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A population-based ...
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Kreicbergs, UlrikaKarolinska Institutet
(författare)
A population-based nationwide study of parents' perceptions of a questionnaire on their child's death due to cancer
- Artikel/kapitelEngelska2004
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LIBRIS-ID:oai:DiVA.org:esh-5084
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https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-5084URI
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https://doi.org/10.1016/S0140-6736(04)16939-0DOI
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http://kipublications.ki.se/Default.aspx?queryparsed=id:1930616URI
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Språk:engelska
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Sammanfattning på:engelska
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Ämneskategori:art swepub-publicationtype
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A proposed nationwide postal questionnaire to Swedish parents who had lost a child due to cancer between 1992 and 1997 was denied approval by the local ethics committee. However, a pilot study to assess the harm and benefit of the questionnaire was approved. 95% of parents found the pilot study valuable; thus, we were allowed to proceed with the main study, which consisted of 129 questions about the child's care and death and five about the parents' perceptions of the study. 423 (99%) parents found the investigation valuable, 285 (68%) were positively affected, and 123 (28%) were negatively affected (10 [2%] of whom, very much). Although the numerical data cannot be directly translated to ethical conclusions, they can provide guidance for future ethical decisions.
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Valdimarsdóttir, UnnurKarolinska Institutet
(författare)
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Steineck, GunnarKarolinska Institutet
(författare)
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Henter, Jan-IngeKarolinska Institutet
(författare)
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Karolinska Institutet
(creator_code:org_t)
Sammanhörande titlar
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Ingår i:The Lancet364:9436, s. 787-7890140-67361474-547X
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