onr:"swepub:oai:DiVA.org:hv-11805"
Sökning: onr:"swepub:oai:DiVA.org:hv-11805" > Do not forget the p...
- 1 av 1
- Föregående post
- Nästa post
- Till träfflistan
- Bratt, Ewa-Lena,1970Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences (författare)
Do not forget the parents : Parents' concerns during transition to adult care for adolescents with congenital heart disease
- Artikel/kapitelEngelska2018
Förlag, utgivningsår, omfång ...
- 2017-10-05
- Wiley,2018
- printrdacarrier
Nummerbeteckningar
- LIBRIS-ID:oai:DiVA.org:hv-11805
- https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-11805URI
- https://doi.org/10.1111/cch.12529DOI
- https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-144930URI
- http://kipublications.ki.se/Default.aspx?queryparsed=id:137570320URI
- https://gup.ub.gu.se/publication/257501URI
Kompletterande språkuppgifter
- Språk:engelska
- Sammanfattning på:engelska
Ingår i deldatabas
- SwePubSwePub
Klassifikation
Anmärkningar
- First published: 5 October 2017Funders: The Swedish Children's Heart Association; Göteborg barnklinikers forskningsfond
- BACKGROUND: Growing up with congenital heart disease (CHD) often means transfer to adult care and lifelong medical follow-up. An optimal transition process usually involves a multipart collaboration between the patient, their parents and other family members, and the healthcare providers. Taking an active role while knowing when it is time to step aside can be difficult for all the concerned parties, even the healthcare professionals. The aim of the present study therefore, was to explore parents' expectations and needs during their adolescent's transition to adult care.METHOD: Semi-structured interviews were conducted with 18 parents of 16 adolescents (aged 13-18 years) with CHD in 4 pediatric cardiology settings in Sweden. The interviews were analysed with qualitative content analysis.RESULTS: The analysis resulted in 2 main themes: (a) Feeling secure-the importance of being prepared and informed. This theme focused on the need to be prepared and informed about transition and future transfer to adult care. (b) Recognizing when to hand over at the right time. This theme addressed the process of handing over the responsibility from the parent to the adolescents and contained handing over from pediatric care to adult care.CONCLUSION: Being prepared and informed about the upcoming transition process was essential. The parents underlined the importance of being involved in the transition planning for gradually handing over responsibility to the adolescent. They also considered establishing contact with the adult healthcare team before transfer as important and needed to be assured that CHD-related information of importance for the young person's daily life would be given.
Ämnesord och genrebeteckningar
- MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Omvårdnad hsv//swe
- MEDICAL AND HEALTH SCIENCES Health Sciences Nursing hsv//eng
- adolescence
- chronic (health) condition
- congenital heart disease
- parenting
- parents
- transition
- Vårdvetenskap
- Nursing science
Biuppslag (personer, institutioner, konferenser, titlar ...)
- Burström, ÅKarolinska Institutet (författare)
- Hanseus, KDepartment of Pediatric Cardiology, Skåne University Hospital, Lund, Sweden (författare)
- Rydberg, AnnikaUmeå universitet,Pediatrik,Umeå University, Department of Clinical Sciences, Pediatrics, Umeå, Sweden.(Swepub:umu)anry0014 (författare)
- Berghammer, Malin,1970-Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,Department of Pediatrics, The Queen Silvia Children's Hospital, Gothenburg, Sweden(Swepub:hv)malber (författare)
- Göteborgs universitetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)
Sammanhörande titlar
- Ingår i:Child Care Health and Development: Wiley44:2, s. 278-2840305-18621365-2214
Internetlänk
Hitta via bibliotek
- Child Care Health and Development (Sök värdpublikationen i LIBRIS)
Till lärosätets databas
- 1 av 1
- Föregående post
- Nästa post
- Till träfflistan
Hitta mer i SwePub
- Av författaren/redakt...
- Bratt, Ewa-Lena, ...
- Burström, Å
- Hanseus, K
- Rydberg, Annika
- Berghammer, Mali ...
- Om ämnet
-
- MEDICIN OCH HÄLSOVETENSKAP
- MEDICIN OCH HÄLS ...
- och Hälsovetenskap
- och Omvårdnad
- Artiklar i publikationen
- Child Care Healt ...
Sök utanför SwePub
- Sök vidare i:
- Google Book Search
- Google Scholar
Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.
- Copyright © LIBRIS - Nationella bibliotekssystem
- LIBRIS.kb.se
