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What matters in car...
What matters in care continuity on the chronic care trajectory for patients and family carers?—A conceptual model
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- Ljungholm, Linda (författare)
- Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden
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- Klinga, Charlotte (författare)
- Karolinska Institutet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden; Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden
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- Edin-Liljegren, Anette, 1958- (författare)
- Umeå universitet,Institutionen för omvårdnad,Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden,Karolinska Institutet, Sweden;Umeå University, Sweden
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- Ekstedt, Mirjam, Professor (författare)
- Karolinska Institutet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Hållbar hälsa,Department of Health and Caring Sciences, Linnaeus University Kalmar, Kalmar, Sweden; Department of Learning, Informatics, Management and Ethics (LIME), Karolinska Institutet, Stockholm, Sweden,Reaction
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(creator_code:org_t)
- 2021-08-05
- 2022
- Engelska.
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Ingår i: Journal of Clinical Nursing. - : John Wiley & Sons. - 0962-1067 .- 1365-2702. ; 31:9-10, s. 1327-1338
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Abstract
Ämnesord
Stäng
- Abstract Aims and ObjectivesTo describe essential aspects of care continuity from the perspectives of persons with complex care needs and their family carers.BackgroundContinuity of care is an important aspect of quality, safety and efficiency. For people with multiple chronic diseases and complex care needs, care must be experienced as connected and coherent, and consistent with medical and individual needs. The more complex the need for care, the greater the need for continuity across different competencies, services and roles.DesignA constructivist grounded theory approach was applied.MethodsSixteen patients with one or more chronic diseases needing both health care and social care, living in their private homes, and twelve family carers, were recruited. Semi-structured interviews were conducted and analysed with constructivist grounded theory. The COREQ checklist was followed.ResultsA conceptual model of care continuity was constructed, consisting of five categories that were interconnected through the core category: time and space. Patients' and family carers' experiences of care continuity were closely related to timely personalised care delivery, where access to tailored information, regardless of who was performing a care task, was essential for mutual understanding. This required clarity in responsibilities and roles, interprofessional collaboration and achieving a trusting relationship between each link in the chain of care, over time and space. To achieve care continuity, all the identified categories were important, as they worked in synergy, not in isolation.ConclusionCare continuity for people with complex care needs and family carers is experienced as multidimensional, with several essential aspects that work in synergy, but varies over time and depends on each person's own resources and situational and contextual circumstances.Relevance to clinical practiceThe findings promote understanding of patients' and family carers' experiences of care continuity and may guide the delivery of care to people with complex care needs.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Complex care needs
- Constructivist grounded theory
- Continuity of care
- Family carer
- Omvårdnad
- Nursing
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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