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What Information Do...
What Information Do Cancer Genetic Counselees Prioritize?
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- Hayat Roshanai, Afsaneh (författare)
- Uppsala universitet,Vårdvetenskap,BMC, Sweden Uppsala University, Sweden
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- Lampic, Claudia (författare)
- Karolinska Institutet,Uppsala universitet,Vårdvetenskap,Karolinska Institute, Sweden Uppsala University, Sweden
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- Ingvoldstad, Charlotta (författare)
- Uppsala universitet,Vårdvetenskap,Uppsala University, Sweden
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- Stenmark-Askmalm, Marie (författare)
- Östergötlands Läns Landsting,Linköpings universitet,Onkologi,Hälsouniversitetet,Klinisk patologi och klinisk genetik
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- Bjorvatn, Chathrine (författare)
- University of Bergen, Norway
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- Rosenquist, Richard (författare)
- Uppsala universitet,Hematologi och immunologi,Uppsala University, Sweden
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- Nordin, Karin (författare)
- Uppsala universitet,Vårdvetenskap,Centrum för forsknings- och bioetik,University of Bergen, Norway Uppsala University, Sweden
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(creator_code:org_t)
- 2011-10-13
- 2012
- Engelska.
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Ingår i: Journal of Genetic Counseling. - : Springer Verlag (Germany). - 1059-7700 .- 1573-3599. ; 21:4, s. 510-526
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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http://kipublication...
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Abstract
Ämnesord
Stäng
- This study explored the informational needs of individuals attending genetic counseling for hereditary cancer, using a free-choice and a forced choice method. Prior to the consultation the informational needs of 334 counselees from Sweden and Norway were assessed by the QUOTE-gene (ca) questionnaire and by a study specific forced choice method, using Q-methodology. Questionnaire responses indicated that counselees major concerns pertained to the need to be taken seriously, to be provided with sufficient risk estimation and medical/genetic information and to be involved in the decision making process. Furthermore, prior to counseling, counselees noted that the counselors consideration and skillfulness were also extremely important. Analysis of the Q-sorting results revealed that counselees needs could be assigned to one of five groups: the "need for facts; caring communication and medical information; information and support in communicating the genetic information to others; practical care and practical/medical information". Particularly noteworthy, counselees with varying backgrounds characteristics prioritized different needs. Cancer genetic counselees probably have different needs due to their medical and demographic background when attending genetic counseling. Addressing counselees specific concerns more sufficiently and thereby increasing the overall effectiveness of the counseling session requires increased insight into individual needs, by for instance, utilizing screening methods such as QUOTE-gene (ca) prior to the counseling session.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reproduktionsmedicin och gynekologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Obstetrics, Gynaecology and Reproductive Medicine (hsv//eng)
Nyckelord
- Hereditary cancer; Informational needs; QUOTE-gene (ca); Q-sorting; genetic counseling
- MEDICINE
- MEDICIN
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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