Sökning: onr:"swepub:oai:DiVA.org:liu-134993" > Pooling and expandi...
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000 | 09687naa a2201177 4500 | |
001 | oai:DiVA.org:liu-134993 | |
003 | SwePub | |
008 | 170306s2016 | |||||||||||000 ||eng| | |
024 | 7 | a https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-1349932 URI |
024 | 7 | a https://doi.org/10.1016/j.atherosclerosissup.2016.10.0012 DOI |
040 | a (SwePub)liu | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a ref2 swepub-contenttype |
072 | 7 | a art2 swepub-publicationtype |
100 | 1 | a Vallejo-Vaz, Antonio J.u Imperial Coll London, England4 aut |
245 | 1 0 | a Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration |
264 | 1 | b ELSEVIER IRELAND LTD,c 2016 |
338 | a electronic2 rdacarrier | |
500 | a Funding Agencies|Pfizer Independent Grant for Learning Change [16157823]; Amgen; MSD; Sanofi-Aventis; Latvian State Research Programme BIOMEDICINE; Czech Republic [MZ CR AZV 15-28277A, 16-29084A] | |
520 | a Background: The potential for global collaborations to better inform public health policy regarding major non-hypercholesterolaemia (FH), a common genetic disorder associated with premature cardiovascular disease, is yet to be reliably ascertained using similar approaches. The European Atherosclerosis Society FH Studies Collaboration (EAS FHSC) is a new initiative of international stakeholders which will help establish a global FH registry to generate large-scale, robust data on the burden of FH worldwide. Methods: The EAS FHSC will maximise the potential exploitation of currently available and future FH data (retrospective and prospective) by bringing together regional/national/international data sources with access to individuals with a clinical and/or genetic diagnosis of heterozygous or homozygous FH. A novel bespoke electronic platform and FH Data Warehouse will be developed to allow secure data sharing, validation, cleaning, pooling, harmonisation and analysis irrespective of the source or format. Standard statistical procedures will allow us to investigate cross-sectional associations, patterns of real-world practice, trends over time, and analyse risk and outcomes (e.g. cardiovascular outcomes, all-cause death), accounting for potential confounders and subgroup effects. Conclusions: The EAS FHSC represents an excellent opportunity to integrate individual efforts across the world to tackle the global burden of FH. The information garnered from the registry will help reduce gaps in knowledge, inform best practices, assist in clinical trials design, support clinical guidelines and policies development, and ultimately improve the care of FH patients. (C) 2016 Elsevier Ireland Ltd. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Kardiologi0 (SwePub)302062 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cardiac and Cardiovascular Systems0 (SwePub)302062 hsv//eng |
653 | a Familial hypercholesterolaemia; LDL-Cholesterol; Cardiovascular disease; Registry; Study design; Familial Hypercholesterolaemia Studies Collaboration | |
700 | 1 | a Akram, Asifu Imperial Coll London, England; Nanyang Technology University, Singapore4 aut |
700 | 1 | a Rao Kondapally Seshasai, Sreenivasau St Georges University of London, England4 aut |
700 | 1 | a Cole, Dellau St Georges University of London, England4 aut |
700 | 1 | a Watts, Gerald F.u University of Western Australia, Australia4 aut |
700 | 1 | a Kees Hovingh, G.u Academic Medical Centre, Netherlands4 aut |
700 | 1 | a Kastelein, John J. P.u Academic Medical Centre, Netherlands4 aut |
700 | 1 | a Mata, Pedrou Fdn Hipercolesterolemia Familiar, Spain4 aut |
700 | 1 | a Raal, Frederick J.u University of Witwatersrand, South Africa4 aut |
700 | 1 | a Santos, Raul D.u University of Sao Paulo, Brazil4 aut |
700 | 1 | a Soran, Handreanu Central Manchester University Hospital, England4 aut |
700 | 1 | a Freiberger, Tomasu Centre Cardiovasc Surg and Transplantat, Czech Republic; Masaryk University, Czech Republic4 aut |
700 | 1 | a Abifadel, Marianneu St Joseph University, Lebanon4 aut |
700 | 1 | a Aguilar-Salinas, Carlos A.u Institute Nacl Ciencias Medical and Nutr Salvador Zubiran, Mexico4 aut |
700 | 1 | a Alnouri, Fahadu Prince Sultan Cardiac Centre Riyadh, Saudi Arabia4 aut |
700 | 1 | a Alonso, Rodrigou Clin Las Condes, Chile4 aut |
700 | 1 | a Al-Rasadi, Khalidu Sultan Qaboos University Hospital, Oman4 aut |
700 | 1 | a Banach, Macieju Medical University of Lodz, Poland4 aut |
700 | 1 | a Bogsrud, Martin P.u Oslo University Hospital, Norway4 aut |
700 | 1 | a Bourbon, Mafaldau University of Lisbon, Portugal; University of Lisbon, Portugal4 aut |
700 | 1 | a Bruckert, Ericu Hop La Pitie Salpetriere, France4 aut |
