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Bereaved Siblings' ...
Bereaved Siblings' Advice to Health Care Professionals Working With Children With Cancer and Their Families
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- Lövgren, Malin (författare)
- Karolinska Institutet
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- Bylund Grenklo, Tove (författare)
- Karolinska Institutet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Karolinska Institute, Stockholm, Sweden; Linnaeus University, Växjö, Sweden,Karolinska Inst, Stockholm, Sweden.;Linnaeus Univ, Vaxjo, Sweden.,Karolinska Institutet; Linnéuniversitetet
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- Jalmsell, Li (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik,Visby Lasarett, Visby, Sweden.,Visby Lasarett; Uppsala universitet
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- Eilegård Wallin, Alexandra, 1975- (författare)
- Högskolan Dalarna,Omvårdnad,Dalarna Univ, Falun, Sweden.
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- Kreicbergs, Ulrika (författare)
- Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Karolinska Institutet
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(creator_code:org_t)
- 2015-12-14
- 2016
- Engelska.
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Ingår i: Journal of Pediatric Oncology Nursing. - : SAGE Publications. - 1043-4542 .- 1532-8457. ; 33:4, s. 297-305
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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http://kipublication...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- Introduction: Siblings of children with cancer experience psychosocial distress during the illness and after bereavement, but often stand outside the spotlight of attention and care. This study explored bereaved siblings' advice to health care professionals (HCPs) working with children with cancer and their families. Materials and Methods: In a nationwide Swedish survey of bereaved siblings, 174/240 (73%) participated. Of these, 108 answered an open-ended question about what advice they would give to HCPs working with children with cancer and their families. In this study, responses to this single question were analyzed using content analysis. Results: The most common advice, suggested by 56% of siblings, related to their own support. One third suggested giving better medical information to siblings. Some siblings wanted to be more practically involved in their brother's/sister's care and suggested that HCPs should give parents guidance on how to involve siblings. Other common advice related to psychosocial aspects, such as the siblings' wish for HCPs to mediate hope, yet also realism, and the importance of asking the ill child about what care they wanted. Conclusion: Information, communication, and involvement should be emphasized by HCPs to support siblings' psychosocial needs in both the health care setting and within the family.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Cancer and Oncology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
Nyckelord
- siblings
- bereavement
- pediatric palliative care
- psychosocial issues
- health care professionals
- Health and Caring Sciences
- Hälsovetenskap
- Hälsa och välfärd
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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