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Young children's ex...
Young children's experiences of living an everyday life with cancer – A three year interview study
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- Darcy, Laura (författare)
- Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Faculty of Caring Science, Work Life and Social Welfare, University of Borås, Borås, Sweden
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- Enskär, Karin, 1962- (författare)
- Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD,Högskolan i Jönköping, HHJ, Avd. för omvårdnad
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- Björk, Maria (författare)
- Jönköping University,HHJ, Avdelningen för omvårdnad,HHJ. CHILD,Högskolan i Jönköping, HHJ, Avd. för omvårdnad
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(creator_code:org_t)
- Elsevier, 2019
- 2019
- Engelska.
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Ingår i: European Journal of Oncology Nursing. - : Elsevier. - 1462-3889 .- 1532-2122. ; 39, s. 1-9
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- PurposeThe young child's experiences of living with cancer are crucial to providing evidence based care. This study explores and describes experiences of everyday life of young children with cancer, over a three year period from diagnosis.Method This is a longitudinal, inductive interview study with young children with cancer, and their parents. Interviews from shortly after diagnosis, six and 12 months after diagnosis have been reanalysed. Interviews with the same children and their parents from 18 to 36 months after diagnosis have been analysed for the first time in the present paper. A longitudinal temporal analysis at category level for five synchronic data sets forms the basis for the results.Results The child living with cancer over a three year period is described as a child apart, striving to live an everyday life. This description is built on three categories: I want to be a child like any other, I need security and control and I feel lonely and left out. Young children with cancer actively strive to understand their illness, participate in care and live an ordinary everyday life- but with ongoing feelings of social isolation and loneliness.Conclusions Young children with cancer need access to and ongoing contact with peers and preschool. A structured follow-up throughout the cancer trajectory and not just during active treatment, is necessary. A child-centred philosophy of care would guide the child towards attainment of health and wellbeing.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Childhood cancer
- Everyday life
- Young child
- Longitudinal
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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