Sökning: onr:"swepub:oai:DiVA.org:liu-152076" > Overview of the cur...
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000 | 10705naa a2201321 4500 | |
001 | oai:DiVA.org:liu-152076 | |
003 | SwePub | |
008 | 181024s2018 | |||||||||||000 ||eng| | |
024 | 7 | a https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-1520762 URI |
024 | 7 | a https://doi.org/10.1016/j.atherosclerosis.2018.08.0512 DOI |
040 | a (SwePub)liu | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a ref2 swepub-contenttype |
072 | 7 | a art2 swepub-publicationtype |
100 | 1 | a Vallejo-Vaz, Antonio J.u Imperial Coll London, England4 aut |
245 | 1 0 | a Overview of the current status of familial hypercholesterolaemia care in over 60 countries - The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC) |
264 | 1 | b ELSEVIER IRELAND LTD,c 2018 |
338 | a print2 rdacarrier | |
500 | a Funding Agencies|Pfizer Independent Grant for Learning Change 2014 [16157823]; Amgen; MSD; Sanofi-Aventis | |
520 | a Background and aims: Management of familial hypercholesterolaemia (FH) may vary across different settings due to factors related to population characteristics, practice, resources and/or policies. We conducted a survey among the worldwide network of EAS FHSC Lead Investigators to provide an overview of FH status in different countries. Methods: Lead Investigators from countries formally involved in the EAS FHSC by mid-May 2018 were invited to provide a brief report on FH status in their countries, including available information, programmes, initiatives, and management. Results: 63 countries provided reports. Data on FH prevalence are lacking in most countries. Where available, data tend to align with recent estimates, suggesting a higher frequency than that traditionally considered. Low rates of FH detection are reported across all regions. National registries and education programmes to improve FH awareness/knowledge are a recognised priority, but funding is often lacking. In most countries, diagnosis primarily relies on the Dutch Lipid Clinics Network criteria. Although available in many countries, genetic testing is not widely implemented (frequent cost issues). There are only a few national official government programmes for FH. Under-treatment is an issue. FH therapy is not universally reimbursed. PCSK9-inhibitors are available in similar to 2/3 countries. Lipoprotein-apheresis is offered in similar to 60% countries, although access is limited. Conclusions: FH is a recognised public health concern. Management varies widely across countries, with overall suboptimal identification and under-treatment. Efforts and initiatives to improve FH knowledge and management are underway, including development of national registries, but support, particularly from health authorities, and better funding are greatly needed. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng |
653 | a Familial hypercholesterolaemia; Primary dyslipidaemia; FHSC | |
700 | 1 | a De Marco, Martinau Imperial Coll London, England4 aut |
700 | 1 | a Stevens, Christophe A. T.u Imperial Coll London, England4 aut |
700 | 1 | a Akram, Asifu Living Goods, Kenya4 aut |
700 | 1 | a Freiberger, Tomasu Ctr Cardiovasc Surg and Transplantat, Czech Republic; Masaryk Univ, Czech Republic4 aut |
700 | 1 | a Hovingh, G. Keesu Acad Med Ctr, Netherlands4 aut |
700 | 1 | a Kastelein, John J. P.u Acad Med Ctr, Netherlands4 aut |
700 | 1 | a Mata, Pedrou Fdn Hipercolesterolemia Familiar, Spain4 aut |
