| 1. |
- Stiernman, Mia, et al.
(författare)
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Scores of the cleft hearing, appearance and speech questionnaire (CHASQ) in Swedish participants with cleft lip and/or cleft palate and a control population
- 2021
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Ingår i: The Cleft Palate-Craniofacial Journal. - Lawrence : SAGE Publications. - 1055-6656 .- 1545-1569. ; 58:3, s. 347-353
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: The primary aim of this study was to investigate whether there was any difference in scores of the Cleft Hearing, Appearance and Speech Questionnaire (CHASQ) between patients with cleft lip and/or cleft palate (CL/P) and a control population. The second aim was to compare CL/P and control population scores in this study with a British norm CL/P population.DESIGN: Single-site, cross-sectional study with an age-matched control population.SETTING: Participants were recruited from a hospital, a school, and a sports club. They answered the CHASQ in the hospital or at home.PARTICIPANTS: Sixty-four participants with CL/P (7-19 years of age) and a control population of 56 participants without CL/P (9-20 years of age).MAIN OUTCOME MEASURE: CHASQ.RESULTS: There was no statistically significant difference in satisfaction with cleft-related features between the CL/P and the control population. Participants with CL/P were significantly more satisfied with non-cleft-related features than the control population. Cleft Hearing, Appearance and Speech Questionnaire scores were also similar to earlier established British normative data of a CL/P population.CONCLUSION: The results indicated that children and young people with CL/P were as satisfied with their appearance, hearing, and speech as children and young people without CL/P. Swedish CHASQ scores were also similar to British scores.
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| 2. |
- Houkes, Ruben, et al.
(författare)
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Classification systems of cleft lip, alveolus and palate : results of an international survey
- 2021
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Ingår i: The Cleft Palate-Craniofacial Journal. - 1055-6656 .- 1545-1569. ; , s. 1-8
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Tidskriftsartikel (refereegranskat)abstract
- Objective: This study aimed to identify commonly used classification systems by cleft providers around the world, including the perceived indications and limitations of each system.Design: A cross-sectional survey.Participants: A total of 197 registrants from three international cleft/craniofacial meetings.Interventions: Participants were sent a web-based questionnaire concerning cleft classification systems.Main outcome measures: Frequency of commonly used classification systems, their perceived indications and limitations.Results: A total of 197 respondents from 166 different centers completed the questionnaire. Healthcare professionals from all disciplines responded, with the most frequent respondents being plastic surgeons (38.1%), maxillofacial surgeons (28.4%) and orthodontists (23.9%). Eighteen different classification systems were in use. The most frequently used systems were the International Statistical Classification of Diseases and Related Health Problems (ICD-10) (35.5%), LAHSHAL (34.0%), and Veau (32.5%) classification systems. Most respondents (32.5%) indicated that anatomical and morphological characteristics are essential components of a classification system. However, respondents indicated that their current classification systems lacked sufficient description of cleft extension and severity.Conclusions: Great variety in the use of classification systems exists among craniofacial specialists internationally. The results recommend the usage of the LAHSHAL classification of OFCs, due to its comprehensiveness, relatively high implementation rate globally, convenience of usage and complementarity with the ICD-10 system. Moreover, it can overcome deficiencies inextricably linked to ICD-10, such as incapacity to describe laterality and clefts of the alveolus. More international exposure to the merits of using the LAHSHAL classification system would be highly recommended.
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| 3. |
- Stiernman, Mia, et al.
(författare)
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Comparison of corresponding scores From the cleft hearing appearance and speech questionnaire (CHASQ) and CLEFT-Q in Swedish patients with cleft lip and/or palate
- 2020
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Ingår i: The Cleft Palate-Craniofacial Journal. - : SAGE Publications. - 1055-6656 .- 1545-1569.
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Tidskriftsartikel (refereegranskat)abstract
- OBJECTIVE: The primary aim of this study was to compare corresponding scores between 2 existing cleft-specific patient-reported outcome measures (PROMs)-Cleft Hearing Appearance and Speech Questionnaire (CHASQ) and CLEFT-Q. The second aim of the study was to investigate patient opinion on the 2 PROMs.DESIGN: Cross-sectional questionnaire study.SETTING: Participants were recruited from a University Hospital. They answered CHASQ and CLEFT-Q either in the hospital or at home.PARTICIPANTS: Thirty-three participants with cleft lip and/or palate, aged 10 to 19 years.MAIN OUTCOME MEASURE: CHASQ and CLEFT-Q.RESULTS: The CHASQ scores and the corresponding CLEFT-Q scores on appearance correlated significantly. Corresponding scores regarding speech did not correlate significantly. A majority, 15 (58%) participants, answered that they liked CLEFT-Q more than CHASQ, 18 participants (69%) thought CHASQ was easier to complete, and 19 (76%) thought CLEFT-Q would better inform health care professionals.CONCLUSION: Both instruments showed strengths and limitations. Clinicians will have to consider each instrument's respective qualities when choosing to implement either PROM.
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