an activity of hope, and as a way to take responsibility for the development of a cure that will benefit future generations. The responses relat- ing to the question about affected individuals’ view of exerting influence resulted in two themes. The first theme was having a voice when researchers design ex- periments, which may give a sense of receiving respect. The second was that influ- ence is an essential part of the information process before agreeing to take part in an experimental trail.
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3.
  • Petersen, Marsanna, et al. (författare)
  • Clinical experiments for Huntington's disease : Recommendations to medical researchers regarding how to inform potential participants
  • 2016
  • Annan publikation (övrigt vetenskapligt/konstnärligt)abstract
    • Huntington's disease (HD) is a severe, genetic brain disorder that causes great suffering and leads to an early death. The medical research team in the project Treatments of the Future at Lund University aims to develop a new molecular gene therapeutic method that will give the possibility to cure the disease. The authors’, social- and cultural scientists, mission is to develop recommendations for how information should be designed to potential research subjects in an experimental gene therapy study regarding HD. More specifically, to find and recommend a model that makes it possible for individuals who are affected by HD to decide if they want to participate as research subjects in the clinical trials within Treatments of the Future.
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  • Resultat 1-3 av 3

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