700 | 1 | a Raal, Frederick J.u Univ Witwatersrand, South Africa4 aut |
700 | 1 | a Santos, Raul D.u Univ Sao Paulo, Brazil; Hosp Israelita Albert Einstein, Brazil4 aut |
700 | 1 | a Soran, Handreanu Manchester Univ Hosp NHS Fdn Trust, England4 aut |
700 | 1 | a Watts, Gerald F.u Univ Western Australia, Australia; Royal Perth Hosp, Australia; FH Australasia Network FHAN, Australia4 aut |
700 | 1 | a Abifadel, Marianneu St Joseph Univ, Lebanon4 aut |
700 | 1 | a Aguilar-Salinas, Carlos A.u Inst Nacl Ciencias Med and Nutr Salvador Zubiran, Mexico4 aut |
700 | 1 | a Al-Khnifsawi, Mutazu Al Qadisiyah Univ, Iraq4 aut |
700 | 1 | a AlKindi, Fahad A.u Hamad Med Corp, Qatar4 aut |
700 | 1 | a Alnouri, Fahadu Prince Sultan Cardiac Ctr Riyadh, Saudi Arabia4 aut |
700 | 1 | a Alonso, Rodrigou Clin Las Condes, Chile4 aut |
700 | 1 | a Al-Rasadi, Khalidu Sultan Qaboos Univ Hosp, Oman4 aut |
700 | 1 | a Al-Sarraf, Ahmadu Kuwait Canc Control Ctr, Kuwait4 aut |
700 | 1 | a Ashavaid, Tester F.u PD Hinduja Natl Hosp and Med Res Ctr, India4 aut |
700 | 1 | a Binder, Christoph J.u Med Univ Vienna, Austria4 aut |
700 | 1 | a Bogsrud, Martin P.u Oslo Univ Hosp, Norway; Oslo Univ Hosp, Norway4 aut |
700 | 1 | a Bourbon, Mafaldau Inst Nacl Saude Doutor Ricardo Jorge, Portugal; Univ Lisbon, Portugal4 aut |
700 | 1 | a Bruckert, Ericu Hop La Pitie Salpetriere, France; Hop La Pitie Salpetriere, France4 aut |
700 | 1 | a Chlebus, Krzysztofu Med Univ Gdansk, Poland; Univ Clin Ctr, Poland4 aut |
700 | 1 | a Corral, Pablou FASTA Univ, Argentina4 aut |
700 | 1 | a Descamps, Olivieru Ctr Hosp Jolimont, Belgium4 aut |
700 | 1 | a Durst, Ronenu Hadassah Hebrew Univ Med Ctr, Israel; Hadassah Hebrew Univ Med Ctr, Israel4 aut |
700 | 1 | a Ezhov, Maratu Minist Hlth Russian Federat, Russia4 aut |
700 | 1 | a Fras, Zlatkou Univ Med Ctr Ljubljana, Slovenia; Univ Ljubljana, Slovenia4 aut |
700 | 1 | a Genest, Jacquesu McGill Univ, Canada4 aut |
700 | 1 | a Groselj, Urhu Univ Med Ctr Ljubljana, Slovenia4 aut |
700 | 1 | a Harada-Shiba, Marikou Natl Cerebral and Cardiovasc Ctr, Japan4 aut |
700 | 1 | a Kayikcioglu, Meralu Ege Univ, Turkey4 aut |
700 | 1 | a Lalic, Katarinau Univ Belgrade, Serbia; Clin Ctr Serbia, Serbia4 aut |
700 | 1 | a Lam, Carolyn S. P.u Natl Heart Ctr, Singapore; Duke NUS Med Sch, Singapore4 aut |
700 | 1 | a Latkovskis, Gustavsu Univ Latvia, Latvia4 aut |
700 | 1 | a Laufs, Ulrichu Univ Klinikum Leipzig, Germany4 aut |
700 | 1 | a Liberopoulos, Evangelosu Univ Ioannina, Greece4 aut |
700 | 1 | a Lin, Jieu Capital Med Univ, Peoples R China4 aut |
700 | 1 | a Maher, Vincentu Adv Lipid Management and Res ALMAR Ctr, Ireland4 aut |
700 | 1 | a Majano, Nelsonu Hosp Mil Caracas, Venezuela4 aut |
700 | 1 | a Marais, A. Davidu Univ Cape Town, South Africa; Natl Hlth Lab Serv, South Africa4 aut |
700 | 1 | a Maerz, Winfriedu Heidelberg Univ, Germany; Med Univ Graz, Austria; Synlab Holding Deutschland GmbH, Germany; Synlab Holding Deutschland GmbH, Germany; D A CH Gesell Pravent Herz Kreislauf Erkrankungen, Germany4 aut |
700 | 1 | a Mirrakhimov, Erkinu Kyrgyz State Med Acad, Kyrgyzstan4 aut |
700 | 1 | a Miserez, Andre R.u Swiss FH Ctr, Switzerland; Univ Basel, Switzerland4 aut |
700 | 1 | a Mitchenko, Olenau Natl Acad Med Sci Ukraine, Ukraine4 aut |
700 | 1 | a Nawawi, Hapizah M.u Inst Pathol Lab and Forens Med I PPerForM, Malaysia; Univ Teknol Malaysia, Malaysia4 aut |
