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Health and Social S...
Health and Social Service Access Among Family Caregivers of People with Parkinson's Disease
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- Olsson, Yvonne (författare)
- Lund University, Sweden
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- Claren, Lena (författare)
- Lund University, Sweden
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- Alvariza, Anette (författare)
- Ersta Sköndal högskola,Palliativt forskningscentrum, PFC,Capio Palliativ vård Dalen, Stockholm,Marie Cederschiöld University,Marie Cederschiöld högskola
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- Årestedt, Kristofer (författare)
- Ersta Sköndal högskola,Linköpings universitet,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Ersta Sköndal Bräcke University College, Sweden,Avdelningen för omvårdnad,Medicinska fakulteten,Ersta Skondal University of Coll, Sweden; Linnaeus University, Sweden,Palliativt forskningscentrum, PFC,Linnéuniversitetet; Linköping universitet,Marie Cederschiöld University,Marie Cederschiöld högskola
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- Hagellf, Peter (författare)
- Kristianstad University, Sweden,Högskolan Kristianstad,Patient Reported Outcomes - Clinical Assessment Research and Education (PROCARE)
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(creator_code:org_t)
- IOS PRESS, 2016
- 2016
- Engelska.
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Ingår i: Journal of Parkinson's Disease. - : IOS PRESS. - 1877-7171 .- 1877-718X. ; 6:3, s. 581-587
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.3...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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Abstract
Ämnesord
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- Background: Being a family caregiver for a person with Parkinson's disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers' health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHP-Sleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members' needs.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
Nyckelord
- Caregivers
- health
- health services needs and demand
- Parkinson disease
- Health and Caring Sciences
- Hälsovetenskap
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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