SwePub
Sök i LIBRIS databas

  Utökad sökning

onr:"swepub:oai:DiVA.org:liu-156390"
 

Sökning: onr:"swepub:oai:DiVA.org:liu-156390" > What is important t...

  • Harding, Andrew J. E.Univ Lancaster, England (författare)

What is important to people living with dementia?: the "long-list of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions

  • Artikel/kapitelEngelska2019

Förlag, utgivningsår, omfång ...

  • 2019-03-27
  • BMC,2019
  • electronicrdacarrier

Nummerbeteckningar

  • LIBRIS-ID:oai:DiVA.org:liu-156390
  • https://urn.kb.se/resolve?urn=urn:nbn:se:liu:diva-156390URI
  • https://doi.org/10.1186/s12877-019-1103-5DOI

Kompletterande språkuppgifter

  • Språk:engelska
  • Sammanfattning på:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Funding Agencies|Economic and Social Research Council (ESRC); National Institute for Health Research (NIHR) [ES/L001772/1]
  • BackgroundCore outcome sets (COS) prioritise outcomes based on their importance to key stakeholders, reduce reporting bias and increase comparability across studies. The first phase of a COS study is to form a long-list of outcomes. Key stakeholders then decide on their importance. COS reporting is described as suboptimal and this first phase is often under-reported. Our objective was to develop a long-list of outcome items for non-pharmacological interventions for people with dementia living at home.MethodsThree iterative phases were conducted. First, people living with dementia, care partners, health and social care professionals, policymakers and researchers (n=55) took part in interviews or focus groups and were asked which outcomes were important. Second, existing dementia trials were identified from the ALOIS database. 248 of 1009 pharmacological studies met the inclusion criteria. Primary and secondary outcomes were extracted from a 50% random sample (n=124) along with eight key reviews/qualitative papers and 38 policy documents. Third, extracted outcome items were translated onto an existing qualitative framework and mapped into domains. The research team removed areas of duplication and refined the long-list in eight workshops.ResultsOne hundred seventy outcome items were extracted from the qualitative data and literature. The 170 outcome items were consolidated to 54 in four domains (Self-Managing Dementia Symptoms, Quality of Life, Friendly Neighbourhood amp; Home, Independence).ConclusionsThis paper presents a transparent blueprint for long-list development. Though a useful resource in their own right, the 54 outcome items will be distilled further in a modified Delphi survey and consensus meeting to identify core outcomes.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Morbey, HazelUniv Lancaster, England (författare)
  • Ahmed, FarazUniv Lancaster, England (författare)
  • Opdebeeck, CarolManchester Metropolitan Univ, England (författare)
  • Lasrado, ReenaUniv Manchester, England (författare)
  • Williamson, Paula R.Univ Liverpool, England; Med Res Council North West Hub Trials Methodol Re, England (författare)
  • Swarbrick, CarolineUniv Manchester, England (författare)
  • Leroi, IracemaUniv Manchester, England (författare)
  • Challis, DavidUniv Manchester, England (författare)
  • Hellström, IngridLinköpings universitet,Avdelningen för omvårdnad,Medicinska fakulteten(Swepub:liu)inghe59 (författare)
  • Burns, AlistairUniv Manchester, England (författare)
  • Keady, JohnUniv Manchester, England; Greater Manchester Mental Hlth NHS Fdn Trust, England (författare)
  • Reilly, Siobhan T.Univ Lancaster, England (författare)
  • Univ Lancaster, EnglandManchester Metropolitan Univ, England (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:BMC Geriatrics: BMC191471-2318

Internetlänk

Hitta via bibliotek

Till lärosätets databas

Kungliga biblioteket hanterar dina personuppgifter i enlighet med EU:s dataskyddsförordning (2018), GDPR. Läs mer om hur det funkar här.
Så här hanterar KB dina uppgifter vid användning av denna tjänst.

 
pil uppåt Stäng

Kopiera och spara länken för att återkomma till aktuell vy