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  • Lévesque, ValérieUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN) (författare)

Implantable Cardioverter-Defibrillators and Patient-Reported Outcomes in Adults with Congenital Heart Disease : an International Study

  • Artikel/kapitelEngelska2020

Förlag, utgivningsår, omfång ...

  • Elsevier BV,2020
  • printrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:hv-14752
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hv:diva-14752URI
  • https://doi.org/10.1016/j.hrthm.2019.11.026DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-171969URI
  • https://gup.ub.gu.se/publication/286419URI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Funders:Research Fund-KU Leuven (Leuven, Belgium) [OT/11/033];Cardiac Children's Foundation (Taiwan) [CCF2013_02]
  • Published on behalf of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD)
  • BACKGROUND: Implantable cardioverter-defibrillators (ICDs) are increasingly used to prevent sudden deaths in the growing population of adults with congenital heart disease (CHD). Yet, little is known about their impact on patient-reported outcomes (PROs).OBJECTIVE: We assessed and compared PROs in adults with CHD with and without ICDs.METHODS: A propensity-based matching weight analysis was conducted to evaluate PROs in an international cross-sectional study of adults with CHD from 15 countries across 5 continents.RESULTS: A total of 3,188 patients were included: 107 with ICDs and 3,081 weight-matched controls without ICDs. ICD recipients averaged 40.1±12.4 years of age, with >95% having moderate or complex CHD. Defibrillators were implanted for primary and secondary prevention in 38.3% and 61.7%, respectively. Perceived health status, psychological distress, sense of coherence, and health behaviours did not differ significantly in patients with and without ICDs. However, ICD recipients had a more threatening view of their illness (relative % difference 8.56, P=0.011). Those with secondary compared to primary prevention indications had a significantly lower quality of life score (linear analogue scale 72.0±23.1 versus 79.2±13.0, P=0.047). Marked geographic variations were observed. Overall sense of well-being, assessed by a summary score that combines various PROs, was significantly lower in ICD recipients (versus controls) from Switzerland, Argentina, Taiwan, and USA.CONCLUSIONS: In an international cohort of adults with CHD, ICDs were associated with a more threatening illness perception, with a lower quality of life in those with secondary compared to primary prevention indications. However, marked geographic variability in PROs was observed.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Laplante, LaurenceUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN),Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA) (författare)
  • Shohoudi, AzadehUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN) (författare)
  • Apers, SilkeKU Leuven Department of Public Health and Primary Care; University of Leuven, Leuven, Belgium (BEL) (författare)
  • Kovacs, Adrienne HKnight Cardiovascular Institute, Oregon Health & Science University, Portland, Oregon, USA (USA) (författare)
  • Luyckx, KoenKU Leuven - University of Leuven, School Psychology and Child and Adolescent Development,Leuven, Belgium BEL); University of the Free State, UNIBS, Bloemfontein, South Africa (ZAF) (författare)
  • Thomet, CorinaUniversity of Bern, Center for Congenital Heart Disease, Department of Cardiology, Inselspital, Bern University Hospital, Bern, Switzerland (CHE) (författare)
  • Budts, WernerDivision of Congenital and Structural Cardiology, University Hospitals Leuven, Leuven, Belgium (BEL); KU Leuven - University of Leuven, KU Leuven Department of Cardiovascular Sciences, Leuven, Belgium (BEL). (författare)
  • Enomoto, JunkoDepartment of Adult Congenital Heart Disease,Cardiovascular Center, Chiba, Chiba, Japan (JPN) (författare)
  • Sluman, Maayke ADepartment of Cardiology, Academic Medical Center, Amsterdam, The Netherlands (NLD); Department of Cardiology, Jeroen Bosch Hospital, Hertogenbosch, Amsterdam, the Netherlands (NLD) (författare)
  • Lu, Chun-WeiDepartment of Pediatrics, National Taiwan University Hospital, Taipei, Taiwan (TWN) (författare)
  • Jackson, Jamie LCenter for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA) (författare)
  • Cook, Stephen CAdult Congenital Heart Disease Center, Helen DeVos Children's Hospital, Grand Rapids, MI, USA (USA) (författare)
  • Chidambarathanu, ShanthiPediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), Chennai, India (IND) (författare)
  • Alday, LuisMonash University,Monash Medical Centre, Melbourne, Australia (AUS) (författare)
  • Eriksen, KatrineDepartment of Cardiology, Oslo University Hospital–Rikshospitalet, Oslo, Norway (NOR) (författare)
  • Dellborg, Mikael,1954Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för molekylär och klinisk medicin,Institute of Medicine, Department of Molecular and Clinical Medicine(Swepub:gu)xdelmi (författare)
  • Berghammer, Malin,1970-Gothenburg University,Göteborgs universitet,Högskolan Väst,Avdelningen för omvårdnad - avancerad nivå,University of Gothenburg, Centre for Person-Centred Care (GPCC), Sweden,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),University of Gothenburg Centre for person-centred care (GPCC)(Swepub:gu)xbmalq (författare)
  • Johansson, BengtUmeå universitet,Kardiologi,Umeå University, Department of Public Health and Clinical Medicine, Umeå, Sweden(Swepub:umu)bejo0003 (författare)
  • Mackie, Andrew SUniversity of Alberta, Division of Cardiology, Stollery Children's Hospital, Edmonton, Canada (CAN) (författare)
  • Menahem, SamuelMonash University, Monash Heart, Monash Medical Centre, Melbourne, Australia (AUS) (författare)
  • Caruana, MaryanneDepartment of Cardiology, Mater Dei Hospital, Birkirkara Bypass, Malta (MLT) (författare)
  • Veldtman, GruschenAdult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA (USA) (författare)
  • Soufi, AlexandraDepartment of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, Lyon, France (FRA) (författare)
  • Fernandes, Susan MDepartment of Pediatrics and Medicine, Palo Alto, California USA (USA) (författare)
  • White, Kamila SWashington University, Adult Congenital Heart Disease Center, USA (USA); University of Missouri, Barnes Jewish Heart & Vascular Center, Saint Louis, Missour USA (USA) (författare)
  • Callus, EdwardClinical Psychology Service, IRCCS Policlinico San Donato, Milan, Italy (ITA); Università degli Studi di Milano, Department of Biomedical Sciences for Health, Milan, Italy (ITA) (författare)
  • Kutty, ShelbyUniversity of Nebraska Medical Center, Adult Congenital Heart Disease Center, Children's Hospital and Medical Center, Omaha, NE, USA (USA) (författare)
  • Brouillette, JudithUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN) (författare)
  • Casteigt, BenjaminUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN) (författare)
  • Moons, Philip,1968Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences(Swepub:gu)xmooph (författare)
  • Khairy, PaulUniversité de Montréal, Montreal Heart Institute, Montreal, Canada (CAN) (författare)
  • Université de Montréal, Montreal Heart Institute, Montreal, Canada (CAN)Center for Biobehavioral Health, Nationwide Children's Hospital, Columbus, OH, USA (USA) (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:Heart Rhythm: Elsevier BV17:5, s. 768-7761547-52711556-3871

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