700 | 1 | a Car, Josipu Imperial Coll London, England; Nanyang Technology University, Singapore4 aut |
700 | 1 | a Ceska, Richardu Charles University of Prague, Czech Republic4 aut |
700 | 1 | a Corral, Pablou FASTA University, Argentina4 aut |
700 | 1 | a Descamps, Olivieru Centre Hospital Jolimont, Belgium4 aut |
700 | 1 | a Dieplinger, Hansu Medical University of Innsbruck, Austria4 aut |
700 | 1 | a Do, Can T.u Bach Mai Hospital, Vietnam4 aut |
700 | 1 | a Durst, Ronenu Hadassah Hebrew University, Israel4 aut |
700 | 1 | a Ezhov, Marat V.u Russian Cardiol Research and Prod Centre, Russia4 aut |
700 | 1 | a Fras, Zlatkou University of Medical Centre Ljubljana, Slovenia; University of Ljubljana, Slovenia4 aut |
700 | 1 | a Gaita, Danu University of Medical and Farm Victor Babes Timisoara, Romania4 aut |
700 | 1 | a Gaspar, Isabel M.u University of Lisbon, Portugal4 aut |
700 | 1 | a Genest, Jaquesu McGill University, Canada4 aut |
700 | 1 | a Harada-Shiba, Marikou National Cerebral and Cardiovasc Centre, Japan4 aut |
700 | 1 | a Jiang, Lixinu Fuwai Hospital, Peoples R China4 aut |
700 | 1 | a Kayikcioglu, Meralu Ege University, Turkey4 aut |
700 | 1 | a Lam, Carolyn S. P.u National Heart Centre Singapore, Singapore; Duke National University of Singapore, Singapore4 aut |
700 | 1 | a Latkovskis, Gustavsu University of Latvia, Latvia4 aut |
700 | 1 | a Laufs, Ulrichu University of Saarland, Germany4 aut |
700 | 1 | a Liberopoulos, Evangelosu University of Ioannina, Greece4 aut |
700 | 1 | a Lin, Jieu Capital Medical University, Peoples R China4 aut |
700 | 1 | a Lin, Nanu Imperial Coll London, England4 aut |
700 | 1 | a Maher, Vincentu Tallaght Hospital, Ireland4 aut |
700 | 1 | a Majano, Nelsonu Hospital Mil Caracas, Venezuela4 aut |
700 | 1 | a David Marais, A.u University of Cape Town, South Africa; National Health Lab Serv, South Africa4 aut |
700 | 1 | a Maerz, Winfriedu Heidelberg University, Germany4 aut |
700 | 1 | a Mirrakhimov, Erkinu Kyrgyz State Medical Acad, Kyrgyzstan4 aut |
700 | 1 | a Miserez, Andre R.u Diagene GmbH, Switzerland; University of Basel, Switzerland4 aut |
700 | 1 | a Mitchenko, Olenau Institute Cardiol AMS Ukraine, Ukraine; University of Teknol MARA, Malaysia4 aut |
700 | 1 | a Nawawi, Hapizahu Institute Pathol Lab and Forens Medical I PPerForM, Malaysia4 aut |
700 | 1 | a Nilsson, Lennartu Linköpings universitet,Avdelningen för kardiovaskulär medicin,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US4 aut0 (Swepub:liu)lenni29 |
700 | 1 | a Nordestgaard, Borge G.u University of Copenhagen, Denmark4 aut |
700 | 1 | a Paragh, Gyorgyu University of Debrecen, Hungary4 aut |
700 | 1 | a Petrulioniene, Zanetau Vilnius University, Lithuania4 aut |
700 | 1 | a Pojskic, Belmau Cantonal Hospital, Bosnia and Herceg4 aut |
700 | 1 | a Reiner, Zeljkou University of Zagreb, Croatia4 aut |
700 | 1 | a Sahebkar, Amirhosseinu Mashhad University of Medical Science, Iran4 aut |
700 | 1 | a Santos, Lourdes E.u University of Philippines, Philippines4 aut |
700 | 1 | a Schunkert, Heribertu Technical University of Munich, Germany4 aut |
700 | 1 | a Shehab, Abdullahu UAE University, U Arab Emirates4 aut |
700 | 1 | a Naceur Slimane, M.u Fac Medical Monastir, Tunisia4 aut |
700 | 1 | a Stoll, Mariou Cardiovasc Health Commiss, Uruguay4 aut |
700 | 1 | a Su, Ta-Chenu National Taiwan University Hospital, Taiwan; National Taiwan University Hospital, Taiwan4 aut |
700 | 1 | a Susekov, Andreyu Russian Medical Academic Postgrad Educ, Russia4 aut |
700 | 1 | a Tilney, Myrau University of Malta, Malta4 aut |
700 | 1 | a Tomlinson, Brianu Chinese University of Hong Kong, Peoples R China4 aut |
700 | 1 | a Tselepis, Alexandros D.u University of Ioannina, Greece4 aut |
700 | 1 | a Vohnout, Branislavu Comenius University, Slovakia4 aut |
700 | 1 | a Widen, Elisabethu University of Helsinki, Finland4 aut |
700 | 1 | a Yamashita, Shizuyau Rinku Gen Medical Centre, Japan; Osaka University, Japan4 aut |
700 | 1 | a Catapano, Alberico L.u University of Milan, Italy; Multimed IRCCS, Italy4 aut |
700 | 1 | a Ray, Kausik K.u Imperial Coll London, England4 aut |
710 | 2 | a Imperial Coll London, Englandb Imperial Coll London, England; Nanyang Technology University, Singapore4 org |
773 | 0 | t Atherosclerosis Supplementsd : ELSEVIER IRELAND LTDg 22q 22x 1567-5688x 1878-5050 |
856 | 4 | u https://liu.diva-portal.org/smash/get/diva2:1078793/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print |
856 | 4 | u https://doi.org/10.1016/j.atherosclerosissup.2016.10.001 |
856 | 4 8 | u https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-134993 |
856 | 4 8 | u https://doi.org/10.1016/j.atherosclerosissup.2016.10.001 |
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