700 | 1 | a Nordestgaard, Borge G.u Copenhagen Univ Hosp, Denmark; Copenhagen Univ Hosp, Denmark; Univ Copenhagen, Denmark4 aut |
700 | 1 | a Paragh, Gyorgyu Univ Debrecen, Hungary4 aut |
700 | 1 | a Petrulioniene, Zanetau Vilnius Univ, Lithuania; Vilnius Univ Hosp Santaros Klin, Lithuania4 aut |
700 | 1 | a Pojskic, Belmau Cantonal Hosp Zenica, Bosnia and Herceg4 aut |
700 | 1 | a Postadzhiyan, Armanu Med Univ Sofia, Bulgaria4 aut |
700 | 1 | a Reda, Ashrafu Menoufia Univ, Egypt; Egyptian Assoc Vernacular Biol and Atherosclerosis, Egypt4 aut |
700 | 1 | a Reiner, Zeljkou Univ Zagreb, Croatia4 aut |
700 | 1 | a Sadoh, Wilson E.u Univ Benin, Nigeria4 aut |
700 | 1 | a Sahebkar, Amirhosseinu Mashhad Univ Med Sci, Iran; Mashhad Univ Med Sci, Iran; Mashhad Univ Med Sci, Iran4 aut |
700 | 1 | a Shehab, Abdullahu United Arab Emirates Univ, U Arab Emirates4 aut |
700 | 1 | a Shek, Aleksander B.u Minist Hlth Republ Uzbekistan, Uzbekistan4 aut |
700 | 1 | a Stoll, Mariou Honorary Commiss Cardiovasc Hlth CHSCV, Uruguay4 aut |
700 | 1 | a Su, Ta-Chenu Natl Taiwan Univ Hosp, Taiwan4 aut |
700 | 1 | a Subramaniam, Tavintharanu Admiralty Med Ctr, Singapore; Khoo Teck Puat Hosp, Singapore; Khoo Teck Puat Hosp, Singapore4 aut |
700 | 1 | a Susekov, Andrey V.u Acad Postgrad Med Educ, Russia; Acad Med Sci, Russia4 aut |
700 | 1 | a Symeonides, Phivosu Hippocrateon Private Hosp, Cyprus4 aut |
700 | 1 | a Tilney, Myrau Univ Malta, Malta; Mater Dei Hosp, Malta4 aut |
700 | 1 | a Tomlinson, Brianu Chinese Univ Hong Kong, Peoples R China4 aut |
700 | 1 | a Thanh-Huong, Truongu Hanoi Med Univ, Vietnam; Bach Mai Hosp, Vietnam4 aut |
700 | 1 | a Tselepis, Alexandros D.u Univ Ioannina, Greece4 aut |
700 | 1 | a Tybjaerg-Hansenb, Anneu Copenhagen Univ Hosp, Denmark; Copenhagen Univ Hosp, Denmark; Univ Copenhagen, Denmark; Copenhagen Univ Hosp, Denmark4 aut |
700 | 1 | a Vazquez-Cardenas, Alejandrau Univ Autonoma Guadalajara, Mexico4 aut |
700 | 1 | a Viigimaa, Margusu Tallinn Univ Technol, Estonia4 aut |
700 | 1 | a Vohnout, Branislavu Slovak Med Univ, Slovakia4 aut |
700 | 1 | a Widen, Elisabethu Univ Helsinki, Finland4 aut |
700 | 1 | a Yamashita, Shizuyau Rinku Gen Med Ctr, Japan; Osaka Univ, Japan4 aut |
700 | 1 | a Banach, Macieju Med Univ Lodz, Poland4 aut |
700 | 1 | a Gaita, Danu Univ Med and Farm Victor Babes Timisoara, Romania4 aut |
700 | 1 | a Jiang, Lixinu Natl Ctr Cardiovasc Dis, Peoples R China4 aut |
700 | 1 | a Nilsson, Lennartu Linköpings universitet,Avdelningen för kardiovaskulär medicin,Medicinska fakulteten,Region Östergötland, Kardiologiska kliniken US4 aut0 (Swepub:liu)lenni29 |
700 | 1 | a Santos, Lourdes E.u Univ Philippines, Philippines4 aut |
700 | 1 | a Schunkert, Heribertu Tech Univ Munich, Germany4 aut |
700 | 1 | a Tokgozoglu, Laleu Hacettepe Univ, Turkey4 aut |
700 | 1 | a Car, Josipu Imperial Coll London, England; Nanyang Technol Univ, Singapore4 aut |
700 | 1 | a Catapano, Alberico L.u Univ Milan, Italy; IRCCS MultiMed, Italy4 aut |
700 | 1 | a Ray, Kausik K.u Imperial Coll London, England4 aut |
710 | 2 | a Imperial Coll London, Englandb Living Goods, Kenya4 org |
773 | 0 | t Atherosclerosisd : ELSEVIER IRELAND LTDg 277, s. 234-255q 277<234-255x 0021-9150x 1879-1484 |
856 | 4 | u http://www.atherosclerosis-journal.com/article/S0021915018313595/pdf |
856 | 4 8 | u https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-152076 |
856 | 4 8 | u https://doi.org/10.1016/j.atherosclerosis.2018.08.051 |
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