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Availability of inf...
Availability of information on young onset dementia for patients and carers in six European countries
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- Jones, Bridget (författare)
- England
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- Gage, Heather (författare)
- England
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- Bakker, Christian (författare)
- Holland
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- Barrios, Helena (författare)
- Portugal
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- Boucault, Sarah (författare)
- Frankrike
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- Mayer, Johannes (författare)
- Tyskland
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- Metcalfe, Anna (författare)
- Frankrike
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- Millenaar, Joany (författare)
- Holland
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- Parker, Wendy (författare)
- England
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- Wallin, Anneli Orrung (författare)
- Högskolan Kristianstad,Avdelningen för Sjuksköterskeutbildningarna
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(creator_code:org_t)
- 2018
- 2018
- Engelska.
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Ingår i: Patient Education and Counseling. - 0738-3991 .- 1873-5134. ; 101:1, s. 159-165
- Relaterad länk:
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http://epubs.surrey....
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https://doi.org/10.1...
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Abstract
Ämnesord
Stäng
- OBJECTIVES: To identify information available in six European countries (England, France, Germany, Netherlands, Portugal, Sweden) that addresses the specific needs of people with young onset dementia (YOD) and their carers, and identify gaps.METHODS: Search of websites of organisations with potential interest in dementia. Narrative synthesis and comparative analysis.RESULTS: 21 sources of information were identified (Netherlands 6, England 6, France 3, Germany 2, Portugal 2, Sweden 2); 11 were from voluntary sector organisations. Sources dedicated to YOD were limited (4 websites, 4 books); all other YOD information was sub-entries in generic dementia sources, difficult to locate and with limited coverage of relevant topics. Gaps related to implications of living with YOD in Germany, Portugal and Sweden.CONCLUSION: Availability of information varies among countries, some having no dedicated source and incomplete coverage of issues of importance to YOD.PRACTICAL IMPLICATIONS: Information is an important means of supporting carers; their needs change as the condition progresses. A comprehensive resource collating key information is needed so that the issues that differentiate the specific needs of people living with YOD from those of people with dementia in older age are available and easily located.
Ämnesord
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskaper (hsv//swe)
Nyckelord
- European countries
- Information
- Young onset dementia
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
- Av författaren/redakt...
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Jones, Bridget
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Gage, Heather
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Bakker, Christia ...
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Barrios, Helena
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Boucault, Sarah
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Mayer, Johannes
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visa fler...
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Metcalfe, Anna
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Millenaar, Joany
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Parker, Wendy
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Wallin, Anneli O ...
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visa färre...
- Om ämnet
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- MEDICIN OCH HÄLSOVETENSKAP
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MEDICIN OCH HÄLS ...
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och Hälsovetenskaper
- Artiklar i publikationen
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Patient Educatio ...
- Av lärosätet
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Högskolan Kristianstad